WTF... My body is self destructing :(

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MiniMacsMom
MiniMacsMom Member Posts: 595
edited June 2014 in Stage III Breast Cancer

So, I went to the OB today to check on my PCOS.  No big deal right... Well apparently I get to celebrate the end of my chemo with a 7in hemoragic complex ovarian cyst!!!  YAY, no so much.  So far we are on a wait and see, follow up US in 5 weeks.  Before then I am supposed to go to TX for revision surgery on my margins and appts with my RO.  Has anyone had one of these.  I am so freaked out and comfused :(  I spent 4.5 hours at the OBs office today, so I am not very happy.  Thanks for listening.  Oh, and I am on low activity to prevent ovarian torsion.  Apparently I am now at risk for my ovary spinning on itself and cutting off blood flow :(.   On an up not, my other (rt) ovary is still activly producing eggs and my uterus looks good.!

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  • Galsal
    Galsal Member Posts: 1,886
    edited April 2012

    Holy Cow...when it rains it pours!  Pleading in the best voice I can with this line from 'Blazing Saddles' - do what he say, do what he say!

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  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2012

    My oldest DD who is turning 26 next week, had a ruptured ovarian cyst at almost 17...then more started developing...so she's been on the pill since then....I worry about her when she goes of the pill to try to have kids....Wish I had some words of wisdom for you.....(((((((((((((((HUGS))))))))))))

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  • Momof2inME
    Momof2inME Member Posts: 683
    edited April 2012

    So, so, sorry you are going through this. I am guilty of sometimes forgetting there are other parts of my body still functioning or may have problems too. BC gets all consuming at times. I really feel for you. I have PCOS too and have had 2 cysts rupture a few years ago. Painful to say the least. I hope you are able to rest and praying it will resolve on its own. Keep us posted..

    {{{HUGS}}}

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  • camillegal
    camillegal Member Posts: 16,882
    edited April 2012

    U poor thing---now u have to wait for these things. Ouch--I wish I could help u in some way but I'm pretty useless, just caring. I hope all goes well for u. But u watch someone will come on and know more about this. See now I have a pain in my ovary that I don't even have anymore--I'm so sorry.

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  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited April 2012

    :)  Thanks for all the virtual hugs.  Its really not painful.. I would never have known it was there.  I have had smaller, simple cysts that hurt more.  Its just the unknow (hemorroragic SSp) thing that freaks me out so.  That and staying on my surgery/radiation schedual.  If I am honest, I am a little scared about ovarian cancer since I am BRCA 2+, But I am really really trying not to go there in my head.  Deep dark places and all.  I am just trying to get all my medical issues on the table now so we can deal with them now.  I intend to be here a while, and I don't want something to sneak up on me again...  Thanks again for all the hugs.  I have a call in to my big gun Docs down in TX so hopefully I will hear something tomorrow about my timeline.

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  • JadeGirl
    JadeGirl Member Posts: 35
    edited April 2012

    I know it must be hard right now but hang in there.  You're right, don't let your mind go to that dark place - keep moving forward and tackling everything one at a time if it comes to that!

    I had an ovarian cyst (can't remember what type, but it was large) removed during treatment and it was a breeze compared to everything else I had to go through.  I too had no idea it was there till they saw it in a scan, the doctors could not believe I had not noticed anything before... although, I did feel a difference after it was out, now I don't have to go to the bathroom as frequently! haha

    I had 'belly button' keyhole surgery (2 small incisions under my tummy and 1 through my belly button) and other than the hours after waking, did not feel any pain afterwards and what I did feel was relatively minor compared to my mastectomy pains.  The best part was waking up in time to hear my doctor tell my husband that it was benign.  I also healed pretty quickly afterwards. 

    Hope this helps and all the best with the big guns!

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  • DCMom
    DCMom Member Posts: 624
    edited April 2012

    After starting tamoxifen I had a cyst on my ovary they followed once a month for 3 months.  It changed sides and position but they "couldn't be sure it wasn't the same cyst".  Absolutely crazy, but I decided it was time to just go the whole way and get it all out.  Had a total hysterectomy and oophrectomy and in a big way it was a weight off my shoulders (and pelvis :)).

    Since I am ER/PR positive I figure its a step in the right direction. 

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  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited April 2012

    So, I just heard back from MDA, kind of a blow off I guess.  No advice or info, just to follow up with my local ob.  Getting to be less and less of a fan of my MO down there.  If I wasn't BRCA pos I wouldn't be worried, but that just adds a whole other dimension of stress for me.   I have so many different docs its getting out of hand. OB, regional onc, MDA onc, PCP, Regional surgeon, MDA surgeon MDA RO.  I feel like I get bounced around a lot.  GRRR.

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