March 2012 chemo

Nsmolen- my thoughts and prayers are with you. I would definitely get multiple opinions. We are our best advocates.

nsmolen, (((((BIG HUGS)))), you are in my prayers.  Don't give up, there are so many success stories for triple negative girls.  My SIL has triple negative BC.  Please seek a second opinion or third or fourth, until you get a POSITIVE doctor, NOT DR. DOOM! 

Peace,

Caitlin 

Well I'm off for round #3 soon.  Might be a really long day if I haven't got my iron up.  Wishing for everyone to have a good Friday!

Spent the night in the ER. WBC is off the charts at 52. Gee, you think the neulesta is on overdrive? So I get to spend the day laying around and watching my temp. The work of a cancer girl is never done. Good luck with tx today lost!

Lost - good luck with #3 today.



Michelle - oh my on the ER. So do you think they will reduce your nuelasta dosage next time?



I am off to the dermatologist. Bah.

Sissydi- sorry to hear your tired. Impressed with how much you got done. My energy levels are quite low even on the third week after Tx. I am good between 10.00 and 5.00 but crash after that. Feel bad as I am not able to do much with the kids when they get home. I have tried to rest during the day to see if it helps but I crash in the evening irrespective of what I do. So I just do things during the day and rest in my recliner and watch the kids play. Can't wait for all this to end and be able to do things with them.

Sissy, sounds like maybe you just overdid it.  I'm several weeks out and still find myself tiring easier than I used to.  Frustrating.  Maybe limit yourself to one big chore on the days you feel good.

Katy, how are you feeling?  What is your status medically?  You aren't still in the hospital are you?  I hope you are up and better soon! 

Hugs to all,

Amy 

Back from dermatologist...the spot on my head is a seborrheic keratosis so it is completely benign.  I was in and out of there in 5 minutes.  Of course, it took much longer than that factoring in the 45 minute to an hour drive each way...oh well, at least it is off my mind.  Am quite sure I will have a new symptom to obsess about in a day or two.

RE: tiredness...this is my "good week" before TX and I am still tired a lot.  I find myself doing things during the day to get them done but by the time I get the kids from school I am exhausted. Kim, I am with you on the exercise, I haven't done anything since the day of the skunk.

Got done in time to come back to youngest DD's picnic at the park (my mom was already there as backup in case I didn't make it) and tonight oldest DD is having friends over after a school dance so I came home long enough to eat least make sure the bathrooms were wiped down and the house was picked up.  Now that I have sat down I don't want to get back up.

LOL Indigo you were posting just as I PM'd you - great minds think alike.

Oh I almost forgot, I could have used Shera's Supergirl today because I turned into crazy cancer bitch with road rage!!  Trying to pull out of a gas station parking lot and a huge dump truck was determined he was turning in.  Tried to force me to back up (there were cars behind me) and was just mouthing and waving his arm.  Well, I mouthed back and accompanied it with some rude hand gestures (hey, I'm not proud, but it happened) and then was forced to inch around him and just gunned it and squealed out of the parking lot going right instead of the direction I needed to go and turned around down the road.  I swear I am going to get shot if I don't calm down some days.

Hi Ladies: re neulasta... My day 3 of round 2, the day after I'd had the shot, my WBC was 68, but sank to 1 by day 9... Crazy hard to know if it's helping or hindering.

I came home from hospital on Monday (2nd time), and am joyfully still home. May the complications and emergencies be over, please. I've been slowly graduating from liquids to mushed food to soft food, and eventually back to real food. They want to fatten me up and build up my strength before re-starting chemo, so want me to have some supplements to boost calories and protein intake. Having trouble navigating all the different info re nutrition: low fibre for colostomy, high fibre for diverticulitis, but high fibre for chemo, on and on. Will see nutritionist next week to help me filter the info.

The plan is to restart chemo may 8, so two weeks after my scheduled third session. It could have been this coming week but they want me to be stronger, build my immunity more.

I am terrified.

I know chances are incredibly slim that something crazy will happen again to me, but the unlikely has already happened, and now I'm working hard to find courage and trust my body and the dr.s when they assure me there is no link between the chemo or the anti nausea meds and the perforation....

I know *sigh* I find myself using so many four-letter words that I tried not to use before.  People just love to drive down my street with their stereos blasting so loudly, I can even feel it in my chest as well as it shaking my house.  There was one that decided to go up and down the street the other day, and their stupid music wasn't doing anything for my headache.  I went out into the yard to tell them to move the hell away from my house - and my DS#2, with big eyes, said "Mom, people have gotten shot at for telling someone to turn down their music...." 

Not worth that - but, oh, I wish I'd had that hot flash tazer gun to fry their stereo!!

I'm waiting for my brother to bring me food then I will try a Benadryl. I've been at the docs everyday this week so I'm going to try that first.

KCB - just sending you all the positive purple energy I can spare!  I'm glad to hear you are out of the hospital again. 

Home from tx #3.  I had more shrinkage so feeling good about that.  Also got out of having to have iron by iv, I get to try pills first, glad of this because they said it was a 4 hour drip then I would get my regular tx. I even gained weight! Getting up at 4:30am was the hardest part of the day.

Sissydi- you did more in that one day than I ever would have.  But I don't mow lawns or do windows.

onvacation-I've heard of exercise, and that some people like it.

kltb-glad you got good news, please don't run over crazy people.  My DH about jumped out of our big red truck the other day when some woman tried to take our lane while we were still in it! never go to walmart on Sat.

indigo-I had to laugh about the towel because earlier this week I kept getting my whites out of the clean hamper, to much work to actually put them away.