"Double negative" vs. "triple negative"r

Options
JoanQuilts
JoanQuilts Member Posts: 633

I am triple negative and realize this is a more aggressive form of bc.  But it's really not GOOD to be HER2 POSITIVE, isnit, despite the effectiveness of Herceptin? 

So shouldn't the worry be about the first two negatives (ER and PR) and the fact that we're HER2 NEGATIVE be a cause for celebration?

Or am I relying too much on the Web MD I've earned over the past few months, LOL?

Comments

  • minxie
    minxie Member Posts: 484
    edited April 2012

    I remember my onc telling me it was a GOOD thing to be HER2- .

    They do have a lot of treatments out there for HER2+ women, and I guess the good thing is when they control the cancer. Better than having nothing like us TNs. But I think that when they don't work, it's more agressive than TN. Not sure though!

  • marjie
    marjie Member Posts: 1,134
    edited April 2012

    I remember being happy to have two negatives, but my onc explained that for cancer, the more positives, the better because they have more treatments/drugs to throw at it.  However, being Her2+ is not necessarily a good thing because even though they have Herceptin, Her2+ cancers are extremely aggressive.

    All that being said.....I guess there's no "good" cancer, is there?

  • MizMarie
    MizMarie Member Posts: 332
    edited April 2012

    Any cancer can kill you - "good" is a word I would never associate with it.

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited April 2012

    I am HER2+ and I don't seem to get benefit from herceptin.  It's very aggressive and seems to be unstoppable.  I even cut out half my liver and it came back!  Herceptin doesn't work for 50% of her2+ women.  There aren't "lots" of treatments, there is herceptin.  And, another form of herceptin, tykerb.  That's it.

    Any doctor who says being HER2+ is a good thing doesn't know much about cancer treatment.  I tend to think he may be misunderstood - it's never a good thing. I know my onc would certainly never say such a thing.  It's better to have it now than 15 years ago because herceptin does help some women, but that doesn't make the cancer a "good kind." Her2+ cancer is still the most aggressive kind of cancer to get, but herceptin has helped tens of thousands of women.  

    All that said, comparing the aggressiveness of cancer is a fool's game.  You just never know, it's too slippery of a disease.  Too many people with good initial prognoses are now gone, and many women who were diagnosed at stage IIIc live long lives.  I have said before that it's just a crapshoot, and it is.  

    One woman PM'd me and told me that she knew exactly how I felt, having Stage IV HER2+ terminal illness, because she was Triple Negative which was so bad she "might" get there too some day and then told me I needed to be more positive, like her.  Really.

    Joan, you are right.  You should celebrate - not because you have the minuses or pluses behind your diagnosis, but because you are here, you have a life, you have a shot at a long one, that you have chemo that will give you a chance and for every day you are alive.  I see way too many people trying to make a bad thing even worse, as if that gives them some sort of status or power or something.  It makes me sad.  Don't look to the worst possibility, look for the best!

  • marjie
    marjie Member Posts: 1,134
    edited April 2012

    Ann - everytime I read your posts I want to yell "Exactly...!!" or "OMG....I know!!". 

    Not because I am comparing myself to you, but apparently we manage to run into the same types of people lol.

Categories