LCIS Treatment...PBMX enough?

Cats134
Cats134 Member Posts: 131
edited June 2014 in LCIS (Lobular Carcinoma In Situ)

I was diagnosed with LCIS, ALH, and radial scarring in both breasts after multiple biopsies. On 12/19, I had a prophy bilateral mastectomy with SNB on my right side because there was still a suspicious lesion in that breast on.  

Path report came back clean...breast tissue and SNs showed no sign of invasive cancer.  My BS advised me that I needed no further treatment and that I didn't need to see an oncologist.

That was fine for me ... then.  Now I'm not sure... should I meet with an oncologist...should I have any further testing?  There is no family history of breast cancer, but that is based on my Mom alone...she has no sisters and neither do I.  Other women I meet ask me if I'm ER+, and I have no clue... is that something I should know?

I am more than willing to put this all behind me and go on my merry way... but I really want to be sure.

Thanks,

Cats 

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Comments

  • beacon800
    beacon800 Member Posts: 922
    edited March 2012

    I'm in your same situation and also felt a little "left out in the cold" after my surgery was over. I was worried we needed to do something. Turns out we don't. I go in once per year to my BS and he examines me. This will go for 5 years and then be over. No tamoxifen, no oncologist appts. Very simple!

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  • Cats134
    Cats134 Member Posts: 131
    edited March 2012

    Phew...ok then!  Thanks beacon!

    Cats 

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  • iammommy
    iammommy Member Posts: 213
    edited March 2012

    Same as Beacon here. I will see my breast surgeon yearly and my obgyn yearly , scheduling them 6 months apart so in effect i will be checked twice a year. My only remaining question is how would ,G'd forbid, any invasive cancer be found if we don't need any imaging? Anybody know?

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  • november
    november Member Posts: 103
    edited March 2012

    Hi everyone- My oncology breast surgeon told me that I don't need to see him anymore unless I had a concern but nothing planned on a regular basis. He said to check my breast during my shower. If any lump should develop, it would be very superficial and can be easily felt because breast tissues have been removed so the lump would be right under the skin. In that case they would do a lumpectomy and because after BMX, we only have residual breast tissue, any lump or changes would be felt and taken care of very early on. So as far as I am concerned I did what I had to do, time to move on for me. Hope that is helpful to you.

    My surgery was 2/1/12

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  • mmswarowski
    mmswarowski Member Posts: 34
    edited March 2012

    Hi Ladies...I was just wondering this same thing myself. My BS has said nothing about follow-up and to be honest in my healing process I had not thought to ask. My final follow-up appointment with him is this Friday so we shall see what he says.

    I like the idea of scheduling an appointment with him and then 6 months later the OB/GYN...that sounds like a great plan.

    Thanks again ladies...you can thru and answered a question I didn't even know I had yet! LOL

    Maryellen

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  • msippiqueen
    msippiqueen Member Posts: 191
    edited April 2012

    Really good question.



    The odds of bc drop to way below average to near zero following a PBLM for LCIS. That's something to savor and celebrate! We can drop off the extensive monitoring grind. Fabulous!



    But followup evaluation of a bare chest after a PBLM for LCIS reminds me of being told I needed a pap smear yearly after my cervix was removed. Hate to compare the two, don't know if that is a good idea. This is really something best decided individually.



    For me, I'm doing a alcarte of what was recommended for me. Declining the ordered mastectomy (What?!) ordered a year ago after one year post op. Declined the chest xray. Will have the surgeon do a palpation of my chest and look at lab work used to assess general health. But that's just me.



    I'm really interested in what is advised for others.







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  • skipper12
    skipper12 Member Posts: 6
    edited April 2012

    Did everyone here not have reconstruction? I am considering PBMX w/out reconstruction.  I wonder how everyone came to their decision to not have reconstruction? I am curious how you look post surgery and healed up? Are you really flat, or is the chest area lumpy?  I have looked at some photos on the web.

    My main reason that I want a  PBMX is: it has been torture going through the emotinal stress and physical stress of the 6 month monitoring and biopsy and lumpectomies.  It is grueling year after year (been going on for 3 years).

    Did you have a choice of the surgeon taking lymph nodes? 

    Thanks , Skipper

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