March 2012 chemo
Comments
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munnybunni: make sure you keep hydrated!
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Hi everybody. Just got back from my infusion. Everything went well for me. An older lady in her 70's had an allergic reaction to carboplatin...I think it was her 4tx. It was a bad one but they were able to bring her out of it after a while. The nurse told me they only see a reaction that bad every couple of years. It was sad..but she'll be ok. They closed all of our curtains so we couldn't see but we could definitely hear. I hope she's able to continue and wasn't too shaken up.
I have been using coconut oil but I didnt think to ask the onc about it. It sure does feel good! I also use vitamin E gel with aloe...trying to heal the red bumpy breakout I had...seems to be working. -
I'm not really sure now where I need to be (Feb or March). So I'll just hang around both forums. I began Cytoxan/Taxotere Feb. 7th, but that went south on me....another story......then we switched over to CMF. That treatment has really been much better (once I got something for nausea on the 8th day in). Remember, I'm the one who got nothing (as in no meds) in the first round of CT.
These infusions are divided into two weeks...1st & 8th day of 28-day cycle and the Cytoxan is taken by pills on 1 - 14th days. I really felt fine until about the 6th through 17th days. those were the bad ones....cramps, diarrhea (bad) and some nausea..then beginning the 18th day, everything has been better. Low energy, and other slight SE's, but really almost feel normal. (Thank you, Lord!) Fingernails look like c.r.a.p... and no hair....but I know there are so many having worse SE's than me. I talked to a new friend who had her BC in 1999...but hers was her right breast. Mine's my left, and I realize now that was a blessing. I have minimal use of my left arm (lymphectomy), but my therapist is encouraging me to use it as much as I can instead of going to the strong one. My friend says she can't do a circular motion like washing windows. Sounds like a plan to me!
I begin my next cycle Tuesday, and hope I can continue to feel halfway decent through Easter weekend when family is coming. The MO is giving me credit for the first treatment, so I am right now two down, and four to go! Then rest a month and begin RADS 4-6 weeks. Someone kindly told me the third will be worse.......thank you very much!
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My Uncle sent this, I thought I would share-
Six Truths in Life
1. You cannot stick
your tongue out and look up at the ceiling at the same time, a physical
impossibility.
2. All idiots, after
reading #1 will try it.
3. And discover #1
is a lie.
4.
You are smiling now because you are an idiot.
5. You soon will
forward this to another idiot.
6. There is still a
stupid smile on your face. -
cmcclean: hilarious! I am clearly an idiot...oh well!
Love: that must have been sad/hard/disturbing to see the poor woman go through that reaction...
Margo: have a great night out, that sounds awesome
Karri: great about the house purchase...nice to have them close by...?
Ok, I still have quite a bit of hair hanging on, but today I do notice it dropping on it's own...I keep feeling I'll know when it's time to shave/buzz, but am I holding on too long, I wonder? The kids and I have been joking that if I go outside in a strong wind it'll just poof! blow right off!!! cracks us up...
Munnybunni: sorry you feel so yuck.
SHera: I think vag cream for your HEAD desreves a good rant, for sure. I mean. Really.
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Awww munnibunny - sorry
stay hydrated and rest, rest, rest....I know when I have the um, poos, as you say, that just makes me feel yuck for the rest of the day, doesn't matter what else is going on.
Love - glad your TX went ok, poor lady though, hope she is ok. Curtains? We have no curtains. LOL. My infusion room is just a bunch of recliners lined up where you could touch the next person if you so desired. I keep forgetting to get the coconut oil...oh wait, today is the first day I have left my house so I couldn't have gotten it if I wanted to.
Corky - ha - that was pretty funny.
Merrinell - I remember reading your story on another board and remember how awful it was! I hope your next TX goes smoothly.
Katy, that just looks like it could be a scene in a cartoon - lady steps outside on front porch and then a strong burst of wind comes up...and POOF.
Ok, here goes another weird question - so does anyone else have like actual boob pain? Like feeling sore or just pains? I am on day, let me calculate, 12 of first TX. Just wondering. I just woke up with both breasts hurting today (the "bad" one more so than the "good" one) and a headache and I just wondered. I don't really understand how chemo "works" so on day 12 is it still circulating around and killing things and possibly causing pain? There is a reason I did not go into science or medicine.
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Mazzers
I don't know what you looked like prior to shaving your head but your wig looks totally natural on you. You also look great rocking the bald. I ran out to start my car this morning without thinking and I was totally bald!! Oh well if the neighbors saw, who cares. I have one particular neighbor we refer to as News of the World. I'm sure he walks his 2 dogs 4 times a day. Kind of a pain in the neck, allways gossiping.
My wig has bangs too and its a big long and full so I always clip it or have it in a loose pony and I like it kind of off my face.
TX#3 was totally uneventful. Bring on 3 weeks time so I can (hopfully) ring that bell!!
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Kltb- we have curtains...just like the ones in hospital rooms. Its a big cancer centre...three rooms with beds and chairs. Probably 40 to 45 people at all times. Even with the curtains open you can only see a couple of other people.
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Cayh- haha never even got back on my iPad after 1tx. Start at 8 AM and out of there by 12:30. I was feeling good enough to go out to lunch with my HD. Just ordered a cup of soup and saltines. My tx had all kinds of meds before even the A/C. A couple for nausea, Pepcid, steroid, and something to relax me. The result was that once I got home I couldnt even keep me eyes open. I was wiped!! I even fell asleep while talking to my sister on phone. I did need to take an extra pill for nausea and am trying to drink as much water as I can. They suggested 70-80 oz a day!! I spend half my day in the bathroom.
Returned today for my shot and decided to start to take the claritin tonight when my stomach feels alittle more calm. When I was waiting for my shot today there was a woman that had a reaction and had to leave for hospital. Glad I already had 1 tx or that would have scared the you know what out of me!!
Hope all are having a great day and NO SE. One more day in March wish it was just one more day of treatments for all of us:)))))) -
Totally OT and random but I was watching TV and saw the ad for "We Bought a Zoo" coming out on DVD soon - the premise of the movie (I have heard,not seen) is the dad is widowed because yep, the young mom dies of cancer..NOT something I would choose to watch right now - just a FYI for those with kids who might rent it!
This has been a public service announcement.
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Lol karri! I wanted to see that movie to. Glad you told me! I think it would bother the hubby more than anything.
January- glad you got through that ok. 1st one was so scary to me.
Cmcclean- add me to the list of idiots! Lol! -
Thanks for the heads up Karri...
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Just posted this on another board...just finished watching this week's American Idol and saw that Aerosmith is going back on tour - July 28th, Dallas - who's with me? LOL, yeah right. That is a chemo week...I can see my dear proper little MO's face if I asked for an ok on that one.
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Thanks Karri I wanted to see it too with my kids. Not anytime soon now!
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Karri- maybe if we find a plastic bubble big enough for us we might get both our MOs to agree???
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Rofl Michelle. I am picturing that! Maybe we can write an inspirational letter from the March Chemo Club Fans of Aerosmith. Dear Steven Tyler et. al. "We not only have breast cancer, we also have low white blood counts that preclude us from attending your concert in a normal fashion...."
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Question- did anyone after having 1 TX of AC and 2nd day of shot for immune get a pain in between their back shoulder blades. I know it must be somewhat of a digestive problem but when I had my scan Gladstones were shown. Noe I'm worried that it might be a problem! Hoping it's just a normal (whatever that is) of the chemo. Thanks for any comments.
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Had my first TX of AC yesterday. So far so good. Had a headache last night, but believe that was from lack of sleep the night before. Only about 3 hrs then up at 4 am and off to the hospital for tests and treatment. Good news is since I didn't get into a study group, I only have 16 weeks of TX instid of 25 weeks. Celebrated last night with steaks and half a movie.(DH and I both fell asleep).
Everyone have a great weekend!
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Good morning ladies! I hope everyone has a good day! I think I may do a little shopping this morning and then I am sure a nap is in my future!
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Good morning!
Tx 2, day 4 for me and the bone pain is here. I only had 1/2 a Neulasta shot this time so I'm hoping it will be less severe. Did anyone else get 1/2 a dose? Did it make a difference? I guess there is nothing wrong with wishful thinking!
Masserz- love yor pictures! You're beautiful with and without your wig! Maybe I'll get brave and post some pictures - but I'll wait until I'm completely bald. Still hanging on to my grey roots and still look like my brother.
Thanks for the laughs everyone! Got my day off to a great start! The images in my head of a bunch of us baldies sticking our tongues out and staring at the ceiling AND attending an Aerosmith concert in protective gear gave me quite a chuckle!
Enjoy your weekends Ladies!
Jeanne -
Love4-Sorry you had to see someone having reaction. Just occurred to me, we have no curtains. There are five recliners in a semi-circle facing the nurses' station. I don't know what they would do if someone had any type of problem...other than all of us just sitting there watching it! Also, I do not go to the main Cancer Center but to a center closer to my house. If someone had to be moved to the hospital, it would be at least a 35 minute drive.
Still feeling good! Next chemo cycle begins Tuesday....my 3X. If I continue to do well, it will be 13 days of 28. I'm thankful for each good day. Praying for each one of you on this site that your days will be better.
For those of you who can't sleep.....I feel your pain. I've had sleep problems for three years, and never ever can sleep w/o medications. Lying there unti 3:30-5:00 AM really wipes you out. My brain just won't shut down, but my GP gave me medication a year ago that I couldn't do without. Probably addicted now but at 72, I think my 6-8 hours of sleep is more important and I wake up refreshed every morning.
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Merrinell - absolutely it is not worth "losing sleep over" using sleep meds! My mom was soooo reluctant to use anything but with her autoimmune disease (Sjogren's) she was not sleeping and finally agreed to start taking something and it is making a world of difference for her. I am going to ask my MO next time I go about at least getting some Ativan or something to use. I have Xanax but I don't want to take that just to sleep. I hope your next cycle goes well this week.
Jeanne - that cracked me up - thanks for the laugh!
Kim - have a good shopping/napping day.
Lost - keep us posted on how you are feeling - refresh my memory - are you getting the shot? Just wondering since its the weekend.
January - absolutely! That is where a lot of my pain was and it hurt to MOVE. Do you have pain meds? If so use them. Mine felt like my whole back area around my shoulders hurt.
Just another day here. Still have a bit of a headache but nothing unbearable - of course, any pain is worrisome but I also woke up with a stuffed up nose. I usually don't have allergies but the pollen is awful this year and yesterday was the first day I stepped outdoors since Tuesday. Just hanging about the house, doing light housework, watching TV, the usual.
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Yes it.is good to know we still have our humor! As warped and morbid as it can be at times lol! I hope everyone has a great weekend and minimal SEs.
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Need to vent here a little bit. Is anyone else running into the problem of everyone trying to force food down them? I'm so tired of hearing "you need to eat"! Especially when they haven't been around to see what I've eaten all day! And then the hubby says I've lost weight. I'd really like to know who's butt he's looking at bc it sure ain't mine.
Okay I feel a little bit better. Just needed to vent for a second. -
I have the opposite problem! Hubby thinks I'm eating to much because "I'm laying around"... I keep telling him it feels better to eat smaller meals throughout the day! Boy, if this was him, the whole world would stop!
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Sissydi - I will refrain from cursing at your hubby on this board but know that I am thinking it for you. WHATEVER!
Michelle - yes, when I wasn't eating that week of TX, my mom, dad, DH, everyone was constantly telling me to eat, asking me when I ate, offering to go get me anything I could stomach. It's nice that they are concerned but when you have no appetite or taste buds, it's kind of hard to eat! Truthfully, I got kind of excited when I lost those 8-10 lbs because I was thinking "bonus" (as I posted on here) even though I know it probably wasn't healthy. Well, guess what. My appetite, as well as picky preference for all the wrong foods, is back with a vengeance! And I am quite sure I have gained back every pound I lost.
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You know what I just love hearing. "Have you left the house today" No a^%#hole, but I did manage to do all the housework, cooking, business, bill paying, get through my last TX. Oh year, shop in advance for days I don't want to leave the house. ROID RAGE!!!
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MLB: awesome rant!!!
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MLB - Amen sister...
Ok, I feel really spoiled...everyone just tiptoes around me and pats me on the head. Maybe they are secretly talking about me behind my back, lol...
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Sissy- I totally agree! They get a sniffle and they're laid up in bed!
Karri- I am eating. Although it all tastes like cardboard. Last night I was craving a choc shake and they refused to make me one (went so far as to hide the choc syrup) until I cleaned my plate! I threw my plate in the sink and told them to kiss my a$@! Needless to say I got my shake but I was to pissed to drink it.
My left- yah I love the "you need to exercise" when it takes all your strength to sit up. Makes me think that choking the crap out of someone would be a form of exercise!
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