Any April/May 2012 rad girls out there?

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  • dechi
    dechi Member Posts: 173
    edited April 2012

    Michbunny:  I got Fruit of the Earth Aloe Vera Gel with no dye at Walmart in the lotion section.  It was pretty cheap, $3ish a bottle...

  • mamglam
    mamglam Member Posts: 178
    edited April 2012

    I had my 7th treatment today and saw the RO for a follow-up as well.  The fatigue has set in more than usual and am feeling some sharp "electric shock"  like pain.  This sensation is quite uncomfortable.  My skin is also starting to get darker and more sensitive to touch.  I have 9 more to go!

  • MOT
    MOT Member Posts: 130
    edited April 2012

    All you Canadians will be done with rads before I even start next week with my 30 sessions...Frown

    Yes, my RO told me I will have one tanned breast (I tan easily) so I guess I can wear my one shoulder bare tops -- ha ha LOL. Great. Am anxious to get started though.... I won't be done with rads until after the first week in JUNE.

    I know Aloe is refreshing on a sunburn, but it is sort of drying as it doesn't have any oils or lanolin in it. Will check out the FOTE Aloe at Wallys, will also check out the Dollar Tree as that was on their website. I'm thinking about an Aloe SPRAY, saw one by FOTE on drugstore.com. Guess I will have to get some Aquaphor -- where has everyone gotton that from? My RO didn't give me any samples! She just said to use whatever I wanted and gave me some names/ideas but she didn't have any special recommendations. Thanks for everyone's comments on creams and potions!

  • Cindyl
    Cindyl Member Posts: 1,194
    edited April 2012

    I really like the miaderm... but it is expensive.  4 oz cost about what 28 oz of aquaphor does...

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited April 2012

    MOT - Aquaphor is in the skin care section (hand lotion section).  I just bought a tube tonight at Wally World.  Got chewed out a little today by RO for not using it.  Must admit it feels good tonight in my oldest nightie but don't know about how good it will feel stuck to a bra tomorrow.  Also chewed out for not putting on my cream 3 times a day.  And I must admit I started this by c/o my nipple hurting rubbing on my clothing.  Definitely seeing a difference on the tx side. Had one of my sticky tabs reset.  Tech says because of "skin changes" and that they do move around just a little bit.  AH would skin changes be tightening?

    Hope everyone had a good Tuesday.  Hump day tomorrow!

  • akmom
    akmom Member Posts: 272
    edited April 2012

    Just an update, saw the doc at the Cancer Agency after my 6th rad treatment today. She said there is NO WAY the diarrhea I'm experiencing would be caused by the radiation. That said, she was quite concerned and said if it continues she will order some lab work.

    She noted that my skin is starting to go pink and the breast is swollen and tender. There's a sore spot up toward my armpit (on the treated side) which the doc said could be a gland. Every once in a while that particular spot gets sore and it always looks fatter than the other side, which kind of makes me nervous...

    The doc also mentioned that the week after my last treatment will probably be the worst for side effects (skin irritation and tenderness as well as general fatigue), so told me to plan accordingly to take it easy for a bit after my last rad. Only 10 more to go! Smile

  • MOT
    MOT Member Posts: 130
    edited April 2012

    I think the radiation will "prune" me..... so tighening, yes. That is why all the creams to keep skin supple and intact. Just my guess.

  • linnyhopp
    linnyhopp Member Posts: 567
    edited April 2012

    Luvmygoats ~ Your advice was great, thanks so much!  I went to day to get my final measurements and my tats.  Got that accomplished in about 35 minutes and then the tech asked me if I wanted to start today.  I was surprised but glad to start and get it going cause the sooner it starts, the sooner it ends!  I came home and put on my Miaderm and I am hoping it works well.   The only appointment that worked with all my other stuff is at 9:50 a.m. each day.  Since I work, I guess I am really glad I don't have to use the Aquaphor...that stuff is really greasy feeling and it would be a mess under work clothes. I am hoping we all skip the bad skin issues. 

    Welcome to all the newbies...I am now officially an April/May rads girl like the rest of you.  I am hoping the 6 weeks go quickly.  It will be nice to be done with another part of the treatmen.  Take care and hope you are all "prune free." Love that term MOT!

  • Maghery721
    Maghery721 Member Posts: 68
    edited April 2012

    Wishn4one: Welcome to the April/May rads! Of course we don't mind you joining though we are sorry to see you have joined the club. I had my 12th rad tx today. Only now am I starting to see a pinkish hue from the rads. I have a VERY fair complexion and my oncologist told me that i should expect to see the redness around 2 weeks or so. However, one of the things I have learned in the breast cancer journey is that no two people experience breast cancer the same way. That is, everyone reacts differently to meds, has different experiences and side effects and I have therefore learned to take everything I hear and read with a big grain of salt. So it is certainly quite possible for you to be experiencing effects already. I do hope your side effects are minimal. Good luck!



    Hope the rest of you radsters are doing well. Had a wonderful massage and facial today. I was given gift certificates to a spa during my chemo treatments but was never up to going during that period of time. Boy do i feel nice and relaxed. Ladies, the Spa is your friend and you should go spend some quality time there. You certainltly deserve it!

  • MOT
    MOT Member Posts: 130
    edited April 2012

    Cigi -- I keep planning on having a massage but just haven't gotton around to it yet -- sounds heavenly! Mantra: the spa is your friend. Love it!

    OK, will be getting my aloe, aquaphor, maybe miadern, camisoles with shelf bra, all ready to go......

  • Chickenpants
    Chickenpants Member Posts: 132
    edited April 2012

    Hello ladies



    Luvmygoats - in answer to your question about where I live, I only put Nanaimo because that is the closest larger city to where I live that has a hospital. I live in the Parksville/Qualicum Beach area. Look that up. Yes, it is beautiful here. I wake up to a view of the Parksville Bay, which is the nicest, warmest sandbar bay and tourists flock here. We're big into recreation here and it's predominantly a retirement area where I live. Currently I'm undergoing treatment in Victoria and taking advantage of hikes and sights here. I grew up in Victoria, so am familiar with it. The Cancer Lodge is through the Cancer Agency and offers island patients hotel style accommodation including all meals and 24 hour nurse for $43 per day. Not bad, but rooms are shared with two twin beds. The Cancer Agency flies me back and forth by private plane between Victoria and Qualicum airports under the Angelflight program. This is at no extra cost, so I leave Qualicum at 11:00 am for an afternoon rads appointment, then early morning appointment Friday morning and arrival back home by noon. More time with family and a step away from cancer.



    Six days down, so I've had tx #11 & 12. A slight pink look to my chest that doesn't bother me and nipples seem sore. Anyone else with that going on?



    Energy good and so are spirits.



    I tried a special massage treatment yesterday thinking I had a bit of cording with my lymph node robbery, but apparently I don't. It is likely nerve damage added to a little "golf elbow" from three weeks ago. She's treating the seroma anyhow, so it was all good.



    With the discussion on Aloe Vera, I was told to avoid any product that contains alcohol.



    Anyhow, just dropping in to say hi and hope everyone is getting through treatment. One day this will all be but a blip on the radar. Take care girls. Ta for now - a beauty of a day to be had!







  • momof3boys
    momof3boys Member Posts: 896
    edited April 2012

    Hi Ladies! Finished 15 of 25 today.... A little redness and sore- like having a bit of a sunburn and can't get comfortable. I'm using the Aquaphor, which is supplied by the rads technicians. They said if/when it gets worse, they'll be supplying me with some silver something cream...not to buy anything,they like to control what goes on, I guess.

    Didn't post late last week, but after having presented myself with a lump on my neck Thursday at rads, all hell broke loose. Long story short, after an ultrasound, three CT scans with contrast (neck, chest, abdomen), 2 seconds away from a biopsy on my neck lump, the Dr stops and asks "did anyone look in your throat today? (had been seen by 4 Drs at that point) so.... He looks and sees that I have white spots on my tonsil and does a strep test, which comes back positive 2 days later.

    Lots of anxiety on everyone's part- especially mine! I had no sore throat or other symptoms. Apparently, I'm an "adult carrier" of strep.

    Ughhhhhhh the stress of not knowing the results of the CT scans until Monday almost made me take the bridge. But, thankfully they were all good.

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited April 2012

    mamglam, I had my 7th treatment today and I am just like you -- some discomfort and prickly feeling -- my lumpectomy incision is becoming a bit dimpled too -- yesterday afternoon I finally took my bra off and wore a tshirt inside out -- keep the seams from rubbing my breast.

    You are 1/2 way there - me almost.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Morning Ladies, today will be #8 for me 25 to go to include 8 boosts. I feel burnt and sore. I have those sharp stings of pain ever so often. My nipple is sore and my incicion is tender. Other than that I am using my silvadine 3 times a days and the three other topicals in between.

  • MizMarie
    MizMarie Member Posts: 332
    edited April 2012

    Momof3boys - Yikes!  I'm glad that the last doctor had a lightbulb moment, and especially happy to hear everything turned out OK.

     I learned yesterday that I will have 8 boosts, rather than the five I had assumed I would get.  I also asked my RO about using Miaderm vs Vitamin E/aloe, which was the "officially" recommended product.  She said I could use it in the morning, but still prefers that I continue with the Vitamin E cream at night.  She also said that she personally uses the Vitamin E product that she recommends on her face.  After hearing that, I was ready to go home and roll in the stuff - she has incredibly beautiful skin and not a single line on her face (she's 51).

    I'm very thankful to have passed the halfway point with only very minor skin changes.  I know, however, that the ride will get bumpier from here.  

  • Sandyland
    Sandyland Member Posts: 262
    edited April 2012

    Momof3 ~ Sheeesh!  As IF you need any extra stress in your life.  I am so glad it turned out to be strep (not that strep is any fun) and not something more sinister.  That whole story is a good lesson on why we need to maintain our peace throughout this ordeal...especially when waiting on test results.  There is no benefit to preemtive worry :)

    MizMarie ~ I just got news from my RO yesterday that I will also be getting 8 boosts instead of 5 :(  I my "end" date marked in my calendar in black permanent marker (I knew that was a mistake) and now I have to recalculate my rads schedule.  Oh well, as usual, I am trying to just roll with the punches.

    I came home kind of "wrecked" after meeting with my RO yesterday.  I really like him, but with most of my medical team, I find that they view my disease as a serious of statistics and numeric likelihoods...not as my life.  I was asking about what the status of my diagnosis would be post-rads, like will I be considered "cancer free?"  He told me that I would be in remission and then went on to discuss how breast cancer is notorious for coming back even years later.  I had to shake off that negative thought and keep myself focused on the fact that I have done everything possible to combat this disease and that I am in God's hands now.  For me, that is the safest place to be and I refuse to dwell on every catastrophic possiblity for the future.  I am planning to live every day as if I am totally cured and just be vigilant about my follow up care.  

    Blessings,

    SAN

  • momof3boys
    momof3boys Member Posts: 896
    edited April 2012

    MizMarie- what is that vitamin e cream? I want to get some!

    Sandyland, I'm sorry your RO was kind of negative... Maybe he's been burned in the past with a patient with great stats like yours that unexpectedly had a recurrence? I can't imaging how these cancer docs do this day in and day out. I know it's unbelievably stressful for us, but has to be one of the most stressful careers out there. I hope you have a peaceful night :-)

  • bethm
    bethm Member Posts: 45
    edited April 2012

    13 down, 22 to go! Saw my BS today, he was so pleased that I don't have to go back for 6 months! What a great birthday present! Everyone hang in there, we will get thru this.

  • TexasRose2127
    TexasRose2127 Member Posts: 128
    edited April 2012

    Hi Ladies,

     I am brand new to this discussion board.  I do recognize some of my sisters from the Oct 2011 Surgery and Nov 2011 Chemo boards.  I am catching up!

    I had a CT scan & preliminary marking last week.  I had my simulation today and I start RADS tomorrow for 25 treatments.  They will use a boules every other treatment to concentrate the radiation closer to the surface. The  surgeon member of my BC team said that the most likely place for local recurrence will be the skin on the suture line.   It will be followed by 5 to 8 boosts, to be determined close to the end of my RADS by the RAD ONC.   The RADS will be on my left side, superclavical, uderarm & breast bone nodes + entire breast.   They also told me that some of my back will be in the radiation field. My RAD ONC is known for being very aggressive & I am all in for that.  We only get one shot at the radiation. Cool I am good to go!!!!!

     I have to keep my fingers crossed that my implant (TE Exchange March 20th) maintains some semblence of normalcy.  Not real important to me since this is just cosmetic.  I will deal with whateven happens with this.  And then of course there are the potential skin issues.  I am already armed with Miaderm and Organic Aloe Gel.  I also talked to the nurse practioner about itching, since if I have skin issues I usually itch beyond belief, I scratch my skin off. I can use any OTC antihistimine & she said they could give me a steroid script if necessary.

    Right there with y'all on the RADS journey. Wishing all minimal side effects.  I will check in and keep you posted on my RADS oddessey.  Your support is appreciated more than you know.

    Rose

  • bchygrl
    bchygrl Member Posts: 9
    edited April 2012

    I had my first rad today! One down and 32 or so to go. I'm in pretty good shape and hope that I don't experience the fatigue that others have talked about. Went to my first yoga class this am and loved it! Hope to continue with yoga a couple of times a week or at least some walking. I work full time, but everything I've read recommends "powering" through rad with exercise.

    I had a lumpectomy in March and am already concerned that I should have opted for a MX!

  • Michbunny
    Michbunny Member Posts: 91
    edited April 2012

    I'm done!  16 treatments, no boosts, which surprised me.  I thought everyone gets boosts, but I guess not.  My care team was excellent and I'll miss them and their kindness.  But, I'm sure I'll see them again, when I go back for my follow-ups.  It is a great relief and I'm looking forward to finally recovering.

    Chickenpants, my nipple is sore like hell.  It started last week, around tx9/16.  My nurse gave me an ointment to soothe it and a supply of cotton pads to cover it, to protect it from friction.  The aloe gel I use is alcohol-free, I made sure to check.

    Another less than pleasant rad side effect is that my breast has swelled even more than it had post-surgery.  My nurse and RO said it was normal, but to keep an eye on it if it gets worse or if I develop a fever.  Marvelous.  I guess some women get bad rad burn; I get balloon breast.

    MizMarie, I'm with momof3, what vitamin E cream do you use?

    Overall, I'm supremely tired, but glad that the rad part of my journey is over.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Have any of you suffered shooting pain in your breast during rads? I am home after #8 and am having sharp shooting pain..??

  • Michbunny
    Michbunny Member Posts: 91
    edited April 2012

    Lory, yes, it's another side effect of rads.  In fact, hours after treatment, I just had a jolt.  My nurse noted on my discharge papers, that the sharp pains can continue after treatment has ended.

  • Sandyland
    Sandyland Member Posts: 262
    edited April 2012

    Lory ~ I also have shooting pains occasionally.  Generally, I have a dull ache which is with me most of the time.  I also wake up really sore each morning, but I think that is primarily due to my TE.  I have had this thing in since my surgery on 9/23/11 and I have yet to have one day without pain.  I'm kind of wishing I hadn't opted for it, but oh well :)

    TexasRose ~ Welcome!  You'll like this group of ladies, they are wonderful.

    Beth ~ Happy Birthday!!!!

    SAN

  • linnyhopp
    linnyhopp Member Posts: 567
    edited April 2012

    Hi Everyone ~ Had #2 rad treatment today.  Is it my imagination or is it really possible to have a sore breast already?  Also, the tech told me today that I would "definitely have bad skin issues even if I stood on my head all day to prevent them."  Oh yay!  I guess it's cause of  big boobs and really light skin.  I don't know what I will do if I can't wear a bra.  That would definitely not be a good look for me,  Oh well, I guess we can't worry about what might happen.  I will hope for the best and use all the info you guys post regarding rad issues. 

    Welcome TexasRose ~ I remember you from our chemo board.  Looks like you and I are on the same calendar for treatment.  Hang in there.

    Michbunny ~ Congratulations on finishing another part of the journey.  I keep thinking that in 31 more treatments I will be where you are.  Can't wait!

    SAN ~ Let me know when your final rads treatment date is.  I may want to steal your time when you are finished. Laughing

  • MizMarie
    MizMarie Member Posts: 332
    edited April 2012

    Michbunny and Momof3 - I use Colonial Dames Vitamin E with Aloe.  I found locally, but it's also available from their website.  http://www.colonialdames.com/product.asp?productid=155393

    I like the texture - not greasy and absorbs nicely.

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited April 2012

    Hi Ladies

    I popped by a week or more back and boy it's a busy place.  I'm done my last chemo TX this Friday (Whoot!!) then have to meet with the RO to discuss RADS.  Very nervous about RADS.  Its hard to tell by anyone's signaure but is there anyone here doing rads that has had a MX???  Any feedback is appreciated!

    Thanks Maureen

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Maureen, I had a partial.. one of the girls that follows me in Rads had a MX and is 8 days from completing.. she said it's all good, no pain, no problems-only fatigue.  Everyone is different- MX, lumpectomy, or partial.. I have pain, and feel burnt under my arm. I am large busted and slather on the creams given to me by my  onco.. I am now adding cornstarch to the areas that touch..

  • momof3boys
    momof3boys Member Posts: 896
    edited April 2012

    Maureen, I had a BMX and have TE's... I'm getting rads to my incisional scar (no nodes involved) because my tumor was just over 4 cm....

    Don't be nervous about rads. It's not nearly as difficult as chemo, IMO. The only thing about it that made me nervous was when they did a chest CT scan beforehand... I didn't know they were going to do this and I'm paranoid and was worried they were going to find something else! They didn't. Everything else went/ has been going smoothly. I'm in and out of there in 10 minutes flat, except for once a week when I see the RO. Then I'm there for an hour, tops. I get my blood checked weekly, rads can cause anemia.

    Congrats on your last chemo!

  • bethm
    bethm Member Posts: 45
    edited April 2012

    Thanks Sandyland for the birthday wishes!

    michbunny-congrats on being done!

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