MIDDLE-AGED WOMEN 40-60ish

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  • Ossa
    Ossa Member Posts: 919
    edited April 2012

    I am in your pocket Barscol.. Welcome back Barbe

    I will bring cheese and crackers for the pocketparty

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  • cmbear
    cmbear Member Posts: 1,086
    edited April 2012

    So good to see you back Barbe---missed you!!!!

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  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited April 2012

    Welcome back Barbe!  Good luck today Barsco, I'm at work so good thoughts for you today. Kitty

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    Barsco,  May it be a dull and boring CT for you today.  We need excitement, but not that kind.

    Barbe, Sometimes technology "forks" with you, sometimes it's the open highway.  Just paraphrasing from your tagline.  The good news is many visits and procedures have come and gone, and about the worst of it is that Dianarose might topple over on one side.  (Just read back one page for that.)  And jo got a surprise hematoma bonus procedure and hospital stay.  You did miss a hot man (with hair on his chest!) jumping out of jo's birthday cake. 

    I wonder if the pocket posse would like to share my snack of yogurt stuffed dates?  The picture makes them look ginormous, like potato skins.

                                               

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited April 2012

    not to mention GROSS!

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  • Paula66
    Paula66 Member Posts: 1,728
    edited April 2012

    as long as its not greek yogurt, YUCK!!!!! I know lots of peeps love it. I'm just an old school kinda gal. If at aint broke dont fix it. 

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited April 2012

    Thanks for the PP everyone! I got some strange looks as I was licking the chocolate outta my pockets after the procedure - waste not want not! Eli - no leftover dates so someone sure liked them. Ossa - cheese and crackers is one of my favorite go to snacks. No results yet but hoping for some by end of day

    Welcome back Barbe!

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  • madpeacock
    madpeacock Member Posts: 369
    edited April 2012

    I admit it. I ate the rest of the dates when Eli wasn't looking. Dates, Greek yogurt, and pistachios? Om nom nom nom....

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    LOL, madpeacock!   I like that chewing noise and will have to use it.  So much more ladylike than my usual chomp, chomp, chomp. 

    Had to paint a deck today. I acquired this already painted deck along with my house and it has been mine to re-paint ever since. It took me two CDs to get it done.  How long it that?  I did have time to realize that it was a lot of work with my treatment-side arm.  Then, I had additional time to see how uncoordinated I was with my other hand, which was pretty bad, so treatment side did most the work anyway.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited April 2012

    barsco I'm in your pocket too.  I'll try to find something yummy to bring.

    Barbara welcome back we have missed you.

    Day two of going back to work as been good.  Everyone that comes it says how much they missed me.  Good to feel needed. Already back at working on a project that needs done and is due in a couple weeks.

    edited to say I was at work and had typed this up and forgot to hit submit.  so it seems out of order.

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  • reesie
    reesie Member Posts: 2,078
    edited April 2012

    Welcome back Barbe. Crossing everything for your scans Barsco. Glad work is going well Sherry.



    Sorry I've been away but dealing with one mouth issue when another decided to pop up. Had to get a tooth pulled today and it's not even on the side that started my journey with the oral surgeon. Ugh, still have to deal with that. Good news that it's not ONJ though.

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2012

    Where is everyone ???

    I went to the BS today for a check up. It has been 16 days post-op and I feel great. She was amazed at how good I am healing and said it wasn't what she expected at all. She was acting a little different and had my Onco type results in her hands. I asked her if they were as ugly as my path reports and she said NO. My score was a 6. The question is now what? Even with positive nodes chemo is not going to benifit me. She said she will be curious to know what the MO says on Monday. I am so glad I insisted on the test and didn't sign up for chemo for nothing. The MO had predicted my score would be in the middle. I am just not the norm.

    I hope everyone is doing ok.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited April 2012

    Dianarose that is great I can't believe the score is so low.  My score was a 23 and I opted out of chemo

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2012

    http://www.ecog.org/general/gendocs/tailorx_oncodxfact.pdf

    Sherry- The link above explains the Oncotype scoring really well. What was your recurrence score? My Onco score was 6 and my recurrence score was an 8.

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  • fmakj
    fmakj Member Posts: 1,278
    edited April 2012

    E - Still lurking..... just a few pages behind..... now caught up!  Thanks for thinking about me! Kiss

    Claire - that sounded horrible!!  However, whenever I get an IV, it usually gets done in my hand.  Now the best place to have contrast shot in.... and I have never had Chemo - just bad veins!  Will be in your pocket for even the smallest procedure!

    Great to see you back Barbe - I lurk a few threads that you post in and just love your humour!! You HAVE been missed!

    Hope everyone has a great week end!

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited April 2012

    I am home now, pain is crazy , i hate it . my surgery was over 8 hours hope u gals had plenty to eat. they placed me on a morphine pump and it sucked , I vomited so bad and itched and couldnt sit still .then i couldnt pee and it hurt so bad , had to be catheterized , i had 1200 then 1600 cc no wonder i was crying .they changed pump to dilaudid , I did ok after that . now I pee on my own . have 2 drains not alloud showers until they come out , they can come out when i have less than 25cc in 24 hrs , i am draining 60 in 24 hrs. i feel like someone slammed my chest with a steel beam. i couldnt sleep in recliner . so my mom bought me new pillows and we propped  them up in bed .. sleep a little better now . glad to be home . I missed u all ...nodes were clear so far. im on percocet and zofran and keflex. also take bensdryl for itches . glad to be home . xoxoxo

    Anyone that needs me I am once again free to pocket jump. sorry i dont know too much of whats going on , i was reading but I am so tired i cannot remember what i read .. luv and hugs  

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited April 2012

    Damn---I hate what this crap does to us.  Hang in there lisamarie 

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited April 2012

    Lisamarie - sending you healing vibes and best wishes for a quick recovery.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    Reesie,  I feel for you.  That's sounds like the kind of luck I usually have with my poor teeth.

    D-rose,  I can believe it.  Look at Eph's Dx, and she came back with a high RS score.  Sometimes there are Oncotype surprises like that.  Your MO will get the final word, but I am betting that you will just get hormone therapy.  As helpful as Oncotype is, a large number of ER+s fall in the middle range (like Sherryc and me, too) and then it becomes a more personal decision.  My score was 18 and chemo offered me only a 2%-3% benefit, so I didn't do it.  That only is how I feel about it, but some do want any extra benefit that the Beast won't return.

    lm68,  Oh, oh, oh!  Your story made me cringe, especially the catheter.  Very happy to hear your nodes were clear.  (I guess I haven't been paying attention, because I didn't think they had to get the nodes out for DCIS or LCIS?)  You need lots of rest now, so I thought you might like a manservant for some help around the house.  I'd wait til you feel a little better before mentioning "steel beam" to him.

                                       

    Don't forget:  Paula66 is supposed to be by today with the second edition of  Weekend Mystery Pic.

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  • Paula66
    Paula66 Member Posts: 1,728
    edited April 2012

    here is the MP since Eli was so generous to let me do it!  The one and only time whining paid of for me, yahoo!

     

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  • Meece
    Meece Member Posts: 19,483
    edited April 2012

    It's lips

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  • Meece
    Meece Member Posts: 19,483
    edited April 2012

    Well, actually a whole mouth stretched wide, but a lovely shade of lipstick.

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  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Elimar, why doesn't my cleaning person look likeyour duster boy?

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    Gee, Momine, if you are not hiring ones that look like that, you are violating the Un-Glamorous Laborers In-Eligibility Statute that is the standard we hold to on this thread.  We forgive you.  You have suffered enough.

    I think Meece is onto something with the Mystery Pic, but I will guess Life Saver just in case.

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2012

    Elimar- Have you ever heard of PAM50? I came acrossed it while looking for something else. It is very interesting and might give you and Sherry a little more peace of mind about your decisions. I am going to attach the 2 links.

    http://theoncologist.alphamedpress.org/content/early/2012/03/14/theoncologist.2012-0007.abstract

    http://oncozine.com/profiles/blogs/oncotype-dx-and-pam50-breast

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    I don't know if the PAM50 sheds more light for Oncotype intermediates or not.  I already know I am Luminal A, which does have good outcomes quite often.  If I were to take the PAM50, I would have a 50% (as per article) to be "reclessified" into the low group.  However, what does that mean when the next paragraph says:

    “However, intermediate risk groups by one assay often include cases with discordant risk prediction by the other method. When discordant risk results are obtained it is currently unknown which assay will predict outcome more accurately.”

    So one test may be more accurate for me than the other BUT WHICH ONE?  So, back to being intermediate, with a chance I might be lower.  Maybe.

    Well, it's a start, and with more studies they can fine tune it to be more predictive for intermediates.  Thanks for sharing the article.  

    You know, 18 is just over the intermediate border for OncotypeDx, but the way I looked at it was that 17 would have been the same for me OR what if they drew the "line" between 18 & 19?  When my doc said I would only benefit by about 2%-3% and he doesn't usually recommend the risks of chemo unless the patient has a 5% benefit to do it.  That's arbitrary too, but it seemed reasonable.  I like reasonable.

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2012

    Elimar, I  have no idea what the MO will say to me on Monday. He did say the cancer in my nodes is the same that was in my breast, so I can't see how the chemo would benefit me. One surgeon told me it doesn't matter what the Oncotype said, I beg to differ with him. I just wish there were more answers. I am going to ask if I qualify for the vaccine. I am not sure how that one works.

    I agree with you that reasonable is good and if he is going to suggest chemo I want to know it makes sense and not just a shot in the dark. I figure if my chemo has no benefit why would I want to lower my immune system and the cancer then will be stronger than me. If my score had been 25 or higher I would have thought chemo then would be reasonable, but not with a 6. I was more upset yesterday with the news of the score than all the other bad news I have received lately. I am not sure why, but I actually felt sick to my stomach. It's all confusing.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited April 2012

    Dianarose My onco score was a 23 with a 14% recurrence rate.  Chemo would have only benefited me 3% and my MO did not feel it was worth it unless it would benefit me at least 5%.  I had two opinions and both said the same.  However my MO did  say it tumor had been 2cm or if my KI67 had been over 10% he would have recommended it no matter what the onco score was.  I was a little leery of not doing it with such a high score but I am now doing Zometa every 6 months for three years which is suppose to lower recurrence rate alot for pre menopausal early state BC.  MO has been following the study and when it was present in Dec he felt I was a great candidate.  I have done one infusion and no SE's

    Lisamarie so glad your home but hate that you had so many problems with the morphine.  I think I stayed in a morphine coma while I was in the hospital.  but that is OK sure beets feeling the pain.

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2012

    Sherry- I don't see anything about my Ki67 on my path reports or the Onco score pages. Is this something I have to request they do?

    I think my largest tumor was 1.5 cm. Most of the cancer was very small and microscopic which doesn't help in my decision making process.

    Have you changed your diet at all knowing that you are ER and PR positive? I found this site that lists foods that are high in estrogen and foods that block estrogen. I will have to research it further, but I posted it for you to check out. I don't trust everything I read on the internet.         .http://dogtorj.tripod.com/id45.html

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited April 2012

    diana the KI67 should be on your path report.  You will not find it on the oncoscore.  And yes I have lost 25 pounds with diet and exercise.  I eat alot less meat and more veges and whole grains.  When I was diag I asked all my Dr's what I could do to help not get cancer again and they all said the most important thngs was exercise and the next was good nutrition. I have also tried to go cleaner with all my personal products.  As I have had to replace things I have gone with paraben and sulfate free products. I'll check out the website I am always in to reading new things.

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