DCIS Stage 1 now met in lung

mimi40
mimi40 Member Posts: 2
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

This must be rare for DCIS, high grade, micro invasion 1 mm, no lymph node involvement. w/ mastectomy and radiation to have a met in their lung.  The met was found by accident after an MRI on my liver.  Only 1 met, 13 cm, and it was just surgically removed. Does anyone know about life expectancy in this instance?  I was reading approx 2 years w/ a met from breast cancer.  Here we go again!  :( 

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  • sweetbean
    sweetbean Member Posts: 1,931
    edited April 2012

    Mimi, I'm so sorry to hear about this.  I don't have any experience with this, but hopefully somebody will come along soon who can give you some advice.  I can tell you this, don't believe the numbers.  The numbers are ten years old and are the result of studying women who didn't have access to the same treatments we have today.   I will be thinking about you - it's time for a cure.

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited April 2012

    mimi - sorry that you are dealing with mets. I agree with sweetbean that you need to throw the numbers out the window. They are not current and no one has an expiry date. There are lots of metsters here that are surpassing expectancies.

    Sending you hugs and smiles - hang in there.

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  • Beesie
    Beesie Member Posts: 12,240
    edited April 2012

    Mimi, I'm so sorry to hear about this.  

    I had a microinvasion along with my DCIS too.  It's the microinvasion that presents the possibility of mets, not the DCIS. I had clear nodes too and I was told that there was about a 1% chance of mets from the microinvasion, although I suspect that the risk is probably a bit lower than that. Unfortunately, even if it's only one person in 500, someone is going to be that one person. I always remind myself that even though the odds are really low, it still can happen and it could be me.  I am so sorry that this time it's you. 

    As for the prognosis in your situation, every case is different.  If you had just that one area of mets and it was all removed, you might again land on the short side of the odds, but this time it would be good news.  You might have many many years ahead of you.   

    (((Hugs))) 

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  • Nanorama
    Nanorama Member Posts: 50
    edited May 2012

    wow, they were able to remove the met! That's great news.  I'd focus on that.  Practically everyone on this board knows someone who has proven their oncologist "dead" wrong (excuse the double entendre).  As sweetbean noted, the stats are (a) out of date and (b) based on large groups of folks, including people who receive substandard treatment, live far from decent medical care, etc. etc. If you were to do a study solely of people who get appropriate care, who don't have a lot of comorbidities, etc., the statistics would be quite different. 

    You know this, I'm sure... none of us has the "pink slip" indicating our day of departure from this earth. You can have everything in this world, and one morning go out to walk the dog on Fifth Avenue in NYC and get run over by a cabbie (as happened to a billionaire's wife not long ago).  So the trick is to enjoy where you are right now, appreciate the springtime, listen to some great music, hug someone you love, and not waste time fearing the uncertain future.  

     Lots o luck to you!

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