Diep 2012

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  • bdavis
    bdavis Member Posts: 6,201
    edited April 2012

    Response from a PS regarding plication:

    Full "tummy tuck" closure with DIEP flap breast reconstruction... A good idea?

    "It is possible to do rectus plication with DIEP flap donor site closure for a full abdominoplasty result"

    Karen M. Horton, MD answers: Possible to do full tummy tuck while doing diep flap procedure?

    I understand that the diep flap benefit of a real 'tummy tuck' is not covered by insurance. Is it reasonable to ask for the cost of a full tummy tuck (sewing together muscles, etc.) while the surgeon is performing a diep flap procedure? My surgeon seems very reluctant to even discuss outlying procedures such as abdominoplasty and liposuction, which I believe are both necessary to achieve the best final results. If I'm willing to pay for these procedures out of pocket, I don't know why my surgeon won't discuss them. Any insight appreciated.
    Karen M. Horton, MD

    When the DIEP flap (deep inferior epigastric artery perforator flap) is used for microsurgical breast reconstruction, usually a small split is made in the muscle fascia (thick layer of collagen over top of the rectus abdominis muscles) to dissect out the blood vessels used for transplantation of skin and fat from the tummy to the breast.

    Usually, the fascial split is simply closed, and the overlying anterior abdominal wall (sheet of skin and fat over the muscles of the trunk) is pulled tighter and closed, resulting in a tummy tuck scar.

    It IS possible to perform rectus fascial plication (corsetting of the rectus abdominis muscles of the abdominal wall towards each other in the midline AT THE TIME of DIEP flap donor site closure.
    However, doing so may change the pressures inside the abdominal cavity (i.e. on the stomach, intestines, diaphragm, etc) and may increase the risk of complications to the flap circulation in the short term. The worst case scenario would be to perform cosmetic steps during surgery and to lose the flap altogether!

    Performing a full tummy tuck closure with the DIEP flap is something I HAVE performed successfully on a number of occasions, but patients must be very carefully selected and we would all have to be willing to accept an increased risk for complications.

    I am currently reviewing my results on this combined procedure and will be presenting my work at upcoming meetings and in the form of a scientific paper, to be published on my website.

    Often, the best solution is the simplest. On the day of your DIEP flap, it is usually best to focus only on microsurgical success. "Touch-ups" can be done any time in the future, including liposuction contouring of the abdomen (done in most of my patients) together with their nipple and areolar reconstruction, and/or rectus fascial plication, if needed.

    See the photographs below of an example of rectus fascial plication done either at the time of DIEP flap donor site closure.  Trust your Microsurgeon to make the best decision for you, and to ensure a SAFE and SUCCESSFUL breast reconstruction as the #1 goal!
  • Dutchy
    Dutchy Member Posts: 432
    edited April 2012
  • gale1525
    gale1525 Member Posts: 232
    edited April 2012

    I am three months out with my stage one DIEP I still have muscle weakness, and can't sit up in bed without pain. I am confused because the one of the reasons I went with the DIEP so I wouldn't have this problem. Asked my PS about it he said do half sit-ups which has helped some. I just had my stage two Monday and told my DD that it didn't hurt any more, she reminded me that I am still on drugs (duh). I want to know what other people have done about this problem, when I go back next week for my post-op I can ask him again.

    CookieMonster: Did you have to ask Dr. F. to fix the muscle or he just did it?

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited April 2012

    The doctor didn't know it needed to be fixed until he got in there. I can't remember if we talked about it ahead of time, but I suspect we did and I said that if I needed the plication that he should go ahead and do it. I've had NO problems with it so I'm glad it got done. Sounds like it CAN cause problems, but it didn't for me.

    Dr. F. was the assisting on my surgery, Dr. Tseng was my primary - Dr. T. did my Stage II today as well. We'll see how that turns out, I'm confident that in the end I'll be happy, but will probably go through some uncomfortable stages in the middle.

    The stage II part that is sore is the area that he lipoed, which is apparently par for the course.

  • Lala63
    Lala63 Member Posts: 12
    edited April 2012

    DIEP +6-Thursday



    Great morning lots of walking and moving. She had a great night sleep. After a while pain started creeping back so we went to happy pills. She went to sleep in the morning and woke up feeling great. She wanted me to go and get her spanks in case the PS took the two remaining drains out. I went to Kohls and waked all around the lingere department and could not find them. I'm glad I had my 16 year old daughter with me so didn't look like a total creep. Got another brand. Not sure they're going to work.



    We went to the PS at 3:30. The walking went well but when we went in, the first thing he did was pull one of the remaining drains. That mixed with the Oxy made her very nauseous. The doctor had to stop talking for a bit and get her water. He is very pleased with the results so far and wanted to show her. She is not ready for the mirror so he explained it to me.



    We received about five new flower arrangements and our second meal delivered by friends. Very helpful.



    All in all a good day. It was great to get out. On the way back from the doctor's, we sat in the car watching people walk by while we ate soft serve cones. Lesson: don't wait for the pain to get bad. Take the pills as prescribed. She had a much better day today. Listen to your body and don't expect the next day to be better. You'll have ups and downs.

  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited April 2012
    Lala63 - thannks for keepin updated with your wife's status.  I found that everytime I took one of the valium, I would be nauseous but it would pass if I could make myself go to sleep.  I guess I was really lucky as I stopped taking any painkillers or muscle relaxants on the Wedneday after my Monday surgery.  Of course, I slept almost nonstop from Monday until Thursday afternoon--but I'm lucky that whenever I've been ill or whatevever, I've been able to force myself to sleep.  I guess I remember from my days of reading James Harriot's books that animals did well with recovery when they could sustain a deep sleep for a couple of days.
  • pigal60
    pigal60 Member Posts: 1
    edited April 2012

    Hi,

    Schedule for bi lateral diep on the 26th at us in Seattle. Scared stiff! 2 years out from bi lateral mast,

    6 rounds of chemotherapy and 33 radiations. Dread the whole hospital mess. How tough is this going to be? Thanks, pigal

  • cascader
    cascader Member Posts: 599
    edited April 2012

    Lala63,

    I just wanted to say thank you for posting. I could never get my husband to get on here, so have printed a few of your posts to read, hopefully will give him a bit of perspective on what to expect during my upcoming June date. Loved the spanx story!

  • goldlining
    goldlining Member Posts: 1,178
    edited April 2012
    Hi pigal60. Welcome, and you'll read a lot here that should help you. The #1 thing is that it's worse in the anticipation. Just comfort yourself with this (and DIEP 2011 thread) to make yourself feel more like you know what it can be like, the highs and occasional lows. Your job is easy: once you pick a surgeon that knows what he or she is doing and has enough DIEP experience, you just have to wake up (probably pretty early) and show up on time and go back to sleep. It's slow getting around at first but every day is a little better, and soon, you will be wondering why you were so anxious.
  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited April 2012

    Pigal60 - I haven't had my DIEP yet, but I think like everything else, the anticipation and fear of the unknown is worse than the real thing. The more you read and know, the easier it will be for you. At least, that is what I am counting on!!!

  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited April 2012

    I agree with goldlining.  Athough I wasn't that anxious, I was so ready to get it over with and start with recovery.

    After, you will have some days when you're really tired but other days where you can go all day.

    For me, the whole thing is still pretty surreal--I had BMX with immediate DIEP.  It's been almost 3 weeks since my surgery and the boobies look just more swollen than before (with some stictches) . . . my abs are not sore, just too tight to stan up straight. Everyone who has seen me does not believe that I had major surgery only 3 weeks ago (and this was at 2 weeks out too) . . . until they see me walk.  It's not that I can't get around, but I'm a little slower and kinda hunched over from the ab tightness (I look like a little old lady with osteoperosis)!

  • Janet_M
    Janet_M Member Posts: 1,068
    edited April 2012

    Thank you for your positiveness, and for raffirming that the anticipation is the worst part. Mine is coming up in about 6 mos-1yr and I've spent the last week with one hand near the phone, ready to change my plan of treatment to radiation. My imagination is running wild. The thought of having tubes again make me queasy. Not to mention the rest of it.  I phoned a friend who told me that I can spend the next few months gathering the tools I need, both mental and physical, to face this head on. For my last operation (which was little) I used guided meditation CD's that I'd learned about from one of these threads, and it decreased me anxiety substantially. The adavin helped too.

  • iswimibikeirun
    iswimibikeirun Member Posts: 743
    edited April 2012

    Janet, The only really bad part for me was that I wasn't allowed out of bed or to use my arms while I was in the hosptial.  In some ways, though, that wasn't bad b/c I wasn't using any of the potentially sore muscles.  I felt a bit trapped, but slept through most of it.

  • db53
    db53 Member Posts: 10
    edited April 2012

    rtnyc - I do not post often, but read daily and have gotten much great information and inspiration here.  I don't recall reading many posts where someone was "weirded out" by the nipple or lack of a nipple issue.  Let me assure you, you are not alone with that.  I think that was the thing that bothered me most about the whole mastectomy/reconstruction decision.  I spent many months looking for a surgeon that would save my nipple.  I actually did find a breast surgeon who was for it, but the plastic surgeon she worked with did not do Diep.  In the end I went with the only plastic surgeon in Michigan who studied with the NOLA group and her breast surgeon would only save the aerola.  It took me a long time to wrap my head around this, it really did.  In the end, my aerola was not saved (long story) and I ended up with a rather large flap of abdominal skin.  I finally made myself look on the last day of my hospital stay because I knew I was going to have to take care of myself at home.  I asked my plastic surgeon to stay there with me while I looked :)  I have to admit, I was shocked and sad but now, 5 months later (still no nipple), I have no problem looking at my new breast or touching it and actually embrace what a miracle surgery it is.  You will get to that point too.  No, it's not natural but neither is cancer - we do what we have to do and learn that we are so much more than just a pair of breasts.  We are strong and there is so much in life to be happy about.  Good luck to you, I'm sure you'll do well.

  • dressager
    dressager Member Posts: 77
    edited April 2012

    Lala63 -- I really appreciate your reports and am following your wife's progress with interest. You are an awesome husband! Smile

    pigal60 -- Welcome! I am in Seattle and scheduled for DIEP on May 24th. This board is a great source of information and comfort.

  • dressager
    dressager Member Posts: 77
    edited April 2012
    Question for those who have gone through DIEP with arm lymphedema: how did you fare in recovery without moving your arms? I don't have an actual diagnosis of Le yet (I am seeing PT on Monday) but I suspect I have it. I constantly move my arm, hold it over my head, rest it above my heart, etc. The thought of not moving it for 3-4 days is freaking me out a little bit. Frown
  • bdavis
    bdavis Member Posts: 6,201
    edited April 2012

    Dressager.. I used my arms in the hospital, used them to get in and out of bed, used them to shower, get dressed, do my dressings.. I just didn't lift anything heavy.

  • goldlining
    goldlining Member Posts: 1,178
    edited April 2012

    No restrictions on arm use for me. I'm deaf and I was signing in the recovery room. (Mostly "leave me alone I want to sleep" but still...)

    I was also made to get out of bed as soon as they removed the foley, I think it was the second day in the regular room (day 1: OR, day 2: step-down unit, day 3-6: regular room) and I walked laps of the floor totalling 5km on the 4th or 5th day, 1km at a time, and darn slow, but I did it. 

  • TexasRose
    TexasRose Member Posts: 740
    edited April 2012

    Dressager- I used my arms too. The Foley was taken out on day 2 and I was encouraged to move around after that. I used my arms to get in and out of bed and for anything I would normally use them for except any lifting. And by day 2, I mean the next day after surgery.



    Janet- got your PM. I'm out of town and on my iPad. I'll answer when I get home. I'm too wordy for this little keypad. Lol

  • dressager
    dressager Member Posts: 77
    edited April 2012

    Mostly "leave me alone I want to sleep" but still...  LOL

    Thank you, bdavis, goldlining, Texas.... I appreciate hearing from y'all.

  • Lala63
    Lala63 Member Posts: 12
    edited April 2012

    DIEP + 7-Friday

     One week!  She had a good day.  Drove around a bit and parked to watch people walk by.   She kept up her Oxy which made her constipated.  Lot of visitors in the evening which made her very happy and tired at the same time.  At night all the kids were gone so I got Vietnamese food.  The chicken had cabbage which gave her gas and with the constipation it was very painful.  Popped another magic pill and went to sleep.Didn't move around much.

     The PS texted to say he coundn't meet us at night to remove the final drain so we shcedulued for Saturday in the morning.  She really hasn't been very bothered by the drains so it wasn't a big deal.  

  • dressager
    dressager Member Posts: 77
    edited April 2012
    Lala, your wife is taking stool softeners, right? There are good ones available OTC if she didn't receive an Rx.
  • rtnyc
    rtnyc Member Posts: 155
    edited April 2012

    DB53: thanks so much good to know someone else was thinking the same thing. I do agree with you we are more than a a pair of breast I guess some days I just feel she there are not good choices here, so as someone esle said no breast = no cancer; April 23rd here I come...

  • rtnyc
    rtnyc Member Posts: 155
    edited April 2012

    I posted this on the april bmx thread as well. I went to target yesterday and got the champion zipper up which did have pockets inside, thanks to whomever posted that. I also went to kohl's and got a button up night shirt. My girls, 16 & 24 and I had a good laugh when they wouldn't let me get the button up pj's cause they looked like they were for a granny!  Anyway, successful shoppoing for after surgery. thanks again for the tips.

  • Lala63
    Lala63 Member Posts: 12
    edited April 2012

    DIEP+8 & 9 Saturday and Sunday



    Saturday was a great day. At 10:00AM we met the PS and he removed the final drain. We drove around all over and she did great in the car. Oxy every six hours. Later she drove around with her sister while I went to a soccer game. BM in the morning.



    Easter Sunday she guilted us into going to church to pray for her. Later,she decided not to go to her brother's. No pain but she wanted to make sure she was ok. First oxy at 5:00PM. Long shower and first time she looked at the new chest. It went OK.



    So after one week, she is still in pain but she is getting around just fine. She has no drains and her spirits get better every day. I already see her getting bored and my guess is she'll be back to work in a couple of weeks. I may have to lock up her lap top in the next few days. In some ways her recovery is faster than we expected but the pain is lasting longer than I would've guessed based on her tolerance to pain.



    Her way of coping has been to avoid everything. That is how I ended up on this blog looking for information. Some want to know more some don't. We all handle things in our way and my posts help me.



    This is tough even when everything goes well. I can't imagine what some of you brave women and your families have been through and I hope my wife's story helps. My thoughts and prayers are with you all.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Hi, all.  First time I've been able to get on my laptop and connect to the internet since surgery on3/23.  Just a quick update.  Was on table for 14 hours on Friday, 3/23 and they discovered my skin bruising way more than they expected after the BMX so they moved all the tissue and hid my flaps under the brusing skin and stapled me up to wait to see how bad the bruising would actually be (delayed inset).  Saturday through Tuesday were mostly about nausea (itching reactions to pain meds then nausea reactions to benadryl then more pain drug experimentation) til they finally hit on the right combo of everything.  Tuesday was back to the OR for another 3 hours of surgery to inset the flaps while removing dead skin.  Finally left the hospital on day 8 (Saturday, 3/31) with 6 drains, a walker, and shots to keep blood clots at bay.  Had 4 drains removed last Thursday, still use the walker for long walks but am otherwise managing without it around the hotel room, halls and short jaunts.  Back spasms have been prettty bad and they have me on valium (never knew it was a muscle relaxant) as needed for those.  They are also getting better as I heal, though, and I usually take a half pill every 10 hours or so if I've been up a lot.  Will continue the shots (my sister gives them to me...bless her heart) until after I fly home at the end of the week.  Hope to get at least one more drain out by then, as well, but may end up going home with one.  It will be close.  Drains coming out was a completely painless process for me, however, so that was great (not to mention having one whole side free of them...it does make you want to jump with joy).  Incisions seem to be healing well.  Having some icky white tissue shedding from various areas from time to time but nothing seems infected or splitting so yay.  Nodes were also clear (3) and except for the AI treatment I start on May 1 and the rest of the reconstruction (reducing breast size, etc), I am feeling truly lucky.

    Have been lurking via my iTouch and continue to send Light and hugs to all.  Elisabeth

  • dressager
    dressager Member Posts: 77
    edited April 2012

    So good to hear from you, Elisabeth! It sounds like you've been through the wringer but made it through to the other side. I look forward to more updates as you can.

  • rosasmommy
    rosasmommy Member Posts: 814
    edited April 2012

    I need to have a TRAM Flap procedure to correct for severe capsular contracture.  I would love to hear some positive experiences -- I'm getting a little nervous after reading about some of the potential complications (e.g., abdominal bulging).  Thanks in advance!!

  • hoppytrigger
    hoppytrigger Member Posts: 14
    edited April 2012

    Hi all I am scheduled for my first phase of the DIEP this Friday April 13th.  Yes I know that date isnt the greatest but for me it is my lucky day!  I think I got all of my questions answered by PS but forgot to ask about recovery time.  I"m assuming I will be out of work for about 6 weeks but wanst even sure.  How long did it take for you all to start feeling good enough to go to work.  I am just dreading the drains as that was the worst for me when i had my bmx in November.  Finished chemo in Feb and have waited 9 weeks for this day to come.  I cant wait and am actually excited.  Hoping to get the right size this time or else I may have to get small implants in phase 2 but hoping to avoid that.  I'm not a small person so B cups just dont look quite big enough for my taste.  Hoping for a C cup but not sure we can get there.  Wish me luck!  Looking foward to hearing more about everyone's experience.

  • miranda43
    miranda43 Member Posts: 7
    edited April 2012

    Hi Beacher4209,

     Did you ever find a diep flap surgeon?  I'm in your area and was wondering.  Thanks. 

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