Finish my sentence... I'm sick and tired of...

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  • She_Is_Virgo
    She_Is_Virgo Member Posts: 28
    edited March 2012

    I'm sick and tired of this friend who always asks: are you cured? No I'm no friggen cured! I've told you a million times I have IBC. ITS FRIGGEN SPREAD ALL OVER MY BODY! What's so hard about understanding that. To which he replies, glad you're doing good. Eurghhhhhh



    You look awesome! Really, I've been bald for 18 months duhhhhh



    Wow, you've been so strong. Hmmm. That's because you're not in my bed when I feel like dying because the pain is so bad!!!

    
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  • MadisoninMd
    MadisoninMd Member Posts: 87
    edited March 2012

    People who continually buy me "pink" stuff... enough already!  I know the intention is good, but do they really think I want a contant reminder?  I think about it enough thank you very much.

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  • venaba
    venaba Member Posts: 22
    edited March 2012

    people at work and my friends  expecting me to whine and complain to them.  When I don't then they feel as though I must not be all that sick (IBC).  I prefer to deal with breast cancer in my own terms not theirs.  My husband lost his first wife to cancer and I think he told my DX harder than I did.

     I have felt closer to my aunt because she is a 23 year BC survivor.  I lost an aunt to IBC even though I am BRACCA negative. Thanks for letting me vent!  I needed that!  This site is awesome.

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  • camillegal
    camillegal Member Posts: 16,882
    edited March 2012

    People do say some way out stuff---I had an acquantence tell me she couldn't believe I LET them take my breasts. I started to laugh and said What was I going to do with them rent them out as a playground? Who cares there gone, they were attacking my whole being. But she was adamant about what a poor decision I made. I was fine with this decision.

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  • She_Is_Virgo
    She_Is_Virgo Member Posts: 28
    edited March 2012

    All I can say is /sigh to all those people who are more ignorant with each breath they take.

    Most people don't know what to say, or say the dumbest things. 

    I haven't had to have any body parts removed, but if I would have had a mastectomy I would just say:  "those girls did their job, now on to better things" LOL.

    Sorry you go through that.  The main point is you did what you felt was best for you!

    Regards,

    Carmen

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  • vanlex
    vanlex Member Posts: 121
    edited April 2012

    eye twitches

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  • barbiecorn
    barbiecorn Member Posts: 437
    edited April 2012

    I am just sick of people in general who do not have this dreadful disease and think they have all the answers...I am also sick of being scared and sick of people asking me how I am doing...the only ones that can ask me that who do not offend me are the gals on these discussion boards....(((hugs)))

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  • babsbrink
    babsbrink Member Posts: 314
    edited April 2012

    of people giving me with "the look", head slightly tilted down and to the side, sad questioning eyes, then the "How are you doing today?" spoken in hushed tones.

    of being told how nicely shaped my head is. So I don't need to wear a hat.

    of being told how strong I am, so I don;t need to worry, because I am going to be just fine.

    of never having even one hour without remembering I have cancer.

    of CANCER!!

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  • barbiecorn
    barbiecorn Member Posts: 437
    edited April 2012

    Babsbrink - I am right along with you - especially waking up every morning with that same dreaded thought in my head - if I don't keep constantly busy, it is the only thing on my mind....what a cross to bear....How can and will we ever be able to not think of this for just one day?????

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  • teeballmom
    teeballmom Member Posts: 322
    edited April 2012

    People telling me about the awful medical problems they had years ago when they ask me how I'm doing with the diagnosis.  They mean well and are trying to relate somehow to me, but really, how do you compare BC and acne problems?

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  • arenee98
    arenee98 Member Posts: 21
    edited April 2012

    I'm sick and tired of not being able to sleep in my bed without pain.  I'm 3 weeks out from my BMX with TEs and I can't find a position to sleep in that doesn't hurt at least somewhat.  I slept in the recliner for 2 weeks but I got sick and tired of that, too. 

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  • vickilind61
    vickilind61 Member Posts: 338
    edited April 2012

    not a day going by without talking about the cancer

    new, worse info every week, changing the entire approach of treatment

    having to wait for yet MORE test results that will be (see above)

    not feeling assertive enough when dealing with some of my care givers

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  • nibbana
    nibbana Member Posts: 464
    edited May 2012

    the resource people. I know, well intentioned, but people send me piles of brochures and spend money on postage when I can get the same information with a Google search.

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  • wasgij96
    wasgij96 Member Posts: 21
    edited May 2012

    Thanks for sharing these. I have a GF who just got the shitty news in Jan and its hard to figure out what to say/not to say.

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  • barbiecorn
    barbiecorn Member Posts: 437
    edited May 2012

    I am sick and tired of hearing about all the young people getting BC...there are so many ---- never heard of years and years ago like we are now.

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  • RosesToeses
    RosesToeses Member Posts: 721
    edited May 2012

    people (not medical people, mind you) deciding what I need both physically and emotionally--so sorry if I'm not playing my role correctly and on your schedule, but you see I actually have a lot going on right now...

    Followed shortly by: people who suddenly feel like they need to spend lots more time with me now that I have cancer--well meant, I'm sure, but I actually have less time not more, what with my usual roles in this life plus now time spent in medical testing and appointments and preparing for surgery.   I feel like they want me to make them feel better and no one really wants to let me call the shots...

    On the other hand, thank God for my husband's family, they have been wonderful and actually helpful!

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  • purple32
    purple32 Member Posts: 3,188
    edited May 2012

    ... having cancer be my first thought of the day,

    and my last thought   ...

    and popping up in between all of my 'regular' thoughts during the day.

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  • purple32
    purple32 Member Posts: 3,188
    edited May 2012
    This is precisely why nobody at my job and no one but a handful of people have been told about this BC.  Not everyone has that option. I know that , but for as long as I can - I will not be defined by this cancer.  " THIS" cancer ...not " MY cancer "  ( have to keep reminding myself though  )
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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited May 2012

    I could not have expressed myself any better....yeah the FEAR!!!!!!!!!!

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  • lisa2012
    lisa2012 Member Posts: 652
    edited May 2012

    I identify with all of these and some made me laugh. How did this happen? I want my old life back too. I'm sick of trying to figure out why I am way too low energy to work when others make it through. Why am I so fatigued? I feel like I'm about 90 instead of 56.

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  • lisa2012
    lisa2012 Member Posts: 652
    edited May 2012

    I identify with all of these and some made me laugh. How did this happen? I want my old life back too. I'm sick of trying to figure out why I am way too low energy to work when others make it through. Why am I so fatigued? I feel like I'm about 90 instead of 56.

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  • mumito
    mumito Member Posts: 4,562
    edited May 2012

    checkups,scans and constant worry.

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  • NevadaPaula
    NevadaPaula Member Posts: 42
    edited May 2012

    My husband wouldn't let me talk about my cancer, or teatment. When I tried to tell him what I was going through, he would loudly bellow, "Here we go again." He refused to meet my oncologist, and he did not want to learn about my treatment. He is still ignorant about my diagnosis.

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited May 2012

    Great board ladies... hope you dont mind me jumping in here.

    Think you have pretty much covered off every pet peeve here.  

    My latest is because I will have have a mastectomy people saying to me "oh no... but how do you feel about losing your womanhood'?   I am so pissed at hearing that my response really isn't that polite anymore.   My answer "My t*ts are not my womanhood, they do not define me the same as cancer DOES NOT define me... plus the real one is trying to kill me..what would you do". 

    Thanks I feel better just for sharing that.  I am so mad at people sometimes, however well intentioned they are. 

    I bet we can relate to ever comment here at some time since our diagnosis.

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  • barbiecorn
    barbiecorn Member Posts: 437
    edited May 2012

    Some people are just plain dumb...throw them into that fire with all their stupid comments.  Did they ever hear of saying nothing at all.  That works!!!!  ugg!!!

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  • rava
    rava Member Posts: 49
    edited May 2012

    Tired of people asking me what my prognosis are? Ehhhh...

    Tired of twitching eyes.

    Tired of hurting feeth.

    Tired of feeling like I'm 90 years old when I'm out walking my dog...

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  • lisa2012
    lisa2012 Member Posts: 652
    edited May 2012

    One colleague told me it must be hard, she would hate to Lise her breasts. Another friend said (before my double mast) to be sure and let myself grieve the loss of my beautiful breasts. I tartly replied that they didn't seem so beautiful to me once they had cancer in the, and I was happy to get rid of them!!

    We gotta assume they have good intentions but are not thinking very well dumb, in fact!!

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  • barbiecorn
    barbiecorn Member Posts: 437
    edited May 2012

    Another good one was a woman in work had breast cancer prior to mine and she had a lumpectomy as opposed to BMX which I had.  Her comments when first hearing about my BC to me was "Oh boy, I don't envy you" and that was coming from someone who had BC.  I would have thought she would have given me some encouragement as a BC survivor but she made me feel worse.  So yes, there are many dumb people out there but I would have thought another BC survivor would be more compassionate!!!  Let's throw her into the fire too...lol...

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  • lisa2012
    lisa2012 Member Posts: 652
    edited May 2012

    Yes, and the horror stories. One included arm amputation 25 years ago from infection. Did she really think that would help me? I just responded that I was pretty sure surgery and treatment had gotten a lot better. Sheesh!!!

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  • barbiecorn
    barbiecorn Member Posts: 437
    edited May 2012

    Is everybody crazy??? Throw them all in the fire and leave just us normal people around!!!

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