Giuliana and Bill
Comments
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I am sure it was BCO, with the reference to the "constipation" thread! Ha, I think that was actually Konacat's thread.
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Just thinking about the last episode and how Bill mentioned "sad eyes" from people who don't know what to say. I have a feeling I'm going to be getting a lot of those when I go back to work on Monday. I think I'll take his advice.
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Wendyspet - You know that makes perfect sense. In the last episode she remarked that having implants could hinder finding any cancer that might be there if she didn't do the BMX and took Tamoxiphen. She is a very tiny woman. I suspect now, she may have small natural breasts with implants. If her implants were larger than her natural breast tissue, I would assume it would have been easier to put an implant in during surgery. And also makes me feel like there is something wrong with me because my recovery wasn't/isn't nearly as quick as hers. I would have to think that if that was the case, it's so much easier to move on from that when you are not faced with TEs or DIEP, etc. Having a baby is something that they are really dealing with. Cancer, although devastating to deal and go through, was just another obstacle to that goal.
I think she had multi-focal DCIS. I have a friend on here that had that, she had a BMX yet still needed radiation and no chemo. I had multi-focal DCIS, grade 3 with a micro-invasion and I didn't need chemo or radiation. I saw a couple of doctors for that, but that's another story.
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Looks like G didn't need the TE's, which would explain how she went back to work so quickly. She said Bill helped pick out the size and he squeezed them. Which could only mean the real implants.
Mrochon - I had the same - multi focal DCIS Grade 3 with microinvasion. Drs said BMX would be the answer with no chemo or rads.
Next week is the surgery. Eager to see how much they will show.
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I haven't watched it yet. Have it recorded. Will watch it tonight. So she did go straight to implants, that explains alot! She's so lucky she didn't have to go through this damn TE process. If I knew then what I know now, I may have opted for another option. I'm almost a year out and still flat and lumpy. Going for a second opinion next month. May be changing doctors to speed this up.
Michelle
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Hi ladies,
Had to jump in your thread. I have followed their show since it started. I love it. Yes it's a "reality" show but I feel they a actually real. Bill is a wonderful husband & I'm not just saying that because I'm from Chicago too! LOL. I also agree that she must have gotten implants & no TE's lucky lady. Those TE were awful.
I hope they get a baby soon! -
I do applaud her for making everything public and putting more information and awareness out there for the public. Having said that, though, I made the mistake of watching the lumpectomy episode before my lumpectomy. In the episode she was talking about how painful the whole thing was (especially the MRI guided wire), how long it took, etc. It freaked me right out! I called my Breast Center and talked to them after and they talked me down
Yesterday I had the MRI guided wire and it wasn't bad at all. The most painful part was the *headrest*. Seriously.
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I think that she (Giulianna) stated that the MRI was painful BECAUSE she has rods in her back from a prior surgery and that she had to stay still with that pain for approx. an hour.. It probably should have been more clear so that no one was scared about having an MRI guided biopsy... I also have a terrible back after a car accident and the MRI guided biopsy was excruciating!!! I remember when the radiologist said she was going to cut through the skin now (she was warning me) and I told her "do whatever you want - just please get it over with quickly - my back is on fire!!!!" I was more concerned with the back pain than anything the knife would do... I started to watch G & B because of some of the comments here.. Take care!
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I'm a little upset about last night's episode. Was anyone here up and walking around the day after their BMX? I couldn't even get 3 feet to get to the bathroom without crying. Makes me a little frustrated... Did she really get a BMX?
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I just watched the episode too and I was shocked at how quick she was up & about too. My BMX was Feb '09 and I can still remember that pain like it was yesterday! It took at least five days before I could move without crying. I only live about fifteen minutes from the hospital and on the way home I had my husband pull over because the ride in the car was even too painful. I do know that everyone's pain tolerance is different and every surgery is different. After my BMX I ended up having sixteen surgeries to complete my reconstruction. At this point I have not done the tattoos but I don't think I'm going to.
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I was one of the lucky ones. I had one-step BMX, where implants were placed in same 7-hour surgery as removal of my breast tissue. Nurses had me walking around next day. I was in pain, hunched over, dizzy, and just shuffled along, but I was moving. Everyone is different though, so do not feel like a wimp or be frustrated with yourself or anything negative like that ! I, too, wonder how G went back to work so quickly. I was still under doctor's orders not to move arms above shoulder height until 3-week mark (and wouldn't have wanted to, OUCH !!). But I'm thinking with her job, she has stylists and assistants -- so she probably had help getting dressed, hair done, makeup applied -- and her job is not physical. I still give her kudos for even getting to work, though -- I remember the horrible fatigue during that time -- and I stayed in bed a lot !
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I think everyone is different. I was up and around the next day (BMX with TE's). I had drains for only 5 days. I was back walking 40 minutes a day at the mall about 3 weeks post surgery. I am a very active person and in good physical shape. I did the post OP rehab exercises and stretches assigned to me twice daily as recommended to get range of motion back. I think if you are in better physical shape going into this, it helps.
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I agree the experience is different for everyone. The night of my bmx was rough because I was so pumped up with IV fluids that I was up and in the bathroom every 2 hours or so. But that next morning and day I was able to get up and moving and felt really good. In fact, I walked around with my girls as they went trick or treating only 3 days after my surgery.
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Okay, so maybe I'm the wuss. I do say it all the time, and my PT laughs every time I tell her to take it easy on me. But maybe not everyone has that nerve pain - the shocking sensation. That really killed me. I'm in terrible shape too, so maybe that had a factor.
Great for all of you that were able to get up in a few days, a week... I better get my @$$ in shape before my next surgery then!
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Did she say all mastectomies avoid radiation or did she say it would avoid it for her? If the latter, then why the criticism of her? I have never had the impression that she is doing anything other than sharing her personal experience. She has not taken on the role of communicating the multitude of facts, circumstances, and experiences that may exist among hundreds of thousands of BC patients. Why does everyone keep placing that burden on the poor woman? I hope she never reads here. The reaction to her diagnosis as been horrible from day one. People have said some really unfair things about her on this board.
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I don't think anyone is criticizing her, definitely not me. I think people who have been through this want to know how she was up and back to work so quickly. I had a long recovery and I'm more curious than anything.
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Lauren- I was up and walking the halls of the hospital the 2nd day. They said they woudn't let me out of the hospital unless I could make the lap on my floor. They made me walk as often as they could let the CNA escort me. The only thing that surprised me about Guilianna was that she spent 3 nights in the hospital. Obviously, she doesn't have a typical insurance plan or paid out of pocket for that 3rd night. I got 2 nights, but a 3rd night would probably not get approved by insurace, barring complications. In fact, my BS said one night is the usual approved amount.
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I stayed overnight and they had me taking a couple laps around the floor in the middle of the night. It was about ten hours after surgery, I think. I was awake when the nurse came in the room and she asked if I wanted to stand. It went from there. I had an on-q pain pump also, and I think that made a lot of difference. I was up the next daywalking around, although slowly.
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I love the show, and I don't know how much more personal she can get. She showed her drains and she stated that she had a BMX. What more can she provide? I applaud her for sharing this much and I wish her continued sucess. Also congrats on her new baby.
She's not a Dr. so I am assuming "E" will be monitoring what is being put out. You wouldn't believe what viewers will believe when it is put on TV. Especially someone who is not faced with our battle.
Gentle Hugs to all!
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No one is a wuss! We all recover at different rates. I had one step and was in the hospital for three days but was doing laps around the floor early and often. I had previously had major abdominal surgery and , for me, walking was the key to my recovery. That doesn't mean everyone will be able to do the same thing at the same point in time. Caryn
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Minxcie,I went back after 3 wks to work 10 hr days but I mostly talk on the phone or in person or research on the computer, people said I couldnt do it and should only come back part time. I was fine. The only thing ever bothered me was the first fill which was large and painful. Too bad they are bashing the boards cause a dr is busy and cant tell you everything,I have learned so much on this board,what to take to the hospital,what to say to the insurance and dr,where to get the best deal on my prescrip meds for bc. Everyone's so helpful and supportive on here plus the mods have a wealth of info in their "library". Bill needs to re-think,we dont do medical advice on here. Hope Giuli does good. I think she made the right decision but dont know what her stage was.
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I have been following this thread since it started and see nothing but good things about her, dont think anyone has said anything bad about her.
I too was shocked she was doing so well the next day, she was even dancing in the halls, good for her wish i could of had that much energy the next day but was in too much pain, I spent over a week in there though because of an infection and open wounds.
I also wish her and her husband Bill continued success and happiness with there new baby when it arrives!
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I had a UMX with no expanders and was up walking around the same day. I had no pain at all. My BS insists its because I received IV tylenol and motrin during surgery. I bolted out of the hospital the next morning...couldnt wait to leave. Im going back to work next week (week 3) but I also dont lift stuff, mainly PC and phone stuff.
Everyone heals differently!
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I had a uniMX and the damn aid made me transfer myself from one bed to the next, with no assistance and then booked out of the room when I started crying from pain. Once they got my pain under control, I was able to get up and go to the bathroom. First couple of times with help, after that I was fine on my own. I went home the next day.
Everyone does heal differently and feel pain differently. All the stories I read said it was easy peasy, minimal pain. So I was not prepared at all to wake up feeling like there was an elephant sitting on my chest, could barely breath from the pain. BUT it should also be noted that all doctors are different with handling pain, I can definitely say my PS was very stingy on the pain meds. My husband went to toe to toe with him at my follow up and insisted on more help for me. Within a couple of days I felt as though my pain was under control...and then I didn't need anything. I was back at work in 4 weeks. First week back was hard but doable.
I don't watch the show but have followed some of her story. I'm glad to see a thread here in support of her...the last one that I read was not supportive at all. I was really disappointed in a lot of the posting.
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Saw the BC episode last night the writers did a pretty good job at discouraging the use of internet boards like this one.Kind of disapointing.
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Hi, I am not familiar with this couple as I'm in Australia.
However, for those who are interested, I just saw a repeat of an interview that they did on The View last Monday. They mentioned that Guiliana had a bmx and has just started a medication that she will take for five years.
Due to the need for the medication, she was advised not to get pregnant. They announced that a gestational surrogate is pregnant with their embryo.
There was no mention of chemo, and her hair looks natural.
They said they had discussed how her husband would react to the bmx and he said it was not an issue for him and her health was important. They didn't mention reconstruction.
They also said they were glad that they had talked publicly about the bc as it had prompted a lot of women to get mammograms. -
I saw them on the view too. Surprised she didnt mention her recon b/c evidently she had immediate recon with her double mx. I think the gestational surrogacy is such a wonderful thing for women like giuliana who are not abel to carry on there own.
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Considering how badly she was raked over the coals here in previous postings, I'm not surprised at all that they didn't mention the boards in a good light.
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It wasn't the writers that said negative things about the boards - it was bill. I'm. Or sure how many "writers" there are on a reality show...
I don't think we on this board said anything negative about her... The only thing bill said anything negative about was not to take medical advice from here. Im sure he didn't know about the various boards and how much support we provide for each other. -
I would have gone insane if not for these boards, as virtually all my friends dropped off face of earth. Loneliness was one of the hardest parts of this damned disease.
I was unfortunately on my own post op. Had to fight four hours for my pca. I could tell my nurse had just went into nursing for job security. They were very reluctant to take care of my pain. They allowed my neighbor to stay up all night, tv on, keot calling them about her damn constipation, and she typed on her comouter all night. It was horrible. And you betcha theyheard from me later. Gave them a horrible press gainey review
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