Should I keep my ovaries for longer?

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Fourj
Fourj Member Posts: 15
edited June 2014 in Stage III Breast Cancer

Hi BC sisters,



I was diagnoised stage IIIc with a lot of positive nodes last March when I was 37 week pregnant. Baby just turned one and he is doing very well. Had c-section, bmx, TAC Chemo and 30 days of radiation, now on Tomoxifen. Since I was also tested positive with BRACA2, ooph is arranged in two weeks. I am really struggling with losing my ovaries at 37. I have two kids and don't want more. But I am afraid losing ovaries so early would bring down the life quality a lot and make me much less a woman. I have already felt 10 years older after all the treatments. I got my period back yesterday. No wonder I feel pretty " normal" recently. Is it worth to take the risk to keep my ovaries for a couple of more years?



Thanks,



Jen

Comments

  • NancyD
    NancyD Member Posts: 3,562
    edited April 2012

    I had to have an ovary removed when I was 41. I, too had a year old baby and one older child. Yes, I still had one ovary in me, but I was ready to have them take it out, too when I heard the "cyst" that was on the removed one turned out to be carcinoma in situ.



    I went through natural menopause a few years later. It can be a bit uncomfortable, but it never made me feel less of a woman. In fact, only women go through that kind of great hormonal change so I accepted it as part of a woman's life.



    Even losing my breasts four years ago to breast cancer didn't change my sense of femininity. Recon even heightened it. Without going over the top, I like to have some kind of feminine touch to my clothing...a ruffle on a suit jacket....a beautiful necklace with a t-shirt...dress shoes with jeans.



    If all other things in your life are in order, why play russian roulette with your BRACA2 status?

  • Fourj
    Fourj Member Posts: 15
    edited April 2012

    Thank you very much for responding. I think I miss being normal and am very afraid to break the hormonal balance again by the surgery.

  • fondak
    fondak Member Posts: 376
    edited April 2012

    I totally get where you are coming from.  For me, I don't want to become an irritable, grouchy, moody mom.  My sons are older (18).  Still, I was worried that a change in my hormones would change my temperment.  I also worried about this with the chemo induced menopause and then again with the 12 weeks of steriods.

    It seems there will always be something I can worry about.  However, during the chemo induced menopause and the 12 weeks of steriods, I was my usual mild temperment, easy going self. All that worrying was for nothing.

    I'm scheduled to have my ovaries and uterus removed in May a couple of weeks after I finish radiation. I'm ER+/PR+ also. My chemo oncologist, surgeon and gynocologist all recommended it.

    For me, overall, it will be a comfort knowing that I am not producing more estrogen and I won't have to worry with it coming back in my ovaries or uterus.

    I hope you can find a new normal that you enjoy.  I know that is what I'm having to do.

  • fondak
    fondak Member Posts: 376
    edited April 2012

    I totally get where you are coming from.  For me, I don't want to become an irritable, grouchy, moody mom.  My sons are older (18).  Still, I was worried that a change in my hormones would change my temperment.  I also worried about this with the chemo induced menopause and then again with the 12 weeks of steriods.

    It seems there will always be something I can worry about.  However, during the chemo induced menopause and the 12 weeks of steriods, I was my usual mild temperment, easy going self. All that worrying was for nothing.

    I'm scheduled to have my ovaries and uterus removed in May a couple of weeks after I finish radiation. I'm ER+/PR+ also. My chemo oncologist, surgeon and gynocologist all recommended it.

    For me, overall, it will be a comfort knowing that I am not producing more estrogen and I won't have to worry with it coming back in my ovaries or uterus.

    I hope you can find a new normal that you enjoy.  I know that is what I'm having to do.

  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    I understand your concern, and for me losing the ovaries was harder, psychologically, than losing the boobs. I should say that I am ten years your senior, so I was getting close to menopause anyway. Still, it worried me to rip them out. On the other hand, I had lobular cancer, which has a tendency to hit the ovaries and my mother had ovarian cancer. Ovarian cancer is sneaky as all get out, and I am really happy not to have that to worry about.

    So far I have been in chemo pause since July, then had the hysterectomy (I had some non-cancer problems with my uterus as well) a month ago and started femara a week ago. So far, I feel fine. As far as sexual function/feeling, it is also working fine. There are some minor annoyances, like the occasional hot flash or night sweat, but it is completely bearable for the time being (may get worse as the femara kicks in), in my case anyway.

    I expected to feel worse about all this, but leave room to allow yourself not to feel bad, if that makes sense. I feel proud that I made it through all this horrific treatment with my sense of self and sense of humor intact. They can take away my boobs and ovaries, but they can't take who I am and I am a kick-ass woman, 100%. 

  • Rachel1
    Rachel1 Member Posts: 363
    edited April 2012

    I'm BRCA2+ as well. Had an ooph one year ago.  I was already in chemopause and haven't noticed any big changes -- it's like one big long chemopause. However, I was 50 at dx but still had periods. For me the ooph was a no brainer.  I need to do everything possible to be here as my children are 13 and 11. My dx is IDC, grade 3 with 7 pos. nodes.  My onc. said that ovarian cancer is silent and sneaky, not something to take chances with.  

     I don't know if this helps or not. You are so young and I'm sorry that you are faced with this decision.   

    Rachel 

  • Fourj
    Fourj Member Posts: 15
    edited April 2012

    Rachel, I don't have any family history of ovarian cancer or breast cancer. Sometimes, I feel I have a hard time to believe I am at a high risk to get ovarian cancer. But I got breast cancer at such a young age. Who knows...

  • diana50
    diana50 Member Posts: 2,134
    edited April 2012

    i think doing whatever helps to save your life is a big consideration. being ER positive means you do what you have to do to bring the estrogen levels down.  sadly, it is what we do to continue to be NED> 

    so much sacrifce to beat the cancer.  i know, it seems totally unfair.  however, thinking about the cancer cells and that they grow with estrogen....is a reason to cut the estrogen out.  losing your ovaries is a big deal. however, your life and future is a part of this decision.  the doctors are making recommendations to keep you around.  it is what they know to do.

    hang in there

    diana

  • Fourj
    Fourj Member Posts: 15
    edited April 2012

    Thanks, ladies. I will go ahead to take the ovaries out! Scared, but hope i am lucky enough to get mild menopause symptoms.

  • cdbernal
    cdbernal Member Posts: 7
    edited July 2012

    I was stage IV mets to the liver when diagnosed. a year and a 1/2 in, when my obgyn, Dr. Mae Ushigomi said the tomoxifen was making the walls of my uterus thicker - it causes uterine cancer. My husband and I immediately said take them out. We unfortunately have no children. I have been 6 years NED now with triple positive breast cancer. I am still on Herceptin and Femara, however was able to stop Tomoxifen and Lupron shots to shut down my ovaries. 

    I wouldn't take any chances. Their are several aromatase inhibitors if you don't like Femara, but it seems to be the one most people are on. 

    Don't take chances with your life, enjoy the chidren you have and be alive for them!

    I'm just saying!

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