Atypical breast cells found

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JayeGA
JayeGA Member Posts: 82
edited June 2014 in High Risk for Breast Cancer

Has anyone had this situation? Haven't seen any posts on it yet

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  • Leslie1962
    Leslie1962 Member Posts: 233
    edited March 2012

    I had a needle aspiration that came back showing atypical cells. I went ahead with a core biopsy for more difinitive diagnosis.

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  • JayeGA
    JayeGA Member Posts: 82
    edited March 2012

    Thanks, Leslie1962, I appreciate your response.

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  • guineamom
    guineamom Member Posts: 62
    edited March 2012

    They found atypical papillomas when they did core needle biopsy. Going for excisional biopsy on Wed.

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  • artsysuz007
    artsysuz007 Member Posts: 9
    edited March 2012

    Being new to the whole scene on BC I keep miss stating my atypical cell as abnormal cell activity..... but yes to the question. I'm 54 and was believed to be in the midst of perimenopause but then it was discovered that I had microcalcification clusters in the left breast and had a sterotatic needle biopsy a couple of weeks ago and it was determined that I had LCIS and atypical cells plus more calcifications so my dr. is planning a "wire" needle guided biopsy and then an excision to follow on the same day. I go this wednesday to meet with a "Breast Health" clinician who will explain what is happening and what they advise after the next biopsy- according to variing results..... I guess the treatment plan is unknown being they want a clearer picture of what is occuring. I don't necessarily feel "sick" but I'm tired and have some breast/arm tenderness. I'm trying to keep busy and informed but the unknown can be scary..... just want to go forward and be a nana and artist without being overly conscious of what is happening in my body. It is funny how we distance ourselves sometimes from full impact a diagnosis like this can have until we find ourselves dealing daily with the realities of doctors, diagnosises, meds, "future plans"...... Every thing else I've had to deal with medically (3 colon resections, fibromyalgia) pales in comparision to the uncertainty I'm feeling at this moment, I know this will pass and I can only pray to learn from it what is needed and go on living. My best to you all, and BTW I am willing to teach painting and drawing to any body here who would like a lesson..... it is therapeutic and free.  

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  • JayeGA
    JayeGA Member Posts: 82
    edited March 2012

    Thanks for responding, guineamom. Will be thinking of you with positive prayers on Weds.

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  • JayeGA
    JayeGA Member Posts: 82
    edited March 2012

    Thanks for responding, artsysuz007. I found myself nodding in affirmation with a lot of what you said. I can go from feeling peaceful to feeling scared and uncertain and even teary. My emotions are all over the place. I'm trying to stay serene as much as I can. I know in my heart that I will handle whatever the outcome is, the way I handle everything else. Sometimes good, sometimes not so good. I'm ok with being imperfect.

    You are so wonderful to offer painting and drawing!  I hope the meeting Weds helps clarify more. I have an MRI on Tues so I think we'll all know more by the end of the week. Keeping you in light and in positive thoughts. 

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  • momoschki
    momoschki Member Posts: 682
    edited March 2012

    Yes, this was my situation.  I had a group of suspicious calcifications that led to a stereotactic  biopsy.  The first pathology analysis of this yielded a dx of DCIS, however, I went on to get a second and a third opinion on my slides (from a total of 3 different hopsitals), and the 2 subsequent pathology reports showed only a dx of ADH (that's atypical ductal hyperplasia.)  Went on the have an excisional biopsy which revealed that all the atypical cells had been removed by the needle biopsy-- results were completely clean.  I would urge you, if there is any ambiguity at all about your pathology, to seek other opinions.  The diagnostic criteria are not so clear cut and the ultimate verdict on your pathology can alter what treatment is deemed appropriate.

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  • sndlu49
    sndlu49 Member Posts: 19
    edited April 2012

    I had a stereotactic core needle biopsy 2/22 due to calcifications.  That came back as atypia.  I went to see the bs and he did a wire guided excisional biopsy about a month after that.  I got the results this past week; I have atypical lobular hyperplasia and ductal hyperplasia. The Dr. wants me to take tamoxifin and then have mri's and mammograms every six months.  I also went to see a genetic counselor this week and we decided I needed to do the testing due to bc in my family .  I also had ovarian cancer 4 years ago.  I am now awaiting the results of that test.  This is such an emotional rollercoaster; I can totally relate to all your emotions; as can everyone else here.  The waiting is the worst.  I had to take some ativan to get through some of the tough days of waiting. Do you know what the next step is in your journey?  Cindy 

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  • artsysuz007
    artsysuz007 Member Posts: 9
    edited April 2012

    Blessings to you JayeGA for a great day on Tuesday....... Soon as I can I'm going to start a post of creative things to ease the minds of the women here...... even if it is only a few minutes a week hopefully someone will benefit.

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  • artsysuz007
    artsysuz007 Member Posts: 9
    edited April 2012

    Hi CIndy I meet with a dr. at the Breast clinic wednesday and they are scheduling a wire guided excisional for me as well, I don't have the date of that yet. One day I'll deal fine and get through without much concern but then days like today I get riddled with the what ifs.... I know you shouldn't let yourself go there but it happens. Once I see Dr. O'Connor I know she'll have answers to my questions. Take care and thank you for your reply.

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  • vmudrow
    vmudrow Member Posts: 846
    edited April 2012

    artsysyz007 - just thought I would chime in here.  Two years ago my microcalcifications were clustering and after wire guided biopsy (which isn't bad, so don't worry about pain), I got the diagnosis of ALH.  I had genetic testing done (strong family history) - came back negative, but had genetic counseling and they figured my risk was 40% chance of getting BC in my life time - I was 49 at the time.  Went to oncologist and he wanted me to take Tamoxifen, surgeon said to have MRIs every six months.  I knew a couple of ladies on Tamoxifen and in talking to them they hated the side effects.  In talking to the surgeon ( a lady) I told her of my worries and that I had been worrying about getting breast cancer for 30 years, ever since my mom was diagnoised.  I asked her what she would do if she were in my situation - she said she was a worrier and would go for preventative masectomies.  With my history (numberous biopsies), she says having MRIs would show more things - that might turn out to be nothing, but would have to be biopsied.  I would be looking at years of biopsies.  Anyway, sorry this is so long I decided to have masectomies - nothing more was found - it has been almost two years and I have been very happy with the whole process.  No more MRIs, no Tamoxifen and the worry is gone.  Hope this helps someone - realizing it is major surgery and not for everyone.  Good luck and keep us posted on your biopsy.

    Hugs, Valere

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  • JayeGA
    JayeGA Member Posts: 82
    edited April 2012

    Thanks so much for your feedback, Momoschki. I think having more than one opinion is a great idea.

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  • JayeGA
    JayeGA Member Posts: 82
    edited April 2012
    Cindy, the breast surgeon has referred me to an oncologist after surgery later this month, and mentioned that the recommendation might be taking medication as a follow-up. Have a feeling it might be tamoxifen, which I have some concerns about, but I'll meet again with the surgeon next week and get a clear picture of what to expect. I posted my story under Not Diagnosed But Worried and couldn't figure out how to cut and paste it here, but this topic is a better one for me since I am on a 6 mo recheck schedule and have had several biopsies. This time, there's a 3cm cyst in my left breast with atypical cells. I had a needle biopsy early last month and am scheduled to have the cyst removed this month. Part of my concern is going under anesthesia ( I should be used to it but I'm not Frown) and the other part of it is that the surgical code she used in my paperwork was for a partial mastectomy, NOT a surgical biopsy. So I have more questions before I go forward.  Thanks for your support during the anxiety, I really appreciate you.  I was feeling very alone when I first posted and now I don't. How have the last couple of days been? Did you decide to take tamoxifen?
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  • JayeGA
    JayeGA Member Posts: 82
    edited April 2012

    Artsysuz007, Blessings to you too! I was feeling very alone a few days ago and no longer feel that way. It turns out the MRI is tomorrow, not today, so I will know more after those results are in. Wishing you a positive day tomorrow!

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  • JayeGA
    JayeGA Member Posts: 82
    edited April 2012

    Valerie, I'm glad the surgery worked well for you!  Thanks for sharing your perspective, it really helps.

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  • artsysuz007
    artsysuz007 Member Posts: 9
    edited April 2012

    Hi JayeGA..... hope your appointment went well, mine went as expected..... physical with reiterated the having LCIS and ADH with dense breast and multiple micro and macro calcifications but the Dr. remains confident that even though I'm at higher risk she does not suspect greater invasive involvement. I'll now go for a wire guided open biopsy in  a couple of weeks. Have no idea what BRAC(?) is but read alot of it here where women are getting more definitive diagnosises....... so I guess I'm just going with the flow so to speak since I feel fine except for the "stress" and fatigue. Hope you are doing great and can enjoy this Easter and spring! Creative Blessings, Suzette

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