March 2012 chemo
Comments
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lanagraves-I think I have now sampled about everything I have in the house food wise! Still want something though.
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Hey gals - Can I join in here? I had my first treatment 2/17 but am on an every 3 week regimen of TAC, so am halfway through the treatments. Last one is June 4th. Then it will be surgery for me 3-6 weeks later. I'm choosing to have a bi-lateral even though the diagnosis was in the rt. side. Any thoughts about that? I can't imagine having to go through this on the left side in a matter of month or years. I already have bone mets so I"ll be dealing with this for life, I suppose anyway. I appreciate the comments from you all who've already been through this. Gives me hope to hear you're years out from the experience.
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I've been missing my sushi, too so I had a CA roll wtih real (cooked) crab and then a tiger roll that has cooked shrimp on top and a caterpiller with cooked eel and the real crab inside. It seemed to satisfy the craving.
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Hi LynnM
I for one am a relative newby here with only being DX 12/11. I don't blame you for doing the BMX though. I questioned the merit of this with my surgeon prior to surgery. I hope he was right.
Welcome aboard our train however!!!
Re Sushi: Yes California rolls have cooked stuff in them. Its true Sushi and Sashimi that are raw.
Perogies are awesome chemo food!!! Must get some in for the next round for sure. Had some last time and they were gerat.
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First off - haha, I made it without posting til 5 - that is central time people. I actually only cleaned/straightened the length of 5 Gaga songs (I counted) but I got a few other things done, including wiping out my iPhone when I tried to back it up - argh, all my checking acct register info is on there. Le sigh. DH has to work on it when he gets home.
Lynn - welcome - sorry you have to be here but this thread is the BEST; we "talk" all the time on here about everything under the sun. It moves fast some days and then there are other days where it just kind of drags along. About the BMX, I am going that route too. I have a 3 cm tumor in the right (had a tiny questionable mark on a mammo in the left but nothing lit up on mammo or PET) but even if mine shrinks away to nothingness, I am still doing the BMX. Sorry to hear about your bone mets -
- but everything I read seems to indicate that they are very manageable. Re: surgery in general, a lot on here have already had their lumpectomies/masectomies and can give advice on that as far as questions.
RE: Sushi - DH only eats the cooked kind now that I think about it! I bet those are ok. Speaking of food, I have nothing in the house for dinner. Remember my thing about swearing off fast food way back when before chemo started? So much for that. DH has to go help my dad move some boxes into their storage unit so who knows when we'll actually eat. One of these days I will start eating healthier.
I am gonna do it, I am going to commit and order my halo tonight - getting a curly one just to have something different - my wigs are straight. I was going to be adventurous and go redder but think I will stick to the dark blonde so it will look more natural.
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kltb04 -woohoo to making it till 5! 5 gaga songs is pretty good for cleaning! Ya'll were talking about sushi, so I had a tofu spring roll with peanut sauce from Whole Foods. It was ok, kind of like sushi no? I then had some ginger snap cookies made in Texas shapes, also from Whole foods - I hear ginger is good for nausau! LOL Note to self, don't go to whole foods hungry! I'm not even feeling nauseus (sp?) I just wanted a cookie. I could almost taste the ginger!
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Um, I had some cookies today too - someone brought them with dinner last night (yegads, I feel guilty when people bring food on my "good weeks" but that is another subject). I think they were just the little place and bake you get in the dairy case but they were still good. And I had more than one. 'nuff said.
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Welcome Lynn! I'm sorry to hear about your diagnosis, but we're here to support you! I did have a BMX even though my cancer was only in the left. There were suspicious lesions in my right breast, but they couldn't biopsy them before my surgery so I didn't know whether they were cancer or not. I had previously had breast implants and remembered how awful the recovery was, so I only wanted to have to go through it once. I'm also a worrier and knew that if I didn't go bilateral, I wouldn't be able to move on after treatment. I still think I'll be stressed with every check up and scan, but at least I eliminated a big part of the risk. Talk to people, read about it, give it thought, and then go with what feels right to you. It's not an easy thing to do. Let us know if you have questions or concerns we can help you with!
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So I have a new "taste" going on in my mouth tonight... SOAP! Everything taste like soap! What is up with that! I think I like the cardboard taste better!
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Lynne, I totally agree with Masserz about both breasts. My invasive cancer was in my left, and lumpectomy revealed no clear margins. Turns out left breast was full of sneaky DCIS also. (I say sneaky, because often it will calcify and show up on mammo, but mine didn't). Needless to say I was fearful my right breast would have DCIS too, so off it went also! No regrets. Like Masserz, I also had implants prior to bc due to losing 1/2 my right breast after massive mastitis 7 years ago. I also did not want to be constantly worried about my "good" breast (which, btw, was cancer free!).
Karri, I did cut that wig into a halo. Turned out great, considering I'm not the best seamstress! That wig was a little bit big and kinda baggy in the back (the wig lady said some companies allow room for hair up under the back - who wears wigs if you have HAIR?!) Anyway, funny thing is, the center part that was left over will sit on my head under a ball cap and looks great! (you know ball caps, with their opening in back, don't work with halos) I stitched the halo to a roomier hat, like the one Shera used with her own hair, and love that look, too. So I got 2 out of it, which is great because even with 35% off, it still was over $100, and I was not going to wear it like it was. Wish I could post pics, but I don't do facebook, so no way to get a URL attached. (my 17 yr old won't want them on his page!)
Lostinmo, it does get easier to go out in wigs/scarves. I've been without hair now for 3 weeks, and I'm still a little self-conscious but not nearly like at first!
Amy
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very impressive Amy! Sounds like you have a winner!
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Good Morning Everyone! Once again sleep has seemed to elude me. I gave up and got up before the sun. But at least out here in the country it's a beautiful sunrise coming in the window.
Thank you for the encouragement on the no hair. I finally let my son see me without a scarf or anything for the first time yesterday. After he told me "I never see you in hats either Mom so just take it off" So I did, but not for long. It was cold!
onvacation-I think I'll stick to everything tasting like cardboard! I have a growing list of foods I'm going to eat and enjoy (I hope) when my taste comes back.
I'm debating going to visit one of my best friends this weekend. Her son and mine are best buds too so it would be good to get them together. They live about 2 hrs away. Any imput on this. We will stay at her house so I'm not worried about low counts or anything like that. Plus maybe she'll cook something I can taste? And maybe give DH a chance to get away from this for the weekend. Girl time and shopping.
My lump is uncomfortable today. This should be a good thing, it's not liking the chemo.
Have a great day! I'm done rattling for now!
Just thought I'd mention that this is also the BF who offered to buy me a waterboob bra after my mx, but that if she got too drunk might have to throw darts at it. I had to laugh.
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Lost - you should definitely go! It's nice to get a break from this junk. And I know what you mean about giving DH a break. Our church is having a men's retreat the last weekend of this month and I told mine to go. He needs a break from the cancer to. I'm actually going out to lunch with some friends today. Have to decide hat or scarf. Hats are cute but get warm, scarfs much more comfortable. We live out in the country also, and since my ds I have watched many a sunrise.
Lynn - my cancer is in the left but when they do the surgery I have opted for bmx myself. I don't want to worry about this crap coming back. But I think it's a personal choice. Sorry you had to join this club, but we're glad you found it!
Going to finish my coffee. Have a great day all! -
Michelle - I am giving DH a break too but he is going to play D&D with his friends on Saturday (yes, it gets all Big Bang Theory nerd level up in here). Have fun at lunch - I have been doing a lightweight/silky scarf tied at the neck with a cap on top.
Lost - GO! It will be good for you. ROFL on the bra - reminds me of the Will & Grace episode where Grace wears a waterbra and springs a leak.
Amy - yay on the homemade halo. I went ahead and ordered the one from tlcdirect and if it doesn't work, I can always send it back because they take returns. My caps so far are just more the newsboy or such style that don't have the hole in the back so I hope they work with the halo.
Kim - soap - ugh gross. Here's hoping your taste improves and soon.
Played some low white blood count roulette this morning. Had to go into two stores to find youngest DD some new pj's - they are having pj day at school Friday and she had nothing suitable to wear in public. (Dollar General again Kim, lol!) Then I had to run into the elementary school to take some candy bars oldest DD is selling that a teacher bought.
All of your posts about seeing the sunrise inspired me to have breakfast al fresco after I got home from running the kids to school. The sun was already well up by then but it was nice to be outside for awhile - I wish this weather would last. Lows in the 50s/highs in the 70s. Before too long, it will be humid and horrible. I think I will even go for a walk in a bit.
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Klt
Looks a little warmer in AZ than here for sure. Its brisk out there today but sunny. Just got back from an hours walk with a friend. A dear friend of mine lives in Tempe and I'm really hoping to get down there in the fall for some R&R.
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Ahhh, the common mistake - AR is Arkansas...LOL! I had a package shipped from the UK at Christmas and it was sent to Arizona first. I was amazed it got here in time...
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Hi all. I don't post much, but I do read through everything and think about you all. This group moves quickly! I've been in such a dark place the past couple of days. I can't seem to shake it. I'm crying constantly. My mind just runs to worst case scenarios. I know we all have our down times, but I just wish I'd snap out of it already! What do all of you do to snap yourself out of lurking in those dark places and back into a stronger and more positive place?
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Good morning ladies! Getting a late start again today, but made it to work. Wound up with Chinese takeout for dinner last night - and it actually tasted GOOD. Also made some tuna pasta salad just because I had a craving - it was good too. BEAUTIFUL weather here today too, kltb. I wish it was like this all the time. Would love to be outside somewhere instead of in my office, but since I'm out so much with chemo and the effects thereof, no time for playing hooky.
Lost - Definitely go! Hope you have a wonderful time!
Amy - The homemade halo sounds great. I am soo not creative. Guess I'll just wind up ordering one.
Kim - yuck on the soap! Everything tastes like chemicals to me, especially anything I try to drink. Ugh..trying to think of some new things to try this time since I have chemo tomorrow. Someone on another thread suggested a slushie with ginger ale. Think I might try that.
Michelle - Hope you have a great lunch. It always makes me feel better to get out for awhile with friends.
Lynn - So sorry you have to be here, but the ladies on here are a fabulous group. I am fairly new too. Tomorrow is my third treatment. But I am so glad I found this forum.
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Klt
Yes I should have realized AR is Arkansas, Doh!! At least I'm not the only one making that error!!
nsmolen
I guess the only thing I do when that happens (and it does) is to keep busy if not physically then mentally. Reading, TV, crosswords, games on FB. I suppose stay off here if you have too. Sometimes when you log in and some of the active topics are too much it gets to me too especially. Please know that for venting this stuff this is the best place to be.
I'm a little PO'd actually right now because I do not post anything on FB about BC. Yet a survivor I know just posted something on my wall to the tune of "Thinking about you. How are you feeling, you are in my prayers". Not impressed at all because I have already told her not to do that. I have alot of clients etc that don't really need to know you know? I private messaged her AGAIN to update her AND to remind her that its really on a need to know basis so I would prefer she either call me, send me an email or PM on FB. Kills me when people that have been through it don't get it!!
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Nsmolen - I was there this weekend. It just really helped to talk about it and vent. You can read my posts from Sunday they weren't pretty. And I realized its okay to cry and let go. We don't always have to be positive and happy. This disease is an emotional rollercoaster. Just knowing I have this support system here really helps. The ladies here have really pulled me through some dark days. You're not alone my friend and that's what helps me. Sending you big hugs.
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Kilt - when I said church men's retreat, that's actually code for the men from church to go drink, shoot guns, fish and hangout up in the woods. They call it Guns & Moses! Lol! I told him not to let them turn it into a "poor jason, his wife has cancer" party. It's his chance to hide from cancer and not be in his face. He definitely deserves it.
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Nsmolen, I go to the survivor threads.......the ones that are titled "5-10 years out and checking in" type threads......those ladies are moving on with life and cancer is a memory; I copy and paste my favorite stories to my iPad to read when I'm in "the dark place".
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Ok, y'all I am back and am not worried about BC anymore because I nearly was murdered by a rabid skunk. Slight exaggeration...but I smelled him on the way up the road and when I turned around and was walking back home I saw his ass - literally - in the brush/fence line. I just stared straight ahead and started power walking. As if ignoring him would have helped. I have sworn off walking that way in the future. I will stick to the new construction roads through the fields or the treadmill.
Lana - it doesn't matter if the weather gets hot and humid now because I am never venturing out of doors again. *HE* will be waiting.
Michelle - ROFLMAO - that is too funny...I am guessing it is not a Baptist church. LOL...though as long as you aren't in the South, they are probably more lenient than the ones around the Bible Belt. That's why I have to be a Methodist or a Presbyterian if I ever go back to church. Not that I may ever drink again because I am paranoid about alcohol now. Ok, religion is never a good subject to discuss amongst friends so I should probably shut up.
MLB - I HATE that when people post on FB. I have asked people not to do it too. My DH's SIL (not my SIL who is my BFF) was posting stuff everyday about "thinking of you" or "pass this on if someone you know is a survivor OR DIED from cancer" - I guess some people have to be told repeatedly. UGH And my DD is on my FB too so she would see that all the time. She finally quit after I emailed her and asked her to.
nsmolen - (((HUGS))) I wish I could make you feel better. I was so there last week and I didn't post much. The only thing that really helps me is just to think of really really short term plans. Like next weekend on my good week, I will plan for us to do something if my counts are up. I still can't think long term. I was just telling DH that I want to go somewhere this summer for a few days and wonder if we should go ahead and try to go to Universal in FL with the kids "just in case" this is my last good summer, even with the chemo. I am always that way in the back of my mind but after I get a good report/scan (case in point the xrays last week), I get a little boost of optimism and think maybe things will be ok. Another example, we need a new vehicle and DH is looking at SUV's and I think well, if something happens to me, they might not need all that room. Morbid shit goes on in my head constantly, I just push it to the back. And then when I am feeling good, like this week, I will be driving with the radio blasting and feeling good and then think "well, how many more good days do I have?"
So anyway, no advice, just commiserating. I watch a LOT of TV/movies. I can't concentrate for too long to read (books) - I have been working on The Girl Who Played with Fire for weeks now. Can't read more than a few pages at a time. I guess it all boils down to one day at a time and all those platitudes. Again (((hugs)))...
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Ok, I'm on Day 8 from A/C Tx3 and am experiencing lower back discomfort and occasionally something that feels like menstrual cramps. What gives?? I've been taking Claritin regularly and haven't had a period for 4 years! Anyone else feeling like this?
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Lisa, several here have mentioned similar...I have what I can only call back "spasms" sometimes...usually when I lie down after being up awhile and just start to relax...I think we can chalk it all up to chemo but a call to your MO might be in order if you think you could use a muscle relaxer or something similar.
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kltb - Still laughing about the skunk!
nsmolen - I wish I had advice. I don't. I do it too, although it's much better than it was before I got my scan results. Today, though, I am obsessing about armpit pain and a burning pain in my shoulder blade behind where my cancer was. Of course I know that I had major surger in that area two months ago and that is certainly good enough reason to have pain there. But I probably won't feel better about it until I talk to the MO about it tomorrow.
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kltb04 -glad that rabid skunk didn't stink you up!
Today's weather is so nice, 72 and low humidity, went home at lunch and had to MAKE myself come back to work. I hope this lasts through the weekend. Nice weather just improves my mood instantly!
HUGS to everyone who needs one today!
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I am loving the weather; you're right Kim, it's the humidity level that is so great.
I had to update you all on the skunk - I posted about it on FB and a neighbor a few houses down said she saw it chasing a cat!!!! a few days ago...seriously, it may be rabid. And if it is, and drooled on the road, I could have tracked rabies into my house. And that, my friends, is the way my crazy head thinks. You see why I have issues.
Ok, I am going to pick up my kids. I should be glad I feel good and am not sick and can but omg I just want to nap. Not going to happen. It takes an hour and 20 minutes by the time I get there, wait half an hour on one (you got to be early enough in line to beat the rush) then drive to get the other and wait in the line there and get home. And the schools are 5 and 10 minutes from my house. Again, I am thankful that I am feeling well enough to do it so I am glad I can go. I will say that five times fast and then I might believe it
Edited to add: oh dear I am embarrassed. I drove really slowly by the skunk siting spot. It appears that this particular skunk is not a threat to me it anyone else. Dude is dead as a doornail. Oops.
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lkt
Thanks for the skunk update, at least he can't git ya no more. LOL!
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ding dong the skunk is dead!
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