Any March 2012 RADS out there?

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  • lalere
    lalere Member Posts: 16
    edited March 2012

    Mizmarie

    I thought so too.  A doctor yesterday (just a GP) told me just the opposite which is why I'm confused.  He said to do chest x-rays you inhale to push the heart out of the way. 

  • snorkeler
    snorkeler Member Posts: 145
    edited March 2012

    to MNGirlyGirl, lalere, and others re: gated breathing--

    I just finished my 10th treatment with what they call here "active breathing control." My nose is clamped closed and I breathe through a tube (the therapists call it the snorkel). Over the intercom the therapist tells me to take a deep breath, and then while I'm holding my breath in they shoot the beam. We do this three times and then the radiation machine rotates and then we do it two more times. Each time I'm holding my breath for only a few seconds, so it's not that bad. I think the idea is when you inhale deeply, your chest expands and creates more space between your heart and your chest wall, leaving your heart farther away from the treatment field.

  • Darnit
    Darnit Member Posts: 2
    edited March 2012

    Anyone else out there ready to bolt off of that table because your arms and back hurt so much from the postioning on the table?  Maybe because it's because I'm short and on the small side and the forms are meant for bigger people than I but my arms go numb and my back is in spasm and then they tell me it will be a few more minutes and hold very still.......

  • lalere
    lalere Member Posts: 16
    edited March 2012

    snorkeler

    Thanks  That's the info I was looking for.

  • carolinames
    carolinames Member Posts: 43
    edited March 2012

    Darnit - My RO made a mold just for me that fits perfectly.  20 down, 13 to go....yahoo!

  • tlead
    tlead Member Posts: 15
    edited March 2012
    @ Snoopsmom, I have similar sensations as you--nothing serious, just an ache inside the breast and a little tightenin.  There is pain near the sentinel node biopsy scar, but according to the rad tech, that area is not radiated directly, so I don't know whats going on.  Or maybe its because I went to yoga 3 times this week?  Trying to keep the rest of me strong so that I make it to the finish line, but maybe I should tone down the exercise?  Its early yet for me, just 5 of 36 sessions completed.
  • Snoopsmom
    Snoopsmom Member Posts: 119
    edited March 2012

    Tlead - thanks for the reply. I'm down 8 so far, 26 to go. I really can't believe how quickly it seems to be going. I go in at 7:45 in the morning (I'm a very early riser, so I'm glad they were able to get me in first thing in the morning), so I have the rest of the day to do what I want without having to look at the clock. So far I have no skin or fatigue issues, but I know it's really early on yet so who knows what I might get later. My RO and all the rad staff are really great. The hospital I go to is only about a 10 minute drive too so it's really convenient. I hope you continue to do OK...it will be over before we know it!

  • ckk
    ckk Member Posts: 270
    edited April 2012

    tlead and snoopsmom, I have the same sensations around the scar. When I asked the nurse about it, she said that it's the nerves in that area that were cut getting irritated by the radiation and looking for connections when they fire. She said that it's common and that most ROs don't tell you about it.

    I am also 8 down, and no skin issues thus far. I am using Jeans cream right after tx, and then emu oil at night before bed. 

    MizMarie, thanks for the reply. I asked about last week, and the tech said the same thing, thankfully! He also said that there's three of them back there checking to make sure that the tx is done properly.

    Have any of you been told to not use supplements during treatment? My RO has said nothing, and I take several.

  • snorkeler
    snorkeler Member Posts: 145
    edited April 2012

    My RO said no "high-dose supplements." I was taking a couple that are way over the RDA (zinc and b-complex), so I stopped, even though I read separately that it's really anti-oxidants that may be an issue. The thinking is that anti-oxidants fight free radicals, and the whole point of radiation therapy is to create free radicals to kill the cancer cells. But there seems to be no clear answer on this one.

    As an aside, I started taking the supplements to counteract the effects of hormonal contraception, and since I'm not on the hormones anymore, maybe I don't need the supplements either. 

  • Harplu13
    Harplu13 Member Posts: 18
    edited April 2012

    Done!! done, done, done, done and done!!!!

    Now what? 

  • Beebop
    Beebop Member Posts: 206
    edited April 2012

    Yay Harplu! And congrats to eveeryone who is done. We made it! But, yes, now what? My next appointment is not until May. I started chemo in June, then 2 surgeries followed by radiation. The hospital has been my 2nd home. Feels great to get back to a somewhat normal life, but what is normal now?

  • dechi
    dechi Member Posts: 173
    edited April 2012

    1/3 of the way done today!  Woot!

  • tlead
    tlead Member Posts: 15
    edited April 2012

    Hi Snoopsmom and ckk,

    I asked my RO and he confirmed that it's not uncommon to have intermittent "shooting pain" around that area of the underarm. Must be irritated nerves, as your nurse suggeste, ckk.  In fact I don't feel it any more this week even though the aching in my breast is there (worse?).  

    The RO also confirmed the feeling of "heaviness" in the breast, and said that would go away after radiation is done.

    Anyhoo--I am feeling fine!  Just knocking it out, one treatment day at a time.  Snoopsmom: you bet it will be over before we know it.  Still--its good to know you good folks are out there.

  • tlead
    tlead Member Posts: 15
    edited April 2012

    Anyone hear of Cerave cream?  I just heard a report that it is great, better than what the clinic might have to offer. 

    I also heard of someone who--after radiation without chemo--came into dental problems.  Have any of you hear of such reports?  I am wondering if I need to head to the dentist now...

  • MNGirlyGirl
    MNGirlyGirl Member Posts: 26
    edited April 2012

    Hi Lalere, I'm doing the gated breathing and you hold it after you inhale.  When some people inhale, their breast moves away from the heart, protecting it from the radiation. 

     Snoopsmom, I have the very same sensation near my lymphnode biopsy after only 5 sessions.  I'm hoping it doesn't keep getting worse or I'll be in a lot of pain by session 33.

    Congrats, Beebop and being done with radiation!  I can't wait for that day.

    After my last session I met with my doctor for our routine weekly and she told me that my CT scan showed that I have nodules in my lung.  She said they are very small and probably nothing, but they have to monitor it because of my history with BC.  Anyone else have anything like this happen?

    Kathy

  • MNGirlyGirl
    MNGirlyGirl Member Posts: 26
    edited April 2012

    Tlead, I've only heard of dental problems with chemo, but you should give your dentist a call and see what he says.  Radiation is only supposed to affect the area of radiation, but then again, who knows!

  • cupcakies
    cupcakies Member Posts: 71
    edited April 2012

    Hi everyone, i'm about 70% done and am starting to get a little pink and itchy!  

    btw, i was told not to see the dentist until i was done w/ all treatment.  

  • dechi
    dechi Member Posts: 173
    edited April 2012

    MNGirlyGirl,

    Let me preface this by saying I know enough to make myself dangerous, but I do medical transcription for a pulmonology group and there are a bunch of different types of lung nodules, most of them benign, caused by inflammation, scarring, old infections, etc.  These docs usually get a chest CT every 3-6 months to see if they are growing or not and follow them for a year or two and if there's not growth they quit checking them after a certain period of time....

  • MNGirlyGirl
    MNGirlyGirl Member Posts: 26
    edited April 2012
    Thanks Dechi!  Good to know.  Smile
  • crking71
    crking71 Member Posts: 40
    edited April 2012

    I get my last whole breast rad today, and then I start boosts tomorrow.  I'm still experiencing some sensitivity and itching, particularly around the nipple area.  Last night before bed, I noticed my arm suddenly felt heavy and tight.  Now I'm stressing out about lymphadema!  I might have to talk to the nurse today after treatment.  Hope it's nothing!

    I should be completely done by next Friday.  Can't wait!

  • WaveWhisperer
    WaveWhisperer Member Posts: 898
    edited April 2012

    Tlead, I've used all the Cerave products, and they're excellent. My dermatologist recommended that I use them for a variety of skin issues I've had -- dry, sensitive skin; eczema; etc. I currently use the body wash and body cream during rads -- soothing, no perfumes, etc. I've found them at CVS. Highly recommend!!

    With 13 rads down, I'm now getting a significant reddening and rash on the affected area. The tech suggested I use Benadryl at night in addition to the gel the RO gave me. It's not terribly itchy but apparently I scratch it during my sleep. It's pretty unsightly. 

  • cupcakies
    cupcakies Member Posts: 71
    edited April 2012

    Hi, just wanted to mention that some of the Cerave products have parabens.  I used to use the lotion, but have since switched to St. Ives.  for radiation, i'm using calendula cream

  • WaveWhisperer
    WaveWhisperer Member Posts: 898
    edited April 2012
    Cupcakes, thanks for that information. I didn't realize that and will check the products I've been using. I assumed that since they were recommended by a dermatologist, they would be paraben-free. Oh, well...
  • moonlight60
    moonlight60 Member Posts: 57
    edited April 2012

    I had my last rad on Monday. I had 25 sessions (no boost) My breast is red, painful, itchy, peeling and now I have a little rash-type thing going on the surrounding skin outside the treatment zone. Ugh. I hope this gets better real soon!

  • TheDot
    TheDot Member Posts: 1
    edited April 2012

    Hi Pepe, I'm also getting 25 reg & 5 boosts. I was surprised when chemo really knocked me down and then happy that, by my 20th rad tx, I was feeling pretty good. I'd started walking regularly, which helped quite a bit. Just got to the point that I felt like going out with friends again, doing errands, and finally getting some things done. I felt a bit tired from radiation, but nothing like chemo. With only two more reg rad tx to go, now my skin is blistering & very red and sore. It's really painful. Unfortunately, today (Easter...Happy Easter everyone) some of the sore spots are ulcerated. My rad onc has had me using Xclair cream. Has anyone heard of it? I need to do something about this today, but of course, it's the weekend. I read something about lidocaine and was wondering if anyone knows if that's ok to use (since I have that here at home). I wish all of you the very best!

  • mary625
    mary625 Member Posts: 1,056
    edited April 2012

    I heard today from the Radiation Techs that I am going to be having boosts.  That quite surprised me because I had a MX.  I thought the boosts were only for lumpectomies.  I've searched around here and see that I was wrong about that.  I don't know why they want to start setting them up tomorrow when I have through April 27 for treatment.  I am quite mad at myself for not asking more questions of my RO.  I just didn't know what to ask.  She talks in the most general of terms--some women get red skin or fatigue, blah, blah, but never what the treatment involves or if there are any choices.  Tomorrow I am asking LOTS of questions and not leaving until I get an answer.  It still seems weird to me to have to have boosts with a mastectomy, but unfortunately I think I am at such a bad stage that I tend to get everything and the kitchen sink thrown at me. 

  • Beebop
    Beebop Member Posts: 206
    edited April 2012

    Mary- I had a BMX and also had boosts. Good news is they are super quick. And at that point you know you are almost done! Good luck!

  • fondak
    fondak Member Posts: 376
    edited April 2012

    I asked my doctor about the boosts last week.  My RO had explained that the boosts just go along the scar lines.  The doctor said I will have 5 boosts only to that area (scar lines)  and the wider area is not treated during the boosts.  So actually, I will be finished with all except the scar in 28 days rather than 33 days.

    I can' believe I forgot that!  I am really red and my skin feels tight when I move my arm. I finished day 16 today.  The doctor also prescribed a cream for me last week. 

  • WaveWhisperer
    WaveWhisperer Member Posts: 898
    edited April 2012

    I finished treatment 16 yesterday, too! Today I get the first of my five boosts. I'll be through on April 17th and am very excited.

    My skin was doing fine until about #12. Now it's bright red with an ugly, itchy rash all the way up part of my chest. Thank goodness I have only 5 to go. It's started bothering me.

    I'm in a clinical trial testing whether women of a certain age, with certain cancer profiles, will benefit as much from 15 days of slightly higher rads as they would with the traditional 30-day course of treatment. I was randomly chosen into the arm of the study with the traditional course, although my RO was able to scale mine down to 22 treatments instead of 31 and still qualify for the trial. 

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited April 2012

    1 down and 15 more to go ----

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