Fuzzy's Romp Room
Comments
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lAUREN--PART OF IT , I THINK MAY BE All the personal questions, that Stupids may ask. Not realizing they have absolutely no right to ask such personal questions--so, think of a few variable lines to use with the Stupids. Be prepared for everyone to be looking at your chest. Bend down a bit and say "Hey, I'm up here". Then for the really stupid ones__"Did you really ask me such a personal question, Tell me why you think that is appropriate". Then there is the stare with no response. --no answer just the stare----------they will get uncomfortable and start to squirm AND maybe leave
There will also , be some wonderful people that say good things, kind things-----they get hugs if your comfortable with that, if not take there hand hold it tight and thank them deeply,
Nurses on the other hand have a totaly different communication system than normal people-----I said "Hey everyone new baby boobs and did a right left , then a turn-----total diffused tension and we talked openly about the whole thing. But nurses talk about the strangest things---they are not people you would want to have lunch with LOL. I won't give examples , it might make you gag LOL
Teresain write mmm5 by PM and ask if you can chat with her, She is wonderful. Her storey mirrors yours in so many ways. She's a rock. She has know come out on the other side of the rain bow. It wasn't easy, but they did. Tell her sheila from the Catholic thread suggested her. My heart believes this would be a very good resource for you
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Chabba I so, forgot that old recipe. It is better than store bought except for real maple sugar.
You can mix this with philly cream cheese and use as an apple dip and it will taste like caramel._I think, if I haven't got my recipes mixed up LOL
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Fuzzy.....Can i jump out from the pocket...it's getting too hot here
someone ate all the snacks.........

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Here's some more snacks...





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HELLO ALL!!! Yes Shiela, you are set free!! My pants were a little tight and those hot flashes make it SUPER HOT IN THERE!!! LOL
I want to do the traveling pants with pictures and such!!! LOVE THAT!!! I'll start to look for them! HOW FUN!!!
Sas....do you need a bubble? Honestly girl. You're going to make all of our head's spin like the creepy doll! A cane maybe? Then you can whack stupid people without having to find a stick! It's a WIN WIN!
So, no MRI today...and next week is cancelled too. My tissue expanders will not allow it. I was ready to say just get the damn thing done and find out what the hell is going on in there...but the doctor who runs the department pulled me aside and quickly convinced me that 1. This procedure will not happen 2. They try to do this procedure on cadavers and pigs with TE's and every single time they melt and scortch the surrounding tissue (which, as you know, there isn't any tissue other than skin!!!) Soooooo....me and my stubborness thought twice and decided it's going to have to wait! LOL Totally frustrating because I really want to know what is happening in there....my arm falls asleep 30-40-50 times a day, shoulder hurts often, the arm is pretty weak....Oh well.....maybe after July...
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ahhhhhhhhhhh that doooooooolllll!!!! LOL!!! WWWWHHHHHAAAAAA!!!!!
let's peek at the 80's for.... a moment.
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Fuzzy, Damn, Should we go to PM or stay here. Your arm Is "falling asleep X times a day" That is nervous system controlled. If you have FOOBs the foobs could be causing the compression..Wear a sports bra or a bra that has a half wire----That's what got me through. Now 2 3/4 years out I can go bra less again and not feel pain like I did before, The Idiot PS maxed me out at 850 CC. when I said I wanted small and never to have to wear a bra again.--Duh How did that get to 850cc. I do not look like our sweet Dolly Parton. BUT I didn't get what I SPECIFICALLY ASKED FOR. tHAT'S WHY IN DIFFERENT PLACES ON THE BOARD i'VE SAID IT SHOULD BE WRITTEN ON THE CONSENT FORM. If it's on the consent form , then the doc has to follow it---------------legalities. Back to your arm falling asleep. That has to do with an impingement on a nerve. The risk is in correction. Kate 33 did a redo and has ended up with LE. So, Fuzz either give me more of a description here -----or go to PM. Here someone else may learn that's the difference. L&H's sweetie
Re-read post you still have TE"s in............I never thought i WOULD SURVIVE TE"s, BUT after TE"s is no cake walk. TE's are painful/ foobs under pecs are painful for along time. But trying to figure out is normal and abnormal with foobs, With docs--male or female------is not easy if they don't listen. I think they ought to tell you that. etc. Fuzzy tell me ---do you want an open or private discussion of this. I'm a bitchy nurse-------at least until May1st 2012 when I'm letting my license go-------since 1974------huge decision.
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Hi Everyone♥
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Hello all!!!
I'm an open book! I had the left breast/tissue/chest wall/15 nodes/auxillary nerve removed and cadaver muscle placed on the chest wall...all in One surgery! Oh, with the TE placed. And a port. I've had LE for a long time now. My doc wants to fill em up and tattoo and all....I just want them to remove the right and have tiny little lady bumps! LOL I can't wear a bra now because I get LE within an hour or so....if it wasn't so strange to me, I would just not have any boobies....I mean they're only cosmetic anyway! LOL help me sas! -
I bought enough veggies to feed the people in my building.

lalalalalalalalalalalalalalalalalalaaaaaaaaa

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Before lumpectomy i was a DD (even bigger) but i refused to go to the next size what is it size E ???????????. After lumpectomy i became a perfect DD on my right but the left was bigger.
Now that i gained about 12 pounds everything is falling out from the sides.

Nancynow.....I know what you are saying....they feel very heavy almost uncomfortable.
And that's the story of my breasts. ::))
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Fuzzy, 1. are you getting LE therapy from a certified LE therapist. 2. I certainly understand what you are saying about the bra. To get through for me. Everyone has to work out there own plan of what works for them , but the therapist is a definite asset. I was bra on , bra off, changing styles. Changing positions frequently, slept on right side for a couple of years with arm elevated on couch pillows b/c of greater firmness that kept arm above body level. This reduced the pressure on the axilla/armpit. Changed mattresses several times b/c of comfort. This routine of sleeping on one side --the body doesn't like--naturally will change position when pressure is noted by brain. So, this may disrupt sleep.--bummer, but then I would come to computer LOL. I started the Insomnia thread LOL. But haven't had to go there in months. 3.check in with Breast surgeon for referral to pain management specialist, it would be a tough treatment, but you won't know your options until you are evaluated. Think Mayo clinic------versus anyone closer if possible. 4. Constant nervous system disruption as you are describing is a definite ---need to be evaluated by the best person you can find. Could lead to something else RSD---Reflexive Sympathetic Dystrophy--I may be wrong on that. But that's why you want the best trained person evaluating you. This last part is not written to scare you. But you can't do something about that which you do not know.
LE SUCKS
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After my lumpectomy - and I am a C - the "bad" side, which used to be my slightly smaller side, is now slightly bigger than my "good" side due to a whopper of a seroma. Nothing too lumpy bumpy or obvious, but there is a hard place where the surgery, then Mammosite rads, happened.
Fuzzy - sorry about the MRI, but sounds like it is for the better right now. Melting TEs? No thanks.
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Just stopping in to say hi. I decided to come visit my parents tonight. They we there for me every second after my MX and now my dad had foot surgery yesterday. I had to pack up the kids and take the trip.
Everyone is finally sleeping so I'm enjoying the peace and quiet. For now...
Sweet dreams ladies. -
fuzzy, was that too much info. realy the last part.
Typical I ask you if I made you crazy , then come up with another condition that should be rulled out. Thoracic Outlet Syndrome
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FUZZ, wow, somehow I'm missing something (my brains) and I did not realize you had some difficulty with your postop, giving you numbness and such. I hate that for you, I hated it when my shoulder, chest, and arm were rather sore for many months after treatments were done. I hope your cancer team has given you some tips as to what might be the problem whilst you wait for scan, other than some lymphedema type stuff. Oh, I remember one nurse at my cancer center told me to keep my arm above my heart when I was resting. And someone in I think the chemo forum explained how to "paint" the arm, from the hand to the underarm, and across chest, then straight down. And nerve impingement is also possible for you, from whatever.
I mean, if it's really serious, this thing, and you've visited the lymphedema tech, looks like they'd settle for a CT scan, it does show some nerves, some swelling, perhaps the surgeon's Harvard grad ring... SMILE. Anyway, you visit your cancer doc again on this issue, yes again, and tell him you need pain killers. I got a no-refill bottle of oxycodone and I did not feel "addicted" and no side effects, worked very well for my discomforts. Allowed me to stretch my arms around, roll on my back to push on muscles, etc. But most of all I want to give you my FUZZY HUG to my real AND spirit sister:

TERE, I had meant to say in my post to you that what we did with our house when the bank started threatening us when my screwed-up back from a car wreck took me down, is we decided to sell the house forthwith, and I was all over that sale, the real estate guy didn't have a clue, and I took a terrible offer and turned it to gold, we had enough equity to finish out that mortgage, and then downsize to a place less than half what we sold our house for, but it was SUCH a good house. Well, let us know if the financial counselor gives you the answer you need.
FOLKS, I gotta let out some minor grief. I had arranged to have April "off." You see, because I am disabled by my back injury and the effect it has on my thinking, I have to clear my "calendar" of ALL things to do from time to time, including grocery store (husbands picks that one up for me). So, just when I got to April, brother and family said they were going to come for unexpected visit to folks here in town Easter. Well, I was a nervous wreck for that first week "off," I had let my guard down only to have to put it back up, and then brother CHANGED from Easter to the following weekend. I was a basket case then, two weeks "off" with that visit nagging me.
So, yesterday I FINALLY saw brother, I love him and his son and wife SO MUCH, I am much more aware of how important family is from going thru cancer, and it was so good to see them, but gosh, I was SO tired, so confused in my thinking, that I was good for about a half-hour, and then really got scattered the remainder of our two-hour visit (we usually stay two-three hrs), and I felt bad becuz I didn't know what I was saying or what was going on. I curse like a sailor but try to hold onto it when in public, but a whole stream of SOME sort of well-developed filth came spewing out of my mouth, and at one point I thought my brother was mad at me (he wasn't), and I'm telling you, while everyone was so nice to me and hugged me and said goodbye to us out by the car, I STILL felt badly.
And that tired feeling really settled in, along with lots of pain in my back, legs, FEET too, since I have neuropathy in them, and normally husband and I are exhausted when we came home from most anywhere, so we agreed we were really shot. And I'm telling you, that was the most tired I've felt in a long time when we opened our door and greeted our ever-so-happy Smokey dog, and I squared away my stuff and got on that couch. Wow, I was hurtin' big-time, but so glad to be home.
But I wanted to say that while I suffered for sure, at least I COULD come home and rest, I DID have medicine to take away the pain and dispair and worry, and I ATE something for a change (appetite is all over the place), and I fell into a deep sleep before the sun went down, and woke up in time (3 a.m.) to watch part of a movie with husband, and we did laugh and joke, and now I'm here. I feel very tired and still ache a little, but I AM SO HAPPY AND RELIEVED to be home, and while I lost the first part of my April off, I now got the second half, people! HOOOOORAY!
So, I wish for ALL OF YOU that comfort we try to reach for, as the merry-go-round spins past the golden ring, and when we finally grab it, everything feels soft, all fear and tension is gone, and we drift quietly thru our day, like the clouds of petals from the wild cherry trees, and we find a really good program on TV to watch, and we can visit FUZZY ROMP ROOM to send out greetings and rantings and restings with our sisters. HUGS TO YOU ALL! Sister Gail
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Thanks Nancy. Yup surgery is coming right up (Thursday). Will be glad when it is over....
Dogeyed. Glad you got to visit your Brother but sorry that it tires you out... I get tired out too. I can just be sitting and doing nothing and all of a sudden I feel exhausted..... Will the tiredness ever end...
Hope everyone is having a good Sunday. Weather is nice here today....
Cindy -
I hate it when you write a post and forget to hit submit and then the post goes away to neverland.
Gail sweetie, you had such a time of it. Vent , vent, vent, Now deep breath in and blow it all the way out. Repeat as needed, nap as needed. Nap HMMMM that sounds good...................
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Crog in case I have a brain failure. Crog have the best surgical experience ever that is completely uneventful. Feel peaceful throughout.
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OK....I thought this will be more comfy for pocket jumping.

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Thanks SAS. Uneventful would be nice. It was a year ago today that I landed in the hospital with the blood clot....
Cindy -
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Nancy Thanks, May 1st my nursing license lapses, the end of a love affair with nursing since childhood really, but started as a nurses aide at 18 in 1969. An R.N since 1974. At 18, I figured, I'd check things out from the bottom up so to speak. It was the greatest training truly on how to be a good nurse, to work as an aide first, then as a nurse.
And I ditto everything you said to everyone else !!!!!!!!!
Crog---uneventful , uneventful, uneventful, uneventful, uneventful,uneventful, uneventful, uneventful
Veggy what am I seeing in your avatar?
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crog - hopefully this surgery will bring the experience full-circle and be the beginning of restored function and good health from here on out! Wishing you the best - we will all be on the "pocket bus" it seems!
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Hi ladies. I'm asking if you can all jump in my pocket tomorrow. First day back to work after BMX. The anxiety is rising. DH just doesn't understand... I love these people dearly, and they me, but I can't help this feeling. I feel like I'm going to explode. I've been in and out of my closet 20 times trying to figure out what to wear. Dont want to show too much, but I don't want to look like I'm hiding. I don't want to bring attention to my boobs either way...
I'm shaking. Ridiculous I know, but I can't help it... -
Oh Lauren, I so wish I could take this feeling from you. Know that we are all with you that you are being prayed for(Okay Yes?Or No?). Remember what i wrote about the stupids. Ignore them. Relish the the good thoughts and the good people. If you run into idiots ----blow them off. I'll put a funny story in your head-----hope it helps. My only son was between 2-3, hurt his hand and was crying, but it was something really minor. I said "Stephen just blow it off" . He proceeded to blow at his hand LOL. Made me realize some of the things we say, can be taken literally by such a young mind. Tomorrow what ever bothers you "just blow it off". Love and care sheila
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