New here.. waiting for biopsy results
Hey ladies. I've been lurking the past week doing lots of reading. The amount of support I see here is amazing.
My journey started out with a painful lump in my left breast back in November. At first I thought it was hormonal since I had just quit nursing my littlest in August. I figured it would go away after a cycle or two. Well by the beginning of January it was still present, more painful and had grown larger. I made an appointment with my midwife. They got me in right away and she was quite surprised to see how large it was given there was nothing there at my annual 6 months prior. Her initial thought was maybe ductasia or a cyst that would need drained. She sent me for a Mammo and ultrasound just to be sure and also reffered me to a BS because if anything needed to be done that's who would do it.
I had the tests done and the radiologist listed my Birads as 0 and said he thought I needed an MRI. He listed that what he was seeing could be from long term mastitis or possible early signs of diabetes. Now I do have a family history of diabetes but never heard of it being diagnosed by mammogram. As far as mastitis goes, I've never had it, not once in all the years I nursed my babies so that didn't make much sense. However I wasn't overly concerned at this point. I still felt it was something that would resolve itself.
I went to the appointment with the BS who was surprised by how it felt upon exam. She showed me the mammo images and there were hundreds of microcalcifications in a 5cm area of density. She kept saying that it was very suspicios of ductal carcinoma. I was too in shock to even ask questions. I had the MRI the following friday and waited until Tuesday for results. They highly recommended a stereotatic biopsy due to a type 2 enhancement curve. The biopsy was scheduled for yesterday. The procedure itself was a breeze but I did have some pain in the evening, nothing tylenol wouldn't take care of though. They said I may have results as early as tomorrow, definately by Monday.
My emotions are all over the place. I have no family history of cancer, lead a fairly healthy lifestyle. I do have celiacs disease but that isn't a risk factor for BC. I have 8 kids ages 2 to 16, all of whom where breastfed. I'm trying to stay positive and know once I have a definitive answer I'll feel better but right now I can't think straight. In fact in a state of distraction while cooking I started a fire in my kitchen last week, thankfully contained to the stove. Now we have a cleaning crew here and can't use the main floor of our house until sometime next week. Having a houseful of strangers at this point has just made it harder for me to cope.
Anyway, anyone else waiting today or the weekend?
Comments
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Hi there- I'm so sorry for the wait! I just had my mammogram and ultrasound today because I felt pain in my left breast last week that felt very similar to a clogged duct (I had many when I was nursing my youngest daughter). I am scheduled for a biopsy now next week because they found a "somewhat suspicious" solid mass (2cm) and told me I should have it biopsied. I never thought to ask for my BRIAD score. I found waiting even for this appointment today (I waited three days) was difficult, mostly because I'm feeling pain and now imagining 1,000 new symptoms.
The mind is so powerful! All I kept thinking about this week and today after I heard the word "biopsy" were my husband and kids. The one thing that kept me going is that I've known many women who were diagnosed and battled breast cancer and have been cancer-free for more than a decade. My aunt was my age when she was diagnosed and she had a double masectomy and is now 60 years old and has never had a problem since. My 31 year-old cousin was diagnosed last year and just had her port removed and is now considered cancer-free. I keep focusing on these positive outcomes and the many stories of the women on this board. I feel more powerful with information, which is why I keep reading the many stories here on this board. It makes the waiting a little easier...even though it feels like I'm obsessing a bit when I'm googling "2 cm mass breast" for the 1000th time, it's nice to feel as if I'm informed. I really hope you do NOT have to wait over the weekend because I know how difficult that would be...I wouldn't hesitate to call the office tomorrow to see if there is an update or to ask if you can expect to hear anything by close of business. Big hugs and hang in there! 8 children!! What a blessing. -
Hi sparky...
I too am playing the waiting game. Had the us biopsy tuesday. 27 samples taken from 3 masses. Was told the results will be sent to my surgeon in 10 days... Yes...10 days...went back to work today ( took yesterday off to relax) and had a meltdown an hour into my day. I cant possibly wait that long. I just want to know either way!
I'm going to call tomorrow for the heck of it to see if maybe a prelim is in. This is really messing with my mind. I feel like my life is on hold until I hear something. Looking at a lot of posts it seems like many ladies hear back within a day or two?
Good luck to you... -
Lynette,
Wow 10 days seems like such a long time. I really hope they have something for you tomorrow. **hugs**
Michelle,
Mine was also similar in feeling to a clogged duct. You can call wherever you had the tests done and ask for copies of them. That's the only way I knew what my score was, not that it did much because a Birads of 0 just means inconclusive.. so much for nothing. LOL
Crossing my fingers for b9's for all three of us!!
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I'm a newbie too, mammo, ultrasound, & MRI scheduled for this Tuesday after my dr found a mass during a routine physical. Her notes say at 6 oclock, but I feel one at 8 oclock. So not sure if there are multiple masses, or if its a difference in the angles we are feeling from. I'm 32, with an aunt on one side of my family & a first cousin on the other that had premenopausal BC. My cousin is currently in treatment. My dr was, ironically, discussing my family history & the pros/cons of an early mammo when she found the mass.
Anyway, i feel your pain Lynette. It took a week to get scheduled because we needed authorization from insurance, then another 8 days until my appointment. These have been the longest two weeks of my life, and I know a biopsy is likely still in my future - with more waiting. Waiting & not knowing is making me into a crazy lady. Sometimes I'm fine, others I fly off the handle over nothing, others I'm panicked & crying, and sometimes I'm just depressed or even numb. What a roller coaster!
My husband has been great, & plans to come sit in the waiting room through 3 hours of tests, even though I've told him he doesn't need to. However, I just don't think guys get it like women do, & I haven't told any of my friends. I think because I don't want to hear the reassurances & be positive statements. I know the statistics, the logical part of my brain understands that odds are in my favor, but it sure doesn't make me feel better or make my emotions or fears any less or any easier to bear. But, the stress & worry are eating me, so I probably should tell my bestie. Maybe this weekend.
What I do know is that it's going to be a loooong weekend. I'm also worried about the MRI, as I have lupus & my kidneys are stable but affected by that disease. I also tend to have unexpected reactions to medications, etc. Praying the contrast won't cause me any troubles.
Anyway, I sympathize with you all, as I am most definatly a hot mess, lol! Hope you get news soon & that it is good news, at that. (((hugs))) -
Morning ladies! I didn't sleep much last night thinking about getting results today. I keep going back and compairing my mammo images with images of other mammograms online. I think I'm making myself crazy. LOL
Lin, Darn insurance and their pre authorizations. I waited over a week from finding out I needed the biopsy until I could have it done. My mammo and us were done on valentines day and it's been hurry up and wait since then each step of the way. I hope your tests go well on Tuesday. I'll be thinking of you. **hugs**
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Hi Lynette- 10 days definitely sounds like a long time to wait. I've heard of at least a week, but maybe you can call to see if there is a chance you will get the results earlier. They might reassure it you that never takes 10 days and they give that as a conservative estimate? I hope you get some good news very soon!
Lin- I'm always so discouraged when I hear about the health insurance hoops we have to jump through to simply make an appt. When my doctor felt the lump that I had found during a self-exam, I wanted him to send me down for testing right that minute! You can't help but have a natural sense of urgency to get the ball rolling, so that you can at least have some quick answers! I hope that your tests next week go smoothly and the waiting is not too difficult (I know...it will be). Sometimes I think waiting over a weekend is actually a little easier because there are so many distractions and family things going on! Hang in there! Oh, and I also have a maternal aunt who is a survivor and a first cousin on the other side who is a survivor.
Sparky- Thanks! I think I will call today for the report. I have few friends at work who are MDs and I might ask one of them to read the report and give me their opinion. I'm also having problems sleeping, partly due to the pain my breast. And partly because I now feel like I'm imagining a thousand symptoms. One thing I didn't mention to anyone at my appt is that I have been having noticable memory loss and also out of character anger. My husband noticed the memory loss (I'm 36) about 3 months ago (my grandmother had very early on-set dementia, so he mentioned it as a concern...I chalked it up to sleep deprivation from having two little ones who seem to tag-team their waking up at night efforts!) At work I would pride myself on being able to retain incredible amounts of information/details and for months I find even word retrieval has been an issue. Anyway, I am typically a pretty patient person, especially with my kids. Lately, I have been feeling awful (over the last 4 months or so) because I feel like I'm getting upset with them over small things (kids being kids type of things) and I'm just so angry in general. There is nothing else going on in my life that would really contribute to feelings of anger...I even thought a few months ago of going to a therapist or my PCP to possibly start taking something to take the edge off. And, then I read on one of the threads here that both memory loss and anger often preceeded a breast cancer diagnosis. So, I was up last night thinking about that...ahh! Anyway, at this point I feel that I am as well-informed as I can be for my appt and I am going to read a little less or soon I'll be scheduling appts with multiple specialists.
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Hi Ladies - I'm new here as well. Like Sparky, I've tortured myself here at this site and others over the past week trying to convince myself my odds are on the benign side. I had my routine mammo on 3/15 and was called a week later to come back in for magnified images of some calcifications they found in one breast. The calcs were so small and faint, the technician had trouble finding them again the second time to do the magnifications. I guess they saw what they needed to see because they gave me a BIRAD 4a rating and said they recommended a biopsy. The nurse explained to me that mine were put in the "indeterminate" category rather than suspicious, but that I should do the biopsy to be safe. I pushed them to get me scheduled for the biopsy as soon as possible and they got me in today. Had the biopsy this morning. Again, it took forever for the technician to even find the calcs since she kept saying how faint they were. I am supposed to get the results in 2-3 business days, so worst case by next Wednesday. Like everyone else here who's in this boat, I keep trying to convince myself that faint means good and that being a 4a rating means that 90% of the time biopsies are benign. But what I can't get out of my head is that 10% of the time, it's cancer. And, someone has to be that 10%, right? I'm a complete basketcase most of the time since this whole thing started. I can't believe I haven't yet forgotten to pick my kids up or lost my wallet somewhere. I find myself waking up in the morning (on the nights when I CAN sleep) wondering if this was all a dream. I am scared to death by all of this and just want to know one way or another. I comfort myself by thinking that if it is cancer, it will likely be very early stage and hopefully curable. Nevertheless, whether it's benign or cancer, I'm fairly certain I've shortened my life by at least 5 years with the stress and anxiety of worrying. I also feel so very alone in all of this which is why I guess I'm posting here. I've told no one about this except for my husband. I didn't want to worry my parents or siblings if this ends up being benign. My husband is and has been supportive, but he's a man. He looks very scienfically at the 90% number and wonders why I'm putting myself through all this worrying. When my life flashes in front of my eyes constantly and I can't put that persistent worry out of my head....EVER.....I just don't know how to respond to that.
I hope that every woman who is here and waiting the weekend for results hears something positive next week.
EK
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Hello ladies,
Any news yet?? How is the waiting going? Never mind, I know. It's terrible. Thank you for the kind responses. Trying to be busy & not think too much. I am going to shop for a baby present tomorrow for my first niece/nephew that will arrive next month, and maybe ask hubby to take me to a movie. Would prefer to hit a bar for some obscenely loud music & sorrow drowning, but....prob not the best idea. Hungover & worried won't be better, lol!
Still haven't mentioned anything to my bestie, but did talk to a coworker I am close to. It helped, for a while.
Sparky, the insurance is a nightmare. My age doesnt help, but my dr is pretty fantastic & I am thankful for her & her persistence. Also for talking me into a full physical, even if I am worried sick as a result.
Michelle, that's funny that we have the same relatives affected. My aunt received a stem cell transplant when they were still very experimental, before it was realized that it was not the best treatment for her cancer. Yet, she survived & was cancer free for 20 years. She fought stomach cancer briefly & passed away this past summer. How I miss her & wish I had her to talk to now. She was amazing, and such a get up & go personality - she would understand more than anyone the agony of sitting & waiting. My cousin was diagnosed a couple of months ago, after brain surgery for multiple aneurysms, and kidney failure - a family trait. So she was awaiting a kidney transplant when the cancer was found. What a nightmare. I count my blessings, every day. Even these days.
EK - I understand how you feel not wanting to tell anyone, but it really does help to have some support. I was glad I talked to my coworker - she was great, and she has been through ths waiting game as well, it turned out. I'm a basket case, too. Back & forth from "It will be fine" to "I know it's going to be bad". And everywhere I look, people are talking about cancer it seems. I know I must be hypersensitive, but it's not helping! I came home from work today & fell asleep on the couch. Was out 4 hours, kiddo & husband fended for themselves for supper. The sleepless nights are catching up to me. I usually read constantly, but I can't focus or get any enjoyment from a book right now. Sigh.
I hope the weekend passes quickly for you all & that next week holds good news for you. Hugs.
Lin -
Hi ladies, just wanted to say welcome to the virtual waiting room. Everyone says the waiting is the hardest part and I have to agree. I've found it such a relief and a solace to be able to come here and 'talk' to other women who understand how it feels to be on this rollercoaster. Glad you have found each other; hoping for benign results for all of you. xo
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I got "the call" today March 30, 2012. I have been going for mammos every six months for the last 7 years due to fibrocystic breast disease. I started on estrogen about 1 year ago. Six months after starting the estrogen, I had another mammo and there were changes thought to be from the breast lift I had the year before. Well, last week I had the next mammo and there was a solid mass noted in my right breast. It had gotten tender over the last several months and larger too. The doc wanted an ultrasound then. At the time I thought, that's different. Never had them ask for one of those over the last 7 years. After the u/s, the doc told me there was a solid mass in my right breast. He wanted a biopsy. I waited a week and a half til that appt which was yesterday (Thursday). I was told the results MIGHT be in by close of business Friday or maybe Monday. I have already learned that appts need to be early in the week if you will be waiting for results. I hate waiting the entire weekend for possibly bad results. Anyway, I got the call today while I was at the bike shop standing in line. After he said "I wish I had better news" it was just blah, blah, womp, womp the rest of the phone call. I had a roaring in my ears that almost deafened me. I looked around the line at the other people standing there, wandering if they knew that my life had just been changed forever. It was surreal. I feel better now that I have had time to calm down. I tried to call my breast surgeon to schedule an appt for next week asap but the assistant never called me back. I know my mass is 1.35cm and sits just above my pectoral muscle. It feels like I can feel an enlarged lymph node in my armpit too. Anyway, I hope to find out more next week. Peace.
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Gah, I typed up a nice long response to everyone and my computer ate it.
Still no news for me so I guess I'm waiting the weekend. I'm thinking of each of you. **hugs**
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I feel like I am having to re live this nightmarish waiting game all over again. 4 days ago I had a PET and a pea size lit up underneath my armpit where I had 38 nodes removed 2/1/11. My onc says it is a node (must have had a lot of nodes to begin with) & I will have a biopsy on Friday 4/6. Sept 2011 completed the A+C & Taxol chemo & now am doing the Herceptin. Moving onward through the fog towards the light.
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Sparky- I'm sorry you haven't received any news! I hope that you hear something first thing Monday morning. Try to keep yourself busy this weekend and hopefully the time will pass quickly!
Nightnurse- I'm so sorry. Receiving that news is so difficult, but while you are in line out in public, I can't imagine how scary it was to get the news and then not be able to really ask questions or react. I hope that you can find out more information first thing on Monday. Do you mind if I ask why you were put on estrogen?
akmom- Thank you very much for the welcome...I noticed that you had <1cm in your signature. Can you explain why the size is important? Does it have to do with radiation and how it relates with what it will take to shrink the tumor? I'm sorry if I sound naive. Mine measured 2cm. I noticed you just recently received your diagnosis...what has been your course of treatment since your diagnosis and how were you diagnosed? I hope you don't mind all of the questions!
Lin- Both of my relatives are survivors which is a blessing. My aunt was diagnosed more than 25 years ago, but my youngest cousin was diagnosed just last year. I have a huge extended family and when my cousin was diagnosed we all came together (from across the country) and ran Komen races in different regions, sent her an iPad for when she was laid up in bed and made sure that we sent gift packages once a month the entire time she was in chemo. The whole time I kept thinking about how amazing it was that everyone pulled together (it's almost all females...more than 15 of us) and we were so inspired by my cousin...her strength and grace through the entire experience, especially when she lost her hair. It really was her experience that prompted me to start giving myself more regular breast exams.
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akmom - thanks for the welcome. It is wonderful to have someone to talk to who understands just how hard this is.
Nightnurse - I'm so sorry for your news. I know this will be a long weekend for you as you wait to get more info. I know there isn't much to say, other than I am wishing you the best & sending hugs your way.
Sparky - argh!! Was hoping you would get some news & not have to keep waiting. Do you have plans for the weekend? Being busy seems to help the time pass. I told my hubby that tonight is date night. I want to spend time with him. But every time we do something, I sit there & wonder if this is the last time we'll do this before our lives turn upside down. Wonder if we'll be looking back on this later as the last bit of normalcy. Deep down, I feel very worried about this outcome.
Hoping Lynette will be back & let us know if she got news - and hopefully to report good news.
Panamajayne - I'm so sorry you are going through this again. I am hoping for the fog to lift & lots of light to shine through.
Michelle - sounds like you have a wonderful family. My family is also large & supportive, & it is a comfort to know that they will be here if I need them. I just hope I don't, and hope you don't either.
Waiting & waiting & waiting.....and why is night time so much worse? That's when I really get myself worked up, & of course everyone else is able to sleep so there isn't anyone to distract me or confide in - which I would probably do, as those are certainly my weakest moments. For now - think I will plug in my iPod & do some cleaning. Might as well be productive. -
Hi mland, here's my timeline: screening mammo Sep 7/11 (microcalcifications, BIRAD 4); core biopsy Nov 29/11 (suspected low grade DCIS); wire-guided excisional biopsy Feb 13/12 (confirmed DCIS, intermediate grade, size 3mm, margins 2mm); radiation to start Apr 3/12 (16 treatments).
The very small size of my area of DCIS indicates that it was caught very early (my oncologist refers to DCIS as 'pre-cancer'). The entire suspect area was removed in the biopsy (they removed an area 6 cm x 3 cm x 1.5 cm) so the radiation is a preventative measure, to zap any stray 'pre-cancer' or cancer cells that might be present in the remaining breast tissue.
Once you get through this waiting period and have a diagnosis (and the chances are very good that it will be a benign breast condition rather than cancer), you will be able to get information on your specific condition, and I guarantee you will feel a lot better prepared to face whatever's coming. Hang in there!
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Just offering my prayers and support to all of you in the waiting stage. It is so very hard--the mind plays tricks on you and you imagine the worse! Coming to this board always helped me and I continue to visit here often and wish the best for you. Try and do some things to distract yourselves until you get the results. Please come back and tell us how you are all doing! We care!
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Mland1304: thanks for responding! I could just kick myself in the arse for starting the estrogen in the first place. I took it for mood swings and vaginal dryness associated with perimenopause. I could have tried so many other things first. It worked for those things but now i have breast cancer.
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Lin1108: thank you for responding too! I had just started learning meditation when all this started so i guess i should start using it, huh?!? Lol. I have always been a very positive person and i cant see any benefit to not being that way now. I SO appreciate getting to learn from all of you who have been through this already. It's like having a big sister all over again! I will be coming here often.
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Nightnurse I too was stupid & starting taking lowest dose estrogen pill for the very same reasons you did & then 1.5 years later was diagnosed with BC.
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Lin1108, thanks for your encouragement.
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Hey ladies. Tomorrow should bring news, hopefully good news for several of us!!
I've been trying to stay super busy the last two days. We cleaned out bedrooms and reorganized drawers and closets.. fun fun! I have a zillion loads of laundry to do but I'm worn out this evening. I seem to be tired a lot lately. I also kinda freaked out yesterday. I started having a bloody discharge from the side they did the biopsy on. Anyone experience that before? I've had a discharge in the past but this weekend was the first time there has been blood. I'm hoping it's just from them drilling into me.
Nightnurse, so sorry things went that way. I can't imagine getting news like that out in public. Try not to beat yourself up over the estrogen, we all do what we can in the moment to make life better.
Panamajayne, many positive thoughts that your biopsy goes well and comes back clear.
Lin, I found myself thinking the same thing throughout the weekend.. is this the last bit of normal before it all goes topsy turvy. I'm trying to keep a happy face for the kidlets but it's not always easy.
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Glad you've been busy Sparky. We've had crazy warm weather & I spent the day in my garden & doing laundry. I am really hoping for lots of good news tomorrow for all of you. I am drinking water like crazy, trying to get good & hydrated before the MRI on Tuesday. Nervous & anxious about that, & glad my husband insists on going with me.
Trying to keep everything out of my mind, yet it keeps going back to the very low Vit D my dr discovered last month, and the pain under my breast that I assumed was pleurisy, and the year I've let my lupus go uncontrolled while I searched for the right dr. It's making me flat out crazy.
Finally got myself into a good book, though, so I'm going to lose myself in that for a while, and take a muscle relaxer. Here's to good sleep tonight! -
I feel like all of us who are waiting for news next week are living the same lives this weekend. Lots of laundry, activities, etc...to keep me from feeling sorry for myself or working myself into a complete frantic tizzy. I also feel like this might be the last couple of days of blissful ignorance regarding a possible cancer diagnosis. I try not to let myself be alone too much because then I have nothing to do but think about it. The kids really help to take my mind of this.
I hope that everyone who is waiting hears good news. And please report back for the rest of us regardless of which way it goes. I know I and others would love to hear positive or negative news.
Best wishes for all.
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I've been reading this topic and I'm hoping all u'r news is good--and u'd better come back with all of u'r results.
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I just wanted to tell all of you who are waiting for news, and for night nurse who heard what you didn't want to hear, that you are all in my prayers. I look back on the beginning and remember how it seemed like I was constantly crying. It is so hard to not have a plan. To me, it seemed (and sometimes still seems) like I was watching a movie of myself. Please know that you have our support this week.
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Hi everyone-
Akmom- Thank you so much for sharing your story and timeline. It's helpful to read and thank you for the encouragement. I sometimes feel silly for all of this pre-worrying when I'm not sure I even have something to worry about!
I had a somewhat similar weekend...but not as much laundry as I should have done! :P We went out to dinner on Friday night with all of the girls which was fun.
And, then two of our girls were at a dance competition for the day and I stayed home with the little girls which was tiring, but fun! Today I kept myself super busy and off of the computer and almost completely forgot about everything for most of the day. My little girls have school pictures tomorrow at pre-school, so I went to Gymboree and bought them new dresses (which they can also use for Easter and passover...we celebrate both). Tonight we had a fun family dinner and now I'm doing a little bit of work because I'm planning on taking most of Tuesday off (my biopsy is at 12:45pm).My husband travels quite a bit for work and he won't be able to come with me on Tuesday. I'm assuming I'll be fine to take care of the kids that night on my own, right? Just soreness?
I'm glad everyone kept busy this weekend and I'm praying for fantastic news for everyone this week!
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Hey guys!!
Just wanted to drop in and join you in virtual waiting room. I had a lumpectomy and lymph node removal on Thursday. I seriously now can't think of anything but the results . I pray they have them tomorrow. I don't think I can stand to wait another day. I want to feel confident that I am in the benign group ... But then a little doubt creeps in and it is scary!! I think I need to grab a good book and head for bed before the worry gets worse.
Praying for b9 results for all
- Jen -
I'm new here and waiting for results...hopefully tomorrow. Tuesday is one week since my cone biopsy...trying to stay positive...
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Just called into the office and apparently my breast doctor is in surgery all day today and tomorrow. They said my file is on her desk waiting for her to come in but it would probably be Wednesday before she gets back to me. I asked for them to make me a copy of the pathology report... I'll analyze the darn thing myself!
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I have just found out alittile more information about my cancer......invasive ductal carcinoma, poorly differentiated, and ductal carcinoma in situ, approx 1.5cm x 1.3cm. Apparently several other areas that will need to be biopsied during surgery. I won't update my profile until after my appt this Friday at the surgeons when I hopefully get more information. I'm trying to find out now if any ER/PR/HER2 testing has been done or is in the works, to try to save time. If anyone has any ideas of things I could do or make sure are being done to save time, I would greatly appreciate any ideas. I called my primary doctor this am to try to get the appt with the surgeon and they said they had the path report. I asked what it said. She said "i see in situ" . My heart started pounding. I was thrilled. I went to get the actual copy and my hopes were dashed to read "invasive ductal AND ductal in situ". This is the first of many lessons I have a feeling I will learn as this process goes on. Learning to keep my emotions on an even keel. It is the constant hi's and lo's that hurt. I will have to distract myself like I've never had to before. And I know this is esier said than done. But being aware is the first step. Ladies, can I get a witness?!?!?! Thank all of you out there for your care and concern. This is where I come to get the "real deal". You all mean so much to me. Peace.
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