Fuzzy's Romp Room

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  • rewayland
    rewayland Member Posts: 15
    edited April 2012

    Lets list all the ridiculous things people have said when we say we have breast cancer...

    " I know how you feel"

    " My..sister( or whomever) had cancer and she did just fine and I know you will too."

    " They have so many wonderful wigs nowadays "

  • madpeacock
    madpeacock Member Posts: 369
    edited April 2012

    SpecialK - so glad your friend is okay and even more glad you get to go be with her and give her some "fun" time!

    Juliebell - I believe we are given messages when we are READY to see them, whether we know it or not, so I'm glad she is taking care of herself. I hope her callback turns out to be nothing!

    (((((hugs to everyone else - I didn't read back far enough to keep up!))))) 

  • chabba
    chabba Member Posts: 5,065
    edited April 2012

    rewayland - Check our the thread "What's the dumbest thing people have said to you?"  It is hard to believe some of the things people say.  I volunteer as a cook at a local Senior Center.  Someone filed a complaint with the Health Department because I could be infecting other people!

  • dogeyed
    dogeyed Member Posts: 884
    edited April 2012

    FUZZ, I know my date of death from waaay too many trips to the mystic spirit world.  I did laff and laff at the head boinking thing, and thanks for cheering me over in chemo and in here, means a lot.  SPECIALK, you know, I think when a person accumulates more than a half-bushel of buuuusheet, they must be some kinda powerful to handle it...sooooo glad you are visiting, tooooo sweet of you, my lovely lady.  BLESSINGS & JULES & fav CINDY, ye gads, what have they done to our poor girls?  Let's go beat them up, Fuzzy will box them and I will ju-jitsu them until they stop it, by golly.

    But I jus gots to say, SHEILA, oh the sweetest of all of us, Sheila, I want you to know that your candle picture, I just gazed at it, and I did sigh and feel warm and heavenly, and away I drifted, to the land called UNDERSTANDING.  Clarity flew down with great streaming silks of all colors, a sterling cross on her shield, a platinum horse with blue eyes, and she took her diamond sword and touched my heart.  Floods of tears filled in a moonlit lake, and I laid in the tall deep green grass and watched it for hours until I came back to here, listening to some music by the Prague Philharmonic, and everything came together for me.  We who suffer, we only want peace and happiness and comfort, which this perfect world gives to us every day, if we'll just take a moment and look at it.  Thank you, SHEILA, for your candlelight.  It reminded me how to stay still despite the ruin, the restlessness, the reason... for it is not for us to reason, but to just open our eyes to all the beauty around us.  Love to my sisters, GG

  • LaurenM730
    LaurenM730 Member Posts: 366
    edited April 2012

    Not sure how I'm feeling about my boss today.  Tell me if I'm over reacting, or asking too much.  So I work in Manhattan, which is about a 45 mintue train ride and now 1 subway stop.  My subway starts in Penn Station (a zoo) and I go to Times Square (need I say more?).  Rush hour is a nightmare...  So I told him that although Im back to work, my doctor is putting on "restrictions".  I left it up to him what he wants to do - the commute just kills me.  And the response I get is "oh"...  Then I tell him that on Monday the 30th, I have a conference call at 3, but a PS appt at 5.  Should I take the call from the train or work from home?  Simple question...  I get "uh, I don't know.  Let me see what HR says..."  HR?  Really?  Its a freaking internal conference call.  Then I told him that I have my next surgery June 6th and I still have a lot of dr appts leading up to that.  He got off the phone so quickly with me that I thought he was trying to avoid any further conversation.  I feel like a leper (did I spell that right?)

    I want to cry.  I feel like I shouldnt have gone back to work.  My PT said she was surprised I went back full time.  And so did some of my friends.  I wish I thought about it before I just jumped right back into this...  Anyone have thoughts/experiences they can share about going back to work?  Im exhausted thinking about it...

  • madpeacock
    madpeacock Member Posts: 369
    edited April 2012

    Wow, chabba - that is hard to believe....makes you want to stand in people's personal space and see who flinches! 

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2012

    chabba - it amazes me that in this day and age someone could be that ignorant!  Shame on them, especially when you are doing something so nice!

    dogeyed - yes, my friend is a tough girl, but I know she was pretty near the breaking point and that is why I was so worried.  Things have to turn around for her.  I honestly feel she has had a more difficult year than I have! 

    ALSO - for all of you - I thanked you for supporting both of us yesterday, but I talked to her again last night and more of you had sent messages of love and support and she was so overwhelmed with gratitude she wanted me to be sure that I thanked you all from HER too!

    lauren - I didn't want to do the back and forth thing with work either, but I did go back a month after my last chemo.  It was not a good decision because I was still pretty ill.  It was the date that was arbitrarily set on my long term disab papers and to change it would have meant a whole new set of papers, which is a PITA.  So I just did it knowing that I was having surgery 3 weeks later.  Right before that surgery I resigned, with a re-hire clause.  I was facing weekly fills, twice a week physical therapy, Herceptin every three weeks, and the list goes on.  Can you work out a part-time return, or some telecomute?  How was your boss before your diagnosis?  Is he just uncomfortable with the BC part of this?

  • madpeacock
    madpeacock Member Posts: 369
    edited April 2012

    Re: work: I am very fortunate in that I work from home 100%. I am a medical transcriptionist and work as an independent contractor. Of course, that means no work = no $$$. I had my surgery on a Wedsnesday (I think...) and told them I would be out the rest of the week. The Thursday doc I transcribe is a sweetheart, but no one else can understand what he is saying and it takes another transcriptionist hours and hours to do what I can do in just a few. So, by Friday, they were freaking out trying to cover his dictation. I felt fine and I was bored, so I worked! Figured I earned some brownie points  along the way as well. 

    Weird thing - I've had this current account (pediatric neurosurgery) for about sevenish years. The woman who transcribed for them for many years before had to give it up because of...you guessed it...breast cancer. 

  • marjie
    marjie Member Posts: 1,134
    edited April 2012

    WHY HAS IT TAKEN ME SO LONG TO FIND THIS THREAD??

    Life seems to be getting back to normal but I don't think that I am....

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2012

    marjie - then you will fit right in!

  • Wren44
    Wren44 Member Posts: 8,585
    edited April 2012

    Juliebell, Best wishes for your friend. I was called back after several mammos and it turned out well. The last, I just had a feeling about that callback--which turned out to be true.

    Chabba, I hope the person who turned you in to the Health Department is at least ninety years old. No excuse for anyone younger. Maybe that's why I decided only to tell a couple of people at the senior center I attend/volunteer.

    Marjie, Welcome to the group. We fight cancer with humor as well as medicine. You might also enjoy OMG They Found the Cure for Stupid. It's one where reading from the start will help understand, as well as giving you lots of laughs.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2012

    Nancy im ypir pocket----------I still can'y see keysm but maube ot will make everyone lauhj. It takes so long to try and correct mospellimgs

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2012

    S[ecial K I will put in an intention ------Yje intentions may make a special ytip

     Anuone wantimg to be invlufed in The Divine Mervy novema. A suster mau be taking ukr inyemtions to the DM vhapel in MA. I'"ll Piy yjr ;omk below.

    Ytping sutr os a chore whem tje keus are b;itty/ well what I see that word fits.

    Thimkong of you all, welcome to all yje new sisters.----someone who knows why I'm typing so weirf please explain. Hopr to ne normal doon/

    http://community.breastcancer.org/forum/38/topic/738190?page=280#idx_8379

    this is a ;imk to thr Catholic Yjtread. WE are in the middle of a novema. It is very special to Have intenTions taken to a shrine.  We are an ecumenical group.

     Crog should be home --yes or no?

    Lauren Just ride the wave. Sounds like he was embarassed to talk about the subject. BUT you can talk to HR too.The should be helpful to you as well as him/ Start to make a diary. Michaels craft store did not treat a women right after mastectomy-----they were suided, michaels had to pay her several million.

    I read everyomes with difficult, now can't remember. I have to lean right over the keys about 5 inches from them to see them. improves spelling-------always have been embarassed if I mispelled a word---OCD thing so this is killing me, but it's also killing my neck and back LOL's

     Great can't type and can't remember-goodie ---very humbling

    So wjomever is having pronlems I pray that they improve---if you don't want me to prayI will try not to , but can't sewar I;;ll remember.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2012

    nancy - in your pocket - hope you like the new doc

    sas - yes, you are entertaining with your creative posts, and I hope you don't mind that they are making me laugh - do you have an old pair of glasses that you can rip the right earpiece off of and wear them perched on your nose with only the left ear piece - I would even use a piece of tape over the nose piece - they would be pretty ghetto but get the job done!  Thanks for the intention, I appreciate that!

    juliebell - I hope you friend has a good news situation too!  It is interesting but it is as stressful for me to worry about my friend as it was to worry about myself - now I know how my family and friends have felt about me!  Maybe that was yesterday's lesson?

  • madpeacock
    madpeacock Member Posts: 369
    edited April 2012

    Jumping in your pocket Nancy! Hope it all goes smoothly. 

    Hang in there SAS - I'm OCD about misspellings and grammar too. Benefit/curse of being the daughter of an English teacher/granddaughter of an English teacher/niece of an English teacher/cousin to an English college professor...

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited April 2012

    Aw, ladies - thanx for the warm welcomes!!!!

    chabba - my jaw is still on the floor!!! I am a server at our Senior's Lunch at church. It freaks me out to see so many seniors come through the lunch line, coughing and sneezing on the food, picking food off serving plates with their fingers, and putting it back, deciding they want something different. Others lick each finger on their hands before they pick up a serving utensil. I always try to grab it before the known offenders come through, but those little buggers are quick.

    SpecialK - so happy for your friend!

    POCKET BUS? Do I need a ticket? Please fill me in......

  • crog234
    crog234 Member Posts: 801
    edited April 2012

    Surgery went well... Thank you all for being there for me.. I will be in the hospital until Sunday or Monday.... I am tired and sore but that is to be expected......



    Cindy

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2012

    Special K-you met me at Moffit. I have this wee mose. You saw how I had yo wear the glasses. I could do what you suggested , but I'm down to one pair of reading glasses. So, getting ny. oddly enough site improving a bit. I guess it's making my eyes accomoDATE MORE WHICH MEANS TO WORK TOGETHER. eVEN CONTEMPLATING GOING AS LONG AS i CAN WITHOUT to see if I can get them to work together even more.

    MPC-------yes coming from a family of teachers, would definitely make you self conscious---we have oddles of teachers and nurses. with 66 first cousins I should add it up someday. Then many of their kids became teachers and nurses.

     If O squint I can see the screen. I can see the errors, but since people are accepting that it's temporary., I'll go with it. U have notived a trend when I get it wrong --it's mostly the key next to ir.May be it will jelp me learn the key board better. But sometines I'm way off and can't even figure out what word I wanted to type.

    So, everyone's prayed for. some in general some specificaliy. For the in general; folks----it's not that you are not special-----so many of us are traveling the same road. So I respect those that don't have a belief, but it reminds me of a storey. When I was young my Dad played the ponies. Horse betting if you have never heard that phrase.One day I saw him making out envelopes to say a half dozen or so monasteries and abbeys, Theses are places that you van have multiple Masses and Rosaries said. I asked him if money was so tight (and it was severely tight) The money Mom and Dad won playing the ponies, more than once saved the business and kept us aflost.((((Mom was very good))))), Got diverted--sorry-"Why send money out Dad if money is so tight"  He saud " Shush, It's my insurance" What a confusing lesson. He believed that by giving back to God a portion of his moneies won from betting that it was--insurance that God would bless him with winnings in the future----or it was for forgivebess for betting. I never asked which. He has passed long ago. I wish I had asked yje question. But since the ponies kept us afloat, what can I say. Conundrum.

  • LaurenM730
    LaurenM730 Member Posts: 366
    edited April 2012

    no ticket required Blessings.  Just tell me where to pick you up.

    thanks for the thoughts on work.  SAS - i like the diary idea.  I work for a fortune 250 company, so they better treat me right.  HR must have rules around this.  My boss is a 30 year old guy who just got married.  Every "woman topic" is awkard.  He's clueless.  HR was the one who gave me the idea to have the dr have me come back on a restricted basis.  But he's who I have to deal with on a day to day basis.  We'll see what tomorrow brings.

    Crog, glad to hear you're doing well after surgery.

    Nancy, I'm in your pocket and i'll swing the bus by and we'll stop to say hi!

  • dogeyed
    dogeyed Member Posts: 884
    edited April 2012

    SPECIALK, just so you know, I was paying a compliment to your friend by saying how strong she is!!!  I think you visiting her makes perfect sense...reminded me of when a dear friend of mine who had muscular dystrophy, he was in the last six months of his life, and I normally would have gone straight to him and visited, but it was such a long trip that I could not because of my disability.  Oh, I did ache and worry with guilt over not being able to get there.  So, K, you are doing what I would do, in a heartbeat.  I am glad your friend will have your company, it will help her tremendously to deal with her bushels of troubles!!!!

    LAUREN, I think after you talk to your boss again, see what he says.  Then perhaps tell him you'll go over with HR your calendar over the next couple months, and work out a plan that everyone is happy with, like you working 3/4 days for May or something (put your appoints at end of day or whatever), then taking off a couple weeks for surgery recovery in June, then coming back full-time... but if you're having rads, I reckon you'd need to resume 3/4 days not only for all of those, but you WILL need a couple more weeks off when they are over.  THEN you can somehow scramble back into full-time.  You see, by putting together a calendar that follows "the rules" they have, you can keep your job, your boss will have a printout from HR of when you'll be there, etc., and everybody will be straight.  And reserve your right to sometimes call in sick.  It's really just communication.  And actually, since your boss is new, he doesn't know what the score is, so he's just trying to fit in.  These are just suggestions to guide you through this rough patch, tho.  I know just how hard it is to keep work straight.

    CINDY (crog), I'm glad you'll be home soon and I'm relieved the operation is over.  Follow their release instructions for at-home care to the letter, dear one.  We want you to stay well, at least the parts you have control over.

    CINDY (now), your new onc and the clinic sound first-rate!  Gosh, I'd want me some of that pressure point or acupuncture, to be sure!!!  I am in desperate need for a personal trainer and a daily massage, complete with BLESSING's senior cafeteria line with spitty food!  Haha!!!  And welcome to you, MARJIE, our Fuzzy who set this romp room up, a miracle worker for crappy days!  Always, GG  

  • LaurenM730
    LaurenM730 Member Posts: 366
    edited April 2012

    Nancy - yes, I agree, bosses are dummies - especially mine! He's initially reaction to everything is "uuuhhh" with that dumb sounding voice. It's definitely a good idea that I keep some type of journal about what's going on. Hopefully I'll never need to refer to it...



    GG - I am so willing to play by the rules. I'm basically leaving it up to them how they want me to work. I told them its the commute thats the killer, so let them come up with something. I threw out a few suggestions - fewer days in the office, shorter days so I miss rush hour or work from home another day.



    They've been really good with me, up until this point. Now they are making me feel uncomfortable about it. Good thing I'm friendly with the woman in HR. I know she's always onmy side.



    Crog - glad surgery is over and hopefully you're starting to feel better.



    Hope everyone has a great weekend planned!



    Xoxo

    Lauren

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2012

    Crog so, happy for you that surgery went well . I have an inrentione for you on the novena., We are going to storm heaven with this novena.

    Nancy ?. Also glad ti hear new docs are good.

    Special K--yes, as my eyesight improves a bit, it's a hoot looking at past notes. The one about 7-9 back is so off, bit funny as you say.

     Gina would you repost your description on how to work with  HR on my thread  " JUST DIAGNOSED--GET PREPARED". it's a  basically a thread of suggestions on what to do when you get cancer.You may want to edit it , So it's more generic.But you have an awesome approach that is very work friendly. I'll go get the link and post it at the bottom. I hope that you will consider doing this Thanks

    http://community.breastcancer.org/forum/5/topic/748296?page=4#idx_118

     tested link and it works

     Lauren Our Gina has an awesome approach and it does certainly help to have a friend in HR. AND why did this boss get the position he has?

    welcome Margje

    Typing hasn't improved as much as it seems. Just working harder at correcting. A note to another  member---took three tries to type the word " improving" LOL.

     Where are our Fuzzy and veggy?

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited April 2012

    Lauren - OH THAT PISSES ME OFF!!  Sorry I'm a little late ... rough day yesterday ... Are you Salarierd?  If yes, I have good news for you.  How many employees does your company have?  DOCUMENT EVERYTHING!!!!!!!!!  EVERYTHING!!!!!!!  I'm totally serious.  If I told you all that I am in HR would you still love me?  HR and Employee Relations ONLY protect the company - there is no empathy - no understanding - at least that's what I would like you to think moving forward.  Even when they suddenly do something that appears genuine - it's not.  You have to protect your self - start your research now because there is a TON of it - EEOC, ADA, Workforce Development, Social Security, Department of Justice ... Honey, I will help you.  It's a lot but well worth every friggin' minute to preserve your dignity and sanity.  DO NOT LET THEM DO THIS TO YOU!!!!  Please PM me if you don't want to post everything ... or let me know if you want to talk.  I'd give my number to any of my sisters - anytime!  I'm a mental case but I love (more than anything) helping other people.  You gots to be very careful....tricky bastards.

    Nancy ... I was in your pocket ... I was just really quiet ... LOL

    Special ... I don't think I will ever stop thinking about your friend or you - the kindness from both of you gives me goosebumps.  ENJOY YOUR TRIP AND HUG HER FOR US!!!!

    GG - I just want to hug you sooooo tight for what you give to all of us.  You are an inspiration and a blessing.  I too have spent time in spirit land ... somehow I don't connect well ... but there's some guy that keeps appearing ... no one I know that's for sure!

    Marj - WELCOME!!!  Rock on rock on!!  Get on the BUS!  No tickets needed ... no memory needed ... no hair needed ... no shoes needed ... LOL  Just get on the bus and enjoy!

    LOVE YOU ALL WITH ALL MY HEART!!!!  no wait ... better make that my butt ... it's a whole lot bigger than my heart ...

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited April 2012

    BTW....Stupid crap people have said ... oh yeah ...

    I totally understand what you're going to go through.  -by a man, no breast cancer or cancer or any treatment of any kind that would even come close to WHAT I WENT THROUGH!

    That one will probably piss me off forever ... or until ... oh, edit Fuzz!  LOL 

  • dogeyed
    dogeyed Member Posts: 884
    edited April 2012

    Oh, sweetie LAUREN, I surely did not mean to go so far into your world, I certainly did not mean you any harm, dear one!  I just had an idea and passed it along.  Ohhh, just ignore me, I'm a lot of hot air anyway and do better in the hilarity theater.

    SASSY, I am not sure if you were speaking to me, GG (aka Gail and dogeyed), when you said "Gina," altho I like the ring of that one, but if you want me to post what I said, I am soooo confused by things, please do me a wonderous favor and grab that thing and post it on the front page of the New York Times if you want.  SMILE.

    NANCY(now), ohhhh, my friend, you are toooo sweet to go through this leg thing ALL OVER AGAIN.  Dang it.  I'd give advice, but I think I need to focus on me for now, I've been a wreck with my back for days and days.  I think you should be on an ocean-cooled island, with a permanent servant to fan you day and night. 

    FUZZ,  You need an animal ally.  I have one, but only comes around to warn me of stuff.  Had three visit at one time, got husband's photograph of it, terrified me of what the warning might be, and then cancer came, crashed down my door and near 'bout took my life.  Next time you see that man hanging all over the TV set, close your eyes and think of some amazing animals, one will come forward, look into his eyes, and open yours again.  Approach the man.  Your ally will be seeing thru your eyes, the man will see your ally, and the man will fade away.  Ever read any books by Carlos Castenada about Don Juan?  Some of what I know comes from a similar source.  That man you're seeing embodies your fears, so let your ally handle him, spirit to spirt.

    You know, FOLKS, I tell everyone how to do this and that, and yet I know nothing of my own haunted self, my own pains bring me down so far I cannot get up, I feel vulnerable and worried over nothing.  I know how to SEE, I know to look at the natural world around me, I know where to find comfort.  But sometimes I just cry, like now.  Big old crocodile tears come to me in the early mornings sometimes, and I am so lost.  I KNOW the beautiful world is just outside my window.  But I don't feel it.  So, reckon I'll turn on some tunes and let them take me away to a better frame of mind.  Oh, and I'll call my doggie in here, he will sit with me.  And I will let some love go out to my sisters.  My dear sisters, I love you each and every one, for always, Gail

  • LaurenM730
    LaurenM730 Member Posts: 366
    edited April 2012

    No, GG - you did no harm.  Your ideas are great, and I appreciate them.  And if you did post something on another board, I will listen to it.  Anyone who has this experience, or is in HR, is in a better position than me to figure this out.

    I am thankful for everyone's input here.  This has been a rough week, more mentally than anything else.  I'm just trying to figure out what's best - for me and for the company.  I am fortunate with the job I have... I've been there 9 years, have been promoted 5 times, and one was while I have been out on DI for this.  I am thankful for the flexiblity I've had over the years, so I dont want to piss anyone off there.  I don't want to look like I'm taking advantage of anything, but I know I need to take care of myself first.

    I love you all, and thank you from the bottom of my heart for all the support and caring and love each and every one of you shares.  You all give so much of yourselves on a daily basis.  Thank you! hugs, hugs and more hugs.  Lauren

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2012

    crog - yay on the surgery - here's hoping you are now on the road to recovery!

    nancy - crap!  Doesn't sound like Tamoxifen likes you - or you it!

    fuzzy - I am leaving early Tues A.M. to go see my friend - can't wait to spend some time with her.

    sas - yes, you do have a tiny nose now that I think about it!  We need to invent some glasses that don't rest on the ears, I will get to to work on that right away!  Thanks again for the intention and doing the novena - always comforting to know that people are praying for you!

    dogeyed - my friend is very strong - and I knew it was a compliment from you to her.  When she was a senior in high school she ran on the track team.  One day not long before the prom she was helping with the guys doing shot put.  As she was collecting the shots a guy started to throw without warning her first.  She was hit in the cheek by a 12 lb. shot - it shattered her cheek, jaw and eye orbit.  She never lost consciousness - it sums her up.  She routinely rides 100 miles on her bike in Century Rides.  She is a tough chick but the last year has laid her out big time!

    Lauren - you will figure out the work thing - it sounds like they value you or they would not have promoted you, so if they want you and you want to stay - a plan will fall into place.  Sounds like maybe this is an awkward period - hopefully short-lived!

    veggy - are you hanging in?

    Hope all are having a nice weekend - we had a hail storm here (Florida) yesterday!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012
    Sorry everyone. I've been .  I have been . I haven't felt like . I have been doing some research and asking questions .  I know what I must do and I am trying to accept it.The best thing said to me today was... no breast tissue, no breast cancer. Made sense to me. Just trying to find my courage and strength. Thanks everyone for your advice. Love my sistas!
  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2012

    veggy - you can do this, if it what you want to do - if you have specific questions PM me.  I was a lumpectomy candidate who voluntarily elected BMX with immediate recon (TE).

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