How high is high for the CA27/29?

   Ihave a lot of questions for my onco when I see him Wed.   I had asked them for a copy of my last liver function test, which is still normal, but the test is a complete metabolic panel and it seems that my eGFR which can indicate something is going on with the kidneys, has been high so I went in yesterday to get some previous tests to compare.   Not only do I find that this number has been high for some time now, I also found that they were doing the CA 27.29 just about every time and I did not know it.   Had I, of course I would have been bugging them about it.  I did not know that on 2/15 it was 3,102 , so that means when it was 3,289 on the 22nd of Feb. it had actually gone up.  The last count was 2/29 and I was disappointed with that one,3117.7  if you recall since I thought it had only gone down about 170 from the previous time when in fact it was up from 3,102. So I am finding out there are many things they don't tell you UNLESS you are asking about them......when I did go in and get these reports and asked about the note on how this one number can indicate possible kidney failure if it is like that for 3 or more months (have no idea how long mine has been elevated), they actually said Oh, we don't worry about that.

   Aren't my kidneys just as important as my liver when we look at the big picture? As I always say, we need to keep on our toes with this disease and be our own advocates. Anyway, I still feel fine and will continue to think I am until the scans tell me different, but for sure I am going to be asking questions at my appt on Wed.

edited: I just went back and read what I posted previously and the dates don't match the numbers and dates on the printed sheet....the # they gave me for the test on the 22nd was the number that was on the test run on the 22nd....how can that be?! .....more questions than ever now.   Now I at least understand why the nurse said I was in a holding pattern the last time she gave me results....it had been going up and down and I didn't even know it.  

I used to be on Zometa, Peggy, but now get Xgeva which I suppose could do the same thing....it just sort of threw me when they said Oh, we don't care about those numbers.  It reminded me of when my mother had this terrible chronic cough and I asked her if she had complained about it (she was undergoing treatments for lymphoma) and she said Oh, all they care about is the cancer.   She ended up having walking pneumonia which eventually took over so I guess they should have cared a bit more about it.  

  Markers are now 2,373.....that is the # from last Wed. which was done 3/21.   I am not doing the happy dance however because in spite of this drop in number, the scans I had done on Friday said No significant change and I still have those huge tumors in my liver.   So, I don't know what to think.

  The PA from the onco's office called me at work this morning....She called me!  I wasn't even going to check before the weekend because I had a feeling it was about time for them to start going up again.   Said she had been in the lab and just saw the incoming results and that my markers are down to 1,507....that is an 800 point drop from 3/21 when they were 2,373.........so maybe next time I have scans we will see a change for the better.  Anyway, I am excited and just wanted to share the good news.  Hope springs eternal!!!   Onco assured me my kidneys are fine and also my liver function tests are all normal.   I get the heart checked out next week.