April/May 2012 Chemo hang out

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  • beth1965
    beth1965 Member Posts: 455
    edited March 2012

    Hi anyone know the difference between a picc line and a port. I am getting a picc line on the weekend doctor said i might not have time for a port when i saw her. All i know is that i have recently been sick and needed Homecare IV hooked up to me for 8 days that kept coming out because my veins had had enough. I hope it will be better than that.

  • Pkate
    Pkate Member Posts: 37
    edited March 2012

    My sister had a PICC line which went in though a vein in her arm directly to her heart.  They did it because she is a long term heart patient and all her veins were blown.  This allowed them to give her IVs though the line.  The line had to be flushed each day ith Heparin which I learned to do.  I have a port which is sewn inside with the line that goes under the clavicle to the jugular.  They say that not only can they give the chemo through the port but they will be able to draw the labs from it as well.  I go for my first labs on 4/3 and first chemo on 4/4.

    I see several of us are on for first treatments the first week of April.  I'll have AC every other week for 4 weeks and Taxol every other weeks for 4 weeks, so about 4 months of treatment before 6 1/2 weeks of radiation.

  • beth1965
    beth1965 Member Posts: 455
    edited March 2012

    PKate- Thanks for the picc line info i appreciate it. It does sound like it will make it easier on my veins. Mind you it scares me abit that it goes directly to my heart.  My chemo starts April 11th and it is the same as you every other week for 4 months and then radiation. I will know on april 5th how much rads. Sounds like you will be exactly one week ahead of me. I hope everything goes well for you

  • sandik
    sandik Member Posts: 482
    edited March 2012

    Looks like I won't be starting quite so soon. Radiologist doesn't like that it was only 1mm margin. He wants the surgeon to go back in to clean it up. :(

  • christine227
    christine227 Member Posts: 3
    edited March 2012

    Hi all. I was diagnosed at a routine mammogram, pretty much on the spot. The Radiologist was very informative and without using the words told me what you fear most at those appointments. I had a bilateral mastectomy on March 7th. I have my first appointment with the Oncologist on 4/4 and have absolutely no idea what to expect. I was told at the beginning that I would need chemo every 3 weeks for 4 months folloing the surgery. I'm going through the reconstruction during this all. I haven't heard anyone else mention that in this conversation. Tomorrow is my first injection in the expanders they inserted during the surgery. Anyone else doing that?

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited March 2012

    Hi Sandik- Sorry to hear about the margins.  I had a minor setback myself.  I just got out of the hospital yesterday after going in Sunday afternoon to the ER.  I had emergency surgery at midnight this past Sunday evening to fix something that caused bleeding at my UMX site.  I've had a recent bout of spring allergies and bronchitis-- coughing too much and too hard.  My wonderful BS got up in the middle night to do the surgery.  Anyway, feeling okay and trying to get back on track.  Still have the CT scan and bone scan, meetings with BS and oncologist to set up.  It will all work out.  So no matter when we start, we will get there.  Sending you lots of (((HUGS))), positive thoughts, energies and prayers.

  • Rose_d
    Rose_d Member Posts: 144
    edited March 2012

    Hello all,

     I will be joining you! I had a BMX on February 8th.  One node involved.  Sounds like similar treatment to many of you - 4 rounds of A/C every 2 weeks and then 4 rounds of Taxol every 2 weeks.  I start April 17th (asked to start a bit later because we had a long planned trip to FL for spring break).

     My doc also said no to cold caps and she is my doc so a wig it is for me too.  My kids (9,7,5) are REALLY not happy about me losing my hair although someone said they will be fine once it actually happens.

    I alternate between trying not to read anything about what to expect (I truly believe you hear the worst case scenarios online because those who feel better don't post) and then not being able to sleep and reading things that are not good for me.

    At this point I'm just anxious to get things going and be closer to being finished!

    Rose

  • sandik
    sandik Member Posts: 482
    edited March 2012

    Welcome rose and christine! Melrose! What are we going to do with you? I was wondering where you've been! I guess if we didn't keep getting hit with surprises it would be pretty boring, wouldn't it? haha

    Rose, I thnik you're right about most of the ones who were good are out living their life, but I find that when I know what's going to happen, I am better. Even if I know it's going to hurt, at least I know. Such a control freak! haha 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited March 2012

    Sandik- I've marked this recent ER/emergency surgery off my list of things I had never experienced before in my life..... lol.  You know it's always something.  

  • sandik
    sandik Member Posts: 482
    edited March 2012

    haha that's a bucket list I don't need! 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited March 2012

    Love your sense of humor--- just what I needed today!!!!

    Hey, you know I had to have the UMX to get clean margins after the partial masectomy/lumpectomy.  I knew that I was going to have a second surgery once I knew found out I had BC after the first surgery.  Somehow, it all works out.     

  • sandik
    sandik Member Posts: 482
    edited March 2012

    For once in my life Im glad I've got big boobs! Otherwise Id be going in for a mastectamy! 

  • Stacie
    Stacie Member Posts: 607
    edited March 2012

    This cancer treatment is intense complicated technical etc etc you need a darn PhD to know what is happening to you.  I have had a Mammo, US, CT, MRI, PT and Mugga scan YIKES.  I guess it would be expected there would be set backs...after reading Sandi and Melrose's posts, so sorry both of you.  I am thinking I might "expect" a setback.  I will report in when it happens.... 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited March 2012
    Stacie- Thanks.... stuff just happens.  So now I'm making jello so all should be right with the world again!!!  Smile
  • christine227
    christine227 Member Posts: 3
    edited March 2012

    Anyone else experience a MRI guided biopsy? Now there is one I won't forget. And they did that to my good side!

  • sandik
    sandik Member Posts: 482
    edited March 2012

    haha Stacie. Here Im thinking Im doing so good. Should have known that would fix itself sooner or later. haha My luck just does not go that way! But, I could have it a lot worse so I am not complaining. Just go with the flow so Im here to complain later! haha

    Melrose, pour some vodka in that and send some over here! We'll all be good for a while! haha

    Christine, I guess when they put the wire in me before surgery was kind of the same. I think I have a high tolerance for pain, because that didn't bother me. I just cry over needles and stupid stuff! haha 

  • mcm24
    mcm24 Member Posts: 33
    edited March 2012

    christine227, yes I also had that on my "good side" and it was not fun, to say the least! It was during that procedure that I made up my mind to do a BMX. I just knew I didn't want to go through all of those biopsies ever again. And yes, I also have the TE's. You will probably feel better after your first fill. Most of us have. These darn things never get really comfortable though. Good luck and glad you joined us all here.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited March 2012

    Sandik- omg--- didn't even think about making jello shots----  You know I'd share with everyone!!!  You are a hoot!!!

  • christine227
    christine227 Member Posts: 3
    edited March 2012

    I'm with you, mcm24, and I'm sorry you went through the same thing, but at least I know I was not the only one. Here I blamed the Dr for that torture. I'm just hoping I regain some feeling once this is all done with the permanent implants.

    Sandik, tolerance meant nothing with that one. Glad for you they only did the wire. Mine didn't deploy after they did the biopsy and my BS said it didn't matter. I guess I'm really not sure when you do a BMX what the point is.

    Thanks everyone for being here!

  • Pkate
    Pkate Member Posts: 37
    edited March 2012

    Here's a question for those of you who have had your first chemo...

    The doc gave me scripts for decadron and ativan.  I believe that these are both for anti-nausea since I get motion sickness very easily, however, I can't remember what she said that day about them.  Anyone else getting these meds and do you know why.  She's out of town so won't see her until my appointment this week.

    Anyone have a clue? 

  • SadeSurvivor25
    SadeSurvivor25 Member Posts: 119
    edited March 2012

    Just had my port put in and I must say that was not fun at all!! I felt like he was choking my lights out. And let me not forget his corny jokes...can u say TORTURE!!! LOL

  • sandik
    sandik Member Posts: 482
    edited March 2012

    haha sade. too funny! 

    Sorry pkate, I don't know.

    just got back from getting a big old haircut. I've known my hairdresser for years and years. Her little sister and my little sister have been best friends since kindergarten. So, she knew what was going on with me. I told her to do anything she wanted. She brought it up to right above my shoulders. She told me to come back when I get my wig and she'll thin it out a little bit. She also said she'd buzz me no charge when the time came. When I was done she told me no charge for this one either. She made me cry! haha So, I'll have to get her a DD gift card or something.  

  • klepine
    klepine Member Posts: 24
    edited March 2012

    Hello everyone,

    I was diagnosed on February 21st.  I had my lumpectomy & 24 nodes removed on March 15th.  13 nodes were affected so off to chemotherapy.  Yeah!!

    I had my port installed last Friday.  It's a bit sore but I am thinking it will be worth it in the end.  I really don't like needles and everytime I have to give a blood sample I almost pass out.

    Had a bone scan and CT scan yesterday.  Had drink all that crapola, yuck!!!  I am a bit nervous because am not sure what will turn up on that. Oncologists says that it is not typical but wants a baseline.  That makes me very nervous.  Don't go to see him until Monday. 

    Having my first AC treatment on Monday, April 2nd.   Still a bit nerve racked about the chemotherapy, so many different side affects and don't know how I will be affected but just have to keep plugging away day by day.

    I lost my mother to breast cancer at age 52 but it was 30 years ago.  I am amazed at all the advancements that have been made, we are much luckier today than 30 years ago.

    I am so glad I found this forum.  It has already given me a pick me up reading some of the posts.Smile 

  • sandik
    sandik Member Posts: 482
    edited March 2012

    Another triple negative! Welcome! If it makes you feel better, you probably would have been on to chemo without the nodes. We are like 3 days apart! But, I'll be falling behind. I've gotta go back to surgery. Do not pass go! Do not collect $200!  

    How are you doing your treatment? Dose dense? Or once every 3 weeks?  

  • klepine
    klepine Member Posts: 24
    edited March 2012

    I had to go back to surgery last week to remove more margin.  

    I will be having AC every 2 weeks for 4 weeks.  Then I will Taxol every week for 12 weeks.  If that goes well, 6 weeks of radiation.

    Nervous about the first treatment.  Everyone I have talked to says the anticipation is worse than the treatment, but how can that be if you lose your hair and feel sick?

    I guess just have to wait and see. 

  • beth1965
    beth1965 Member Posts: 455
    edited March 2012

    klepine- goodluck on your bone scan i just got my results the other day and was very releived. Do you do a liver and lung test too for mets. I did lung its okay getting liver redone also all the waiting for results drives me a bit bananas sometimes.

  • Pkate
    Pkate Member Posts: 37
    edited March 2012

    klepine, I have the exact same treatment plan and I, too, had to go back to surgery to get clear margins.  I'm starting chemo on 4/4/12 and am very anxious.  Sure hope we end up with few side effects - good luck to you.

    Pkate

  • SadeSurvivor25
    SadeSurvivor25 Member Posts: 119
    edited March 2012

    Good luck Klepine. Is it mandatory to have a bone and liver scan? I had neither. They attempted to do an mri but I was allergic to the contrast dye (super scary). Ive recently had some blood work done and an echo scan. I find out tomorrow the type of treatment i'll be having.

  • Buttons2
    Buttons2 Member Posts: 72
    edited March 2012

    Hi, getting my port April 3rd starting chemo Apr 6th. Adrianycin, Cytocan followed by Taxol. AC x4 every other week, then Taxol x4 every other week total 16 weeks followed by 5-6 weeks of Radiation.

  • Buttons2
    Buttons2 Member Posts: 72
    edited March 2012

    Call the pharmacy they will be great at answering that question

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