Diep 2012

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  • goldlining
    goldlining Member Posts: 1,178
    edited April 2012

    Hi hoppytrigger. I hope Friday the 13th is a fine day, because I am flying across the Atlantic that day!

    Your recovery depends not only on your physical parameters but also what you do at work. I stayed 5 nights at the hospital, starting 10 days before Xmas, and I was doing all the usual Xmas visits and went to the office on the 27th or 28th to do some work even though the workplace was on holiday closure, and snuck in a few other times, and worked at home on the computer (for nothing because I was officially "off sick" but I wanted to do those specific things.) At first, I was walking very feebly and slow, but I was able to do things on MY terms. I worked when I felt up to it, not at predetermined times when it was "time to work". I did a half marathon at 6 weeks but did not go back to work for another 3 weeks and even officially was "off" longer just because of HR had their paperwork up their butts. So you can probably expect your recovery to be gradual, and able to do some things sooner and other things wait longer. Aside from what you want to do and feel up to, lifting is out for 6 or 8 weeks, and there will be a limit to what you want to wear for a while, so it depends on how you have to dress to work. I think the rule of thumb is usually 6-8 weeks as a prediction, until you see how the specifics work out for you. 

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012
    hoppytrigger - my PS said 4-6 weeks, my BS said 6-8, I ended up out for 6 and that was about right for me. But everyone's different, some went back earlier, some went back later. It also depends on the demands of your job. I tend to err on the side of caution and asked for more than I thought I NEEDED, but was glad to have the time, in the end.
  • Sarahmfallon
    Sarahmfallon Member Posts: 29
    edited April 2012

    Hi Hoppytrigger - I was out of work for 6 weeks after my BMX & DIEP but probably couldve gone back at 4 weeks.  I felt fine but did take a nap each day in the afternoon.  Ive been back at work for 2 weeks now and feel just find, waiting to see when my stage II surgery will be.  I was a DD before the surgery and am a B now so will be doing implants and/or fat grafting to get back up to a D. 

    I think the drains were the worst part for me, I had 6 with 2 being removed the day I left the hospital.  The other 4 were removed a week later.  They werent TOO bad just an inconvenience and gross.  Also not being able to sleep on my side sucked but overall it wasnt as bad as I thought it'd be.  Good luck on Friday, Ill be thinking of you!

  • Lala63
    Lala63 Member Posts: 12
    edited April 2012

    Thursday DIEP+13

    She is off the heavy duty pain meds and on to Tylenol.  Still hard to lift her arms and stand up straight but other than that she is moving around fine and doing things around the house.  Met with the oncologist Dr. Brown and got very good news.  No chemo, no rads only five years of Tamoxifen.  Her recovery is going very well and for her sanity, she may end up going back to work sooner than expected.  Two weeks tomorrow.  Wow!!

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited April 2012

    Lala63 - glad to hear your wife's recovery is going well.

    I have a question for those of you who have finished Stage 1.  Did you lose weight as a result of the surgery?  If so, how much?  I'm borderline on having enough fat to make barely "B" cups, and have actually gained a few pounds to try and help.  But I am concerned that if I lose 8-10 pounds after surgery, I'll shrink away the good results.  Do I need to be concerned?  My surgery is in July.

  • sadie5254
    sadie5254 Member Posts: 39
    edited April 2012

    I just wanted to pop on here and give some encouragement to others just recovering or anticipating the surgery.  Of course, everyone is different and it's almost reckless to compare yourself to others.  But for me, I am now about 10 weeks out from the surgery, and frankly, if I didn't look in the mirror I wouldn't even know anything happened.  There is light at the end of the tunnel!  I had the left breast off, 8 hour surgery, 10 days in the hospital (complications) and am scheduled for reduction in May.  When I was finally able to sleep the whole night, the whole thing changed for me.  I tried one Unisom when I couldn't shut my brain off, and after sleeping soundly, the draining tiredness was gone and even all the aches and pains.  Take your meds and try and sleep.  Don't let the pain get in front of you!

    Also, I picked up a hospital acquired infection - MRSA and cellulitis - so that set me back a bit.  I'm now red-flagged for any other procedures.  Make sure everyone who comes into your room adheres to protocol about handwashing and gloving.  Don't be afraid to speak up.

    The weeks before the surgery I think are the worst and the immediate recovery can be difficult. Each person will have a different experience.  But all that fades away. 

    Hang in there because I promise you, it DOES GET BETTER!!!

  • julianna51
    julianna51 Member Posts: 438
    edited April 2012

    LuvRVing - glad you asked that question regarding weight because I am in a similar situation.   I'm in a quandry because I don't want to lose too much weight before surgery but I don't want a lot of weight to lose afterwards.   Once I had decided on DIEP I let myself get a little carried away with my eating since I had to have the belly fat (quite the rationalization, don't you think!  ha!) so now I"m trying to drop a little of it without going too far.  My PS had told me that we could add implants underneath to make me larger but really I don't want implants at all...that is what I'm wanting to get away from but neither do I want to look out of proportion with a chest too small and bigger hips and bottom....some of that will not change even losing weight (thank you JLo, Beyonce and Kim Kardashion for making full booty a good thing).  LOL!

  • TexasRose
    TexasRose Member Posts: 740
    edited April 2012

    Hi all,

    Lala63- Glad for your updates and that your wife is doing well! It really does get better everyday!

    I am now 8 weeks out. I saw my PS yesterday for followup and to discuss Stage 2. They will be calling me to schedule it soon. I was thinking about putting it off until late fall but have decided to go ahead and just do it. I am ready to be done. He did such an amazing job that there isn't much to fix. A dog ear on the left from the original MX in 2009, a small dog ear on the left side of the ab scar from the recent surgery, one little dead spot that needs fixed, and some lipo from the abs (how is there anything left?!) to fill in a few divots and make the right one a little bigger to match lefty. That's it. Day surgery. Sounds good to me.

    We did discuss nipples. I told him I am undecided but probably leaning towards none. He said it's about 50/50 women getting them or not. I told him I was really interested in 3-D tats. He said they do them there. I'd have to see some pics of their work before I agreed to that. I have moments where I think I have lost my mind for even considering not getting nipples, but then I think about how hot it is here (and down on the coast where our vacation home is) and how humid and how nice it would be to wear tank tops without a bra. Especially while walking the beach which we do a lot of when we are down there. I absolutely hated having to wear a bra and prosthesis before this surgery. I like the freedom of not having to wear one. My one last big decision. Cancer sure is full of damned hard decisions, isn't it? I'm strongly leaning towards tats if I could just shut that little voice up that makes me second guess everything!

    PS told me yesterday that all restrictions are gone. I can do anything. So this morning I did a workout. A very tough workout and had no problems at all. It even ended with some floor work and laying at times flat on my stomach. I wasn't sure how that would go, but it went fine. No pain. No pulling. The worst part was the stretching at the end, but I need that more than anything. I was prepared to stop if any part of the workout didn't feel good or right, but everything was fine.

    I will definitely second the "hang in there- it does get better!". It really does!!!

    Oh and the weight loss- I lost 10 pounds after surgery. I wasn't trying to, but I wasn't able to eat a lot. At first, I wasn't really hungry and then it didn't take much to fill me up. At 8 weeks out, I am still not eating as much as I used to. I feel full so much sooner. I have gained a couple of pounds back. None of the loss seems to have come from my new boobs.

    Going out to a baseball game tonight. Opening night for my Round Rock Express (affiliate of the Texas Rangers) and we are headed to the ballpark! Life is back to normal and life is good. Smile

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    TexasRose - Nipples are a personal call - If I had a BMX, I think I would pass, but since lefty still has a nipple, I figure righty should match. I wonder when all this is done if I'll be able to go braless, right now, there's NO WAY. But I'm reducing to a C or D cup from a G cup, so a big difference, but a welcome reduction.

    I find it fascinating that so many of us have such differing opinions/thoughts on so much of the BC related stuff.

  • TexasRose
    TexasRose Member Posts: 740
    edited April 2012
    If I still had righty, I'd get a nipple to match too. But since I had righty removed in this recent surgery, I think I'm ok with not having them. Well, I want the 3 D tats. I just don't need an actual nipple. And I went from an A to a B so going braless is not really a big deal! Wink 
  • julianna51
    julianna51 Member Posts: 438
    edited April 2012

    I'm still undecided on the nipple too, although I still have a lot of time to think about it.  TexasRose, I am so excited to hear that you have the all clear to work out and that everything feels ok while working out.   I was just telling my yoga center (Bikram) the other day that I'll probably be out beginning with my surgery June 12th through the end of August....maybe I can go back earlier?  I know...everyone is different and I'll just have to play it by ear - it is a very strenuous workout.  Mmm, now I went back and reread your post where you said stretching was the hardest...  Have you done any abdomen workout?   Oh, and glad to hear your weighloss didn't affect your new boobs.   I read in another thread where someone lost a lot of weight and lost all their new boobs leaving them saggy skin, YIKES!!  I wonder if it was a substantial amount of weight.

    Lala's husband, thank you for sharing her recovery.   It is so helpful to hear how she is doing and I'm happy that things are going so well for her.

  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited April 2012

    I'm with all of you on the nipples.  They decided to spare my righty.  If they hadn't, I'd opt for 3Ds.  I  don't need a bra now and it's great.  But my righty is still pretty pointy . . . they thought about nipple sharing since it started out so big.  Now, they're not sure.

    One thing I noticed is that since I was discharged from the hospital, my previously slightly boarderline blood pressure is now in the acceptable range.  I wonder if it has anything to do with a loss of body fat.  When they weighed me at the MO's office today, I was down at least 7 pounds from my first visit.  But, I was wearing lighter shoes today (but then again, I can't remember if I wore shoes last time they weighed me).  I'm still bigger than I was pre-op, so I wouldn't mind shrinking down from my previous 34D to a 34C or a 32D.

    The best news I received today is that tamox is optional for me!  HAPPY DANCE!  The MO was also impressed with my recon, so that makes me pleased too. 

  • julianna51
    julianna51 Member Posts: 438
    edited April 2012

    iswim - YAY for you!   No tamox is wonderful!

    How far out from surgery are you now?

  • TexasRose
    TexasRose Member Posts: 740
    edited April 2012

    Julianna- I was surprised too, but I specifically asked him about activity and his answer was- "You can do anything now. There are no restrictions. You cannot hurt anything at this point." I must admit that I had my doubts when I decided to go full throttle on a workout today and was very surprised that I really didn't have any problems. It was mostly upper body stretching that was an issue. Still some tenderness there. And of course stretching is what I need the most. The abs were no problem. I started today with a workout for hips and thighs, but of course the abs are involved to some extent. But no, I haven't done an actual ab workout yet. But I'm impressed that at 8 weeks out, it all felt pretty good.

    iswim- I never wear shoes to weigh!! Great news on the tamox!  

  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited April 2012

    Thanks!  It will be 4 weeks on Monday, Julianna51.

     TexasRose-I can't wait to be told I have no restrictions.  I still can't stand up straight and am not allowed to lift more than 15 pounds.  But, I've been doing "long walks" of 4+ miles and daily walks of 2 miles, so I can't complain too much.  I'm hoping they'll let me run at the beginning of May. 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited April 2012

    I never get weighed with my shoes on, either!  Interesting about the weight loss, if I  lose 10 pounds after surgery I'll be officially skinny.  I've purposely gained five pounds to get back to my pre-treatment  weight.  I'm going to try and hold still, but not worry if I add a couple more pounds.  I don't want to outgrow my new wardrobe so soon!  And the whole point of DIEP for me is to avoid implants, so I'll have to be satisfied with the best that my surgeon can do for me.

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2012

    After my surgeries (stage I and II) I lost about 10 pounds... and have dropped another 5 or so... But before stage II B I'd like to drop another 20 or 25.

  • julianna51
    julianna51 Member Posts: 438
    edited April 2012

    I'll be happy to lose 10 - 15 pounds.   I'm only 5'2" so every pound shows!

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2012

    To lose those 10 pounds, I did have bilateral hip flaps and DIEP flap... plus lots of lipo. My originals were like 700gm each... so that explains a lot of the weight I think... and then one failed, so in the end, 2100gms was removed surgically.

  • rtnyc
    rtnyc Member Posts: 155
    edited April 2012

    how much time is between stage 1 and stage 2. I am still confused about that.  And if you loose a lot of weight you loose in the your new boobs too so will they sag and extra skin then. so stage 3 is tighten it up again?????  so confused.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    rtnyc - time between stages can vary a lot. For me Stage I was Dec. 15, Stage II was April 5, Stage III is scheduled for July 11. You want a few months between stages to let things settle so you and the PS can see what they'll be like and then can move forward from there. Weight loss does happen in the new boobs too, so I suppose if you lost a ton of weight you could have that fixed with the next stage. For me Stage I was unilateral DIEP (right side only), Stage II was reduction on DIEP side (PS left it a bit big in case of radiation which I didn't end up needing) and abdominal scar revision (dog ears on both sides and removed dran scar mess as well). Stage III will be matching lefty (no surgery done on it) to righty (lift and reduction to match). PS wanted a minimum of 2 months between Stages II and III so that righty would be healed up which would making matching lefty to righty much easier. I think you can wait longer between stages and do it when works for you, but too soon and you're not healed up and things are still changing.

    I hope that all made sense.

  • puce
    puce Member Posts: 159
    edited April 2012

    Ok so when you lost the weight, did your boobs get smaller?  I just got stage 2 done and like my results but I still have some weight I would like to lose.  PS said it would have to be about 30 +/- pounds to see a difference?  Thoughts?

  • ReadingMama
    ReadingMama Member Posts: 573
    edited April 2012

    Was excited this week as I actually noticed a reduction in the swelling in the belly!  I'm over 4 months out now and don't have a muffin top, the belly is very flat, but swollen about 4 fingers wide, from the belly button to the public area.  PS said is could take many months for it to go down.  And it still swells with activity, like walking. 

    Stage II hopefully in June, still some insurance issues.

  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited April 2012

    ReadingMama, I have swelling in that same area (I'm almost 4 weeks out).  I figured it would eventually go down and it's reassuring to know I'm not the only one with it and it will go down.

  • sadie5254
    sadie5254 Member Posts: 39
    edited April 2012

    My weight loss story and how it tied in with my surgery:

    We couldn't believe how heavy we had gotten over time until we saw ourselves in our daughter's wedding pictures.  AARRGG.  I just happened to have dinner with a friend that week who mentioned she had quickly lost 25 pounds.  She told me the name of the program.  I came home, looked it up online and read the reviews.  Everything I could find.  I ordered the book on Amazon and read the whole thing in November.  Then after we purged the house of all the bad stuff - by eating it all - we began on a Monday.  Day two was difficult but most every day there'd be a pound gone. My husband is a big man and needs a lot to fill him up.  But he managed and at the end of the first cycle, 17 days, he lost 17 pounds and I lost 12.  We took off time for Thanksgiving and the days afterwards, then started back on again.  I lost 30 pounds and he's down 43.  (All though Easter, I ate all the candy.  You just mount back up)  All this before my diagnosis on December 22.

    It's a dicipline but after reading some of these posts, I thought I'd share it.  It's called the 17-Day Diet.  It focuses on water, lots of vegetables and lean protein, yogurt and other probiotics, etc.  You add in red meat and grains.  It was extrememly successful for us and I've shared the book with many friends at church.  Just thought I'd put it here.

    There are three cycles where you add in more food - each lasting 17 days.  The whole plan is designed for 51 days.  I put a calendar on my fridge so we could mark off the days.

    Once I was diagnosed, the issue of my weight didn't weigh so heavily on me.  Once the ab fat was removed, I can't believe I can actually look down and see the floor.  I do think it helped in the recovery process with my other numbers being down.  We casually do the plan now and I've not gained a pound back. 

  • Samj76
    Samj76 Member Posts: 2
    edited April 2012

    I've never posted before but I had my surgery March 6. I received my bill from my plastic surgeon and there is a charge for "biopsy/excision lymphatic vessels". Does anyone know if this is normal or should I be concerned that she saw something during the surgery?

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012
    Samj76 - it depends on what your original diagnosis was. Did they tell you that they were doing a sentinel node biopsy? If so then that's what it was. Otherwise, I'd just ask.
  • Samj76
    Samj76 Member Posts: 2
    edited April 2012

    I've already had the sentinel node biopsy (back in Nov 2010 with 3 of 5 positive) - they said I was between stage II and possibly stage III - neoadjuvant chemo then in Feb 2011 I had a mastectomy and removed like 16 axillary nodes (2 more positive) and then radiation after the surgery. I've been back to see the plastic surgeon twice since the surgery and she hasn't said anything. I guess I will call back and ask...

  • julianna51
    julianna51 Member Posts: 438
    edited April 2012

    Question for those of you that are post surgery.....

    At the time of my BMX I rented a recliner.  I'm not too anxious to do that again and I'm looking at one to buy this time around.   Have been looking at the reclining chairs with ottoman but they seem a little tough to push back and I figure that might be pretty difficult with a abdomen incision so I'm looking at a powered recliner (nice!!).   Just not sure about it all as it is a bit of an investment.   What are your thoughts....will I be sleeping in a recliner for a few weeks AND would it be pretty diffucult to recline a regular recliner?

    Thank you for any input!

    Juls

  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited April 2012

    I kinda wish I had used a recliner, only because it makes getting up easier.  I slept ok using a wedge pillow, but it was hard getting in and out of bed.  I didn't have trouble sitting in chairs or on the sofa to get up.  Of course, I spent about $200 on the wedges . . .  I didn't have trouble using a recliner that had a handle.

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