Kept in the dark by parents

StupidPony
StupidPony Member Posts: 1

 Before reading this you need to understand i am not told much about my moms situiation. My parents like to sugarcoat things and not quite tell me the whole story. 

My mom was diagnosed in 2010 with stage 4 breast cancer. She was dubed terminal and was given a year. Thankfully she is still hanging in there. Her "main" tumor is in her chest wall on the right so they are un able to reach it. She has had radiation twice and is on her 4th chemo treatment. She has only been to 3 doctors. She doesnt want to expand and get more opinions. Her doctors current game plan is to keep her on chemo until further notice. 

There have been some complications on the way. She currently is recovering from Jaundice, from what i am told it was a swollen lymphnode that was causing a blockage in her liver. She hasnt been on chemo in over a month. From what i understand she has many tumors in her chest that are blocking her fluid flow in her body. As a result she swells really bad. When she stays current with her chemo the swelling reduces a bit or slows down. Also, i was told her cancer has "mutated" into triple negative. Dispite all the radiation, surgiers, and chemo her cancer has only gotten worse. So, as of right now because of her not getting chemo for over a month she is swollen and exhausted. Today she had to be put on disability at her work untill June 29th.

I am a full time college student. My college is 3 hours away from home, i have been enrolled since 2010 and i am an only child. I just found out today that my mom was in the hospital for 11 days. I call my mom daily and my dad, they never once told me she was in the hospital. I asked what they were doing, and how was moms jaundice. "Oh just sitting in the living room, moms on antibitoics and the jaundice has cleared up!" Im beside myself. They had no intentions of ever telling me, i caught my mom in a lie and she ended up telling me. Their reason being they didnt want me to worry because of finals next week and national sports competition the week after. 

How can i convince them that its ok for them to tell me the truth? In my family everyone hides everything from everyone. My dad never told my mom the doctors gave her a time limit in 2010. My mom never tells my dad how she actually feels or what the doctors actually said. My dad didnt know my doctor told her to go on disability 2 months ago untill this week. Im at a loss here, i want us all to be honest with eachother. I dont know what to believe anymore. How can i atleast convince them to be honest with me? I have a right to know, hell i have a right to worry!

Comments

  • Cindyl
    Cindyl Member Posts: 1,194
    edited April 2012

    Of course you worry, and yes you feel you have a right to know, but your folks have a need to protect you...

     Maybe tell them you'll feel better knowing what's going on than worrying about the unknown?

    But really, no one really "knows" with breast cancer.  You can get a clean bill of health and still be at deaths door in a years time, or you can be in a bad way only to have something work beautifully and find that everything has changed for the better.

     The best advice I can give you is to listen when you folks want to talk, but you can't make anyone share what they want to hold private.

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited April 2012

    I am sorry that you aren't getting what you want and need from your parents. Strangely, I don't actually agree with the statement that "I have a right to know." Your mother has the right to tell her story when and if she wants to. [To further this thought, your father doesn't have a right to her thoughts either.]

    Here is the thing though. You say that your family has always had communication obstacles. The thing about families is, they don't change. Cancer doesn't suddenly change family dynamics. If anything it amplifies them. For whatever reason, this is how your family copes with life. And right now life doesn't look so very rosy.

    When I was first diagnosed my daughter was just about to head to college. I waited to start chemo until I had her safely moved into her dorm room. I did not give her a running story of my ups and downs. But we did talk a lot about what this all meant to us. I promised her that I would tell her if I got worse and in exchange she promised to be the best student she could be.

    That is what your parents want for you. They want you to be the best you you can be. They want you to grab every opportunity you are offered. They want you to excel. They just don't know how to give you the balance of information that you crave.

    The best gift you can give your mother is to do well. Excel. Tell her stories of your life at school. That is what will fill her heart with joy.

    Be well,

    *susan* 

  • dogeyed
    dogeyed Member Posts: 884
    edited April 2012

    PONY, oh, I feel for you, hon.  Such a sad story!  I'm sort of on the other side of the coin.  I held back lots of things from my folks, no way was I going to worry them needlessly.  Of course, I told them I had cancer, but not a lot of detail, and I also explained my various treatments as I went thru them.  As for you, I know you must be going crazy with the idea of your Mom possibly getting in a really bad way and you being so far away.  But just hang in until the last test is done, last school requirement is finished this year, and then OFF TO SEE THEM you go!!!  Then you'll know everything, you'll be a huge comfort to them, they'll be relieved you finished the year, and things will be as they should be.  Just a little ways to go, girl.  GG

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