Boobieloptomy
Mastectomy. Gosh, I hate that word. A mast extends at a rigid right angle to its host, which my boob definitely does NOT.
Anyway, I'm having a single boobieloptomy on April 18. I wanted both off at the same time, but my plastic surgeon asked me to leave the (hopefully) healthy one alone until the reconstruction; he'll have more to work with than if they completely bulldoze my chest right now.
Questions for the gaggle:
- I work full time at a desk. How much time will I need to take off?
- How much post-op pain is involved?
- How long does it take to get the the arm on the affected side fully mobile again?
Thanks, my new friends!
Comments
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Ha! I love boobieloptomy...I called it boobectomy.
I too work at a desk all day, and at the doctor's recommendation I took off 2 and a half weeks, but I wished I had a couple more days. Three weeks I think would have been ideal. There ended up being a rush to take out my drains so I could go back to work at the pre-determined time. If they could have stayed in a little longer, I may not have some of the "dog ear" bump on my side, which is apparently fluid. I think most people's drains are ready to come out earlier; everyone is a little different.
I only took the pain killers for about 2-3 days after surgery, then switched to ibuprofen for another week, so pain was not a big issue. I stayed in the hospital overnight, and left early the next morning at my own request.
I started moving my arm around pretty quickly, and within a few weeks after the drains came out, I had the bulk of mobility back in my arm. I still never got 100% of it back due to some webbing in the axillary area that developed around the end of radiation. I still work on it several days a week with yoga and the stretching frame at the gym.
I got some bad advice at the hospital and kept the wound covered tightly for a lot longer than I think I should have. There ended up being some difficulty getting the wound to close, and I had to delay starting radiation because of it. I ended up starting the radiation at 10 weeks after the surgery.
I hope your surgery goes well!
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I also love your term for it. I may have to steal it
In my humble opinion, you need minimum 2 weeks and preferably 3. I didn't really feel too horrible and the pain wasn't too bad either, but I was tired and uncomfortable. It takes 2-3 weeks to get the arm moving too. If they take lymph nodes, do yourself a huge favor and get a referral to a specialist PT who knows about boobieloptomies and lymphedema. Even if they let you keep your lymph nodes, a PT can stil help you get back to normal. -
Ask ur surgeon if they use the On Que Pain ball. It was a godsend for me. I swear it helped me get full range of motion after ALND within 5 days and drains out in 7. I was driving at 5 days out, I think too. I never took any pain meds beyond extra strength Tylenol after i was discharged from the hospital.
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twisted, my BS told me not to lift the arm above the shoulder for two weeks post-surgery. I saw somewhere that this is thought to reduce the risk of lymphedema.
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I often refer to mine as a "boobectomy." I had both whacked off at the same time. Good riddance! No reconstruction.
First, let me start off with the usual qualifiers: everyone heals differently, everyone's pain tolerance is different, etc. I'm rather like the Black Knight in "Monty Python and the Holy Grail" in that I can treat the most grievious affliction as "only a flesh wound."
So, that being said...I have a desk job, and I returned to work in two weeks. I began taking walks within five days and was up to doing a mile with hills after a week.
Pain wasn't so bad (it was, after all, only a flesh wound!). It hurt the worst when I tried to raise my arms and when I first got out of bed in the morning. I used vicadin, maybe twice a day, for the first week. When you start to drive again, you might want to put a small pillow between you and the seat belt. Also, take a regular-size pillow with you to the hospital and leave it in the car. You'll want to put it between you and the seat belt. Four years later, I still have some periodic discomfort in my chest. It's like having something tight around my upper torso. It doesn't hurt...more like a sensation of tightness. It's easy to ignore and doesn't impede me in any way.
My surgeon was insistent that I do the arm exercises ASAP. I gave myself a week to mend and then began to work on it. Take it slowly; each day, try to extend your arms a little higher over your head. I would say that, within a month, I could reach the top shelf in the kitchen. Within three months, I was pretty close to being 100% again. Do your arm exercises for at least 18 months. I still do mine periodically, like when the scar tissue feels a bit tight. I work out at the gym, using the nautilus equipment, and I play racquetball. I have no long-term issues with arm mobility.
Do you know if anesthesia makes you nauseated? If you don't know, err on the safe side and ask them to give you zofran. When I had my node dissection (surgery #1), I was very nauseated for the following 12 hours. You don't want to throw up after a boobectomy and put that kind of pressure on your chest. I had zofran with my boobectomy (surgery #2), and woke up feeling great and was eating crackers and ginger ale within 1/2 hour.
I hope that helps. We're always glad to answer questions and give support. Best of luck to you, and remember, you WILL get there!
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Remember - we are all so different!
I didn't work when had surgery so how long/going back was not an issue for me.
Pain was not a real issue either - basically all I took was OTC tylenol but a vicodin once o r twice.
Surgeon told me to leave the dressing alone til I saw him in a week. Had a single mast. and I was strapped down so I looked like a boy. I was real surprised when he took the dressing off - there were no stitches visiable - just a very narrow line.
Drains - do not be in a hurry to get them out - seromas are not fun and if drains come out too soon good chance they will develope. My first drain came out at 2 weeks post with no problem but other one was taken out at 4 weeks even thouh there was still a bit more drainage than ideal to remove but Dr G thought that it might be causing the drainage by irritating the area so it came out at 4 weeks. Developed a fairly large seroma that was still visiable on CAT 9 mths later. Yes, drains are a 'pain in the patootie' but better than seromas.
ROM - wasn't a problem. I had taken button front shirt and zip hoodie as I had been told can't pull anything on. For me that was wrong - had no problem getting my turtleneck and sweatshirt on to leave hospital (liked them better than what I had been told I'd 'need'). Don't remember how long it was til full ROM was back but a couple/few weeks.
Driving - I had been a bit concerned during chemo how that would work out after surgery as at the time, I had a GMC Sonoma (mini pu) that had no power steering and was a 5 speed. Son took care of that as he lucked onto a Bronco II - full power and automatic so he got it for me. (Still have it and I love it.) I was driving the second day after surgery.
Remember we are all so different - our surgeries are different even though they are similar - our Drs are different and have different levels of expertize.
(Totally OT - when I first saw 'boobieloptomy' my first thought was what does that guy (Bobbett I think) who got his 'dingle-dangle' lopped off when in an affair years ago have to do with BC? Strange where thoughts can go!) -
Thanks for your help, everyone. Although all breast cancer routines are unique, mine is a little more atypical than most. I had a lumpectomy and complete axillary dissection in November 2011, then another biopsy in December which showed some malignancy in the skin that was immediately adjacent to the 0.8 cm IDC tumor, which was very close to the surface of the skin. Due to this, now that I'm finished with 6 cycles of TAC, I'll have the boobieloptomy followed by radiation. They want to wait six months after the end of radiation to do a DIEP Flap reconstruction (the "addaracktomy").
Like Celtic Spirit, I'm in the frame of "it's not a heart transplant, more like removing a very large cyst." I tolerate pain pretty well and with prior surgeries, I ask to be told what NOT to do, because I'll be on my bicycle within the week unless someone with authority tells me to not ride.
Does moving the arm early in the recovery period increase lymphedema risk? I had all lymph nodes removed last fall and the arm's doing fine, but I want it to STAY that way.
Kathleen26, how long did you keep the incision site tightly covered, and how long do you think you SHOULD have?
Thanks, everyone!
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Celtic, small sidejack, do you wear compression when you play racket ball and lift weights?
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Momine - Yes, but only on my right arm, which has slight lymphedema from radiation cording. I usually don't wear a sleeve when I hike or bike. It really has had little to no effect on my activities.
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Celtic, that gives me hope, thanks.
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I had a full monty boobieloptomy with 10 nodes on one side and 4 on the other. I rode the bus to a freelance gig 2-3 weeks later. It was really the nodes that hurt me. You'll find you will be very tired but I think in 2 weeks you will get through the day. Your body sucks energy to heal.
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Thanks for all the information here! I will approach the day of surgery with more knowledge and confidence that I will be fine.
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Not the same surgery, but I wanted to mention that I needed a lot more protein than normal post surgery and throughout the entire treatment process. I also needed more sleep post op (lumpectomy).
I do everything now that I did pre surgery, but did wait for the drains to come out prior to lifting again.
Agree with Lago on sucking energy. Good luck! - Claire
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Each person varies.
Me:
Good riddance to bad rubbish! Woke up from surgery delighted, left hospital the next morning, about 24 hours after my stay. Total pain medication: one OTC-strength Tyleonol.
Surgery on Thursday, shopped in the street for temporary breast forms on Friday, back to work on Monday - WITH drains, which in my specific case came off in two weeks.
My only caution was to not take public transportation for two weeks in case the crowded train caused harm to my drains, or caused me to overstretch the arm where I had my nodes taken out.
If you are having tissue expanders placed in at the same time (I did not) the pain protocol will likely be harsher and recovery may be a bit more complicated for a while. The operative word in all of this is "may."
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sbelizabeth, in answer to your question about moving your arm post-surgery, there is some very recent evidence that avoiding lifting your arm above shoulder level for 10-14 days following breast surgery can allow the delicate lymphatics to better repair themselves. So, movement is fine, but keep it low and gentle and give your body time to right itself.
More lymphedema risk reduction guidelines here:
http://www.lymphnet.org (see their Position Papers)And here:
http://www.stepup-speakout.org/riskreduction_for_lymphedema.htmSmooth sailing!

Binney -
Thanks for the info and the websites, Binney4.
I had a lumpectomy with full axillary dissection on 11/7/2011, and at that time, no one told me to do ANYTHING with the affected arm, much less limit movement or lifting. Thankfully I have no evidence of lymphedema (yet) but there's radiation treatment still to come.
I just finished my six rounds of chemotherapy (Taxotere/Adrimycin/Cytoxan) a couple of weeks ago, but thanks to reading about the Gepartrio study here on breastcancer.org, I asked my oncologist about extending the chemo. Volunteer for more chemo--I need a CT of my brain!
The oncologist had heard of the study and wanted to consult with colleagues. He came back with a recommendation that we extend chemo by two more treatments, but without the Adriamycin ingredient of the salad--the drug that's potentially toxic for the heart.
So now we're juggling event order. Boobieloptomy/chemo/radiation, chemo/boobieloptomy/radiation, boobieloptomy/radiation/chemo?
Hopefully we'll get this figured out soon...
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