anyone starting chemo in Nov 2005

Margerie, you seem so calm about it! Are you, or am I reading your post with the wrong interpretation (so hard to read emotions online!). I will keep you in my prayers. I am so glad that you have been keeping on top of things. Please keep us posted!!!!!!
Love and prayers, Debbie

Mary Lou, I didn't look at the previous page until after I wrote a post to Margerie. Oh my gosh. I just don't even know what to think. I'd be scared, too. I of course will be praying intensely for you, too. This really sucks-I want nothing but happiness and health for all of us. Sometimes, I just don't get it, but like you said, it is in God's hands. He LOVES us. Your strong faith and trust in Him will carry you through this.

I know you and Margerie don't want to hear the usual awkward condolences that people sometimes utter in these situations....at least I know I wouldn't. I am just so deeply sorry that your journey keeps taking detours. It seems like lots of us have been taking those detours and searching desperately for a map to get back on track!
Wow, for once, I am at a loss for words.....I LOVE you all.
Love and prayers, Debbie

Marjorie and Mary Lou - Both of you have gone thru so much and now this. No one should have to worry about mets or cancer returning. I am so sorry. I'll pray for B9 results too. Cancer will not win!!!!! keep us posted.

Love and Hugs...

Hello ladies. Mary Lou, we are all awaiting your news and sending tons of positive energy your way for a good outcome. I'm also hoping you don't have to wait long for the results. Wish we could give you lots of hugs tonight.

Sounds like "Tingle Toes" applies to many of us now. Carol, did you choose the name based on effects of chemo. I'd rather think it was because you were an avid dancer. This neuropathy is truly annoying and its encouraging to hear that it is going away, "OMAG". I can't open bottles, work small buttons/zippers anymore and it is getting harder to write or keyboard. When I stand (especially at night) I have to make sure I am centered before I start walking. I was supposed to get Taxol #11 today, but wbc went from 11 to 2 and neutrafills from 1500 to 600, so only got Herceptin. Will now do 3 Neupogens per week and add missing Taxol to week 13. This is new for me and ironically, it was such a good week. Felt good, no fevers, more energy, etc. Still have a bladder infection that is now 9 weeks old and on its fourth antibiotic with no luck. Odayl, I have my rad consult on 4/25 and am looking forward to seven weeks of uneventful treatment.

Anna, I love that you will let the doctor now and then let it go. Good advise for all of us.

Easter promises to be beautiful and I am doing brunch for the family and egg hunt(assuming no surprises between now and then) . Deb, sounds like Daniel will also be visited by the Easter Bunny. Wish you were closer, we would really make it an event.

Hope you all feel good (or better). Mary Lou, we are with you.

Nancy

Mary Lou-HOW ARE YOU?! Yes, I am screaming it so that maybe you can hear me from far far away! We are all so worried about you! Praying hard for you, my bc sister.

Kim-I have to giggle at your small typo "hope those WBC go up fat." It made me think of how I sometimes wish my perpetually skinny best friend would "go up fat." I know that isn't what you meant....sorry, it is totally the chemo brain. I referred to the volunteer at the onco. center today as Shelley (I've known her for 6 months now)and her name is SHIRLEY. Oh is that embarrassing, because I did it like, a thousand times!

Anyway, Nancy, I too am sorry about the small fork in your road of treatment. I don't know if you have had Neupogen before or not, but if not, I offer a small piece of advice, to get pain killers prescribed to you right away! It gave me more pain and misery than chemo did!

I'm imagine-planning a year reunion/get together in my head. How many of us would be interested in that? I think it would be great, because I just love you all dearly. It could be a family thing, too.

Gotta go to bed, Love and prayers, Debbie

Love to all my sisters on this sad sad night. Mary Lou, I'm still beeping you!

Anna

Wishing everyone a great Easter. Love and hugs....

Odalys,

I like it here too. So I vote to continue checking in here. How are you? Started rads yet?

I am feeling great. Out of chemo officially a week now. Skin has almost healed from rads which ended 2 weeks ago. Have been on tamoxifen for almost a week. First few days I had a lot of muscle tightness and soreness, in my legs especially. It was like I had been skiing. Now that is almost gone. I am having much less hot flashes than I did on chemo. Ovaries coming out next Friday and then I switch to Arimidex.

When naked on the head today. Butchy hairdo, but my DH thinks I look like a supermodel. He is so nice! It is something to pull off (have people think I did it on purpose) that is for sure.

Anyway, hope all of my November friends had a great holiday weekend and are healing body and soul.

Off to Legoland Monday- wish me luck!

Margerie

Margerie, Glad to see you want to stay on this board. You are so insightful and caring. I value your input. Congratulations on finishing chemo and rads...yeah!!! Glad to hear your skin is healing. It's amazing how resilient our bodies can be. FYI-There is an entire discussion on Tamoxifen and the SE’s. Some ladies experienced muscle soreness but they said it went away after a few days/weeks. If you get a chance check out the discussion. Yesterday we were discussing whether to ooph or not to ooph. How was your Easter vacation? Do you have a pic of your new hair?

I’m doing great! Thanks for asking. Trying to juggle work, family and rads. So far the first week of rads was easy. I did get a little sore from holding the position for so long and my boob looks like a treasure map, but no SE’s. I did feel very sleepy and I don’t know if it’s the rads or the Effexor. Did have an emberasing moment. While getting ready for treatment the wig flew off in front of the tech. Thank God she was so professional and did not even blink. I was soooooo embarrassed. God, I would love to go topless but I don’t have enough hair yet. The sides are filling in nicely (mainly salt and pepper) but the top has not caught up yet. I keeping repeating what someone else said…”come on guys grow!”

Don’t know what Legoland is, but I always wish you the best. I’ll be praying that your surgeries go well and you recup quickly.

Sending love and many hugs your way.

I definately want to stay here. You all have and will always be my chemo sisters. I will be doing chemo for a while and would love to keep communicating here.
Hope you all had a wonderful Easter.

love,
Kim

NED!!!!!!!!!!

All the test came back negative. I had the tube taken out today, so just have to wait for the staples to be out in a week or so.

My reg Dr took my tube out, the surgeon was out of town. I also asked him to check and see what the test said.

He came back into the room running, pulled me into his arms, kissed me on my BALD head, and said the test were NEGITIVE!!!!!!!

I almost fell off the table. But I was so happy.

Now I can get on with my life.

Also have more good news, my son and his wife are going to have a baby!!!!!! I have wanted this for awhile. And they have tried so hard.

Just having a great week!

God is good, and he loves us so. I could not have had a better Easter. All your prayers were answered. and mine!

Thank you all .

I agree, I need this board to talk to my sisters. And I mean always. Not just for the cancer.

We also have a life.

I want to keep up with "all" of life. I think I have given enough time to cancer.

I want to know how life is going for each and everyone. Even if it seems like this will never end.

I couldn't imagine coming here and no one was posting anymore.

Now that would be a sad day for me.:(:(:(

Check out my web site, new wig from one of our own It is at the end, Easter 2006 wig. I feel like me again.

Love to all, and I'm sorry I was out for so long. I have to go and catch up.

Mary Lou (((HUGS)))

Congratulations, Grandma!!!!! What a week you have had, ultimately full of so many blessings. We are just thrilled for all your news. Now, that's life.

Nancy

Oh Mary Lou I am crying tears of joy for you and your whole family. You had such wonderful news. NED and becoming a grandma!! Woo Hoo!!!

lots of hugs,
Kim

Mary Lou, The wig looks great, just like your real hair. Enjoy it!

WOO HOO!!!! Excellent news Mary Lou! I got chills when I read your message.

As usual, I can't write much right now-took Ambien and am nodding off at the moment, but I also vote that we keep checking in here. I am too attached to all of you! You are all my chemo family and I want to share the tears, joy, elation (as in YOU'RE GOING TO BE A GRANDMA!!!!) and frustration of this stupid disease.

Good night! Love and prayers, Debbie