Positive Tram Flap Stories?

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rosasmommy
rosasmommy Member Posts: 814
edited November 2016 in Breast Reconstruction

I need to have a TRAM Flap procedure to correct for severe capsular contracture.  I would love to hear some positive experiences -- I'm getting a little nervous after reading about some of the potential complications (e.g., abdominal bulging).  Thanks in advance!!

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Comments

  • Snobird
    Snobird Member Posts: 593
    edited April 2012

    Try the Diep Flap threads. There are some free trams posting there and diepflaps can have some of the same problems as Tramflaps. Really the experience of your surgeon is critical to any flap procedure. Good Luck

  • StillHere
    StillHere Member Posts: 67
    edited April 2012

    The TRAM flap is an outdated procedure. If your plastic surgeon is recommending it, it's because he/she does not have the training/experience to do the DIEP (which is the same surgery - the same tissue is used to create the breast mounds - but NO MUSCLE is taken).

    Not sure where you're located, but do look into a DIEP flap procedure. You may need to travel to find an experienced surgeon, but it is worth it. The problems with TRAM flaps - loss of core abdominal muscle - are multitude.

    The sad fact is that some plastic surgeons will not always tell you what ALL of your options are - if they themselves cannot offer you the procedure. It's unfortunate. There is a fair bit of definsiveness among some surgeons. They are people, too - subject to all the same challenges of character that the rest of the population faces.

    There are some instances where a TRAM flap will be preferable - but these are rare. I recommend you do substantial research before making such a large commitment. Loss of abdominal muscles is really debilitating - especially as one ages - you really need as much core strength as possible for "successful aging."

    Good luck. 

  • Pegs
    Pegs Member Posts: 198
    edited April 2012

    I had a tram flap in nov. and i must say it was not as difficult as i thought.  don't get me wrong surgery is surgery and this is a major one, i was in hospital for 3 days, and when i went home i was not in much pain , yes i had a pain pump but only for a couple days.  i was swollen for several months and couldnt wear reg. pants.  i needed help getting up and would walk bent over for about a week, but listening to the horror stories on here about tram flaps would scare anyone.  i think if you trust your ps and are comfortable with him, and he does trams a lot , i see no need to worry, its all a choice we have to decide.  i was happy with mine, not everyone is.  good luck

  • anna4969
    anna4969 Member Posts: 86
    edited April 2012

    I just had my reconstruction 3 weeks ago.  My plastic surgeon, who practices at a very reknowned cancer center, did a diep on the left side and a tram on the right side.  Certain circumstances do warrant trams.  And, I had severe capsular contracture on the tram side as well.  From experience, I can say my diep side of abdomen has less discomfort than the tram side.  But not a significant difference.  My orginal plastic surgeon, with less expertise,  thought there to be no problem with doing diep on both sides, I would have been terribly disappointed if after surgery I was told I had a tram instead.  But that disappointment may have been more of a pyschological one.  My current highly experienced ps made no promises and did say it would very much depend on what he saw when he got in there.  Again, if you trust your plastic surgeon and have confidence in their skills and experience, I would consider that very important when making a decision.

    Best of Luck to you. Please feel free to pm me if you would like.

    Keep the Faith.

  • Paula32
    Paula32 Member Posts: 12
    edited April 2012

    Hi Rosasmommy, nice to meet you:)  I had a bilateral prophylactic mastectomy with immediate tram flap reconstruction in Sept. 2011.  The surgery went very well, and I am pleased with the results.  The pain post op  was difficult for about a week, but it was well controlled with the pain meds.

    I just had a hysterectomy in March, and I can say that the tram flap reconstruction recovery was more difficult than the hysterectomy recovery.  I had to take pain meds for a longer period of time post tram flap surgery, but again....it was well controlled with pain meds.

    Hope this helps.  I'd be happy to answer any questions you may have. Smile   Paula 

  • PixieNel
    PixieNel Member Posts: 90
    edited May 2012

    From where I came from, Tram Flap is the preferred procedure for immediate breast reconstruction. My PS x 2 are experts in this field and they are doing the procedure almost everyday. I am quite relieved about it ...... but they never mentioned DIEP. Maybe for my next appointment, I will enquire them about DIEP procedure.

     Thx rosamommy for creating this thread. I get a shock too when I read non-positive side effects and stories on TRAM .  Surprised

  • GmaNiki
    GmaNiki Member Posts: 42
    edited May 2012

    Good morning, I am 4.5 weeks out from a bmx w/immed tram flap. My experience has been good. It is quite a big surgery, but the pain was not all that bad. While my new boob is still quite swollen and hard, I can see improvement every day. Still waiting to see what the final size will be but my ps told me that it could take 6 months or even more for the size to be determined. The only complication I have had is the abdomonal incision opened at the far right end and has been draining heavily for a few weeks and did develop an infection, but I caught it early and it is clearing up nicely. will be glad to be bandage free in a few weeks.

    I selected the tram because I wanted to be sure of good blood flow and the microsurgery required for the diep had a potential for failure, I am 59 and did not want to go through more surgery and the ps said my muscle structure was really good and I have not noticed any muscle weakness. The flat tummy is a positive side effect! I still have some swelling and a bit of fluid on the reconstructed side, but can see that going down all the time. Wore jeans yesterday for the first time and it was OK, Really tired of sweats, but it is what is it is and I am trying to look long term. (Trying is the operative word here!)

    I am happy with the TRAM and would recommend it to anyone in good enough shape to handle the muscle relocation.

  • LuvLuLu
    LuvLuLu Member Posts: 377
    edited July 2012

    Hi Ladies . . . I'm scheduled for mastectomy w/immediate TRAM on Monday and I'm beginning to stress, so I really need some positive stories!  I'm very active (I run, lift, do yoga and occasionally horseback ride).  I completely trust my PS who is experienced in TRAM and DIEP but we decided TRAM was the best choice for me because of my anatomy and previous radiation.  I'm afraid of losing core strength.  He assures me I will be back to everything w/the possible exception of situps/crunches.  I feel better after reading some of your positive stories.

  • PixieNel
    PixieNel Member Posts: 90
    edited July 2012

    LUvlulu , DIEP is not available in my country.  But over implants, i decided for TRAM flap. I want to use my own tissue in reconstructing my foob(fake boob). Though there are visible scars all over the body. I can say my recuperation/recovery is a success. My PS is happy with my progress.

    Post surgery pains will be there as well as muscle tightness. But rest assured, everything will be fine. The first month will be tough. You can't walk straight at first but slowly and surely at the end of the month your body will recover.

    Im on my 2nd month of recovery and I can cycle around my area and do exercises like I normally do. I can't believe that I have undergone surgery 2 months ago. 

    But do take note, you will need to wear post surgery abdominal binder all the time. Due to weak abdomen, this garment will strengthen it and at the same time, prevent hernia. Avoid carrying heavy weights etc.

    Actually for the cycling part, some are advising it 8 weeks post surgery but every body strength is not the same. So seek advise from your doctor before doing exercises. Recovery is very much important for the body.  

  • gmp300
    gmp300 Member Posts: 351
    edited July 2012

    Hello LuLu,

         I can't help but chime in because I had a tram flap on one side due to failed implants etc.  It was the worst thing I did to myself!   I regret it everyday.  I chose the tram thinking I would have better chance of success using the muscles vs micro surgery (so my ps sais cause that is all he could do) because of the blood supply and I wanted the greatest chance of success (so I thought)  Well it failed so trams do fail too!  I had 40 hyperbarrick treatment to heal a huge open wound on my chest, at home IV antibiotics for 3 months, 3 times a day, wound care for 6 months, ended up with 2 huge hernias and was cut 6 " down the center of my stomach and below along the bikini line to repair the hernia's.  I looked 7 months pregnant. Now I only look 5 months pregnant.  My belly button looks like a butt hole, every time I eat my stomach buldges and I can't hold it in.  I still wear binders when I work (it's been almost 2 years) I can't lift like I use to.  And I ended up with a sunken in deformed thing on my chest due to complications etc.  My whole body looked mamed.

        I don't want to scare you but I regret having it done everyday.  I went to New Orleans to St. Charles Surgical Center recently and Dr. DellaCroce fixed me up with a hip flap and I wish I would of went there from the beginning.  It is the best place to go for success and natural results for different muscle sparing flaps.  I know some do well with tram but when you could have a diep and not ruin your stomach why would anyone want anything else unless their doctor doesn't know how to do it.  I agree you have to have a diep at the right place where they are performed regularly with a team of doctors but it is so worth it. You'll have a natural breast and it is for life.  Just check your options and don't be in a rush like I was and make the wrong decision that will change your body forever. 

  • LuvLuLu
    LuvLuLu Member Posts: 377
    edited July 2012

    Thank you, girls.  Had my tram flap 2 weeks ago, and God bless, all went well.  My new boob looks better than the other one!  I'm up to walking 4 easy miles a day, but broken up into 2-3 walks.  Feeling a little stronger each day.

  • PixieNel
    PixieNel Member Posts: 90
    edited August 2012
    I am glad you are doing well. Walking is good for the body. It will encourage faster healing. Keep it up!Smile
  • LuvLuLu
    LuvLuLu Member Posts: 377
    edited September 2012

    Just want to update - so far, so good with the tram flap, God bless. It will be 7 weeks on Monday.  I "jogged" 4 miles today, then walked one mile.  Also returned to the gym this week, doing very light weights just to "awaken" the muscles, and also some easy yoga stretches.  Getting used to my new body.  We all heal at different rates, but I'm feeling great mentally and physically . . .

  • MsTori
    MsTori Member Posts: 402
    edited December 2015

    I had a Tram Flap almost 5 weeks ago. Bmx, with bilat tram reconstruction. I was also looking for positives regarding this surgery. Also would be great to know what to expect healing wise/improvements week to week. I am now walking, but still with walker. Can almost stand up straight. But still feel really tight around abdomen and a pulling feeling whenever I stand up and while standing, that goes from my mid chest to belly button. that's the worst! My incision is healing great. A positive! Also, another question. Initial path report during surgery showed 0/2 sentinal lymph nodes negative. The final path report came back as micromets of 1 of the sentinel nodes. Now they want me to go back in for dissection. I've read some conflicting reports on this. Anyone have this and not had complete dissection?

    Thanks everyone. Any info on either would be great. I go back in for f/u this week.

  • norma47
    norma47 Member Posts: 1
    edited September 2012

    hi,i am thinking of having this kind of reconstrution an would like to hear more from you,how you felt an do you think it was the right thing for you,please any details would help,norma x

  • MsTori
    MsTori Member Posts: 402
    edited December 2015

    Hi Norma,

    It has been a journey. I had originally wanted the DIEP flap, but I had only quit smoking a few weeks prior and my PS wanted 2 months smoke free. ( I am still smoke free- yahoo!). So he only offered the Tram or implants. By the way, he is a microsurgeon, so that was not an issue. He has done many DIEP surgerys. It is a tough surgery, and recovery does take awhile. But everyone heals differently. I am 7 wks out, and taking it day by day. I have my pity party days, as most do, I'm sure. And other days I do great! Physically, I was walking bent over the first week, then slowly started standing up straighter week by week. I had bmx with bilat tram. So no tummy muscles now. I do stretches each day, take walks, and push myself more each day. I'm actually trying to find someone that has been through it for almost a year to find out what I can expect from here on out. Some on here have had just one side done with tram, and it seems that they are healing faster. I can't see myself jogging anytime in the near future. Haha! It's really personal choice. There are days that I second guess my decision and wondered if I should have waited on reconstruction or had implants. I think for the tram flap, you have to be mentally strong and prepared. It also helps to have a great support system in place for after surgery. My mom helped take care of me and still does. If you have more questions, I would be happy to answer them.

  • MsTori
    MsTori Member Posts: 402
    edited December 2015

    Sorry, meant 5 wks out. Only wishing I was 7 wks out. Haha!

  • nans
    nans Member Posts: 45
    edited October 2012

    Hi all,

    I'm scheduled for a tram flap next month.  Thanks for sharing your stories.  Anyone have any advise on things to do after the surgery?  Did you sleep in a bed, a recliner...not at all Smile ?  How long did it take until you were able to stand up straight or lift anything?  For those of you whose surgery was some time ago, do you feel you are able to do everything you could before the surgery?  Thanks for the information.

  • Jennt28
    Jennt28 Member Posts: 2,021
    edited October 2012

    I am 13 days out from my bilateral free TRAM.



    I got home on day 9 (keep us longer in hospital here in Australia) and have been in my own bed since then. I have a pile of new pillows I bought before going into surgery that I have used to prop me up. Hiher during the day and lower at night. I started off with 2 pillows under my knees to keep them bent and am now down to one pillow.



    The first few days I had to roll on my side and then use my arms to help get myself out of bed. Now I am rolling to the side, using my hand to my knee to pull myself up and then getting out.



    I have been very surprised at the amount of stomach muscle control I actually still have. It feels like it will be almost normal as it heals more!



    I am walking but although I am mostly "unfolded" I am just not quite straight as yet. My stomach feels like it has a ways to go before it will be stretched out so I can put my shoulders back.



    My breasts look amazing and my stomach is as tight as it was in my 20's according to my hubby.



    Very happy so far...



    Jenn



  • LuvLuLu
    LuvLuLu Member Posts: 377
    edited October 2012

    Jenn, that's wonderful.  I had a TRAM (left only)  in July and am very pleased (GOD BLESS!)  It's frustrating to be bent over but you will get there in no time!  I'm off to vacation (and will NOT be connected to my computer!) but will report more when I get back. Take care.

  • nans
    nans Member Posts: 45
    edited October 2012

    So great to hear such good results!  I am conflicted about doing this or the DIEP.  I'm worried about the muscle loss with the TRAM flap but my plastic surgeon doesn't do DIEP. The other doctor in his office has only done a few so he suggested I go to a hospital that is out of our area if I want that.  I don't know how long I would have to wait to be scheuduled for this however.  I can see my PS next month.  My big concern is that my husband has been laid off come January 5.  We'll have health insurance for 6 months as part of his severence package and can use COBRA after that.  My worry is that if we are fortunate enough that he gets another job quickly, we may not have the same health insurance coverage and will have to start all over again.  Saying lots of prayers to come to the best decission.

  • Jennt28
    Jennt28 Member Posts: 2,021
    edited October 2012

    I had bilateral free TRAM just 2.5 weeks ago and am pleasantly surprised at how much muscle control I still seem to have.



    I am 47yrs, a little overweight and reasonably fit. PS said he took a strip of muscle approx 3 x 1.5 inches from each side and he inserted mesh into the layers of muscle, not just laid on top of the muscle.



    I am not an athlete and have no intention of doing millions of situps in the future. I can already sit up in bed by putting my hands behind my knees and having my arms assist my abdominal muscles and it feels like I am needing my arms less and less each day.



    Jenn

  • LuvLuLu
    LuvLuLu Member Posts: 377
    edited October 2012

    Hi girls . . . Had my TRAM flap - left only - on July 16th and now I have no restrictions.  My body feels different, but this is the new normal, I guess!  It looks great.  And I'm a runner, weight lifter, do yoga and ride horses.  I still go easy on any ab work, but I'm happy to report I feel strong and fit (at age 59!).  I thought running and lifting would be the hardest part, but actually it's the yoga.  I can't do a "bow" pose yet (lying on stomach, grab ankles and lift shoulders and legs) but that will come eventually.  Anything where I'm doing back extensions is a little more difficult (Cobra, Up Dog), so I don't push my edge!

    My PS didn't want to do DIEP because of previous radiation and my anatomy, but I trust him completely and so far I'm having no regrets.

  • Carlatap
    Carlatap Member Posts: 96
    edited October 2012

    Hi Tram Flap warriors. I had my bilateral mastectomy with immediate tram flap reconstruction done in August 2010. I was healing great the first 2 weeks after surgery and then had issues with the blood supply to my the breast sites. The skin of both breasts turned black and therefore did not want to heal. It was quite a journey. I am much better now but I have some questions for those who have had the surgery last year or the year before. 1. Is it strange that I can no longer feel my heart beating? You know how you put your hand over your heart or to the side of your breast and can feel your hear beating? Well, I can no longer feel it beating. Of course I can feel my pulse at my neck and wrist, but not over my heart. 2. I get strange zaps on the left side of my left breast and sometimes on my right breast. I think it may be heart burn, but it is pressure so strong that I have to press on the site when it happens. This never happened before the surgery. And when I breath deeply, my back can hurt around where my lungs are.  I had a chest x-ray back in July and it was clear. And I don't get out of breath after walking for a while, but I do take steps a bit slower. Just wondering if these sounds similar to anyone else 2 years out of a tram flap reconstruction.  I would really appreciate some feed back. Thank you, and I hope you are all recovering well.  Just a side note. I had the surgery b/c I've had breast cancer 2x's and tested positive for BRCA2.

  • Christy68
    Christy68 Member Posts: 6
    edited February 2013

    Late to this post, but I thought I'd just add my feedback on the TRAM flap reconstruction.  I originally had silicone implants in January 2011 after BMX in Dec 2010.  Had 3 surgical procedures within a week due to complications... mostly my body not liking the implants.  By Nov 2011 I had quite a case of capsular contracture.  I hated those implants and never felt right the entire time I had them.  I switched plastic surgeons (original PS was competent, but we didn't mesh IMO).  Loved my new PS.  He did agree with 2 other opinions I had gotten that I shouldn't just go flat as I 'd be miserable being concave after removing the implants.  Since I'd fluffed up with 30 lbs in the year since BMX, I said, o.k. do the TRAM.  Not gonna lie, that surgery kicked my ass.  Having already had a c-sect, hysterectomy, and the BMX, feel like I'm qualified to say that was quite an experience.  My surgery took 9 hrs with 2 plastic surgeons.  Apparently removing the capsular contracture "stuff" was quite an ordeal.  I remember how pleased both surgeons and the nurses were with my stomach... kept telling me how happy I'd be.  But that surgery knocked me on my ass, so to speak. The next morning my blood counts were down and I barely had enough strength to hit my morphene button every 10 min.  Doc gave me 2 bags of blood and wouldn't let me out of bed until the 2nd day.  Fine with me... I couldn't move if I wanted to.  Gotta warn you, having had 2 major abdominal surgeries without a pain ball, I can tell you that that little device is very deceiving! Whenever I'd get up to walk or go to the bathroom, I'd think... "wow, this isn't as painful as I was expecting it to be."  And the nurses kept yelling at me to hunch over more.  I thought I was a rock star... until the last pain ball ran out on about day 9... lol.  Was on morphene at the hospital until day 6, and then the pain was manageable with tylenol with codeine for about 10 days and then I switched to extra strength Tylenol.  Even so, on the morning of day 5, I didn't think I'd ever get up enough strength to walk the entire hospital floor so I could go home.  Miraculously, later that night, I turned a corner, and finally went home on day 7.  I'd walk around the neighborhood, first down the street and back, then around the circle.  Finally I was back walking 2 mi., maybe it took a month?, even though I was a little hunched over.  

    I made the mistake of going to the grocery store at the end of week 3.  Since I was feeling so much stronger, didn't think anything of it.  By the time I got to the end of the first aisle and went to turn to corner,  it was too late before I realized how much we use our stomach muscles to do something as simple as turn a shopping cart.  2 days later, I had a 4 in opening in the center of my 2 ft abdominal incision.  That required 5 months of daily wet/dry packing an open wound until it healed.  Word of warning to future TRAM flap patients... don't push, pull or lift anything over the "milk jug" limit.... it's not worth the possible damage to the weakened stomach incision.

    March 8th will be my 1 yr anniversary of the TRAM reconstruction.  I'm not as disciplined about working out.. too many things going on to get in a routine.  But I can pull down 45 lbs on the lat pull machine at the gym.  I can do 30 lbs on the pec dec.  I had HUGE problems with this when I had the implants...was too weakened with the chest muscle pulled over the implant.  Even swimming took time to get used to with the implants.  Not with the TRAM reconstruction.  I can do yoga again.. although push ups position are a little challenging.  8 months ago it was hard for me to get up out of the shampoo chair at the salon.  Now I've gotten the hang of doing a "roll up" motion with my hands behind my knees and I kind of rock myself up.  I can do the same thing from laying flat, or I just kind of roll to the side.  That's way less uncomfortable or limiting than the feeling of having the implants under the chest muscles.  Did I mention I hated the implants?? lol   I used to be able to do 500 crunches on the ab bench at the gym.  Recently I've been able to get back to 225.  I'm not quite crunching forward as high as I did before, but it's definitely good for my remaining ab muscles.  The only thing I have trouble with is unscrewing a jar lid that's tight, or some motion that really requires straining across the chest.  Not really sure if that's 'cause I was stretched out with those awful implants originally.

    On the bad side, I'm going in for yet another surgery next month.  I have a very thick, uncomfortable glob/section of scar tissue in the center of my abdomen. My PS is going to do scar revision and excise some of the excess scar tissue.  I did pretty much lose my belly button... hard to call what's left an excuse of a belly button.  That kind of makes me sad 'cause I had a cute one before!   I still wear an abdominal binder/waist cincher.  I'm rarely without it... in the shower, at the pool, or if I'm going to exercise and sweat.  My stomach feels too weird without it.  Doc is going to add some extra mesh (apparently I do have some) to try and strengthen my stomach wall. His goal is so I can stop wearing the ab binder.  I definitely have an abdominal bulge that I'm hoping is minimized after this next surgery, although I'm wearing jeans and such.  Also, my pelvic area is still rounded/puffy/swollen.  Doc thinks he can fix that a little bit.  But let's face it, there's collateral damage and my stomach/abdomen will never be the same.  It is what it is.  I try and watch my posture now... notice I'll slouch in my desk chair.  Not sure I wasn't doing it before, but I'm trying to be more conscious of it in case it's because of my weakened stomach. Also, the area right around the sternum at the top of the rib cage is just finally feeling less "numb" and swollen a year later. 

    Tram Flap Warriors is a good name for those of us who chose this route.  Honestly, I don't really regret doing the surgery.  I hated the implants.  Much happier with the appearance and feel of the TRAM reconstruction.  There is collateral damage to this procedure... but that's just more of the gift of cancer.. the gift that keeps on giving whether we want it or not.  Some days I wish I had no reconstruction at all, as the past 2 yrs has been quite a battle because of the reconstruction.  If I had to choose, I'd take the TRAM over the implants right from the start.  I personally felt like a freak with the implants.  My TRAM foobies look much more real to me and aesthetically, I like them much better than how I looked with the thin skin over the implants.  Everyone has to make their own decision as to what works best for them.  I think I was one of the "special" people that just has a tougher go with things.  We don't choose this journey, but we can fight a good fight to try and get our "new normal" back.

  • Paula32
    Paula32 Member Posts: 12
    edited February 2013

    Thanks for the time you took to write about your experience, ChrIsty. It will help another woman make a more informed decision.

    I also had a TRAM flap reconstruction. Mine was done at the same time as my bilateral mastectomy.

    I also have some abdominal muscle weakness and numbness .

    My surgery was in September of 2011. It was a challenging experience, I also needed blood post op, and went back for further mesh reinforcement placement a few months later. But, I would do it all over again the same way.

    I wish you well... Paula

    Ps..My new breasts are pretty normal looking, and not as ptotic, (droopy;) as they were pre op.

  • kellyyy
    kellyyy Member Posts: 6
    edited February 2013

    I love to all member . This site is very wonderful  and interesting . I have take a lot of information , advice and support .  I'm too glad whereas share our knowledge , your thinkinhg both positive and negative . I learned most of positive experienced .


  • kellyyy
    kellyyy Member Posts: 6
    edited February 2013

    Trem flap is the preffered procedure for the immiedate brest reconstruction . This site is procide  more info about breast reconstruction and I have leraned a lot of instruction . 

    .................................

    Thanks .



  • Lisa5amonth
    Lisa5amonth Member Posts: 4
    edited March 2013

    Hi everyone.  I had a pedicle tram flap june 2012.  My outcome is positive, however complications along the way.  I don't regret for a minute having the surgery (okay, maybe a little during the first month!).  I am a massage therapist and use my core and upper body daily.  I have had no complications with my stomach muscles, and I love my flat tummy.  Yes, occasionally I feel tightness and it's a little harder to straighten up, but that only occurs when I have taken on too much.  I am experiencing some swelling in my breast and I do have some hardening.  Massage by a professional experienced in lymphatic draingage and treating the breast has helped tremendously.  I experienced some tissue loss as well as an infection.  i am having a second surgery to repair my scar, and to lift my other breast.    I did my research and I knew this was a long process.  My breast looks great, my stomach looks great and I feel great physically.  I truly believe the skill and experience of your plastic surgeon is the key to a successful outcome. 

  • KaFish
    KaFish Member Posts: 1
    edited November 2016

    Hi there,

    I had skin saving masectomy and immediate TRAM flap reconstruction 4 weeks ago.

    I am based in New Zealand and had private medical Healthcare so realise parts of my experience will not be transferable.

    Firstly, as we all know when you get a diagnosis of cancer and are told your choices everything seems to happen very quickly.

    I chose to take unpaid indefinite leave from my job. I know this is not available to everyone but I made the decision because I wanted to fully focus on getting well and not be distracted by other matters My attitude was, I am making a choice to live; now put all my effort into that.

    I tidied my house, making sure that the view from my bed was attractive. I brought self pretty sleep wear that was baggy, soft and buttoned down the front. I got a tri pillow. I made and froze 30 single servings of my favourite but easy to eat meals.

    The hardest thing prior to going to hospital was deciding who to tell. I made the choice to only tell people who would contribute positively to my recovery. This is because my emotions were so raw I could not support other people in their personal distress.

    Most importantly, I trusted my surgeons. Completely.

    If you don't trust your surgeon get a second or third opinion. And then breathe.

    Hospital.

    I spent 8 days in hospital. I was well looked after and my surgeon made sure my medication was balanced and my pain was able to be controlled. I left hospital with no drains, no big bandages, just tape over the stitches. I was able to walk 100 metres (the distance from my car to my bed), climb a small flight of stairs (to access our house) and shower, toilet and dress myself. I insisted in sitting in a chair for all meals. All of these goals were discussed with my surgeons and hospital staff so that I could work out what was realistic so that I could adjust and achieve my goals.

    The hospital was fantastic and supported my husband as well. This helped him move from fear and denial to actively helping care for me.

    Post hospital.

    To be honest, some days are a struggle. I have mostly stopped pain killers but find that the afternoons are uncomfortable. In the morning I can stand up pretty straight but by evening I am more stooped

    My stomach scars don't hurt at all. My torso feels as though it has been wrapped in very tight plastic wrap.

    My affected breast aches but wearing a support bra or very soft gym top eases that.

    Friends who visit at lunch time bringing food are my favourite friends. It breaks up the day and keeps me in touch with the outside world.

    People who come over and do our laundry and put out rubbish I would cheerfully marry.

    I walk about 580 metres 4 times a day and do all the stretches I have been given. I intend to cycle, run and get toned again when my body is ready to. And, I am prepared to take the time my body needs to heal, so if that means being tucked up in bed with a book, so be it.

    Appearance.

    I miss my old body. I miss having a nipple. My cup will decrease because I did not have enough tummy fat (despite being 7 kg over my normal weight). I will still have a cleavage and will look fine in a swimsuit, probably even a bikini. I have a new tummy button.

    Apart from the nipple I still have sensation in my breast and stomach. Weird sensation but definitely not dead flesh which was what I expected.

    I have no regrets in choosing this form of surgery.

    Sorry for the long post but I wanted to share my positive experience. This is my personal journey, good luck with yours.





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