Calling all TNs

Luah - That sounds like a fantastic trip! You deserve it. I went to Antarctica last February, and I got nervous because of how much it cost, but I loved it, and after my dx, I decided it had been the best thing for me to have done. Enjoy every minute and beautiful view!

Patsfan - Thanks for the encouragement. We push through, and I'm glad there are places like this to find others that understand. It sounds like you're off to a good start with your new dr. Wishing you the best.

ksmatthews - Congratulations! He's a doll. Enjoy taking those photos! My nephew will be one in April (though chemo has kept me away from him for about 4 months). I'm looking forward to spending lots of time with him. 

OBXK - I will come tomorrow for your warm weather I really hate the cold but only if I can smooch and snuggle with that lovely little pup in your arms.  By the way your hair looks gorgeous. I hope mine comes back like that and also that lovely color.

Christina - is CYTOXAN the red liquid in the little bag that they give you that makes your urine go red.    I usually get given that one first  and have no problems but this time they gave it to me last and I didn't go to the toilet straight after like I usually do and it comes out red. Maybe it was a bit strong having it last.      

Lovelyface - I suffer with terrible anxiety. Its awful and very debilitating.  My doctor gave me some Amitriptyline to take and that helps.   I worry over everything usually all for nothing but I still do it without thinking. One of my daughters tells me that if I had nothing to worry about I would still find something.  Bit of a pessimist me unfortunately.  I really envy people who are so positive but I guess we can't all be the same.  The ladies on this site really are positive and its so uplifting and helps me a great deal. Lots of hugs. Annie        

Inmate-not sure how I missed your post. Yay!!!! For local recurrence only! I love surprises, especially 250 flower surprises, I bet it will be beautiful!

Luah - enjoy your trip. Here's to smooth sailing!

Inmate - great news about the local recurrence. Would love to experience the 250 surprise blooms with you - post a pic if you're able.

KS - what a cutie! I have never understood how anyone could think newborns are ugly. They are beautiful little miracles!

Ladies, enjoy the day!

Inmate -  Hooray!  for your good lungs!  My first tulip bloomed yesterday so the irises can't be far behind!  250 bulbs will be incredible!

ksmathews - beautiful, beautiful baby. It always makes my heart happy to see a brand new one.

Phyllis

Yay inmate! 

Thanks bak. It's amazing how much less anxiety I have just from changing dr's.  I didn't realize how little confidence I had in my onc.  The very first red flag I had was when I complained of neuropathy from the Taxol.  She said she hadn't heard of that one causing nerve trouble.  When I did my own research, couldn't believe she told me that.  It's just been little things since then, until this time, when I just felt I needed to persue this and she told me my bloodwork was fine so no testing needed.

Snowing/raining and cold here today.  Last week 70's and 80 one day-this week 30's!  Can't wait until it is consistently warm for my flowers to come up. 

Hi all - I'm still a newbie.  41 years old, 2 kids.  I'm in a triple neg clinical trial at Emory - on my third week of Sorafenib pill (had to take a week off bc of side effects).  Will start Cisplatin chemo on April 12 (4 treatments every 3 wks), then Taxol (4 treatments every 2 wks).  If I have to quit trial (had bad hand/foot last week and couldn't walk), I'll do AC-T.  Planning double mastectomy in Sept.  Thank you all for sharing!

Woohoo for the all clear, Heather!!!

Nicole41 -Welcome - sorry you are here but glad you found the group.  You will find alot of information from this group of women.  I dont check in everyday but there are alot of wonderful women on here that do check in daily.  Good luck with your journey...

KS - what a little cutie! 

Heather - Yay for the all clear!

I had Taxol #2 today and the Benadryl is starting to kick in.

Inmate-yipee on local recurrance only. 250 bulbs! Oh how I would love to see what blooms. My favorite flower is tulips. I would love to have 250 tulips bloom in my yard!

Welcome Nicole41. I also have 2 kids - how old are yours?

KS - great picture! Snuffle up those baby smells as often as you can - always put a smile on my face!

Good thing today - while I was getting tx#6, I ended up sitting next to a woman who was just dx with TN - our dx were very similiar - she's also stage 1 with no node involvment. She was getting her first DD AC today. We ended up talking for quite a while. I was giving her some of the tips I learned on here - Claritan for Neulasta bone pain, etc. After she left, our nurse came over to me and thanked me profusely for talking to her and encouraging her. The woman had a very good attitude about the whole thing, but I'm really glad I was able to be of some comfort.

Off for my Benadryl nap!

Yay Inmate for local diagnosis!! Yahoo!



My mammo went well today but blood work came back w an anomaly. So waiting for CT scan on my liver. Hopefully to rule out a random metastasis on liver. Trying not to freak but the waiting sucks

Annie - it is normal protocol to get Benadryl as part of the pre-meds for Taxol.  I got 50 mg IV before my first Taxol treatment.  For subsequent treatments it was reduced to 25 mg because I didn't have any allergic reactions.

I had Benadryl for the first 3 Taxol and then asked to be switched to Claritin. The nurse gave my the Claritin pill 30 minutes before my Taxol infusion and I was fine. It was a lot less hard on me then the IV Benadryl. At least the Claritin didn't make me drowsy and sleepy.

Heather.....so sorry your husband decided to share the sick.  i hope you both are doing much better today.  vacation is great but being home in your own bed when sick is much better.  sending you lots of healing thoughts.

Nicole41....welcome to the board.  you couldn't have found a better place to be for support and love.  take it all in and don't hesitate to call on us when you need a friend.  isn't that a great 60's/70's song?

Charb22.....keep paying it forward.  i have met some of my new best friends through this journey.  nighty nite!

swiftbird.....ah the wait.  don't it suck?!  it will come back hunkey dorey.  i just know it!

thanks all for the wonderful woot woots!  you just can't slap the smile off my face today.  very happy to have another chance at avoiding the jump to stage IV.  if i could send you all a bouquet of flowers from my yard i would.  i will have to post pics instead.

have a wonderful evening everyone.  love to you all!