Endometrial Cancer?
After severe cramping and vaginal bleeding (I am on Lupron and Femara so am artificially post-menopausal) I got an ultrasound that showed thickening of endometrium and a polyp. Biopsy to come.
Has anyone else been through this? I am hoping it is "just" endometriosis. Onc says it is very unlikely to be breast cancer mets but could be second primary cancer.
Any stories, advice, insight, anything? I was so ready to move on with my life and now this...
Comments
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Hi Blue,
My case was a little different than yours. I went through a scare with this a couple of months back. I had sporatic, extremely heavy bleeding and had a biopsy to check for endometrial ca. Thankfully, it was benign.
Just wanting you to know that I am thinking of you now and saying a prayer for benign.
Lexi
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Thank you, Lexi. So glad yours was benign. Hoping to hear more positive stories like yours...
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Hi BlueCowgirl,
I can relate and just wanted you to know there is hope that it isn't cancer... I had a large pelvic mass and two solid masses in my remaining ovary (the other was already removed because of a bunch of cysts that were likely the result of Tamoxifen). They also saw an abnormality in my uterine lining and said that was very thick. I stopped having periods with chemo and my hormone levels were well in the postmenopausal range, so most of the docs were considering me postmenopausal. But then I began hemorraghing and they put me on medication to control it, but seemed fairly convinced it could be endometrial cancer, maybe from the tamoxifen.
Reluctant to have a complete hysterectomy at 35, I didn't want to jump right into surgery. But after an MRI and CT scan, and multiple transvaginal and abdominal ultrasounds confirming the presence & growth of the ovarian/pelvic masses and uterine changes, and a high CA-125 and an estradiol level that spiked when the masses got larger, everyone seemed convinced enough that it could be mets or possibly a new primary to do the surgery. Even I was pretty convinced, so I consented to the surgery.
So the pathology report just came back--and it is not cancer. They found endometriosis, adhesions, polyps, fibroids, cysts, evidence of repeated episodes of hemorrhaging, and the ovarian masses themselves were endometriomas. As crappy as all of this sounds to me, I'm obviously really glad it is not cancer...
I know everyone's story is different, but I was hoping that my story would at least give you a little hope that it might be okay & might not be cancer rearing its ugly head. I wish you all the best with your biopsy and hope that your results are benign.
Hugs to you!
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Hi everyone,
I am having watery bloody vaginal discharge . I am on tamoxifen for 3 years. I stop my tamoxifen , I know I shouldn't do it without consulting my onco, but I am scared. I did a uterine test 2 years ago as my lining was thick, and it was endo but non cancerous . But now with the discharge I am worried. Will be going to my gyne soon.
Please pray for Blue and me.
Thank you. -
Hi there, I am sorry you are going through this and I can certainly relate. I faced a similar situation a year ago. I had a very heavy bleeding and they did a US showing endometrial thickening. Had the biospy the same day; it came back with some proliferation and I had to repeat in 6 months. It was clear.
I am hopeful you have similar results. They normally get those biopsy results back quickly. I was told 2 days later the results of mine. I hope you receive your results quickly.
Good luck to you!
Bevin
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Mom2Twins - Gosh you've been through a lot! Endometriosis, adhesions, polyps, fibroids, cysts, endometriomas...And happy about it...So crazy that this is our reality now, isn't it! I'm so glad your results were benign. I had already been planning oopherectomy, but even if (hope, hope!) my biopsy is benign, I am thinking I want to just get that stinking uterus out of me anyhow. Sorry you've had to go through so much...
Bevin - Thank you so much for posting about your benign results, so glad to hear you did not have more cancer, and thank you for your kind wishes.
See - I am sending positive thoughts your way and hope to hear the word benign from you soon! -
I had an abnormal pap after being off Tamoxifen for a year, had the end. biopsy and it came back negative. Praying yours does too : )
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Thanks so much for the kind note, Blue. Yes, it really is crazy how this is our reality now and how this disease makes us "happy" to have surgeries and problems that would throw others for a giant loop. And to think of what we are willing to give up (i.e. body parts) because of cancer or the possibility of it... I'm at least thankful to have found a group of women who understand what this feels like, or I'm sure I'd feel really crazy!
I'm sorry that you've had to go through so much, too. I wish you all the best with your biopsy--is it soon? I'll be hoping for benign results for you...
Big hugs to you & the other posters...
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Inspiewriter - Thank you, and once again thrilled to hear about benign results.
Mom2twins - You nailed it! This "new normal" seems so abnormal to my rational mind, and yet...here we are. Same old deal - sorry any of us have to be here, but glad that there is a place for us to vent/learn/commiserate. My biopsy is scheduled for Thursday. Thanks for the hugs and wishes.
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Do any of you know at what level of "thickening" they start to get worried about endometrial cancer? I have been having pelvic pain (on Tamoxifen), and had a transvaginal ultrasound tha showed my endometrium was "thickened" at 10 mm. They want to do a repeat in 6 weeks. I am premenopausal. I'd appreciate any information you all have.
Yes, this is a strange new normal - anything that isn't cancer is "good', no matter how bad it is!
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I have to clarify that I do not have BC, just high risk with ADH. But about 18 months before all the breast nonsense began, I had a thickened endometrium (I think it was 14 mm) which was found after I had several endless periods. I just attributed this to perimenopause (I was 52 at the time), but my gyn was alarmed. I needed something to get my hormones back on track, as I was still producing estrogen, but no progesterone, so I went on the NuvaRing for about a year. It was a few months after that when calcification clusters were found on a mammo and then the ADH. In retrospect, although both my onc and BS deny it, it seems to be that there must be a connection between these 2 events. After 6 months on the NuvaRing, everything was normal again, but I stopped using it soon after my Dx. Now it's been 6 months without it, and without a period either, so it seems I have finally entered menopause. I have an appt. with the gyn this Friday for an exam and yet another TVUS, so let's hope that at least my uterus is behaving. Btw, I ended up having an endometrial biopsy which showed proliferation, but no atypia, some fibroids, and a polyp.
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I just had an endometrial cancer scare myself. I still have all my parts and didn't want to have to lose any of them. I just finished in January, 3 years of tamoxifen. I've had lining of 8 mm in November, and just recently, after 2 years of no period, had one this past March. They did an ultrasound and said my lining was still thickened at 7.5 mm and that this shouldn't be so after having had 5 days of bleeding. So they recommended a biopsy or a D&C. I just had the D&C a week ago and thankfully everything was fine. No cancer, no hyperplasia! I'm waiting for them to mail me the pathology report, so I can see every detail of what they found. But I think they attributed the bleeding to atrophic endometrium, meaning after awhile of having no hormonal stimulation, the endometrium shrivels up and gets easily irritated, which can cause bleeding. Doesn't make much sense, since they had said it was thickened, so I really want to read that report. I still think it was just an actual period. Lasted 5 days and started out heavy, then got lighter.
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Hi all, just wanted to come back and report that my biopsy results were benign! At my gyn's advice, I decided to forego simple biopsy and instead had outpatient surgery - camera-guided removal of polyp, and D&C, which is why it has taken so long to update here.
I suspect I've had endometriosis for a good long while - always had very painful periods, and cramping in between. Also could explain why I could never conceive despite many years of trying. I am so ready to get that uterus OUT - so glad it will be a prophylactic/pain management surgery rather than a cancer surgery though! Thank again for all your stories and support. -
Blue, so glad to see your update. I've been thinking about you and wondering how things turned out, so I was so glad to see that you posted.
Sorry to hear about the endo... and about another surgery. I'll be thinking of you & hoping that all goes well. Please keep us posted...
hugs to you!
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Hi Blue,
I am glad to hear from you
that it's b9. Mine is also b9. Doc remove polyps and did a D&C for me too. Will be praying for your surgery , glad that it's only a pain management surgery. I have endo too which is why I can't conceive either. Take care and hugs...
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