Any April/May 2012 rad girls out there?
Comments
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Angie -- does the pain feel more like tightness? My LX arm was tight but I'm working it (gently of course) in the shower every morning (LX was over 3 weeks ago) with the shower hose spray and warm/hot water. In the shower I have 100% range. At work about 80% now. Best to do this before you start rads as the hot water may not feel great after rads. They sort of forget to tell you about ranging your arm and doing scar massage after LX and SNB......
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1 down 29 to go!! I will go this afternoon for #2- my nurse told me to put onmy cream in the morning, then after treatment..then again at bed. The cream they gave me is a mixture of aloe and hydrolonic (sp) acid gel. That component is used to retain skins moisture.
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MOT,
Yes, there is definitely some tightness near incision and still a little achiness toward the back (not where incision was made). Nothing was said about ranging my arm or scar massage but I'm thinking that the pain did come from stretching out the scar tissue there. I think I must have had some nerve issues too because there was numbness for a while that has now worked itself out to the achiness I mentioned. I guess I'd better get started trying to work this out!
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Cigi56 - Thank you for your encouragement. I start rads today and hopefully I've already gotten the crying part over with. My psychiatrist (assigned as a matter of course) said that I suffer from 'Anticipatory Anxiety'. Well, of course I do. I cry all the time.This has been a scarey year and I still feel vulnerable taking my gown off in front of a stranger and exposing my funny looking breast that was once nearly perfect. And the big machines scare me. Plus, the rad tech was young, aloof, and a little creepy.
So now I'm off to buy an aloe vera plant. My plan is to use the plant at home, and I'll buy some gel to carry with me. Also a saline solution three times a day.
And Angie - I had arm-over-head pain too after my sentinel biopsy. It took a lot of yoga and a few months to get back my range of motion. Couldn't even walk the dog at first (and its a basset hound!), but perfectly fine now.
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Thanks Fran & Cigi ~ I will check with my doc about both of those possibilities. Thank God I stopped to read this b4 leaving for rads...I almost forgot to wash off my cream :-\ Good grief, will chemo brain never end??
SAN
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Good luck! Be well!
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Hi Angie,
Did your surgeon give you exercises to do post-lumpectomy? I was given a sheet of four stretching exercises that have helped. Two involve crawling your hands up a wall, stretching your arms as much as is comfortable. You can do it facing the wall for both arms or facing perpendicular to the wall and stretching the affected arm. Shoulder rolls are also good.
Be well!
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Add me to the group. I had my last Taxol of 12 weekly treatments today and have an appt with the radiation onc on Thursday.
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I had my 2nd Treatment today and also had an appt. to see the RO. The RO examined my breast and said that all is well and we will continue as planned. My breast is a little pink in color and I did feel some sensations during and after the treatment. The "whoosh" that was taking place in my breast after the surgery has started again after the first treatment. The RO did say that was normal as well. Well two down and fourteen more to go!!
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2 down and 28 to go. Pink and tingly. Feels about like when I've spent a little too long in the sun and know I'm gonna have a burn to deal with.
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Welcome Elaine! We are glad to have you
Sooooo, I asked about the redness on my chest that goes up so high and it is actually included in the treatment area. Bummer! I didn't end up seeing the doctor today, but I'll see her tomorrow and let her know how concerned I am about my heart. I'm all for taking as many precautions as possible to keep this cancer at bay, but if my heart gets damaged, I'm not sure that is a reasonable side effect.
SAN
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Shoot, I start rads tomorrow. The nurse during my plan and scan told me really nothing about what to use for my skin, but I found out that EMU oil is terrific. I just found out that yes, it is the bird's oil like the ostrich. Sheesh. I thought EMU was an acronym for something.
Two things: I was told to use aloe vera...I do have a plant. I also asked about supplements and was told not to take A or C or E. I take a lot of other stuff though and couldn't find much info on supplements and radiation therapy interference. Anyone out there with info?
Radiation sounds tedious more than anything. Radiation exposure as a toddler probably gave me this crap, now I'm getting more to make it disappear. So to me, radiation giveth, and radiation taketh away, like God
Talk to you all soon.
Claire in AZ (we're the crazy state people)
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It takes me 10 minutes to drive to treatment. I spend less time in the clinic than I do driving over.
They still haven't told me what I should be using as far as a skin treatment, but allegedly the rads nurse will be meeting with one day to to go over that...
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Hi Mamglam - I had my first treatment today and all is good --- tomorrow at 1:55 so will see what that brings. What is the "whoosh" you are talking about?
Joanne
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Hi Joanne_53,
Glad to hear that your first treatment went well. The "whoosh" feeling is like having fluid in my breast and when I am laying down and try to get up quickly, I get this sensation of "whoosh". The RO did say that it was normal as that was probably seroma and that she will be watching it. G
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Claire: I was given a sheet with instructions before starting rads which included skin care and other information. Included on this sheet was a statement to not take anti-oxidants during rads. Didn't give a reason but from a brief internet search there is speculation that anti-oxidants interfere with the effectiveness of the radiation (and something to do with free radicals - don't understand it so can't elaborate on it).
Janet: I'm so sorry to hear how emotionally difficult this has been and continues to be for you. It is bad enough to be poked and prodded with needles and x-rayed and everything else we have been through, but having to expose the part of ourselves that is the cause of all of this and that is currently in a "transitional" state can be extremely hard. I certainly can understand. For me, I have gotten to the point where it does not bother me and have no problem "whipping" out my boob!! :-) Part of me also feels like they are no longer mine and do not resemble my original ones, if that even makes any sense. After my BMX, I no longer had any modesty left. Waking up after surgery and attempting to go to the bathroom for the first time, I realized that I no longer had my undergarments on. At first I was upset, but I quickly appreciated it when it was one less step to do during my recovery time. And sorry to hear about your rad tech - it takes a certain kind of person to work in the medical field (compassionate and caring) and when you run into one that is not while you are being treated can exacerbate your anxiety. I try to close my eyes and zone out when I am on the table. I hope things get easier for you. -
number 2 down- red and feeling wheepy?? Got a script for another cream.. so that makes 4 topicals to slather on my rad area..
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First treamtent down!
Cigi56 - Thanks for your understnading. I've bucked up again - my first session was a breeze. In, fact, with the knee pillow, arm rests, and dim lighting it was almost relaxing - and the technicians were lovely.
My plan of attack are three saline soaks a day, and the gel from my aloe plant. I also bought a bottle of aloe gel that has a bit of roseamary. The guy at the health food store said it's 'miraculous'. Let's hope!
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Janet -- Glad you had a good first treatment! Hope it continues to go well for you.
Going for my first RO appointment today. Thanks to everyone on the board, I've been reading all your posts and concerns -- I have alot of questions for her to address! (I saw the BS less than 24 hours after I was told my dx by my PCP and really didn't have enough time to even comprehend the dx much less think of questions to ask!) -- so I feel pretty prepared today.
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I am wondering what you all think about the time of day for rads -- I will be working throughout (moderately strenuous job) and have a 60 minute drive each way. I'm trying to decide: rads first thing before work or rads at the end of the day. I realize it is different for everyone and depends on alot of factors, but if anyone has an opinion, I'd appreciate it....
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Hi guys, well this is my third group, done with chemo and surgery now on to rads. Just got pathology report and a few issues with lymph nodes. Not expecting that answer after doing pre chemo giving it my all. So thank you in advance as the groups have made treatment, well a whole lot better. Just had surgery so a few weeks out to start.
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MOT: I would recommend doing your rads at the end of the day considering your moderate strenuous job and the drive. Once fatigue hits you, I think it might eventually be difficult to get through the day if you do rads in am (but since everyone reacts different I could be wrong about the outcome). If I could, I would do rads in evening but when I return to work (next Thursday) I will have to have my treatments at 7 am. Not looking forward to that as I'm not a morning person!!
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Well...3 hours and I'm doing my first zap. Here's hoping I have minimal side effects. I scheduled my txs around my yoga classes; I need them for survival as much as rads!
Thanks for the info on anti-oxidants. I think that rads are free-radicals--they seek and destroy all cells--and if we protect against free-radicals with supplements, we protect all cells, even the ones that might have cancer.
My drive is 27 miles but takes 45" one way, so I'll be listening to a lot of books on tape.
XO
Claire
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Janet_M --- please let me know how the saline soaks go. I have glaxol base cream but would be really interested in the other if they work.
Angie --- I had some difficulty with range of motion and finally went to a physio -- things are good now and can actually do up my bra at the back (lol) --- still need some more appointments but much better -- it is the jumping jack motions that are hard to do.
There is a really good booklet for exercises -- I am attaching the link below for those that are interested.
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Mot I would do the late appointment as well. I drive 100 miles round trip and after doing my household runnings, physical therapy and everythign else.. after rads I just want to go home and take off my bra and chill
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Hello ladies... I had my first double session yesterday. I'm sorry to report that the brave Chickenpants was, well.... Not so brave, but I think I've been left with some PTSD symptoms following my ordeal in the hospital from my SAH recovery. I see a white coat and my little legs shake and those big machines... Don't even want to talk about it. I explain to the technicians about the stroke and they're really good with me.
Just a little trouble with a painful shoulder and numbness in my lymph node surgery arm from having to stay still for so long. I'm asking for the massage therapist that works on recovery after lymph node removal.
Anyhow, will check back later. I'm sure today's appointment will be so much better. I'm staying at the Cancer Lodge and although the staff and facilities are excellent, there is way too much cancer talk among the patients staying here. Got to find a way to get away from that. Also, I'm one of the younger patients staying here and would love to meet someone more my age for walks, etc.
Hope you're all feeling well and positive. I will try harder today...
X -
I went for the end of the day too... I like the idea of just going home and chilling for a while after. After only two sessions I'm alread feeling the fatigue (OK I was tired before we started) and I don't think I could do treatment and then work all day without some down time. I am so lucky in that the clinic is 10 minutes (on a good day) from work. I've left work 1/2 before my session is scheduled, go to the clinic, change wait maybe 5 minutes. Hope on the table. Dress and go back by work to pick up my car pool buddy and head home.
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I feel for those who have to travel long distances for radiation - that must get very tiresome! My office is 10-15 minutes from the cancer clinic, and even though I am usually done with tx by 4:00, I don't go back to work. I have plenty of sick leave, so I just go home.
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MOT ~ I drive about 40 minutes each way and I would strongly recommend end of the day if you can get it. I wasn't expecting any SE's for the first couple of weeks, but fatigue hit me hard after the 3rd tx. I struggle with anemia and super low iron levels, though, so it might be much easier for you
Just to be safe, though, I'd avoid having to work a full day after rads.
Antioxidents: Okay, here is what I was told about taking Vit C or E while on chemo or rads...all of those antioxident-type supplements are counterproductive to many cancer treatments. Antioxidents find-free radicals (which are usually bad) and attack them. The problem is that chemo and rads are actually attempting to create an "oxidized" environment in order to bust up and kill the cancer cells. For this one moment in time ~ we actually want to allow our bodies to exist in an oxidized state. I don't pretend to really understand all of it, but I get that we don't want to load ourselves up with antioxidents while also loading up with oxidizing agents such as chemo drugs or radiation treatments. I hope that helps!
SAN
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I do the morning appt., after I take my kids to school and before I go to work. Then I don't have to think about it all day.
I have to tell you, I am enjoying the exercise trainer (former Olympian I mentioned previously). She has been very kind, helpful and encouraging. And it's nice that I'm working out with other BC patients, some of them years out from treatment. No end to this free service, which is great.
I did ask my RO about stomach queasiness I've been experiencing late afternoons, (anyone else?)
He said he's heard this before, and suggests crackers w peanut butter... Our bodies are expending a lot of energy trying to recover from rads. He suggests trying to eat a bit more. I'm not trying to lose weight, but have lost 2.5 lbs over the 11 tx, so far. Just trying to maintain my weight.
Definitely feeling the fatigue. It's so discouraging, I was just feeling normal after recovering from chemo. This is definitely a different feeling of fatigue though, I'm even tired mentally at the end of the day. Just want to zonk out and go to sleep.
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