Any April/May 2012 rad girls out there?
Comments
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Bless you guys I talked to my fav RO nurse today, we're going to talk to the RO friday but we think its related to port. If you think about the angle that they stick the jugular it kind of makes sense that when they pull that thing out
it might cause some funny feelings.
Weird to think that in 19 treatments I will be done with treatment. Making tripto see my BIL in Miami. He's promised to show me Puerto Rico one day. We've made lots of plans for when we're not sick. -
I asked my RO about # treatments and my understanding is that they are aiming for a set cumulative dose and typically give a certain amount each treatment which can vary just a little from person to person.
I hope your fatigue does not get any worse and all goes well. Strangely, I'm finding the radiation thing to be much more emotional. . . I think I'm just tired of slogging through yet another treatment. Trying my best to stay positive.
LovesDogs
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Sandyland;
Thanks for the website; I'll check it out. Is the Emu oil greasy feeling? How is it working for you so far?
LovesDogs
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Sandyland:
Did you order the plain Emu oil or the Emu oil lotion?
Thx
LovesDogs
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Well, I'm 10 down, 23 to go. I fear that the SEs are close at hand... Today I feel a dull ache and a heaviness in my breast that wasn't there yesterday, but not even a hint of redness so far.
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I just started rad this week ive done 3 rounds so far i only have to do 10 i had rad 7 months ago on my sternum thats doing alot better now they are radiating my c7 on my spine the pain i have always seems to be worse in the beginning
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LovesDogs ~ I got the oil (not the lotion) and also the gel caps to take like vitamins
It is greasy feeling, it's definitely an oil, but I really like it. I spread it on liberally and just don't worry about my clothes. The guy I bought it from said it will always come out, even if it takes a couple of washings, it doesn't permanently stain. I work from home, so I just don't worry about it. I've heard so many good things from other women who have used it so I put it on 3-4 times a day and so far so good.
Hope it works for you too!
SAN
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I have a question for you ladies that have started.. are you taking steroids?? My rad onco metioned this.. I gained nearly 30 pounds during chemo becasue of steroids and do NOT want to get put on those again..
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I am not on steriods and have lost 7 pounds since taking tamoxifen!
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I'm not on steroids either. My MO and RO only have me taking Vit D. They both said no to any other supplements, during treatment
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Lory48: No steroids necessary for rad tx.
Just finished tx # 5 of 28! -
I'm not on steroids, but I am still taking B 6,& those other supplements that I'm still taking due to chemo side effects. Can't remember the names. Happening lot now. Can't remember stuff
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Had the final Xrays and dry run. Now marked up with blue sharpie squares and the dreaded sticky dots. I feel like a target. Ready to start Monday at 0745. I have negative nodes but I have a square marked in my armpit. Not supposed to get nodal rads. Anyone know anything about this? Only noticed when I got home tonight, too late to call and in to much hurry to get back to work to even look at them after marking. Know the tail of the breast extends some in there but seems like a big area. I know I can ask Monday but don't want to delay tx.
My RO has me using Xclair prescription cream. I'll have to find my instructions but I think it said don't put on 2 hours before tx so I guess no cream for me before. NOT getting up that early or maybe it won't really be that early. Nearly 1 hour drive in to work esp. during rush hour. Maybe if I roll out of bed and put it on, then get coffee.
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Luvmygoats ~Sometimes they will radiate the axillary even with negative nodes. They talked about doing it for me, but decided against it. I'm not sure why else they would mark under your arm. I would definitely ask. Also, you should wash off all skin products prior to rads. It isn't good for you to have any lotion, cream or oil on your skin during tx. I apply my stuff 4 times a day, but I shower and wash off everything an hour or two before tx every day.
Hope that helps!
SAN
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Hi Everyone -- new to this thread. Am 2 weeks post op LX.
I meet with MO and RO next week, I'm sure rads is in my future so has been interesting reading about symptoms, lotions and treatments. Thanks to everyone for their sharing and input. Good luck to all as you continue with your treatments
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Hi Luvmygoats- I have three stickers. One right between my breasts (well my TE's), and the other two under my arm pits. They use them just to position you on the table. It's not where the radiation is going in. I'm only getting my incisional scar radiated. I had negative nodes, also. I specifically asked about radiating the nodes "just in case" and he said no, they were negative and there is a risk of lymphedema, so we won't radiate just as a precautionary benefit.
I finished 8 of 25 on Thursday. They were closed Friday for the holiday. No redness so far, but definitely fatigue. -
Anyone hear of using Na-PCA before/during/after rads?
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MOT What is Na-PCA? Na in chemistry is sodium. Sodium something??
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from the spray bottle:
"Na-PCA with Aloe Vera is a Ph-balanced, concentrated soution of the sodium salt of pyrrolidone carboxylic acid (the natural moisturizing factor found in human skin), combined with the highest quality aloe vera gel.
Na-PAC is synthesized from glutamic acid, a nonessential amino acid. The skin contains natural moisturizers, the most important being Na-PAC. Old skin contains only about half the amount of Na-PAC as that found in young skin. The bility of skin to hold moisture is directly related to its Na-PAC content. It is water, and not oil, that keeps skin solt and supple. Na-PAC pulls water out of the air, moisturizing the skin......... provides quick relief from dry and cracked skin, burns, shaving irritations, detergent rash and other minor skin irritations."
A few years ago my husband's (now ex-) RO recommended this when he was having rads for base of tongue CA. He never used it. I used it for a while after showering. It's light, like water, but I'm not sure it does anything.... just wondered if anyone else had heard of it.
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MOT - Did a quick Google search and added radiation dermatitis to search topic. I still don't know much about it. Did not see many scientific papers/research on it. Lots of manufacturers praising their products. Did your RO recommend any cream for you in particular? Mine was pretty insistent on the Xclair but did offer there were alternatives esp. if expense was the problem. Did not investigate as my insurance covered part of the 1st tube and have buy 1/get 1 offer RO office gave me from mail order pharmacy. No insurance involved. Know my insurance copay goes to $150 if I refill and it is over 30 days. Never heard of such a thing. Will test it and see if it does the job and order the buy 1/get 1.
I have blue smudge Smurfy marks all over my chest. Yuck. Went shopping to Wally world for camisoles and more soft bras.
Don't know what I'm going to do with my Easter dress tomorrow. I might get away with new bra also from Wally world. (Yeah not a sport bra but then again not my old underwires) and slip. Just don't want blue Smurfy marks on it. Think it is cut high enough they won't show. The tech was very kind yesterday and removed the upper corner edge approacing my sternum. Couple of those darned stickies are itching and I never react to anything!
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luvmygoats- Try having three sets of them in different colors! Felt like an Easter egg I did. The rad tech cleaned me up yesterday and took all lthe stickies off and replaced the marks he'll be using with tatoos. Feels good to get cleaned up, but I still have one line that we couldn't get off. Got my bras, can't wait to get this show on the road...
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Hey all, just wanted to drop in and mention something I learned at a talk that I attended about radiation given by my RO's partner. During the talk the subject of moisturizing the skin came up. In particular he mentioned why we shouldn't moisturize before treatment - apparently any residue on the skin will "bring" the radiation closer to the surface of the skin, thereby increasing the potential negative effect on the skin. So if you put any lotion on before treatment (that is, prior to the time restriction your doctor gave you), it's probably best to clean your skin in preparation for treatment. Just a suggestion. Oh and by the way he stated that aloe vera (alcohol free) is just as good if not better than all the expensive creams out there.
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Waiting to see RO next week, will see what she recommends. I love Aloe Vera so I plan to buy a big plant! I hear talk of bras -- what kind are best? I still have my amour bras from the LX (zip front Danskin from Wallymart) do I need softer ones now? Geeze, there is so much to learn before I start.....
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Cindyl My, My 3 different colors. You are in tune with the season. I got 3 tiny tattoos last week. I, too, am ready to start.
Cigi56 I'm pretty much a chicken to go too far outside my RO's advice, not that I won't advocate for myself if needed. The Xclair is used for 2nd degree burns but I won't hesitate to ask for something else if it doesn't work. And she also wantsme to use Aquaphor. Hate that stuff. Well, hate is too strong. Know it's soothing but can't imagine what it will do to my clothes. I think the My Girls cream is at some of the CVS stores. I know others have posted about it. See that you started rads on 4/2. How was your 1st week?
MOT I have the fasten up the front sport bras (fruit of the loom) from Walmart about $8 each. Gives me a very unfashionable "uniboob" look but I wear scrubs for work so you really can't tell. I did buy a Playtex soft bra very cottony. Doesn't seem to hit my SNB site too bad. Plan to wear it to church tomorrow (which is quickly becoming today!) Hate to spend much money on these knowing they may look like trash when this is over. But the FOTL bras have held up to washing 2x/week. They did have some nice step in sport bras but couldn't try them on the way Walmart had them bundled. Bought camisoles there and at Dollar General. I read about buying ones with shelf bras and turning them inside out so the band didn't rub. I think it will give me enough support so I don't bounce at least as much as my sport bras. Probably DD on non-surgical side and maybe C on surgical side. It was naturally smaller anyway. And BS followup this week she said still a little swelling. Gosh - what size will it not be when this is over?
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MOT I think the "armour" feeling is comforting for me. Find myself going down pothole filled roads with arm shoved into my side to hold boob still. DH had the route home picked out in advance the day of my LX to avoid as many bumpy spots.
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Oh yes, luvmygoats, I LOVE my armour bras! I live rural and have some bumpy roads (literally) to travel! Camisoles with shelf sound like they might work.... I'm not very big. On my post op visit, the BS said, hmmm, that side is smaller, was that the smaller side to begin with? I can't imagine being a DD or D -- my small boob feels like a bowling ball.
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DD here.
Bought a couple of F cups to try and deal with the swelling. Am planning to line them with flannel or a wash cloth to prevent slime transfer...
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Cindyl - I bought a form at Joanne's Fabrics (made of silicon maybe) that fills in the bottom outside of my bra where my LX is. In sewing notions. At home I use a folded mens hankie. But am just now going braless at home again.
Flannel or wash cloth. Good idea. I'm more worried about slime around the side and down cleavage. Here in TX we basically did not have winter and summer has already tried an appearance. Sweat thru bras on a daily basis in summer. Though today is cool, cloudy, damp at least in North Texas.
MOT - My LX side feels about normal for swelling. Don't really see, feel it. That's what surprised me when BS told me still had edema.
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Huh. Sounds like I need to make a trip to the fabirc store. I'm really worried about skin break down and worried about ruining my work blouses. (altho with a late afternoon treatment time that shouldn't be as much of an issue.)
But skin breakdown? Yeah I'm afraid that's almost inevetable. I'm very fair skinned and often have "chaffing" problems, even if I'm not being irradiated. I'm heavy too. I wish I'd been a candidate for the mamosite radiation, but no go with that.
Oh well. It's only six weeks and we'll get through it. Others have survived worse.
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I start my treatment ---- 16 sessions starting on Tuesday --- anxious to say the least.
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