MIDDLE-AGED WOMEN 40-60ish

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited April 2012

    Paula hoping you found your answers.  I wonder too but I see many women who do not get frequent testing either.  I guess as long as there are no problems we just continue to go with our course of treatment.  Ask questions though at any time!

    Welcome to all the newbies!  You probably already know what a great place this is.  You couldn't find a kinder nor more informative group of ladies. 

    I go pick up my LE sleeves today.  I also need to find out more about garments.  I do have two surgical bras that provide good compression.  As I have truncal LE and arm involvement I have to wear more than one compression garment.  It is an amazing learning experience....so much to know and learn and do.  I have a lot of exercises and massage techniques I do daily.

    ValJean.......Will be with you on Thursday.  :)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Janis, I too suffer with the truncal stuff. I was given the ball bouce or mini tramp thing to do, as well as self massage techniques. I learned somewhere on here that kegals in conjunction with the deep breathing help with the truncal stuff.. I have been doing that this week and YES it help out alot!!  The gal at Idaho Orthodic has ordered me several bras to try. My LE therapist wants me in a long line bra, we will see. I have my night sleeve, and will be picking my day sleeves next week.

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  • mumito
    mumito Member Posts: 4,562
    edited April 2012
    Hey Elle whats with the creepy photo?Laughing
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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    The better to hear you with, my dear!

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited April 2012

    Lory I have a set of massage and exercise techniques too.  One of them includes doing ten deep belly breths.  It does help.  I will have to add the kegal exercises too.  I go to Idaho Orthotics in Meridian.  I have been fitted for my sleeves there by Sharmin.  Is there another one in Boise you go to?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Sharmin is my gal too. I see her here in Mountain Home next week.

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited April 2012

    Wow!  Small world!  I will be seeing her in just over an hour.  Heading out in 45 minutes.  My appointment is at 11:00.

    Eli...love the ear.  It was sort of weird at first, but I love it.  Good one! 

    I am happy to hear that Barbe is alive and well.  Sorry to hear about the little hiccup.  Her wit and wisdom are missed. 

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2012

    Welcome to all the newbies. There are more each week. It makes me sad, but all these ladies have been so much help to me.

    I had my pet scan this morning and I took 2 xanax first which really helped a lot. It was in a mobile unit and the 2 guys were great about everything. Very positive. They did give me a disk and of course curiosity got the best of me and I popped it in the computer.There are some things that lit up, but I don't know if it means more cancer or not. Has anyone else had a pet scan where things lit up that weren't cancer? The guy doing the scan said it would actually show if I had anymore positive nodes. I asked him why they don't do a pet scan on women who already know that they have an invasive cancer instead of removing the nodes and avoid the problems they get from node removal. He said it was all about insurance and money. The pet scan is 6k and most insurance companies won't pay for one unless you have a positive node. I suppose we could all agree to just have one removed and if it is positive then have a pet scan.

    Nativemainer- I would get a new MO. Both times I was dx my white blood cells were throught the roof and the doctors said that it has nothing to do with it, but look at the mess I am in now. I think we all know our own bodies and know when something just isn't right. My MO finally admitted that I was right back in Sept. when I just wanted a bmx then and they wouldn't do it until after all the test and multiple biopsies. I wish I had gone to someone else then. I am seeing a new one tomorrow.

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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited April 2012

    Welcome to all of the newbies though I'm sorry you have to be here!

    I had genetic testing done also because after I was diagnosed, my dad told me that all of the women in his father's family for the last three generations have died of either breast or ovarian cancer. He never mentioned it because he thought it had to come through the mother's side! My older brother also died of pancreatic cancer four years ago so the genetic counselor told me that those can all be related. I was BRAC neg but the counselor told me that they believe there are still genetic factors out there that just haven't been identified yet and that I could possibly have a genetic risk. I wouldn't be surprised...

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited April 2012

    Welcome to all the newbies.  Sad you had to join us but this is a great place to hang and ask questions or vent whenever you feel like.

    Eli I have to say I was wiered out by the ear picture.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited April 2012

    Walker I hope you are safe with the tornadoes in your area today.  I have been worried about you.

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  • madpeacock
    madpeacock Member Posts: 369
    edited April 2012

    Looking at the picture, all I can think of is "do you have your listening ears on??" Back from a nice weekend at the beach...ahhh....

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  • Valjean
    Valjean Member Posts: 1,898
    edited April 2012

    I am calm.

    I am calm.

    (Thursday: Hear Me: Hurry up & get here!!)

    E ~ I go for Door #2: It is another few bucks in the pocket!

    And I'm with mumayan, that photo is creeepppy.  

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  • Meece
    Meece Member Posts: 19,483
    edited April 2012

    I'm guessing the header pic is of a prosthetic ear. Am I right?

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    Oh, o.k., it IS a prosthetic ear, and the woman had ear melanoma.  We have foobs, she has an ear.  It's not like some of us haven't had pillowfights with foobs before (isn't that right, Reesie) so sometimes the prosthetics end up in unusual places.

    Now if you're talking creepy, you will not want to look up at the new pic of a terrible case of chocolate bunny eye cancer, causing both a horrible bulging iris but an additional facial tumor which causes the skin to lose it's pigmentation.  Worst of all, it is contagious, with 1 in 20 of the chocolate bunny population afflicted with some form of the disease.  What's in your basket?

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited April 2012

    Eli...LOL!  I think we need to have a pillow fight soon.  Pajama party?  It has been awhile.  We all need a good laugh don't we?   Oh that cancer eye looks serious.  I think I'll avoid decapitating bunnies this year.

    ValJean......I'll be right there in your pocket tomorrow.  Sending nothing but happy vibes!

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  • dechi
    dechi Member Posts: 173
    edited April 2012

    That bunny eye cancer literally made me laugh out loud!  Too funny!!!

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  • mumito
    mumito Member Posts: 4,562
    edited April 2012
    OMG its a bunny with an EVIL EYE!!!  Elle what has come over you?Laughing
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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    Thanks, dechi, and welcome!

    mumito,  Oh, nothing.  (She said with wide-eyed innocence.  Pun intended.)

    However, I see your new screen name mum, and like what has come over you.  You don't mind if I direct the Middies to take a look at your NEW THREAD about PRIVACY, do you?

    Middies, link to PRIVACY thread if this is an issue with you, and read the whole thread because the moderators have made a few comments regarding it.

     

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  • Marple
    Marple Member Posts: 19,143
    edited April 2012

    Elimar, thank you for posting the link.  For some reason the Privacy Compromised thread has been taken off Active Topics.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited April 2012

    Well, I thought it was important, as just last week I PMed a new person advising them not to use their entire real name as their screen name. 

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited April 2012

    Eli thanks for the link.  I read the thread and then searched myself quiet a few different ways and I never came up so I guess I am pretty safe.

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  • cmbear
    cmbear Member Posts: 1,086
    edited April 2012

    I am off on a road trip to visit my sisters in Virginia--wish me safe travels--I'm driving by myself from Orlando. Extra large coffee to start and a bag of dark chocolate and my Glee CD's. I'll be a singing fool.If I miss any pp, I will be there in spirit. Have a fantastic weekend ladies!!! And Happy Easter!!!

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  • cmbear
    cmbear Member Posts: 1,086
    edited April 2012

    And yes Cancer Bunny keeps giving me the evil eye. . . 

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  • Marple
    Marple Member Posts: 19,143
    edited April 2012

    There, I fixed that bunny.Wink

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  • mumito
    mumito Member Posts: 4,562
    edited April 2012

    Lol

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited April 2012

    Safe travels Claire! Enjoy your visit!

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2012

    I am going to have to catch up with all the posts later today, but I did want to share my good news. My pet scan showed no signs of cancer anywhere else in my body. My boob lit up like a Christmas tree though. It will be gone next Wednesday, so it's lights will be put out.

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited April 2012

    HOORAY!!!!!!!!!

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  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Diana, that is really good news, all things considered. 

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