Seems like the treatment is extreme

I am so sorry  so many got off topic on  your thread. There were so many different things going on, I kept forgetting your original post.

I was just wondering how you are doing and what you have decided? I hope you are making decisions on your treatment that feel best for you.

mnkid...My first two dx were high grade (grade 3) dcis. The first time I was dx with dcis, I felt dcis was overtreated. I was told it wasn't invasive so I thought what's the worry. I was told I had the good cancer so I had a lumpectomy with wide margins. My bc surgeon said I was good to go and she thought even without further treatment I would not have a recurrence. I felt like I didn't have real cancer. BUT...the fact that I had high grade concerned me. I was shocked exactly one year later to be dx again with high grade dcis. I learned that dcis even with wide margins can jump. No one ever talks about it jumping, but it does. You think with wide margins you are safe, but not always. I also was dx with multifocal which did not show up on the mammo or mri.. I was without insurance so I took the risk to do a lumpectomy due to cost. I thought if I was screened every six months I would catch it again early while it was still dcis. Unfortunately, this last time they found a shadow under the scar of my first dcis lumpectomy that ended up being a tumor that was difficult to spot.. At the biopsy they removed 2 C of the tumor (98% tumor) leaving what was suspected to be only a 5mmm tumor. This time I HAD to have a right breast mx. The final path showed the remaining tumor to be 1.8 C of Invasive high grade with the her2+ component. I thought how could they have missed it when I was constantly screened just a few years of original dx?

Hinds sight, if I were to know what I know now, I would had gotten at least a partial breast mx or a complete mx when first dx with grade 3 dcis. I now have to deal with herceptin treatments (forgo chemo and tamoxifen and rads) and for the next five or so years, I have to look over my shoulder for possible mets. I'm hoping the mx got it all as my scans last january shows NED (no evidence of disease outside the breast). But, since I've been so unlucky so far, I'm not completely confident I'm home free..

So, grade 3  como-neu is very aggressive. I wouldn't trust a grade 3. I think if you leave it be it 's not if it will become invasive ... it is when. If I were grade 1, I would have it removed because it too could become invasive although I wouldn't do anything more than a simple lumpectomy for a grade 1 cancer.

purple32,   I am in TX.  I am doing well after my partial breast radiation.  No real side effects during or after the treatment (other than a slight twinge in my breast after day 3 which went away after 24 hours).   My treatment was 5 months ago.  Hopefully in 5, 10, 15, 20 years etc. I will still be cancer free.  I know that there are clinical trials that are going on for this treatment in many locations.