Ohio Chemo Sisters

munnybunni--i was told that there really is nothing to eat to increase the white counts...the shot is a no brainer as far as actually "getting" it- add a claritin to your meds nite of chemo and for a few days' after-it's an anti histamine- cannot hurt you -- don't sweat the shot! you're going thru so much worse junk with the chemo!!!!! (please understand the humor there!)

there have been days that i wished i could just crawl in bed and stay there too....

hugs!

i read that article also...big strides need to be made for so many of us out there

my hair is coming out...it is day 14 after 1st a/c tx.  have a little nite hat a friend gave me to catch those pesky fallouters.

i guess i have read so much about the neulasta and people being in alot of pain etc...that it freaked me out.  but, then i have to remember...yes...just think..winkie...of the stuff going in during chemo...duhhh

and, of course my mo..who is so very upfront about all of this...said at my monday visit...."well, are u ready for your next appt of poison?"  and, frankly she is so right...it doesn't shock me for her to say that..because it is what it is ..as they say.

i do not think that I am getting enough rest when i should as i now have like triple bags under my eyes.  I always think of something I need to be doing instead of laying down.  So....I am going to try to just lie down and try it this next week.

thanks for letting me rattle on

7of9 (are you really from a family of 9 kids...wow...I'm 3 of 3 ha ha)..anyway..so glad nuelasta was gentle on you...I too had the bone pain with it but took the claritin..it did get better towards the end of treatment...took the claritin..and then kind of a mind over matter type of thing...I either would go to bed really early..or make the DH take me out to eat or do anything to take my mind off it it..

Hi munnybunni...........losing the hair is so hard.  I thought I was doing okay with it back when I started chemo.  Remember driving close to the salon where I get my hair cut one day and I just thought I needed to go in and tell my hairdresser what  was going on with me.  The moment I saw her I just burst into tears and I wasnt even feeling bad when I went in there.  She gave me a big hug and we sat and talked for a few minutes.   Eventually I just had my DH use the clippers.  It felt better after that.  I bought a wig, but didn't really wear it all that much, I work at a job where I don't have to dress up.  Lived in scarves and little cotton caps sometimes paired with a matching scarf.  I was hairless in the fall and winter and the caps kept my head warm.   Can relate to feeling like Uncle Fester!

I was told to still use just a dab of shampoo when I washed my scalp in the shower.  That shampoo bottle lasted soooooooo  long!   It was a real celebration for me when I finally had to buy a new bottle...the hair was starting to grow back by then.    It may not feel like it now.....but it will be okay. 

The chemo is strong but it is doing a number on those cancer cells, I had to tell myself that all the time. Hang in there munnybunni........will be praying for you and cheering you on as you finish each step.

Take care........judy

oh..munny...losing your hair is just freaky!   I remember the blowing in the wind well..was at a track meet and was afraid that it would just blow off my head right then and there...I just let it fall out..which was probably stupid..you ladies are right in clipping it off before it can fall out...still not sure why I did that..

Hey Munny ... you are in good company here. And you can cry all you want, especially to us.

The hair will grow back sweetie, we promise.  Mine is about 1/2" long now (well, maybe not QUITE ... it's like a guy saying he's 6 ft. tall when he is really about 5'10-1/2" LOL!) - but anyway, it is looking like 3 different shades of gray - dark, med and white.  I was looking at pictures of Jamie Lee Curtis on line yesterday and HOPING it looks like hers when it grows in more.   Maybe by end of summer I can be rocking that cute little gray & silver pixie she has.  A girl can dream ... I swear I am not going back to coloring my hair. 

 On the neulasta shot ... the first one was the worst for me.  I was expecting pain, but I actually called the doctor's office after the first one, on about day 3, because I just hurt so bad I thought something was really wrong.  And I had taken the Claritin!  After that it made me very tired, but I do not remember tx 2-6 that my bones ached like the first one.  My MO says usually the 1st or 2nd is the worst.  After that your body says "oh yea, we did that before" and it does not hurt as much.  My WBC dropped lower and lower every treatment, so not having the shot was definitely NOT an option for me.  I was grateful for it even tho I hated it.

Hang in there!

Debbie

Congratulations on NED! What wonderful news!!!!

WOO HOO!!

Praise God.  I am so happy for you Kellogs!  SO HAPPY!!!!!!!!!!!!!

Kelly.........that is wonderful news!   Celebrating with you and wishing you the best as you start radiation. 

Lumpynme.......will be keeping you in my prayers!

Kelly, that is awesome news!  I feel like a dummy but NED is an acronym I have not seen yet.  What does it mean, anybody! 

I am seeing my new gyno later this month and will be scheduling surgery to have my ovaries out.  After what has happened with my niece I feel I have two ticking time bombs down there, and they have got to go.  Will kep you posted.  Otherwise I am dealing with a new set of side effects from the Arimidex but overall feeling pretty good.

Love to you all!

Debbie

That is great news!! What a relief! I am going for my stress test on Tuesday. If that turns out ok and if the results of my MUGA are ok..we will try the Herceptin again.