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Jane2012
Jane2012 Member Posts: 1
edited June 2014 in DCIS (Ductal Carcinoma In Situ)

Hi all,

Last year I got the initial biopsy in my right breast as intraductal papilloma and low-grade carcinoma in Situ.  then the other well known hospital reviewed as intraductal papilloma with hyperplasia.  So, I did MRI on both breasts.  did biopsy on the left breast which is benign.   It was suggested to do lumpectomy on the right breast which documented presence of an intraductal papilloma with atypical hyperplasia in the right breast and no DCIS and no BC is seen from pathology report from lumpectomy.  I was so thrilled at that time but still wonder why two hospitals show differently?  I was suggested to do mam and sonogram every 6 months.  I was sent to oncologist and test some index which is low to the heromone treatment.  So, basically, no treatment is needed and follow up is needed.

After lumpectomy last august, I sometimes experience pain and is normal according to the nurse.  I did follow up this Jan on Mam and Ultrasound.  

REcently, I experienced more pain and is this normal too?  Sometimes, I still wonder I should get Mastectomy and get these worries off.   Why did the first biopsy show low grade DCIS at the different hospital than the one which I did lumptectomy?

Thank you very much. 

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited April 2012

    I had 2 lumpies for DCIS, hospital #1 said I was clear to proceed to radiation.

    Decided that a dif hospital for the rads would be better since I needed to work during rads.

    Rad doc at hospital #2, pulled a mamo and said I had more DCIS in a dif location, proceed to lumpie #3

    The answer was that they this time they found DCIS in a dif location that they...did not notice before. I figure dif techs squeeze the boobie dif

     I at times have some pain in the boobie but I just passed my mamo so ...

    But, I am now up on my 4 year aniversary of diagnosis so all worked out so far,

    pain, normal and does not mean anything of concern but then again, I brought up that subject last week to my BS

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Jane----they sometimes have difficulty differentiating ADH from DCIS; I think it kinda depends on what pathologist is doing the reviewing of the tissue samples. That's why a 2nd opinion is often a good idea.

    Anne 

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