Fuzzy's Romp Room
Comments
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Veggy PM
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Internet was messed up this morning
I met my new Primary. He is pleasant and asked what side was the BC and went to my left arm for BP. That's good...he is listening.
He didn't hear any irregular heart beat....I already knew because no attacks for 2 weeks.
He found me in good shape and up to date with all my appointments.
He will see me either every 3 months or 6 months.....BW twice a year.
So far so good.....I'm having a test not EKG the other one that it's done with US to check all the heart functions.......OK he is paying attention....
I keep him....Tuesday I have to go back for that heart test............
He is on the 5th floor...didn't take the elevator walked
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veggy...I'm free tomorrow will jump in the pocket last minute.
And about the coffee...don't worry accidently I put too much sugar in my coffee so you were covered.
(((Sisters)))♥
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SHEILA TO SHEILA -THAT TEST IS AN ECHO- CARDIOGRAM. IT SHOWS WONDERFUL INFORMATION ABOUT HOW THE VALVES FUNCTION, THICKNESSES OF THE WALLS, hOW THE ATRIA (TOP) AND VENTRICLES(BOTTOM) ARE WORKING IN CONCERT OR NOT, GREAT VESSELS--AORTA-----SUPER TEST --IT SHOWS HOW THE HEART IS FUNCTIONING. COMBINE THAT WITH THE EKG-ELECTROCARDIOGRAM---YOU HAVE ALMOST A TOTAL PICTURE OF THE HEART WORKING --------AND EACH ARE NON-INVASIVE, NO RISK------GREAT TESTS
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SHEILA TO SHEILA...THANKS MY FRIEND.....I HAD IT DONE 1987
SO I SHOULD REALLY BE LIKING MY NEW DR RIGHT?
HE ASKED ME IF I WANTED HIV TEST I SAID NO.....I HAVE WHATSO EVER NO RISKS FOR THAT.
LAST YEAR GYN DID HPV REST AND IT WAS NEGATIVE.
SAS I REALLY APPRECIATE ALL YOUR INPUT......IT'S NICE TO HAVE A NURSE IN FUZZY'ROOM
HUGS♥
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ONE MORE QUESTION...I USED TO EAT TOFU AND LOVED IT BUT NOW I'M SCARED BECAUSE OF MY ER+.....IS THIS A MYTH OR I CAN HAVE IT ONCE IN A WHILE?
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Crog.............thanks for the birthday wish, hope you got some cake too.
Sheila.................I feel the same way about "soy" products......also edamame............you hear all different crap about it.......I'm ER+ too..........I would love to do some of the high protein drinks from Trader Joe's, but 99% of them are "soy"....................I'm not a "meat" eater, so I don't get enough protein, and that is really a great way to get it, but who the hell needs "soy" making you estrogen heavy..................any answers ladies.....................
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Sheila to sheila, it'd take so research . Oddly I used keywords evidence based research and er+ and soy. Too much anecdotal stuff pulled up . not one evidence based article. So I need to change search terms. But food beckons.
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My MO told me not to drink soy milk as my primary milk with cereal, etc., but told me that if soy were waaaaaay down on the list of ingredients in something, I would be o.k.
I love the Designer Whey protein powder I get at Trader Joe's. Not made from soy.
(Or maybe I won't, after four months on Optifast...
)
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just wanna say a few words as my back is killin me and i have this sinus problem along with a banging sinus headache.
Veggie------you are always on my mind.
Ducky---Happy Birthday.Miss you my sista
I know there are other major pocket parties sooo just give this 120lb.DD some room.
good luck everyone...hugss to each and every one of you
all my love K
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Speaking of giant Barbies, here's another one. She's real, her name is Valeria Lukyanova and she lives in Russia. There are more pics here: http://thesuiteworld.com/blog/valeria-lukyanova-ukrainian-barbie-doll/
Maybe I could be the Human Cabbage Patch Doll!!!!!
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Sucky thanks for the cake.. We actually had cake today for my husbands birthday which is tomorrow. Will have more cake on Sunday as it is my youngest granddaughters 2nd birthday.....
Cindy -
Nancynow...I'm craving a piece of grilled Tofu to mix it in my salad.
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Nancy I do seem to be feeling better each day. Got a nice surprise tonight with the announcement that our son and girlfriend are getting married this fall. They have been together for sometime now and we already love her as a daughter in law.... What exactly did chemo do to your feet Nancy? I ask cause some of the problem I have in my feet could be chemo related. I just assumed that it was from the blood loss last year. Did the accupuncture help?
Cindy -
Both my ND and my MO say to avoid soy and other phytoestrogens. I use almond milk in my smoothies and whey protein too.
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veggy in your pocket we go.
i might need yall in my pocket tomorrow. had two big cries today-it had been a while since that happened. just feeling down & a little scared again. i HATE breast cancer.
i am back to my gyn next wk. had some bad pelvic pain & back pain last wk & this wk. the panic set in. i am post menopausal- but had 2 young relatives (early 40s) die of ovarian cancer. flashback before bc- had pelvic ultrasounds every 6 months & surgery for an endometrial polyp. want to talk about more monitoring to check.
i don't eat soy. i used to alot- i was 99% estrogen positive. and not to mention HER2 positive.
this barbie thread is a hoot! it's fun here in the fuzzinator's world.
(I have never had a PET scan. I used to want one- now I am terrified of having one).
again girls romp on. yall are the best...
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(((LisaGH)))♥
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Blessing.......thanks for the info, I'm going to Trader Joe's tomorrow, and will look for the Designer Whey.....................hugs
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Nancy, I too have peripheral neuropathy but from tamoxifen. I first had numbness in my feet and hands, then began having balance problems. I first asked my onc, she referred me to my PCP because of the balance issue. He diagnosed the neuropathy and said it can be a natural effect of aging but wasted to check something out and got on this laptop...Said, no probably caused by tamoxifen. That was nine months ago. So far mine is fairly mild. He said probably permanent and to monitor it. No change to date and he gave me tips on handling the balance issue and I'm getting along fine.
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I am awake and ready to go, almost.
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Fuzzy...how did I miss this??? Oh, I was in the midst of the medication debaucal - I missed everything...LOL.
Great thread! With the renewal of my brain (no, no mets there), I am catching up - my Lord, losing 5 1/2 months of one's life due to a 'transcription error' in my chart...while it could be a lawsuit - it was NOT my treatment team that did it to me but they would be impacted and I simply won't allow them to be brought down by an error that was not their doing - I LOVE my treatment team and they tried so hard to find the cause of my exteme mental decline above and beyond what could be expected - my main nurse literally would call me at home in the evenings - that is dedication and she stuck with it until she uncovered the error and remedied it immediately! I am here today and my scans from Monday showed no new spots, some slight reduction in existing areas, bone mets still stable, and all my blood counts are well within the normal range. TM's still dropping, pain is about the same but managable - not quite into where I am messing with the Stable Boy but sure headed in the right direction...wonder if I will get to meet NED???
I will celebrating January 18th every year - it is the morning after a week of detox hell that I woke up and knew where I was, who I was and was able to stand up, while a bit shakey, I didn't fall over like a tree. No more 'TIMBER' in my house!!! My fur-child (the Sheltie that thinks I am his 'sheep' no longer has to get out of the way so I don't fall on him!!! He is a much happier puppy dog (so, he's 10 but still acts like a puppy - I fondly call him 'Baby Huey' - I would be lost without him!
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On the NEUROPATHY front, for those who want info, I had ACT treatment, which is Adriamycin, Cytoxan, and Taxol for five months, wound up with chemo-induced peripheral neuropathy in both feet, mostly in toes and outside soles of feet, extremely swollen. I had it in my hands too, but it went away, with slight loss of manual dexterity. I had some neuropathy in my feet and lower legs to start with, couldn't feel pins they stuck in to check for it. My feet have been bothering me for years on account of back and feet fractures from car wreck, anytime I walk on concrete floors in grocery store, they hurt so bad. After chemo, and it's now more than a year since I began it, it feels like cotton wrapped around my toes, feet are swollen, they kind of sting, and as I said they hurt on hard floors.
LAUREN, really sorry to hear your schedule is so stupid, WHY can't they give you what you needed?! Oh, I would have been upset, too, those bunch of wooden heads. I didn't know you were going to have TWO surgeries, knew of one but not two, and knew about chemo after. I really feel for you, kid, so much. Let's see, recovery on one mastectomy that I had, took a week for me to get my senses back, which was shortly after drains came out. So, hopefully your surgeries won't take too much of your leave time. For me, it was the chemo that took away so much of my time, but you know about how that goes. I think you'll have enough leave time after smoke clears away.
SASSY, I was reading your advice to Cindy (crog) about how to watch for pain, numbness, pulse, and so forth, and I thought to myself, "Gee, I ain't even had a leg op, so what if I got all of those symptoms normally!?!" Hahahaha. VEGGY, hope your scan went okay, hope results okay too. SHEILA, thanks for reassuring me about yoru avatar, and glad your new doc is okay. But FUZZY used to have an avatar that just blew me away. It was when she still had her regular hair, and her face was looking up from a pillow, and she was as lovely as any woman I've seen. Fuzz is crowned my real sister and I love her.
LOWRIDER, good to see your name on the forums again, your dog is like my dog. My dog, tho, while being an Aussie mix, is taller & leggy, nearly all white except head, plus his tail curls up, he may have some greyhound in him. I would very much like to hear about the medical error that was made on you, but only "go there" if you want to. Here's a link to some dog reunions with soldiers I came across today: http://welcomehomeblog.com/?s=dog And here's my Smokey:
ALL, I may have to go see my neurologist sooner than September. I wanted spring and summer off, but my back has become intolerable and I can barely enjoy the better weather. Neuro is stingy with opiates, altho I take them. I just needed a stronger one and he held off. It was my psych doc who took pity and gave me Lyrica a few years ago when I cried over the pain. Gotta get a better back brace too, but it can wait until September. As for my cancer, I am convinced I do not have any left in my body, hopefully the CT scan in the fall will confirm my belief. I recall a movie took place at turn of century, where two friends, one an African American maid to a high-class white woman, the maid wound up with the death sentence, and the white woman visited her for the last time in jail and asked the maid if she KNEW there was an afterlife, and the maid said she didn't know, "But I BELIEVES." Just believe, my sisters, and grace will be with you always. Love, Gail
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OMG Lowrider - I'm a transcriptionist and seeing how a transcription error caused you so much grief just gives me the heebies. I'm EXTREMELY careful with my work, but this really freaks me out to read this. (((((hugs)))))
veggy - that cat needs a snooze button.
In a rush today because of going out of town with my daughter to play in a tennis tournament this weekend (her, not me - didn't word that well), but hugs to everyone who needs one and hope you all have a great weekend!
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Nancy I think you are right on what chemo can do. I know I have a little neuropathy in the left foot. I am not sure about the right thought cause I had the blood clot which prevented blood from getting to the foot and I have blamed my numbness due to that, who knows.... I am also using gababentin but not sure if it is doing anything for me..... I absolutly hate taking all of these drugs.... Thanks for the congrats we are just so happy about the engagement......
Cindy -
I'm back. I tried to keep my eyes closed but I would peek. Bad thing to peek. So close to the top of the machine. Finally the ativan worked and I fell asleep. My husband took me out for breakfast. and then we did some shopping. I felt drunk trying to walk. I fell asleep on the ride home and stayed in the car and slept. He brought me a blanket and I slept for 2 hours. I'm glad this is over with.
Thanks sistas!
Gentle hugs!
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Dogeyed you just reminded me that with this last operation I just had I woke up to a drain in my leg. Brought all the memories of having drains after mastectomies back to me... Luckily I did not have to come home with it in....
Veggynglad you are done with that and the Ativan worked for you....
Cindy -
(((((((((((((((((veggy)))))))))))))))) thinkin about you all day.yay one more thing out of the way...and you slept...another blessing and another step closer.
LowRider-----nice to see you and so sorry for your problems.
still tryin to catch up...huggggs everyon K
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Lisa, how did your test go?
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Veggy, I peaked too and determined that I would not do that again. I just close my eyes and imagine myself in Hawaii, next to a natural pool and a waterfall.
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Veggy---so glad you took the ativan yeah--------but shopping afterward that wasn't in the suggestion.
to see or not to see that is the question? Or is it to spell correctly or not.? or is it to to decipher/
wtf?
I just tried to read whats all going on and we seem to be pretty reasonable.y sane.
where is Fuzzy? --------Fuzzy I went through a few periods in my life that were strange------anywhere from Bipolar to depression over 40 some years. What I learned, hold on to those that care---WE CARE----- in the worst moments, call someone that cares. All that care about Fuzzy and don't care what time she calls, PM your phone number.. Fuzzy depression sucks been there done it -----it bleeds the life out of you---------you have to take your life back. On the Bipolar part----------I was young and MH was not available- unless you were so far off the grid-----------once I realized that I was going towards the high , it meant I was going to drop .------I had no MH anybody to describe for me at the time what was happening, I just knew what was. I decided to stop it. When it started to happen I said "no". The drop was depression. I called friends that would talk, who understood I needed to talk at that moment. It worked. Connecting with another in a moment of need is a basic human imperative. So, sweetie you have lots of us. Also, you can come see me and we can go see Harry Potter and pretend. You have control. Their may be moments that it seems that you don't, but you do. I think of Peter Pan and Tinkerbell and clapping for Tink. Made me so happy when Tinkerbell's lights became brighter. I'm clapping for you dear one, we all are. Love you sweet one , sheila
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