Diep 2012
Comments
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What a lousy couple of days...okay week. I posted earlier about my migraine last weekend. Apparently it wasn't a migraine. Best guess is that it's a viral meningitis-like infection. Short of doing a spinal tap, they can't know for sure. Of course the possibility of a brain tumor has been discussed also, but nobody thinks it is that. We just can't rule it out because of my BC. Even though I don't think it's that at all, that adds a level of stress only we BC'ers can understand. My onc is out of town. I saw my PCP yesterday and she gave me a shot of Toradol and a steroid injection. I felt so much better yesterday afternoon, but it wore off last night and the headache is back. Not nearly as severe as before, but definitely there. I thought the shot would last longer than that. They did labs but didn't have the results back late yesterday. It just has to be some viral infection. Symptoms were sudden onset, stiff neck, lower back pain, nausea and vomiting, chills, light sensitivity, and a pulsating throbbing headache from hell. The nausea and vomiting only lasted 24 hours so gone since last Sunday. Now it's just the stiff neck, back pain and the headache that will not go away except for a few blessed hours after the Toradol injection.
Blah, blah, blah...whine, whine, whine. Sorry girls, I just needed to vent.
Oh, and in the middle of it all, they called to schedule my Stage 2. May 7th. If this doesn't resolve soon, I might have to cancel that.
Tammy- so good to hear from you! How did the scans go?
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Oh, Texas--that sounds miserable. I hope you get to the bottom of this soon. Sending you strength!
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TexasRose - so sorry to hear about your difficulties. I hope that you find that it's nothing major and that things clear up quickly. Headaches are my least favorite type of ache, they just suck! Hang in there!! HUGS!
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Cider8- Thanks you give me hope.
Mary- I will find out results of scan on wednesday when I go my Dr. Appointment, unless they call me before then with the results. I hope you are feeling better and they find out what is causing them soon. Headaches are aweful.
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I need more information about the DIEP. Waiting on date for double mastectomy. Radiation to follow so they do NOT want to do implants right now. They want to do DIEP at the time of surgery. Though they say the fat put into the breasts can't become cancerous, I am still bothered by the thought. Can anyone give me any info on this? My husband is frightened of me being under anesthesia for up to 7 hours (7 hours is what they are saying). I am considering no reconstruction at this time but at the same time I'm wondering if I should just go with it all.
Diagnosis, Friday the 13th of April. IDC, 3.4cm, Stage IIA, Grade 2, ER- PR- Her2- Infiltration present.
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@clowngirl - I think there's another thread that's called DIEP poll. Different people have talked about their experiences. I ended up under anestesia for about 12 hours since I did a BMX with immediate DIEP. I was worried about that too. I was no worse off than I was after the 2 hour lumpectomy procedure I had in January (my throat didn't hurt from the tube this time). And, I didn't have any real issues with resuming bowl function by the time I left the hospital (I was really worried about that). I'm only 5 weeks out, but I have no complaints so far. Other than the fact I'm still walking like an old person (although I managed a 6 hour walk yesterday), you can't really tell I just had major surgery!
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Had Diep 3 weeks ago and still creating lots of fluid in stomach. anyone knows what to do to reduce fluid.
Other than that, love the results!
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Clowngirl.. I'd love to know who said that the fat added can be become cancerous... That is not true. It is fat... there is no such thing as fat cancer.
And I had BMX and Hip flaps (then later had DIEP)... my first surgery was 10 hours (but they needed to flip me to harvest)... I was fine afterward, no issues from anesthesia excpet fatigue.
Or_service... are you using compression garments? Most PS will tell their patients to wear either a girdle or binder for a few weeks.
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Clowngirl wrote, "...can't become cancerous."
Delaying your reconstruction is certainly an option but, if you can do it all in one surgery, why delay? I had to delay and hate it. Anyway, good luck with whatever you decide.
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Clowngirl:
My wife is three and a half weeks out and she is doing great. Yes, the operation is very long and it is nerve racking to be outside waiting. The initial pain and tightness was very tough but each day it gets better. If you have specific questions about her experience she would be glad to share. She found it very reassuring to talk to those who had done it before and were doing fine. There can be complications but it can be smooth. We live in Northern California and have nothing but praise for her docs. Please send me a pm if you want to ask her specifics. Keep smiling Clowngirl. It does get better! -
Three days till I have my Bilateral DIEP - off coffee and ...sob... chocolate....this is going to be a long caffeine free 3 months ! I have been told to expect 7-10 days in hospital so I hope that it will be the shorter end! I will welcome any suggestions for beating pre -op nerves!
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My diep is scheduled for May 30. Mine is delayed because my onc wanted me to "heal" as much as possible.(after chemo and rads) At our last appt, she actually said she wished I would wait till next year. Its been exactly a year since my rads ended--I am ready!! Robyn, I'll be thinking of you this week. Try to keep yourself busy!! Do something for yourself--you deserve it! Guess I have a month to wean myself of my morning habit. RRggh not looking forward to that!
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I'm up May 1 (DH's birthday!) for UMX and DIEP. Stopped everything but the Arimidex and calcium/D. No alcohol or coffee? Wasn't advised about this.....Really, no Margarita or wine to get me through the weekend?
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I was told no alcohol just 24 or 48 hours before and after surgery - the caffeine was longer, especially after the surgery because it's a vasodialator and can compromise blood flow to the flap - and they DON'T want that - although some doctors don't restrict it at all, so it seems to vary from doc to doc.
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at my pre-op the day before surgery my surgeon suggested I go out for a nice meal and a glass of wine
And I had coffee while I was still in the hospital.
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We must have the same doc! (c:
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All my pre-op instructions (from PS and hospital) said no alcohol for at least a week before surgery. PS's instructions were no caffeine (or green tea) post-op, but they kept serving me iced tea in the hosptial (I didn't have any--I didn't want it). HOWEVER, I did have chocolate when I was discharged. I think it has to do with circulation and possible interference with meds.
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LOL, we just came back from our 40th anniversary celebration in Tuscany. Chianti and cappuchinos every day!
Fortunately the bottles we brought back are supposed to sit for 2 weeks to avoid bottle shock. At least I'll have something to look forward to.
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Bottle Shock...... good movie!
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Robyn and Chris - Good luck this next week with your surgery and let us know how you're doing once you're on the other side
cmblastic - your's is coming up quickly too!
I still have about 6 or so weeks before my turn yet it feels like it is rapidly approaching. I keep thinking of things (well, others ask me so I have to think about them) like who will bring me home from the hospital and how in the heck am I going to get in to anyone's car that I know....seems like everyone has a SUV of some type. My friend will be flying out from NC to stay with me a few days too. What all has everyone had to do PRIOR to surgery? I know I'll be having a CT scan but not sure of what else. I assume they check us out pretty throughly before a long surgery like that. It has probably been discussed on here somewhere but I swear that I am so flighty these days thinking about this surgery!
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julianna - they will draw some blood and do an EKG (heart stuff), and then just a general how have you been feeling conversation. I think that's it though.
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The pre-op nurse called to let me know to come in the day before to have dye injected for the node dissection, as my surgery is so early in the morning the next day. And she said not to worry about alcohol in moderation--some women drink from nervousness anyway. Forgot to mention caffeine, but I will avoid it a couple days before, along with alcohol.
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atv or something similar?
Dr. Loren Schecter is my PS. Along with my left ss ns mastectomy, sentinel node biopsy, and axillary excision by my BS, Heidi Memmel, I had immediate DIEP reconstruction. Have nothing but praise for Dr. Schecter. And LOVE that another micro surgeon from the practice and his PA were all involved with the DIEP so as to minimize number of hours in surgery.
Trust him. Trust what he has you do after surgery. I am certain that what he has you do is based on you personally and what he knows is tried and true for his patients. There are different directives depending on the surgeon. For instance I was instructed to NOT wear a bra for 6 weeks post-op. I did not have any type of binder, camisole, or any other like garment to wear post-op immediately or during the 6 weeks. Also no special girdle or garment for my DIEP either.
There are multitudes of reasons for complications, so there is no one thing to point to as to why.y experience did not involve any complications - no open wounds, no drain sites not healing, no drain incision leakage, etc.
Startedy third chemo drug today : taxol 12 xs over 12 weeks. I will have rads for 6 weeks after a 4 week break. And THEN after a break I will meet with Dr. S to discuss surgical date to remove the round patch of stomach skin that was placed to the left of my nipple and was where the Doppler was placed to monitor the tissue transplant. When that is removed I will have a horizontal scar in its place. If there is need for tweaking reconstructired breast with fat grafting then that will be done and if there needs to be anything to achieve symmetry.
Hope this helps. -
julianna51, my pre-surgery hospital visit included the CT scan (surprised that it involved contrast dye injection. of course it does, but I just didn't consciously realize it until I was there. Had hives in response. Not fun.) Also I was visited by a parade of people to teach me about the pain services (how the pain meds worked, how to complain if they didn't), the game plan on the day admission-wise, take notes of my medications and allergies for diet purposes, and to take swabs in various places to determine if I was bringing in those drug resistant skin bugs. I found it actually took the better part of the afternoon to see all the people. They came to me, in a little room in the preadmission clinic.
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Hi all. I was just searching for a discussion on the diep and found this one. I'm in eastern Canada and just waiting for a call with my surgery date. I don't know all the lingo or abbreviations...I'm having a double mastectomy with immediate diep reconstruction. They will do a sentinol node biopsy. I have high grade multi focal extensive dcis....yup it started off as a 3.5mm spot on my mammogram in nov and everyone was 97% sure it was nothing...just keep getting surprise results...now I am nervous about the lymph node results. Looking to pick up some tips to prepare and recover from surgery and maybe some bravery? Kinda scared today.
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goldlining - Thank you! I know every place is different but was curious about it anyway. I'm thinking they will contact me soon to set all that up...
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Welcome lavendarlady. You will find lots of useful accounts in this thread and the previous years.It is a very helpful place to hang out! Also check out the Canadian thread. :-)
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Wonderful information thank you everyone. I saw some posts earlier but not sure where (I'm new and a little lost) but someone was asking about anyone who had PS Dr. Klein and Dr. Lee out of Orlando. I would love to hear what they have to say. I've just finished with radiation and they say I now need to wait 6 to 8 months before scheduling my DIEP. I am so happy with the look of my breast (skin sparing, nipple sparing with expander) that I'm seriously thinking I could be happy with an implant. However now the PS are telling me that since I had radiation that an implant isn't an option any longer because of the failure rate. Anyone know anything about this as well?
Thank you so much.
Beth
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Hi BethFL, Glad you are through with your radiation. I had lumpectomy, chemo, and radiation followed by a double mastectomy. I had reconstruction with implants. After three surgeries and a serious capsular contraction on the radiatied side I decided it was past time to do something else. I was not told the high failure rate of implants and radiated tissue. I am now 8 weeks out from S-gap surgery. Didn't have enough belly for two breasts. It does feel much better to have the implants out. You are smart to do your research for choice of Doctors. Find the very best. I used Dr. Massey because she came so highly recommended. I know the travel for surgery can be a bit daunting but it can be done. I wish you well on the rest of your journey.
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Thanks everyone for your kind words of support. The advice and information here is invaluable. One day to go and just a little apprehensive about the pain and recovery. It seems that I feel normal and healthy now for the first time in more than a year of treatment and recovery. But I am sure that the results will be worth it! No more chasing a breast form around my undergarments!! Lol I will be leaving that at home!!
Good luck to you as well Chris for your surgery on Tuesday! It is nice having a DIEP buddy!
Curious- Has anyone been advised about taking tamoxifen before and after surgery? I have been given the info about aspirin and ibuprofen and caffeine but tamoxifen is associated with increased clotting and I haven been given any clear instructions about ceasing it for the DIEP.
Cheers Robyn
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