Why am I only ok talking to stage III ladies?feeling like a jerk
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I was at the gyn last week. It was a new gyn, I had never seen her before. She asked me what stage my cancer was. I admitted I was never brave enough to ask. She went looking through the electronic chart on the computer. While she was looking, I told her I was sure I was stage 3 even though I hadn't asked. She replied I found it, it says you're stage 2. I was really elated. Isaid to her, "really?". She said yes, in fact stage 2A, I guess you had one lymph node positive. At this point, I realized I was stage 2a after eoadjuvant chemo. I think that was worse than all the other news I got previously. I know they removed the cancer at surgery and theoretically rads took care of anythingelse and presumably i am cancer free now. I realize these are just a category being assigned and has absolutely no influence on what my outcome will be, but it is just devastating me to know that even after chemo, I was still stage 2. I don't know why, but I felt the need to write this and this was the thread I thought it belonged in.
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Oh Kay!!! You didn't STAY stage 2. That was your original diagnosis!!! We keep that forever, even if we get mets, we still stay our original stage "with mets". You wouldn't even be stage 0 right now, because that would be DCIS or LCIS!!! Surgery, rads and chemo took good care of your original breast cancer.
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Can't we agree to disagree....if we don't like what someone writes, don't read the post...thats what I love about bco over a "live" support group when I can't ignore what is being said...here if a post is not up my way of thinking, I just skip it.....Our feelings are our feelings....there is no right or wrong when it comes to feelings.....Let's be respectful of each other.....
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fredntan- my thoughts EXACTLY!!!
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It dawned on me that Cancer has it's own agenda no matter what your dx is. I work with a girl, stage I no nodes and it came back so who in the heck knows. I try to tell myself, it's just a number....yeah right who am I kidding. lol
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Its just a number but you're not orlandopark! I think thats what people have been trying to say really. You guys are so much more than numbers and statistics. You are real and honest to goodness inspirational stars. You are entitled to get annoyed, be jerky, be cliquey, tell people to kiss your ass if you like, and the benefit of these boards are the wealth of experience and depth of genuine acceptance and support that is available from sisters affected by this effing disease, whatever their background, age or stage. Peace and love x
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Wow, I admit I was pretty surprised by some of the misinterpretation of my post, but I think some of this is from old wounds and may not have been about what I wrote.
On the other hand, some of you have written such beautiful words of encouragement and understanding. I am focusing on that stuff. Thank you. -
Josiekat,
My apologies for for participating in some of the sidetracking of your thread. This is a tough journey for all of us and doesn't always bring out our best. Take good care of yourself.
Caryn -
Update*****
Now that I have months under my cancer belt, I look back on the scared and confused me of the early weeks and wish I could have done a few things differently. First I would tell myself to take each step as it comes and not worry so much about the unknown to come. I would also not have posted this post, not because I wasn't feeling those things, but because I needed to gain some perspective before I could articulate it.
I had a particularly hard conversation that day with a 65 yr old women with calcifications comparing herself to me and I was frustrated. She had no chemo, no rads, her children are grown. I think the feeling I was feeling was bitterness.
But, now I understand the idea that the worst thing you have ever gone through is the worst thing that you know and that has nothing to do with staging. I know that a stage II woman with no support or a stage I without health insurance has every right to feel her feelings and I can learn something from her.
But, I also do understand that woman's feelings if she says "that stage III woman with the support and insurance doesn't get what I'm going through" and she's right.
I think my understanding of my own emotions are continually evolving on this subject.
Thanks. -
Hi Sherri-
I have 4 more chemos (out of 16), so I am feeling like the finish line is in sight. But, then I head in for surgery in May and then 33 rads after that.
It has been an emotional roller coaster, but as everyone else has experienced, time and action are helping me feel better.
Thank you from the bottom of my heart for your kind words and over all caring.
It has meant a lot.
Jo -
Josie, although I'm not a stage 3, I do appreciate what you originally said. Therefore, I'm glad you shared your feelings. I had feelings similar to yours. I was jealous of all the stage 0 and 1's, I was jealous of all those that didn't have the BRCA 2 gene and didn't have to have their ovaries ripped out of them, of all those who got diagnosed later in life (I was diagnosed at 36) because their youth wasn't ripped away from them, of all those who had lesser grades than me, of all those that had children first since I may never get the chance. Those were my feelings in the beginning. Because less than 5% of breast cancer patients were diagnosed under 40 and I was the lucky one. There was less than 1% of breast cancer patients who had the BRCA 2 gene and I was the lucky one. Then there was the less than .05% who were first generation BRCA 2 and I was the lucky one. I hate statistics because I literally defy the odds.
But I think as I move through this journey I've been on, I've realized that we are all scared ishless when we are diagnosed. None of us knew our stage when they said we had cancer. The fear of the unknown is something we all share. We all go though every back ache thinking our cancer has spread. We share a similar journey that I hope unites us in the end. But the feelings you had are completely normal...as are the feelings you're having now. I'm glad you shared.
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Hey Illinois-
I know! When the 1% vs 99% movement was started they surely weren't thinking about us!
Today when the woman at Aveda told me I am lucky to have the good kind of cancer, I realized how far I've come. I just smiled at her, bought my shit and left. It didnt ruin the rest of my day.
Other people's diagnosis, prognosis and even stupid comments aren't a baring on me or my life.
Still unbelievably waiting to get my BRCA results. It's only taking 5 months. Stupid insurance.
Cheers,
Jo -
ILnative....we have the same odds...maybe we should play the lottery and we might actually win at something
I was 34 at dx, 1st generation BC and BRCA1+ also. I was bitter & jealous of people too. It has got better as time goes by, I try to remind myself that everyone has their own battle they are going through, mine is BC but that woman might have something she is going through.
Jo...Congrats on getting through tx, looking back now it seemed that time went by so fast during tx. I hope you continue to do so well.
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I was walking at johns hopkins yest, had been feeling emotional as i am almost to top of BC summitt. Some of the people I saw reminded me to stop feeling bitter like why me. Saw someone that i think may have had face transplant. Saw another pt out walking around that had broken arm, had so may pins and rods coming out of his arm.
I played lottery other day and just lost my dollar. Didnt win -
Exactly Sherri!!!!
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