April 2012 Chemo Starters?

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Buttons2
Buttons2 Member Posts: 72

Hi, lets get just the April starters together, what kind of chemo are you having, tips that you may have from an experienced cancer patient & who looses their hair first. Lets give it a fight ladies!!!

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  • Buttons2
    Buttons2 Member Posts: 72
    edited March 2012

    I start 16 weeks next Friday April 6th, Adriamycin, Cytoxyn, Taxol, then 5-6 weeks of Radiation.

  • Rose12
    Rose12 Member Posts: 95
    edited March 2012
    I start April 12 C/T X 4 then Radiation 6 weeks. I was just reading on the boards my finger nails and toe nails will turn black? I am looking forward to that along with the hair loss. I will check with nurses and see what they say when the time comes. I am getting ready my wig. Cool
  • Buttons2
    Buttons2 Member Posts: 72
    edited April 2012

    I have straight soft hair so I got wigs that are styles my hair will never do. I had a friend that was 33 when she was diagnosed and she has giving me some tips, same types of things offered on the board.

  • Mimi8
    Mimi8 Member Posts: 51
    edited April 2012

    So happy to have found this site! I begin T&C April 9th, Easter Monday. Yes, I'm scared of the SE's.

    I really dread losing my hair even tho it's short and not that great. Every day I remind myself to be grateful for the advances in medicine that will let me, at least, live!

    Mimi8

  • mt4ever
    mt4ever Member Posts: 105
    edited April 2012

    Hey guys, count me in!  I start April 9th also but on TCH every 3 weeks for 6 cycles then radiation for 4-5 weeks.  I have ordered a wig and got about 6 inches cut off my hair a week ago to prepare!  My husband is so sweet he has been telling me how much he likes my hair short (I hate it!).  I am not looking forward to losing the hair, nausea or neuropathy!  I am praying for none of those side effects.  I am a transcriptionist and do not know how I could do my job with neuropathy!  Anyways, I agree Mimi8!!

  • Buttons2
    Buttons2 Member Posts: 72
    edited April 2012

    Welcome Mt4ever, I too am thimknk about the Neuropathy, I work on a computer all day.

    Florida55, I read one note on this cancer org site and a lady said she took bags of frozen peas in a small six pack cooler and used those on her toes & fingers during therapy, kin a of a good idea I thought. I have really strong long pretty nails but I cut them all back. Everyone is different some can plan for the worst & hope for the best. My mom finished her chemo last year for bladder cancer & her nails are very brittle now, different chemo but I'm hoping I don't loose my nails, hair doesn't bother me but nails do, were all different but we will all get through this, there is strength in numbers:-)

  • Buttons2
    Buttons2 Member Posts: 72
    edited April 2012

    Well I'm off to the hospital to get my port, very nice people at that hospital but 1 excisional biopsy, three needle biopsies, BMX and now port is a procedure every month, 2012 is kind of sucking so far. I really won't miss them when I'm cancer free and strong!

  • DianeC
    DianeC Member Posts: 38
    edited April 2012

    I am so glad I found you! I start my chemo some time this month. I go to the MO tomorrow afternoon. My husband is having major surgery on Monday 4/9, so I asked if I could postpone my start until he is home and doing okay. He said he didn't think that would be a problem.

     I am taking Taxatere and Cytoxan as well as Neulasta. I don't really know if I actually lose my hair or have thinning. I take care of my five granddaughters as they live with me, so I told them I was going to be taking a very powerful medicine to make me better and it was going to knock my hair out. I just got my hair cut pretty short, and in two weeks I will get it cut shorter in preparation.

    Buttons2, I know you will do well. We are similar. Prayers coming your way.

    mt4ever, I will also keep you in my prayers. I, too, am anxious about the SE, but we will make it.

     Mimi8, amen sister. Prayers...

    Florida55, I heard the same think about fingernails, but a friend of mine said she used something that kept her nails from having problems. I'll find out and post it. Prayers to you.

    Diane

  • nfranklin
    nfranklin Member Posts: 119
    edited April 2012

    I start my chemotherapy on 4/9. The first 12 weeks I will be taking Taxol.

  • CHEMOisMYfriend
    CHEMOisMYfriend Member Posts: 1
    edited April 2012

    Started chemo 4/3 Adriamycin & Cytoxyn x4 then Taxol x4. Gave myself 1st Neulasta shot last night. Not feeling too great. Took a Claritin to try and ward off some SE, so I'll let you know how that goes. I'm TN so on dose dense regime. I'm upbeat but sleepless nights get me real rundown. Work full time too. Cut my hair short as a start to being bald. Looks like I started earlier than those on here, so I'll post when it starts falling out. Prayers & good thoughts to all of you!

  • Buttons2
    Buttons2 Member Posts: 72
    edited April 2012

    Chemoismyfriend, please do post updates you and I are on the same type of dose dense chemo, I start tomorrow. Prayers for everyone.

  • Rose12
    Rose12 Member Posts: 95
    edited April 2012

    Yes good luck to you. I see the MO next Friday. I think I am doing A/C X 4. Was so nervous when I saw him I don't remember. Will get it straight, plus the Neulast shot. I have been hearing horror stories about this shot. My port is scheduled for next Wednesday. I will ask the nurses about the fingernail thing. I want to get fake eye lashes or something. Have to find out. Chemo is my friend, hope you are feeling better. I have to work. I hope I will be able to make it. Hugs to everyone.

  • Natm71
    Natm71 Member Posts: 13
    edited April 2012

    I should start this month too! Just finished with surgery. Nervous for chemo! Will be happy to hear how you all are doing!!!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited April 2012

    I will be starting chemo sometime this month once I get my bone scan, CT scan, echocardiogram, labs and one more pregnancy test.  Yes, I'm 56 1/2 yrs old and still having regular periods.  The echocardiogram is for a Herceptin clinical trial that I have volunteered for to determine if low HER2 (+1 and considered negative in the HER2 Herceptin world) benefit from Herceptin.  It is a randomized trial but will know if I'm getting the Herceptin at the first infusion.  As soon as I know the start date, I'll be post that date.  I will have 6 rounds, every 3 weeks of Taxotene and Cytoxan which means 4 months in chemoland.  I had my port placement at the time of my mid March UMX w/o recon. so I am good to go.  Thank goodness for this site/boards with all of the great info to help prepare for chemo.  I look forward to sharing with  & supporting everyone on this thread. 

    Have a wonderful Easter weekend!!! Sending positive calming & healing prayers, thoughts and energy to all.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited April 2012

    Hi: I will have A/C 4 x (once every 3 weeks) followed by Taxotere, also 4 x (once every 3 weeks).  My first infusion will be on 4/20.  I just hooope this postop pain (after my 3/21/2012 BMX) is a lot better by then.  It's improving over the last two weeks but I still haven't gone a whole day without one of the heavy-duty painkillers.  So hard to be patient! 

    I asked if I would get a port and they recommended that I try the first treatment without, and then, if there were problems or if the regular IV bothered me, I could get the port any time.  I never thought my veins were that terrific - but I've read a lot about all the reasons to hydrate, so hopefully that helps.  

    Here's what I was told about nails:  chemo can cause them to darken (they didn't say it was all that big a deal for most people) and the drugs like taxol and taxotere can cause them to loosen.  Lots of people say that using ice (or bags of frozen peas) on your nails helps - so I'm planning to try that.  

    DianeC, wow, that is a lot for anyone to handle!  I hope for a speedy recovery for your husband, too, after his surgery.

    Chemoismyfriend, I am trying to get back to work and sure wish I knew what to expect!  Luckily I can work from home but eventually I want to go back into the office, too.  What work do you do? 

    I had my PET scan this p.m., and by the time I filled out all the what looked like 20 forms, I was both nervous and cranky.  I just tried to get through them as quickly as I could, even though my hand was shaking.  When the tech came to get me for the test, she said she wanted to verify a couple of my answers to some of the general health questions - and I realized that I had answered Yes to both "Are you pregnant?" (I had tubal ligation almost 20 years ago), and even more embarrassing and ridiculous - "Are you breastfeeding?"  

    We laughed together and after that I was able to relax - a little.

    Guess I'll have to pay better attention when I do the form for the MUGA scan next week....

    Hugs to all!

  • nfranklin
    nfranklin Member Posts: 119
    edited April 2012

    Had one surgery on Feb 24th, a lumpectomy and all lymph nodes removed, margins on the tumor were not good so had second surgery on the 19th of March removed right breast. The incision is till kind of sore and sooooooooooo tight, I am doing my exercises but it is still very tight and painful when I raise my hand over my head. Any suggestions as to how to loosen up the tightness?



    Start chemo Monday, 1st of 12 Taxol treatments. I took Femara (letrozole) 16 weeks before my surgery to shrink the tumor, and will be taking it again once I finish chemo, in about 6 months..



    Thanks for all the good information and encouragement. Happy Easter everyone.

  • Buttons2
    Buttons2 Member Posts: 72
    edited April 2012

    Started my chemo yesterday felt pretty good until about 830 last night and the upset stomach set inth. Ive slept most of the day today just tired and my face is on fire but no temperature. I'm thanking the heavens that I got a port it help so much and the numbing cream helped so much. I go back in two weeks & they said I'd start to loose my hair, that red devil stuff is wicked. Good luck to all :)

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited April 2012

    Hi Buttons, thinking about you!  I'll be meeting the Red Warrior too, soon.

    My wig shopping expedition is over and successful!  Thanks to all on the March chemo board for all the advice.  I found two wigs that I liked, and my son's girlfriend (she's such a sweetie) and I had fun with that whole process and with poking around the  shop. Sooo funny - they were getting ready for the local annual drag pageant tonight!  One of the entertainers was getting ready behind us while I was being waited on (behind a wall, I mean).  The people in that place are so fun and big hearted.  The lady who waited on me (she was born one) said she'd give me a lesson in how to apply false lashes - something I've never mastered and gave up on. 

    Only thing is - geez, wearing wigs full time must be like learning to wear contacts or thongs.  It felt soo tight (of course I still have all my hair).  I can see why people say they are hot and sometimes itchy, even though the ones I picked were among the most comfortable (I got monofilament).  

    My coworkers pitched in and gave me a huge care package - including a cute baseball cap.  I guess I'm just about ready for the "battle juice."  

    I don't know if my insurance covers any of the cost or not - but the shop wrote up the invoice as a "cranial prosthesis for medical hair loss" and said it works best to show the total cost not itemized.  Something you can try as well, if you haven't looked into that already. 

  • Buttons2
    Buttons2 Member Posts: 72
    edited April 2012

    Hello, cranial prothesis wont work for me, unfortunately its just not covered. I work there and did all the research. As far as dose dense It was just explained to me as all guns, treatment is every other week. The terminology could just be the facilitybas well. Its great you had a pleasant experience wig shopping :-)

  • DianeC
    DianeC Member Posts: 38
    edited April 2012

    I just wanted to update the happenings in the DianeC casa! I came down with the 24 hour flu that all 5 of my granddaughters had last week and my husband had Friday. I got it on Sunday morning and was miserable. I didn't get sick to my stomach, but felt terrible!



    My husband had his surgery this morning and all went very well! Thank God!



    I start chemo on Tuesday morning, April 17, and my daughter will go with me as she cleared her schedule so that I wouldn't have to worry about being alone.



    My car gave up a week and a half ago, so while it's being repaired, we rented a vehicle. The girl at the rental car company was so moved by all the obstacles, she set us up with a high end car for subcompact prices. We also bought a car.



    IndigoMont11, it is a lot to deal with, but we will make it! We have to have a sense of humor! Love the breastfeeding question!



    Good vibes, prayers, and many hugs to my new sisters.



    DiansC

  • beth1965
    beth1965 Member Posts: 455
    edited April 2012

    Hi everyone please count me in for April chemo-i had surgery a BMX with all nodes out on one side on feb 2nd and got pneumonia and then infection so had to wait to do chemo. I will be getting radiation after chemo.  I am not looking forward to chemo but i am looking forward to fighting this cancer more. I want to feel like i am doing something

    i will be starting chemo on April 11th . The onc said they are going to give me AC/PACLITAXEL. I will be getting Dose Dense every 2 weeks also for 8 weeks. I will be giving myself neuprogen shots 10/14 days. My Onc said i am getting Red Devil. It looks like a few of us are doing Dose Dense

    nfranklin- i had experienced alot of tightness too my surgeon said the more stretching i do the better it will feel.  I started to lean flat sideways against a wall with my arm up and push till i felt the pull and hold for a few seconds and repeat. I dont know if it will work for everyone but it helped me just make sure you are well healed before you push your stretching limits.

    DianeC- glad to read your hubby did well its must be a hard time for you right now with so very much going on.

    Buttons- i wonder if the face on fire feeling will be a regular thing. Looks like you ,me and chemoismyfriend are all doing the same.

    I have a picc line instead of port -i hate it. unfortunately i ran out of time to get port. But i guess at least it should be easier on veins.

    Hugs to you all-Beth

  • eric95us
    eric95us Member Posts: 2,845
    edited April 2012

    My wife started AC today. She says she feels like she has a first class hangover right now.

  • C-squared
    C-squared Member Posts: 514
    edited April 2012

    I'm not sure I qualify as a "chemo-starter" as I've already had 7 Taxol treatments BUT it turns out we didn't know if the Taxol was working.  Fast Forward, I had a lumpectomy 2 weeks ago and will be resuming chemo with AC on 4/19 and I'M SCARED TO DEATH!!!  It will be dose dense, every other week X 8 weeks.  A month later I am slated to have a Bmx. 

    We all respond differently to chemo and I want to reassure those of you starting Taxol that it wasn't so bad. I had weekly Taxol X 7 weeks and I didn't have neuropathy but I did have fatigue and stomach upset.  Those were the worst two side effects that I experienced.  And then of course, the hair loss!  There's no escaping it (unless you try the "cold cap") and we all prepare the best we can getting our wigs and our scarves! 

    So while I can offer experience (with Taxol) I also look forward to those who can share their experience with AC.  It sounds like eric95us wife is not having a good time of it!  Anyone else?  

    I hope you will welcome me into the club and  help me thorugh.

  • nfranklin
    nfranklin Member Posts: 119
    edited April 2012

    Beth: thank you so much for the information on stretching to help elivate the tightness where my breast was removed.



    Got home about an hour ago from my first Taxol treatment. Feel fine just tired, long day. Will let you all know how tomorrow turns out.

  • eric95us
    eric95us Member Posts: 2,845
    edited April 2012

    She's on the dose dense schedule. She got to feeling better and now it's not so good again. It seems like "it" is coming in waves. She still has her sense of humor though. She was talking about what she would do to get rid of the zofram aftertaste. We're still laughing about it. It's a very private joke. One that I won't repeat..... :-)



    Believe it or not a cool washcloth on her forehead is helping her quite a bit with the headache and the super hot flash feeling; which all seems to help with the nausea.



    Tomorrow she gets the Neulasta shot.





    Btw her username on here is slawson.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited April 2012

    !DianeC, so glad your husband's surgery went well. Hope he is resting comfortably and gets well soon. I'm sorry you ended up with a bug, though, and car probs alwsys bite. Our two vehicles are paid in full, but we did end up spending a few thousand dollars between them on repairs in February. I'm trying hard to pay off debt and just don't want to get into another note at this point.



    I was thinking what I was doing this time last year: my youngest son was getting ready for his senior prom. Being the mom of two boys but a girly girl myself, I enjoyed all their prom experiences. I helped his date the previous year choose her dress, and since I know a very talented florist, my gift has always been the flowers - including the bout so everything matched.



    Well, prom was on a Friday and we were on our way Wednesday night to pick up his tux, and got into an accident! No one was hurt, but I banged up my car pretty good, and the plan had been for him to use it to drive his date to prom. The story did have a happy ending though; we were able to get his tux the next day, and a dear friend let him drive her nice Chevy Suburban. And my car did get fixed too.



    It feels so long ago now! Just wishing for any of you out there have kids going off to prom that they are all safe and have a great time.



  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited April 2012

    Csquared, of course you are welcome, although as we always say, wish you didn't have to be here. Lots of us either have had or will have BMX, so you can get good feedback and support on that, too.

  • Buttons2
    Buttons2 Member Posts: 72
    edited April 2012

    I had a bmx w he's started dose dense with red devil last friday, it has been something new every day. First day nausea second day face on fire next day nausea the meds & cold washcloths help. Dry mouth, biotene toothpaste & mouth wash helped. Today my lymp nodes around my chin & back of neck are sore. The worse thing is trying to sleep w te's, trying a body pillow. I almost wish I had just gotten small implants and said to heck w it. Sorry I should have changed my user name from buttons2 to grouchy and moany lady, my life is worth it I'd just like to have a good day w some sleep.

  • Rose12
    Rose12 Member Posts: 95
    edited April 2012

    Getting my port at 10:00 tommorrow. Then blood work and teaching with the nurse. Next day is my first round of chemo. I was told it would be ok to have the chemo the day after.  I was alittle worried about it.  I will check with the surgeon tommorrow.

  • beth1965
    beth1965 Member Posts: 455
    edited April 2012

    Buttons- i found the Red devil gives me red hot face and dry mouth too. I also started sneezing like crazy when they were giving it too me that was weird. Once they slowed down speed of injection  i was fine.

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