<5mm, t1a; no chemo/Herceptin benefit...BUT WHY Arimadex?

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Anonymous
Anonymous Member Posts: 1,376

I'm waiting for a second opinion on the Oncologist's treatment plan of no chemo/Herceptin. I know I should be doing the Happy Dance.....and I SO ADMIRE all you warriors who have taken the treatment!

Can anyone give me an idea of the logic behind taking the hormone suppressant for five years? If my risk with or without treatment is the same (he says less than 10%).......why take the potential side effects of the Arimadex? My logic sees it as "go down this road. We think we got all the bad guys, but there's a 10 % chance we missed one guy with a gun, so we're going to give you a sling shot."

Am I missing something?

Comments

  • Maja2213
    Maja2213 Member Posts: 28
    edited April 2012

    Since you are waiting for a second opinion, definitely get one about the arimadex. How much of a risk reduction are you going to get? 1% might not be worth it. 3%??

    Your diagnosis looks similar to mine but I went the Taxol/Herceptin/radiation/tamoxifen route.  (I was premenopausal at diagnosis and think I am now in menopause brought on by the Taxol.)  The tamoxifen will slightly reduce my recurrence rate (I was not strongly ER+) but also is supposed to help prevent or at least slow down the development of something (a DCIS or new primary BC) in the other breast. 

    BTW get the second oncologist opinion.  Her2+ usually pushes you into chemo (I had a 4 mm IDC with a 3 cm DCIS) but your age and grade are factored in too.   I was 44 and grade 2/3.  If you can track down the postings by Dancetrance on here you'll see she went from no treatment advised at one place to doing TCH which she just started this month.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Thanks, Maja! ...I thought the HER2+ automatically trumped the size too! ..and I had already prepared for that emotionally (as ready as one can be). I even still have the appt for a port surgery.....I'm just a little suspicious that my HMO (Kaiser, who I've been very happy with until now)....may be downplaying the HER2+ part and lactating me with Arimadex. I'll be sure to ask my second oncologist. Of course she is a Kaiser provider too....

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited April 2012

    My oncologist said that some cancers have more or less of the HER2+++  You might ask if it is moderate high or extremly high. Mine her2+++ was extremly high along with a high proferation rate, grade 3.

    If your HER2+++ is high then you might consider a second opinion. I wouldn't take anything with harsh side effects if you didn't have to. You have to compare risk to risk such as if I take herceptin/chemo what are my risk for a heart attack or lung problems or another cancer? What are my risk if I don't... Compare risk factors. My cardio said those taking herceptin risk is 12% for heart problems (we need a good heart) and I was told that I'm at least 25% for a cancer recurrence. So I'm more likely to have cancer than a heart attack according to satistics so I'm taking herceptin. BUT, I'm having serious heart issues so the 4th herceptin treatments might be my last infusion for awhile. I happen to fall in the 12% risk for heart issues. Hopefully I won't fall into the 25% for a cancer recurrence.

    Personally, I think the whole early staging thing sucks. They don't consider HER 2+++ when staging. They don't consider grades when staging. It is mostly size, or if it is found in a node then you are stage 2. If it is larger than 2 C you are stage 2 or 3 (depending). They don't consider that once IDC biopsy cut into the tumor that it could be spread vasuclar. And very tiny IDC with the HER2+++ can be as dangerous as a large tumor with a node infected. You don't know what these strange unpredictable cells will do. I think any IDC with HER2+++ should be treated.

    BTW...I am also stage 1a . My biopsy tumor was 2 C her2+. My surgical path report was 1.8 C idc, grade 3 .  Since the node showed no cancer I am no greater stage than you. They pushed me to do treatment and not you? Doesn't matter how small the idc her2+ beast is it is still the same idc her2 + beast.

  • Maja2213
    Maja2213 Member Posts: 28
    edited April 2012

    chacha - I saw on one of your other posts that you found Dancetrance's page.  There is a lot there and I hope it helps.  At least you might get a good set of questions to ask the next oncologist. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Thanks evebarry! Good points to consider. My first Oncologist seemed to feel the size was the most important issue. I've decided to also get the opinion of an outside Ocologist (one recommended by a cancer survivor friend) just to ensure the no-Herceptin plan is patient risk/benefit driven and not cost of treatment driven.......I hate feeling so suspicious....or paranoid.....but I'm not yet convinced!

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