31 yrs. old Just Diagnosed with LCIS

StacyMarie
StacyMarie Member Posts: 7
edited June 2014 in LCIS (Lobular Carcinoma In Situ)
31 yrs. old Just Diagnosed with LCIS
· Share on FacebookShare on Twitter

Comments

  • StacyMarie
    StacyMarie Member Posts: 7
    edited March 2012

    I was just diagnosed with LCIS in January 2012. My Great Grandma had breast cancer, but other than that I have no family history. ( not a lot of females though) I had my first mammogram in December when the radiologist was sure it was cancer. I had surgery to remove it and that came back as LCIS. 2 weeks later I had what I thought would be my baseline MRI and my Left breast lite up like a Christmas tree. She said if she removed everything I would have nothing left. She wanted a good sample so she took a 1in. by 2in section. That came back with 2mm of LCIS.

    We would like to have another baby, but I'm afraid of the increased risk. Am I crazy for wanting a nipple sparing PBMX? My BS thinks that's overkill.

    She said have the baby and then maybe a year later if I still want to have the surgery she would do it. BUT how will I care for a 1 yr. old? Will I be able to pick him/her up? Thanks in advance and God Bless you all!!

    · Share on FacebookShare on Twitter
  • leaf
    leaf Member Posts: 8,188
    edited March 2012

    Welcome to our forum!  I wish you didn't have to join though.  You are not crazy for wanting whatever you want.  My BS also thought PBMX was overkill - this was BEFORE she asked about my family history!!  You won't have PBMX unless you find a surgeon who will be willing to do it.

    I can't address childcare or PBMX since I have had neither.  Once you have had an excision, your chances of getting subsequent end stage breast cancer due  to LCIS are small, according to this Chuba study.  http://www.ncbi.nlm.nih.gov/pubmed?term=Chuba LCIS   (There are charts in this study that show something like 5% of the general population had tumors >5cm, whereas in long term LCIS patients, the incidence was something like 2%. This is just off the top of my head, so I may not be remembering exactly right.)

    I would advise that you take your time in deciding what to do.  Look at ALL the risks and benefits of all your options.  There are risks and benefits with ALL of your options.

    · Share on FacebookShare on Twitter
  • beacon800
    beacon800 Member Posts: 922
    edited March 2012

    Gosh, what a dilemma.



    I can tell you I had pbmx and recovered quickly and well. You would definitely need help with your kids for the first month or two post surgery. Considering most recon surgery is in fact, two surgeries, you would just need to coordinate that. But it wouldn't be much different (and maybe not nearly as bad) as ladies who have a Caesarian for birth. I'm speculating on that point, but what I'm saying is that surgery can be overcome and you can make it thru.



    It's a decision that is really personal and individual. I had it due to bad family history, the high grade of LCIS that was fund and my general preference to ditch,y breasts and move on. It was great for me, but each woman is different, talk to every one you can. Pregnancy causes pmany breast changes and if it were me and I left my breasts and got pregnant, I would be very closely monitored all the way.

    · Share on FacebookShare on Twitter
  • StacyMarie
    StacyMarie Member Posts: 7
    edited March 2012

    What do your breast feel like after a mastectomy with reconstruction? Do they feel like foreign objects on my chest or will they feel normal 6 months later? I know I will not have sensation in my nipple, but will I be able to feel anything? If you're touching your breast will the skin still have nerves the same as before?

    · Share on FacebookShare on Twitter

Categories