March 2011 chemo-lounge

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited April 2012

    Congrats Penny! He is beautiful. Enjoy every minute! I'll play a song for him too, Beautiful Boy by John Lennon.



    Lily, been thinking about you, how are you doing?

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  • PennyCookson
    PennyCookson Member Posts: 366
    edited April 2012

    Thank you friends - perfect songs Silia and Kay.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited April 2012

    Penny he is so cute!!!  Babies are precious aren't they?

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  • lilylady
    lilylady Member Posts: 1,079
    edited April 2012

    Penny-he has a great smile. What a good looking guy!

    Fluff-glad you got thru surgery-hoping for god biopsy report for you.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Thanks all, I see him next Tuesday, so unless he calls first, I am not calling.



    Stilt.....my lipo, fat grafting and nipple recon took about 3 hours last Friday. On exchange, i just got the implants and he cleaned out the pocket some. Piece of cake.

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  • Stilts
    Stilts Member Posts: 246
    edited April 2012

    Congrats Penny...can't wait to be a grandma someday !!!...won't be in the near future , though...my ONC promised he'd keep me around long enough so we could talk about my grandchildren so I'm holding him to it !!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Saw the PS today instead of Tuesday due to a scheduling conflict. All is healing well. The lump was a keloid that formed where the muscle and the alloderm met. So that was a relief. Brca results from onc were negative. So now I just take it easy and wait for all the bruising from the lipo to heal up!

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  • Huskerkkc
    Huskerkkc Member Posts: 536
    edited April 2012
    Yay, Fluff! Laughing
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  • mdg
    mdg Member Posts: 3,571
    edited April 2012

    Great news Fluff!  Hope you are feeling OK.

    Happy Easter to all :)

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  • PennyCookson
    PennyCookson Member Posts: 366
    edited April 2012

    Excellent news Fluff

    Happy Easter everyone

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  • Colodisneylover
    Colodisneylover Member Posts: 220
    edited April 2012

    Penny-Thanks for sharing the picture! So cute!

    Fluff-Relieved to hear your news.  Hope you are recovering well.

    Hope everyone has a great Easter with warm weather. :)

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  • lilylady
    lilylady Member Posts: 1,079
    edited April 2012

    Hope everybody had a great Easter. Calling in for some finger and toe crossing from you guys this week. I have an onc visit tomorrow and scans later in the week. It has been 5 weeks since my last visit-the longest I have gone since diagnosis over a year ago. I am on oral meds right now so I don;t need to see him as often

      Acceptable result would be stable but really hoping for regression. So keep me in your thoughts. Probably won;t know anything til next week. Scan is Thursday and it takes 2 days to get the results back. I made my doc write a paper telling them to give me the dang results-I get tired of fighting with them over papers that I paid for and have my name on them. He knows I am not a freak-out queen so he had no problem with that.

      I will post when I know the results

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  • PennyCookson
    PennyCookson Member Posts: 366
    edited April 2012

    Everything crossed Lily - hate the waiting for results bit - hugs

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  • Kay_G
    Kay_G Member Posts: 3,345
    edited April 2012

    Fingers, toes, even eyes crossed for you Lily. Sending all my good thoughts and wishes your way.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Lilylady-crossed, twisted, even did a Tebow Time prayer for you!

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited April 2012

    fluff so glad you got good news!

    lily praying for you! 

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  • Huskerkkc
    Huskerkkc Member Posts: 536
    edited April 2012
    Lily, glad to hear from you. We'll all be pocket pals for your onc visit tomorrow AND Thursday. Good for you for getting the written order for results. I like that! Too bad it takes an order, but whatever it takes. You'd think they would understand scanxiety by now. Deep breaths. You have lots of prayers from all your breast-friends Tongue out
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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2012

    lily, greetings and Happy Easter to you.  Hugs and prayers; will be thinking and praying for you all week.

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  • Silia
    Silia Member Posts: 330
    edited April 2012

    Lily - praying for significant regression!! We'll be anxious for your update!



    Fluff - so glad for your good news!



    We need some good music here. Kay?!?! Sending hugs to all.

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  • mdg
    mdg Member Posts: 3,571
    edited April 2012

    Oh Lily!  I am praying, crossing fingers and toes, tossing salt over my shoulder and anything else for you!  I am hoping you have had significant regression........will be checking in to wait for your results.

    I hope everyone is doing well.    As far as a song...what about Walking on Sunshine by Katrina and the Waves?  It's perky and spring like!  Enjoy! 

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  • Colodisneylover
    Colodisneylover Member Posts: 220
    edited April 2012

    Lily-Thinking of you!!! 

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  • DeeDee2
    DeeDee2 Member Posts: 82
    edited April 2012

    Lily - Hope your dr's visit went well today...thinking about you and praying really hard for regression !!!

    Fluff - Great news

    Penny - What a precious grand baby.

    I've been thinking of all you ladies ((hugs)) to you all.

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  • MaxineO
    MaxineO Member Posts: 555
    edited April 2012

    Lily- Thinking of you and hoping for good news.

    fluff- glad the exchange went well, and I hope the recovery is fast.

    The slower rate of posts must mean we're all moving on, but it's great to see you all checking in now and then. 

    I just returned from a great trip to Europe to visit family/have a 'done-with-cancer' vacation.  We had a great time.  Ask my daughters what they loved most about our trip...not the old buildings or castles...jumping on the trampoline with their cousins!

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  • timerdog
    timerdog Member Posts: 159
    edited April 2012

    Hi Everyone,

    Lilly you are in my prayers as well.  

    Quick update on my life. Horrible achy joints and a pulled tendon are making my life hard. I get up and down like an old lady. Going for liposuction and fat grafting along with nipple recon at the end of June. This is all done under local so I'm a little bit scared, but what the hell. After my MX I feel like I can face just about anything.

    Hot flashes are crazy, about every two hours. I have managed to adjust to them.

    Take care all.

    xoxox

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  • Stilts
    Stilts Member Posts: 246
    edited April 2012

    Lily-thinking of you too and waiting to hear some good news from you !!!

    I am recovering from bilateral tubes/ovaries removal this week at Mayo....nothing compared to the BMX last year...just feels like I got kicked in the stomach !!!  I made this decision because of my mothers history of Breast AND Ovarian cancer...after having my local ONC and OBGYN tell me it wasn't necessary, I found an ONC and GYN surgeon who listened to me at Mayo so I went there. I realize I will probably never know if it was "worth it"...other than peace of mind and taking control of some of this cancer business... so far my genetic testing doesn't show anything but it still feels good to have that over with..and at 58, I certainly don't need tubes and ovaries anymore !!!

    My next battle will probably be over Metformin...they do have a clinical trial going on thru my ONCs office but the timing of my diagnosis doesn't work so I am hoping at my appt. next week they will let me try Metformin anyway. I really have gotten into a good exercise routine but the weight isn't coming off as well as I 'd hoped . Can't remember those in the March 2011 lounge who have tried Metformin but I would like to hear your experience with it...

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  • PennyCookson
    PennyCookson Member Posts: 366
    edited April 2012

    Hi Stilts - hope you have a speedy recovery.  I asked my Onc for Metformin and was told No - she says there is not enough information about how it works yet.  I am also struggling to lose more weight - coming off very slowly, but she was very firm - said go away and lose 20Kg and that has proven effect on recurrence.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Stilts..I am taking Metformin. I was supposed to do the trial but after all the basic stuff, they realized my tumor was 1 cm x.8cm and if it wasn't in my nodes, it had to be over 1 cm all around. However, I had an appointment with my PCP coming up so I took the studies with me and showed him and he had no problem prescribing it. It is free at our local grocery store, and only $4 at Marsh. The trial dosage is 1700 per day, (850 twice a day). I started with smaller doses and worked up. Really the only problem I have is loose bowel movements, but after the fissures I had from chemo issues, it was a welcome healing time. lol. It is reasonably resolved now. I try to keep them twelve hours apart as if I take one of them earlier, that is when the issues usually occur.

    I had lost 30 pounds between November and January of 2010 and have kept that off. I have not lost any additional weight on the Metformin.

    My doc said that they are using Metformin for a lot of other things now, and he considered it a drug that had been around for a long time and had few side effects, so he didn't really have a problem. I do not run it through my insurance, since it is free.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited April 2012

    I have been taking the Metformin for about a month now.  No weight loss here, and I was really hoping to lose some.

    No trial for me just asked my Onc if I could have it and she agreed.  It only cost's me less than $2 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Ayone heard from lilylady?

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  • Colodisneylover
    Colodisneylover Member Posts: 220
    edited April 2012

    Fluff-Wondering the same thing....been thinking about her all weekend.

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