Gender Identity?

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  • MT1
    MT1 Member Posts: 371
    edited March 2012

    You know, I thought I would comment on this post again. 

    I am settling into my new flat chested body. I don't think I will get breast forms, I am at least ambivilent about them. Maybe, I wont rule them out, but flat I am.

    And like I have said, I have always liked the idea of androgony. So I am playing with that. I am cultivating a boyish haircut, I have always dressed tom boyish. I weigh 118 pounds, wear big purple glasses, sometimes a pork pie hat. I am having fun with it.

    Yesterday, a man looked me up and down as he walked past me and then he yelled out, 'You look like a man!' This was my first post surgery heckle. I didn't mind, I wasn't hurt, I didn't go into proxisms of worry. I have been waiting for this. It was interesting.

  • cooka
    cooka Member Posts: 278
    edited March 2012

    Interesting MTI, I have found what you describe above to be one of the most interesting things about the short hair/flat thing. Once I stopped looking sick and my buzz cut seemed more intentional, I was really surprised at how angry/offended some people were by my androgynous appearance... so much so that they will say something about it (as in your case). I am about 6 ft tall, and I am sure this contributes to the insecurity stuff, but sheesh! However, like you, I have been interested by how I have responded to it.  I am really surprised that I haven't felt more worried or hurt by the comments...I am pretty proud of myself, actually:) The only thing that still gets me a little is going into a restroom and having a woman gasp because she thinks a man has come in, but that is a totally different thing and more embarassing for the other person really. My friends all love my new look (and I do care what they say) and my hairdresser thinks I should keep it, "makes you look much cooler than you really are, hehe."

  • profbee
    profbee Member Posts: 858
    edited March 2012

    MT, Cooka...I get you.  I've had reconstruction, but I now have that short hair that looks like my choice (I'm also nearly 6 ft tall, so I hear that Cooka).  I think you're awesome for not letting it get to you, but it does make me angry that people think it's okay to say those things to a woman.  What asses!  

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited March 2012

    More interesting comments....

    I think the shorter haircuts appeal more and work well for women with small-featured faces, and are really nice on them. (My face wasn't/isn't one of those, unfortunately!) I say "wasn't" because I am 10 years out now. My hair has been long to midback for about 5 years, which is what it was "b.c." I keep it that way because I've only been to a hairdresser twice in my 61 years and don't want to deal with the frequent cuts, and it is easy to just wash and brush for me.

    I hesitated to post on this thread originally because it is about those who are doing mx and/or reconstruction, and I had lumpectomy x 1 side.

     And yet.... I went ahead and posted because there doesn't seem to be any thread for the issue of gender loss when it comes to ovarian ablation. I think in part it is confusing for me because I don't feel like my boobs ever were or are all that related to my sexuality or gender, whereas the loss of hormonal influence is like watching my shadow walk along the sidewalk without any part of me in front of it.

    A.A.

  • lauraslady
    lauraslady Member Posts: 7
    edited April 2012

    I have chosen not to do the reconstructive surgery athough I am getting tired of being told I am in the wrong bathroom, or thats the womens bathroom but you can use it. Thinking seriously of making a t-shirt that says If I am in the wrong bathroom then so are you. The person that told me that that was the womens bathroom was a guard at a rest area in Alabama. I'm expecting one day to be arrested or at least detained at say Wal-Mart for using the womens bathroom and someone complains.

  • Outfield
    Outfield Member Posts: 1,109
    edited April 2012

    AlaskaAngel - I mentioned this too.  Good analogy to the shadow.  

    Have any of your providers ever, ever asked about this or responded if you said anything?  Or do they just kind of shrug their shoulders and move on?  My therapist doesn't even really have a clue, I think because I don't think it's a psychological problem.  It's an existential loss of part of myself by losing those hormones so fully. 

  • cooka
    cooka Member Posts: 278
    edited April 2012

    Interesting, I always associate hormones or physical traits with sex rather than gender. So while I could have breasts, fully producing ovaries etc., I could still blur the lines of my gender by dressing a certain way (pork-pie hat, etc.) I guess I think of gender as just one more way we identify in-groups or out-groups. Even without my breasts or hormones, and with my height, I could don some foobs and a wig and get a very good response from men who would see me as female gendered. I think I would also get a good response from women who would view me as 'appropriate.'  Right now, the pool of people who will consider me part of their in-group is smaller...but quality versus quantity, yes? As for sex, I do wonder about the influence of all this on my pheromones and other things that are hard to measure but also impact social interactions. My hormones were always a little problematic in some ways, but even so, I miss them. I have found ways around that though (but I am still a newbie), and for now my more superficial social interactions are more interesting to sort through.  I think for me, feeling sex-y has been more closely tied to feeling confident in my gender rather than my sex. The type of people who view me as attractive now are the type of people I want to attract...I am very "feminine " in many ways, and people who recognize this in me don't need breasts or long hair as a signpost to figure it out.

    I love the analogy of the shadow, really had to stop and chew on that a while:)

  • Starak
    Starak Member Posts: 536
    edited April 2012

    I have loved this thread since it started.

    Cooka:  I relate to alot of what you say about the differences between sex and gender.  I would even go a step further in the world as I experienced it.  Twenty months of total flat chest, short hair (a necessity due to life long genetically thin hair only made worse by age and lack of hormones), and a major lack of curves, I do not remember a single instance of ever being mistaken for a man.  I am very feminine in many ways also and find people never need a sign post to figure it out.  My personal sense of style gives gender clues from styling of hair, choice of jewelry, to at least minimal mascara and blush, so maybe they serve as sign posts. When I was still flat all the time, I literally asked a few men if they would ever confuse me with a man and they almost invariably burst out laughing with a NO WAY!!

    My insecurity centered around the flat chest and short hair contrasted with the other feminine details might make people wonder if I was a man who cross-dressed, was in drag, or that I might be in some stage of transgendering. Still while I wear make-up it is so minimal, it would never begin to camouflage a masculine face, and my dress has way too many feminine details to be going from woman to man.  Whatever insecurities I might have, people have just never seen me as anything but a girl.  Tomboy yes, fiercely independent in a not so feminine way, and yet 100% girl.

    Perhaps the decades of living with the hideously huge "girls" and the fight to not be objectified made me intensely uncomfortable with the "sex" side and yet always totally embracing the "gender" side if that makes any sense whatsoever.

    Barbara

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2012

    I keep trying to get a grasp of what the difference between sex and gender is, and I'm not getting it. To me they are the same thing....

    I think it would clarify things if we knew each other's ages and whether each of us has only recently gone through treatment, or is truly completely menopausal or not. I see a lot of posts by women who assume they are postmenopausal once they haven't had periods for a while, and the technical medical definition is 12 months without a period, but there is very little evidence to support that as being true postmenopause. It hasn't been adequately studied, and they have found that some women who retain their ovaries have significant hormonal influence as far out as a decade after they have stopped having periods.

    Everyone worries about physical appearance to some degree. My nose is bigger than I'd like, and the chemotherapy has affected the appearance of my bone structure of course and my teeth over time. The only other issue related to appearance is in regard to weight, which was never a serious problem until menopause and slowing of metabolism to a crawl. Even then, and even though it took 6 years to shed the weight I'd never had before that was gained from being sick and stuck doing treatment for so long, I was able to shed it. As the metabolism slowed even more, it all came back even with the more extensive exercise and strict dieting.

    I look feminine despite the weight, but I feel totally without gender and nonsexual, like a 5-year-old, and it is completely foreign territory for me. I tend to wear pretty overalls a lot because I am self-employed and work at home, and they are comfortable. I wear eyeliner and touch up my eyebrows because they disappeared with treatment, but I wear no other makeup. I wear feminine earrings and rings and a necklace.

    My husband and I have been married for 39 years, 40 this fall. It is like living with a brother not a spouse.

    In answer to your question, Outfield, no. Psychologically, since some of my work is in the medical field, it has been very traumatic that the very people who provide some measure for me of what sex and gender might be, including my PCP, act as if the loss to me is of no consequence at all.... as if I never had any gender or sex to begin with anyway.

    A.A.

  • Starak
    Starak Member Posts: 536
    edited April 2012

    AlaskaAngel:  In answer to your question, I am over 60 and was post-menopausal for many years before BC.  I was one of the "lucky" ones whose natural menopause looked very much like the severe chemo-pause experienced by other women.  No doctor could explain to me why some of us are that way and how long or if ever, I would get over the worst of the symptoms. I guess in an ironic twist of fate, the aromatase inhibitors I have to take now have spit me out the other end and have actually improved the most severe symptoms.  Go figure.

    I do hope you are able to find the answers or solutions that you seek.

    Barbara

  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Alaska, I am 48. When DXed, I was 47 and not yet in menopause. Since DX, I have experienced chemopause, had a BMX, then had my ovaries and most of the uterus removed, and a week ago I started femara. Oh, and I have a HUGE nose by the way and a fairly masculine face.

  • MT1
    MT1 Member Posts: 371
    edited April 2012

    I am 42, premenopausal at diagnosis. I have not had my period since chemotherapy. Now I am on Zoladex and Tamoxifen, so do not get my period anymore. My Onc says it will take one more year before he will test to see if I have officially gone into menopause.

    Before all this I felt as though I had a masculine appearance and I had been mistaken for a man, even with long hair and a curvatious figure. Now, I feel like I look more female and feminine than ever before. But I still have my masculine moments, I think most people flow between the entire spectrum of our collective human experience. 

    As for how I feel with the lack of hormones in my body. I don't feel sexual. I do enjoy it, but if I didn't want to have it, or resume sexual intimacy within my relationship,  I might forget that I like and enjoy it. I don't know if this has any standing or basis in reality, but I think pushing myself, my mind and my body to expand and explore new ways of thinking, enjoying and being is half the battle. For example, I was in a panic because I felt as though my brain function with at a low just a couple of months ago, so I began looking for games and puzzles. I like to sew, so I found some Japanese pattern books, now that is a puzzle. And it sure did help me feel as though I were gaining control over my circumstance.

    I wonder if this could also be the case with the lack of sexual drive. I will have to give it some thought. 

  • Outfield
    Outfield Member Posts: 1,109
    edited April 2012

    I see a difference between sex and gender, and my first response on this thread was really more about the gender thing.  But I see the sexuality issue is a huge one and the thread has veered that way.

    I am 46.  I was 44 when diagnosed and was perimenopausal then.  My hormone levels are measured regularly and show me to be emphatically menopausal - very, very low estrogens and very high (>100) FSH.  I haven't had a period since the day after my first chemo infusion, 7/22/2010. 

    I find my lack of sexual desire very similar to the lack of appetite I experience when severely stressed or depressed.  It's a more powerful feeling than simply an absence of desire. 

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2012

    In looking at photos of my mother and of my grandmothers taken when they were about 55, they appear much older than I do at age 61. I wonder if this is due to our highly estrogenized, synthetic exposure today....  Anyway, aging generally results in appearing more and more androgenous physically with time, although each of us can dress it up to suit our individual inclination, or not.

    My impression is that many if not most people who have gone through treatment tend to take stock within a year of completing treatment, and assume "that's it, this is how it is going to be". If they still have some libido, they tend to post as though they have survived the storm and so that must be the "norm" among most breast cancer patients. But around 2/3 of all breast cancer patients are 55 or older at time of diagnosis, and most of those who post that they still enjoy some libido are under age 55 (which is only 1/3 of the patients dx'd with bc).

    I completed chemo and rads without loss of libido or any vaginal issues at age 52. Within 2 weeks of starting tamoxifen, vaginal dryness was painful and I had no libido, still at age 52. I used the e-string for 2 years and although it did nada for libido at least sex was less painful. So then I used "creativity" and explored new ways of touching, being more playful, etc. etc. with determination, but with no pleasure other than accommodating my spouse. It does get worse with time.

    I feel androgynous and asexual. I understand the importance of exploring new challenges and continue to do that. Achieving them provides no sense of accomplishment in that there is nothing to attach the achievement TO.

    A.A.

    P.S. My mother and one grandmother both had bc in their lifetime, but neither one did chemotherapy, and neither of them died of bc.

  • dogeyed
    dogeyed Member Posts: 884
    edited April 2012

    I think my hair had more to do with my sexual identity than anything else.  I was upset with my short hair, which I realize some here keep theirs short anyhow, but you gotta understand mine was to my waist and I loved it.  I had a thought or two about how my hair, when it finally grew out a few inches, that it was looking sort of "butch," and while again I know some want to look that way, I did not.  Missing a boob, perhaps it's that I only miss one, which did not phase me, and in fact I haven't tried to hide it in any way with a fake one.  Now, I am 61 years old, went thru menopause ten years ago, drove me crazy in my mind, but the body, you see, makes estrogen anyway, just not as much.  I still felt female to male attraction plenty, I feel so close to my husband, I still feel my heart skip a beat when watching a romance movie. 

    But I will say this.  After menopause, I lost some energy, and I knew I was not as driven by sex drive as my younger sisters.  But chemotherapy, I'm telling you, that took me all the way down.  What a shattering experience.  Took a while to get over that, left me with a form of post traumatic stress disorder, and THAT will take away everything you got.  It was only a couple months after rads, my last treatments, that I sort of realized how disconected from life and from myself I felt.  I took a long break there, to regain my footing.  Soon I was able to leave the disaster area that is cancer behind. 

    Now, back when I had regular menopause, I didn't take anything like hormone replacement, I come from the "natural" hippy generation, and didn't want to go thru menopause any other way.  Of course, that change in estrogen did cause me to lose my mind.  This is why, when cancer visited me and treatment was done, and they gave me the pill to reduce estrogen to zero on account I'm estrogen positive, it drove me insane all over again, so I could not take that medicine anymore.  But like some of the others here, tho I dress casually, I still like a pretty scarf, I still put on a little makeup, simple jewelry, and my hair... oh, my hair is the most important thing to me.  I even bought some sparkly hair pins a few days ago so as to pretty up my incredibly silly looking short hair.  I did gain some weight during all this, so perhaps once I peal away that protective barrier, I'll begin to feel more vulnerable about being minus a boob.  Well, I reckon that's when I put a fake one in there somehow, like duct-taping some foam to the inside of my T-shirt?  Ha!  GG 

  • greenfrog
    greenfrog Member Posts: 269
    edited April 2012

    Fascinating thread. I am another 6fter - maybe we should form a sorority for the lanky titless.

    I now recognise that the biggest impact on my life with all of this cancer business has been menopause. I went from pregnant, to lactating mother to breastless menopausal lump within the space of a year. My lack of libido has forced me to consider my whole identity (along with the physical problems of vaginal atrophy) much more than being breastless.

    It astonishes me how much being without sexual drive has impacted on my perception of the world - and of my old self. Was I really so driven by desire generated by a bunch of hormones?! I feel strangely comforted by the fact that most of my "problems" relate to menopause and not cancer treatment. Menopause is inevitable for all women at some point.

    I was chatting to a male friend the other day about the cancer. I told him how Arimidex purges all oestrogen. He said "Wow - no breasts, no ovaries, no oestrogen - are you a man now then?"       A year ago that comment would have devastated me - but instead I threw back my head and belly laughed. As time passes I am growing into my new skin.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2012

    greenfrog,

    We have to find the humor in it wherever we can, or we really suffer!

    But your male friend is more accurate than not, and that is what I have tried to describe. A bc pal of mine with a dx similar to mine chose to do Herceptin without chemo, and she is only 4 years younger than I am and has had no loss of her sense of gender. She was already menopausal at time of dx, whereas I was premenopausal. A major difference between us is that she has not lost any of the "impetus" (which I believe is hormonally based) that drives her in ALL aspects of her life -- not just sexuality or gender.

    I think that there is a tendency for medical providers to think of hormonal levels as only affecting sexuality, when they actually affect all aspects of sensuality.

    The loss of total sensuality is what is so difficult to describe. It does affect gender and sexuality, but it is global, and not limited to just those specific areas of concern. I don't know how to "put it back".

  • greenfrog
    greenfrog Member Posts: 269
    edited April 2012

    Alaska Angel - I don't know how to put it back either.

    I absolutely agree that being premenopausal at dx adds a whole new dimension to the experience. And that impetus you talk of is definitely not just sexual. It is an energy, an optimism for life, a clarity of thought. My spark has not gone out entirely but it is pretty dim. 

    I have spent some time wondering if this is depression in disguise. But I think the "oomph" I lack really is all about oestrogen. Just like my eyesight (once 20/20 but declining fast since oopherectomy). I am hoping that as the years march on I will forget about how I used to be. What is really bothering me at the moment is the difference between then and now. It is still all too raw and recent to get any kind of perspective on it.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited April 2012

    greenfrog,

    It is very precious to meet someone who has the understanding of the global loss involved. It is a loss of sensuality in toto, as opposed to depression due to cancer. It mimics depression. It is similar in that hearing music or experiencing other artistic endeavor is so muted by the loss of hormonal balance required to support it.

    What is so remarkable to me is that people trained in medical theory who understand and accept that hormones drive sexuality, and who even understand that excess hormones can drive aggressive behavior, are so completely determinedly blind to the understanding that the lack of hormones has a similar effect on the thought processes and behavior. It is inconvenient for them to recognize that with current standard treatments favoring overtreatment as a method of saving the minority (who are primarily young and under the age of 50) they are also creating the likelihood of a majority who have lost function like you and I.

    Two-thirds of those who have bc are diagnosed with it at age 55 or over.

  • sespebadger
    sespebadger Member Posts: 249
    edited April 2012

    I lost my hair, I chose to do BMX with no recon. My hair came back gray and white and I have chosen to keep it that way and keep it short. I'm on tamoxifen, so I'm sure I have less estrogen. I was worried sick about all this and mad as hell, frankly. I was mostly worried about whether it would ruin the sex life I enjoyed. It did for a year or so, but eventually, with rest and exercise and getting back to a job I really enjoy, I feel pretty good. Not 100%, but with rest and exercise and that job, I am holding steady at 80 %. And I like sex just as much as I ever did. I am thankful. I feel as feminine as I ever did. I was always more the handsome rather than the pretty type, but reallly nothing about my gender identity or sexuality has changed due to treatment. I have my insecurities, but I think those are age related and happen to everyone who grows older. Having meaningful work, a loving partner, not too much stress and time to have fun together is a combination I work on. I'm 51 and was diagnosed when I was 49 and premenopause.     

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