March 2012 chemo

Has anyone been keeping up with the privacy thread - I know that this is a public forum but apparantly some things have been linked to FB and I dunno, I didn't really read it that closely but wondering if I should take my username out of my sig and delete photos?  How do you all stand on this?  I obviously know it is a public forum, because that is how I found the site - by googling questions after DX and getting links to these threads.  I don't see where a psychopath would be stalking a BC board but some people have apparantly had problem with it.

So much to comment on and I have to leave to get the kiddos soon so I am just going to have to hit the high points here...

KCB - take it easy on yourself about the hair - you will do it when you are ready.  I can just see you wandering into your bathroom periodically and hacking away.

I buzzed down to a 3 last night (DH did it actually) and it feels so much better - even with my thin hair, I guess the weight was starting to make my scalp hurt. The kids think it "feels cool" and youngest DD is calling it my "hedgehog hair".  Wig is ITCHY - I really want to find some halo hair to wear under caps and hats but the local wig shop didn't have the kind attached to a "cap like" top.  It was attached to straps and looked like a torture device!  I say that but I don't even own a cap, I just thought I would start wearing them and it might be a little cooler than the allover wig. Today I went to the grocery store and as soon as I was back in the car, I whipped it off!

 nsmolen - glad you are feeling better about things and got some answers - good luck today.

ladyfighter - I understand that effexor is more of a long time antianxiety - and yes you should DEF stay on it, if it ain't broke, don't fix it!  Ativan is more just for short term, quick acting, and often used as a sleep aid.  In fact, I just got some called in today!  I still wake up a bazillion times at night and have some pain with my SNB side but not enough to take a pain pill.

Michelle - mouth sores - mine went away and I never did anything other than just rinsing with the Biotene - it doesn't really have any medicinal properties though so you may need to check into the compounded mouthwash with the lidocaine and antifungal. 

RE: Easter - luckily is falling on a good week as I start next TX Monday.  We will go to bro/sil for lunch and the only other people that will be there are my parents and my SIL's mom/sis.  I am comfortable around them so it's all cool. 

As far as post TX plans, I can't think that far in advance...I figure I will be at least 6 months in active TX and then a break, and then BMX so I am looking at a long time still.

Since I have seen that I am going to have a "good week" probably as far as feeling ok and good counts, I think we are going to try and do a few little things over the summer - DH has a flexible job and can take days off here and there during the week so we could go somewhere for a day or two without it having to be a weekend when crowds are involved.  For the last few years we have stayed at SIL's sisters condo in Florida but we weren't planning that this year anyway as the dates weren't going to work out.  And speaking of the panhandle, yes, Amy, you need to aim for the Turks/Caicos rather than the "Redneck Riviera" LOL.

Karri- my MO just said to rinse with baking soda and water for a couple of days. If doesn't improve he will call something in. I'm such a wiener about this! Lol!

Yeah I have a circle of friends on FB on a private group that I talk to and I also talk to some via PM there. I do not post status updates about bc and have asked noone to post anything about BC on my walls Especially the "pink ribbon please share" crap. (I wonder how long its going to be before y'all ban me for bluntness lol). I just don't need that to be part of my public life on FB.



Your mental picture of the day. Me in the car rider pickup line looking like some kind of aging hipster. Baldish head, newsboy style cap, large hoop earrings. You're welcome.

Karrie

I love bluntness and have to admit to a potty mouth too (I do my best to keep it in check here).  I especially hate "pink ribbon crap" as well!

I'm sure you looked awesome!!  Now that I know what you look like I know you rocked that look anyway!

Karri : please don't ever leave this thread.

Well I got buzzed today. I decided to go the whole way. The stylist took me in a private back room. She hugged me first and then starting chopping. No mirror. When she was done she put on my wig and took me in a massage room and washed and massaged my head very gently. After that she gave me a tea tree facial. After all this she refused to charge me. She made the experience as pleasant as possible. I than went to work with my wig on. When I got home I took the wig off and looked in the mirror and had a good cry. Seeing myself for the first time with NO hair was shocking.



A tip the wig salon gave me was to cut the legs off a pair of pantyhose and wear that underneath your wig and it won't scratch so I tried it and it worked. No itchiness.



Going for my 2nd battle juice treatment Monday as long as white cell count is up. praying its up. Want this over ASAP.

Connie- wow, sounds like you had a awesome stylist. Seems like we find angels in the strangest places. And I don't think they realize how much these acts of kindness really mean to us. I also go on Monday for tx 2. Sending hugs your way girl.

Triplem good luck on Monday



Slak - it was hard but I am glad it is over with. no more clumps. Good luck tomorrow.

Manny - I didn't have any problems with the neulesta shot. One day I was a little achy but Tylenol helped with it. And there are days you will just want to hide from the world. I've done it a couple of times myself. Sending hugs your way!

HAPPY BIRThDAY KIM! Enjoy that wine for the both of us!

Only one glass of wine - but I could pretty much taste it so that is good!  Thanks for the BD wishes!  I will check on BCO on FB.

On the hair front, just tried on my wigs again, and I think they look pretty good!  Hope they look as good when I am hairless!  Also picked up my halo today and it look pretty good with a baseball hat so that is exciting!  Hopefully that will be cooler to wear when I'm off work and want to shop or something! 

i dont understand about changing the user name and avatar...is something going on with this site

Happy Happy Birthday Kim!! Wishing you a strong power year of kicking cancer to the curb... Many hugs and cheers to you!

Hey tellie! Yes I really felt the steroids this time too: totally buzzy yesterday after I left battle juice sesh, then up half the night,then super chatty and upright this morning, so that hubby looked at me

In disbelief. This second round (only day2) has felt so different so far.