Brain Mets Sisters

o jenn.. I am so sorry you are having so much trouble.. best of luck... i absolutely abhor vomiting.. that;s the worst thing in the world.  ( i am becoming a bit incoherent... i really have to remember to talk slowly.. sometimes gibberish is the only name for the language i speak.   I so wish you better health.  i guess that is the way to say it. 

Gals, thanks for the input on gamma knife.  Doesn't sound too bad in the scheme of things, I'm ready. 

(((jenn3)))  good luck with your appt tomorrow.   I'll be thinking of you.

Jenn, the nausea is the worst!!!!  I can take being tired.  I have been tired.  Nausea?  No thank you.  It ruins everything.  This will get better.  I promise.  Hugs to you and everyone else.

so what is a focal seizure.. what does it feel like.?. i am obsessing over what is the difference between radiation SEs and brain mets.  (i really have such minor things that I notice thankfully.. little zap sounds that bounce from ear to ear. occasional dizziness or unbalance. I suppose I am lucky.

This is the first time since 2008 that I've felt a real sense of urgency about completing tasks before i join the choir in the sky.  My property needs total landscaping.  it was an old farm, cut up and made into 4 adjoining large propeties.   It sat empty for 8 years before we bought it.  .. it's right in the middle of the city.   We found photos from the 70s of the mother happily planting tulip bulbs.. a photo of the 400 of those, 2 of which survived.  I imagine lilacs and flowering perennials weren't in the budget.. i planted a lot last year, am planting a lot this year.  I want to turn my kids into perfect indepent beings who won't suffer too much when i get on my flight.  I want to complete 5 to 10 paintings.. (I've had the ideas for years).. I am becoming so OCD about how i want things to be clean.. and there is only so much time.  It really pisses me off that now that I have the time to personally productive.................

POOF! 

o well.. as I've mentioned - I've had the most fortunate of lives.

So we went to my Dr for the results of my body (not brain yet) scan.  I told my Dr I did NOT want to know the bad stuff.  Somehow, I know it wasn't good.  Because my Dr knows that I am an Ostrich, head in the ground, ass in the air, kinda gal, she let me lead the way.  Tell me what to do, and when.  The bad news is of no value to me.  I knew the day I was dianosed with this creepy HER2, my days were numbered.  I think being given my notice was plenty.  It is awesome having my husband and  DR on the same page as me.  I want to lve as well and normal as I can until I can.  My frineds and family support is enough for 10 people doing what I am doing.  My life long girlfriend, started a web site and I have over 40 people bringing us diinner every night thru May.  The websie only allows 2 months of signing up.  My other girlfriend is visiting till Friday, from Oregon.  My husband keeps our house running like a well oiled machine.  He does everything so well and keeps me laughing and so madly in love, it makes me cry.  Today is so peaceful.  Life is beautiful.  Hugs.  Oh, new chemo.  I for get the name, don't care, and very few side effects.  I asked my Dr if I died if she would be generous with the drugs, She said "absolutely".  I love her!!  Hugs to all.

Yikes...what is this frame?  It does not sound fun!  Can someone explain?

Amy 

Apple,

A focal seizure can be different for everyone. It depends where your tumours are. Basically you are fully aware when you have one. It can range from sudden numbness and tingling in the arms or legs, dizziness, deafness and difficulty speaking - to name a few. These symptoms only last for a few minutes, usually one or two, and then you are back to normal. They are not long lasting and this distinguishes them from SE's. For me I get a metallic whine in my right ear, followed by a loud clacking noise which makes me deaf. This is followed by tingling in my right arm and right side of my head. It stops as suddenly as it begins.

Mezmerz - The "frame" is used during treatment with Gamma knife. You are injected with lidocaine at four sites on the head and they literally screw a metal frame to your head. I asked if it would hurt and consultant said "yes". Oh well, I did ask! Does not last for long though and the rest of the procedure is painless. I looked like frankenstein....

Lassman

Good news! My Brain and Spine MRI were clear!  I still have a huge headache, tho.  Thanks for all the advice!

Amy 

aaaaaaaah

my friends

what would i do without you. ?

great news Amy!

my update:  finished 25/25 wbr yesterday.  feel like i should celebrate, but am just too tired.  exhausted.  ridiculously so.  my girlfriend took me to lunch and all i wanted to do was lie down.  so sweet of her, though.  friends are marvelous things.  tapering off the decadron thankfully.  would love to get back to "normal"...herceptin again on monday, and then we'll see - i think he said we're going to start tykerb and xeloda.  just wish there was a way to know whether the wbr worked/made a difference.  here we go!  

 apple, you've inspired me to plant some seeds with the girls - we've planted some zucchini, peppers and tomatoes.  if i can keep the dogs from digging, we may have some fresh veggies!

hugs to all of you.   

Brain mets and now a double mastectomy? Hi ladies I hope I am in the right spot. My sister's cancer spread to her brain a couple weeks ago, multiple lesions, too many to count. She has finished whole brain radiation. The docs are finding quite a bit of new cancer growths in her breast so they are going to do a double masectomy/reconstrucion in about a month.... Has anyone had any experience with this particular fight? What kind of toll it may take on her? I know she really wants the double mast. so I am not going to question wether or not it is a good idea. I want to be supportive and prepared for her recovery time... 

Sorry if that sounded snottie.  I just feel that strongly about not feeling sick.  

Sorry.  I repeat myself these days!!

Ha! That gave me a laugh, Jodi!