Calling all ladies in their 20's

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  • melp27
    melp27 Member Posts: 329
    edited March 2012

    hi everyone!! im 27 and was diagnosed with stage 3 breast cancer in july 2011. im single but do want kids someday when i meet the right guy!

    fertility preservation was discussed before treatment but the fact that doing it would delay the start of chemo about a month was something i couldnt deal with. it was a very hard decision but i heeded the words of my onc who said because im young my periods should return eventually so i thought its better to get the cancer killed and then think about children after ive finished treatment and my period returns. finished chemo in jan 2012 and just last week finished 25 rads Laughing

  • Sarahmfallon
    Sarahmfallon Member Posts: 29
    edited March 2012

    Hi Melp - I was able to do the IVF before I started chemo but all my doctors still assured me I should be fine to get pregnant after. My last treatment was in January, my period returned in February. My doctor was originally going to give me Lupron to shut down and protect my ovaries but didn't want to as he wanted the chemo to hit every part of my body. Hopefully you will be just fine!

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited March 2012

    It was kind of an weird moment since we had been warned by docs before hand, but the chemo nurse actually came in our room one day and was like, "oh... by the way, you need to be using condoms because you can still get pregnant on chemo even if you aren't getting your period."  Obviously we are being careful, but my hubby and I just kind of laughed because she was so uncomfortable about it ;)  I think the statistics were pretty heavily in our favor (premen.) women getting preggers post chemo.  They also just released a study comparing 300+ women who got pregnant after chemo to ones who didn't and there was no statistical significance for increased re-occurance for women who are NED who get pregnant.  They also said hormonal status didn't make a difference. They only studied to the 5 year mark, but that was still somewhat comforting! 

  • Rosaa
    Rosaa Member Posts: 54
    edited March 2012

    hey evryone

    it s been time i didnt log in i was so tired TAX really isnt easy to handle I hav huge bone pain soar mouth n throat I feel terrible really can anyone tell me wat to do to prevent nail loss??? hope u all ok :)

  • petagae
    petagae Member Posts: 58
    edited March 2012

    I've heard icing your hands and feet before and after chemo helps with the nail loss and neuropathy. You may also want to ask your ONC about vitamins.

  • petagae
    petagae Member Posts: 58
    edited March 2012

    I've heard icing your hands and feet before and after chemo helps with the nail loss and neuropathy. You may also want to ask your ONC about vitamins.

  • amandabiv
    amandabiv Member Posts: 67
    edited March 2012

    Sorry I havent been on been really sick this week, chemo kicked my butt this time but at least Im halfway through only 3 more to go yay!!! Hope all of you are doing well Im praying for you all!!

  • miss302
    miss302 Member Posts: 34
    edited March 2012

    my baby will be turning one!!!! next month, along with my five year anniversary of survivorship. children are possible after BC. 

    my neuropathy got better with time for my hands and feet. i still have some nerve inssues with my heels i am dealing with, they put me on lyrica but it dont do much for me for pain.  

  • amandabiv
    amandabiv Member Posts: 67
    edited April 2012

    Just want to say Happy Easter to all of you!! Hope you all had a good a day as I did, God blessed me with a great weekend and I couldnt ask for any thing more! I pray you all are doing well!! ((HUGS)) to all my sisters!

  • sj29
    sj29 Member Posts: 68
    edited April 2012

    So it's been a while, but I wanted to see if anyone has a similiar treatment plan as me. I have been on Tamoxifen for 4 weeks now and just got my first injection of Zoladex a few days ago. I will be on this for five years or for as long as I can tolerate the Zoladex with the Tamoxifen. Anyone have any experience in these??

  • Rosaa
    Rosaa Member Posts: 54
    edited April 2012

    hey girls

    I met my doctor today n he told me tht he ll do a mastectomy i went out cryin frm his office i dnt want to lose my breast he told if i were his daughter he  ll choose a mastectomy fr me n tht my life will be at risk if  i do a lumpectomy  Please I need ur support n advice :'''''((((Frown

  • Rosaa
    Rosaa Member Posts: 54
    edited April 2012

    Hey girls

    I met my doctor today n he told me tht he ll do a mastectomy i went out cryin frm his office i dnt want to lose my breast he told if i were his daughter he  ll choose a mastectomy fr me n tht my life will be at risk if  i do a lumpectomy  Please I need ur support n advice :'''''((((

  • NannaBaby
    NannaBaby Member Posts: 510
    edited April 2012

    Hugs Rosaa ~ I did a full mastectomy with partial muscle excision.  I was terrified before surgery!  TERRIFIED!!  But, after it was done (dec.14, 2010) I felt a huge relief.  The cancer is gone. 

    It has been over a year, and I feel great!  I am comfortable with my body :) I did what was best for long term survival.  I don't love my one breast, but I'm comfortable.  I don't wear a prosthesis when I'm at home, as long as I'm wearing a loose sweater or cardigan. I am looking forward to my reconstruction surgery, buyt am not in a rush.

    The mastectomy surgery isn't bad.  They put you under for a couple hours.  I got nauseaous from the aneathesia+++ so, you may want to ask for Zofran instead of Gravol.  I was tighlty wrapped and couldn't feel my breat area really.  The bandage stays on for a few days to reduce swelling.  I had one drain.  I wasn't in pain, I was stiff.

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited April 2012

    Rosaa:  I had a right side MX and it wasn't terrible.  I had very little pain, 2 drains for a week, limited lifting for a few weeks.  Once it was all said and done its not terrible.  There are some great reconstruction options, like fat grafting that use your own tissue.  I also got an amoena natural (i think) silicon breast prothesis that I use.  I don't wear it all the time but it kind of sticks to your skin so it feels more natural.  You don't have to use special pocket bras.  Yea it sucks that I don't have real cleavage right now, but it will get reconstructed.  If its out, its out and and you know you did everything to get rid of it. 

  • amandabiv
    amandabiv Member Posts: 67
    edited April 2012

    Rosaa: Im sorry to hear that I know its hard I had a double mx with expanders put in right away! It was hard the 1st time I seen myself in a mirror but I just kept reminding myself that I did what I needed to do to make sure all the cancer was gone so that I could live a longer life! I promise you it gets easier to deal with and you do have the option of reconstruction. My prayers go out to you ((HUGS))!!

  • kk11
    kk11 Member Posts: 210
    edited April 2012

    Hi ladies - Sorry I've been MIA so long. It has been a busy few months for me through work (I went back to full time work at the beginning of the month) and taking care of things at home (like taxes - grr!). I wanted to check in today because today is my 1 year anniversary of my diagnosis. I am celebrating the fact that I'm alive and cancer free and that I've made it through the hell of the last year. I will try to come back on a bit more often going forward. My energy is still lagging and going back to work full time hasn't helped, but the world doesn't stop, so we have no choice but to move with it! I also wanted to share that I had my mammogram March 20th and it was clear! I will be going for my MRI in August since my onc wants me to do both due to my age and risk. I also wanted to say that I got my nipple tattoo last Wednesday! I had the nipple reconstruction in December, but the tattoo completes all of the reconstruction, so I'm finally able to say I'm done with that!

  • kk11
    kk11 Member Posts: 210
    edited April 2012

    Melanie Ann - Thanks for sharing the story about the woman with the molar pregnancy. I had chemo for that too and had two drugs, methotrexate and actinomycin-d. The methotrexate was pretty light, but the actinomycin-d to me was like AC. The molar pregnancy experience was very different for me than the breast cancer. I'd say it was much more emotional than the breast cancer, but breast cancer is much more physically draining. Of course, I think it's all cumulative and I didn't get much of a break after the molar before the cancer diagnosis (not even 2 months). I was wondering if you got your period back?

    Nanna - Yay for scheduling your surgery!

    Rosaa - I don't know what to say about the mastectomy, but the first surgeon I saw only mentioned a double mastectomy and didn't even talk lumpectomy. It wasn't until I saw another surgeon that I realized that I still had a choice. Everyone is different and a mastectomy could ultimately be the best decision for you (I ended up choosing a single mastectomy and I'm confident that was the right choice for me), but it's important to know if your doctor is recommending a mastectomy and saying lumpectomy is NOT an option or if they are just strongly urging the mastectomy, but lumpectomy IS still an option. In the end, if you have the choice, it's a personal one. I've been told by others who had lumpectomies that your breast never feels the same after radiation and can be kind of lumpy from that. I've also been told that after radiation, it may not be possible to breast feed on the radiated breast. For me, it was right to get a mastectomy because I was able to avoid radiation (no lymph involvement and good margins). Otherwise, I might have gone for the lumpectomy. It's important to remember that both options have the same survival outcomes. If your tumor is so large that a lumpectomy would end up being a partial mastectomy, then that may be a factor in your doctor's recommendation. It's important to know WHY they are recommending it, so you can make the best decision for yourself. 

    Sarah - Welcome. I'm guessing you're almost halfway through the chemo.You will be done before you know it!

    Melp - Welcome to you too. We did fertility preservation before chemo, but I know it's not possible for everyone (financial or time constraints, etc). Our chances of getting pregnant after chemo are still pretty good, though chemo does take us to menopause sooner than we would otherwise be. Still, the research for pregnancy after breast cancer is still encouraging, so your chances are still pretty good. 

    Amanda - I'm sorry to read about your fever. I was fortunate enough to not have to experience that one. 

    MMM - How are you doing? Are you done with chemo?

    Ladies - For those wondering how long it takes for your periods to come back, I have been told usually by 6 months but almost all will have it back within a year (if it's coming back). Mine came back 3 1/2 months after my last treatment. I'm now 6 1/2 months out from my last treatment, I'm on Tamoxifen, and my hair is growing back. It's about 1 1/2 inches. It grew in quickly at first, but appears to have slowed down. I can't believe it's time for a mini-haircut! I'll try posting a picture soon.

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited April 2012

    KK:  I'm doing good.  I have my final chemo tomorrow.  So my end total will be 12 Taxol then 4 FAC... I go back to TX in may for a pre-surgical appt to have my margins cleaned and an RO consult.  That will basically decide my timeline for the summer.  Overall though, I am doing well.  THe first week of FAC in Feb was terrible, could be cause I was just recovering from a trip to the hospital witha  virus ;)  They recommended I push the chemo back, but I refused.  THe 2nd and 3rd rounds they gave me IV emend during the infusion.  Its a night and day difference.  I am a little nauseas and really tired week one but overall its not terrible.  Mostly I have been enjoying spending time with my lil man!  Its hard to believe but he is goint to put 2 in just two and a half months!!  Also, A big WOOT for being finished wth your new boobies!  That is a pretty awsome milestone!

  • kk11
    kk11 Member Posts: 210
    edited April 2012

    MMM - Congrats on your final treatment! It's a huge milestone! And you MADE IT! Just look at that little boy of yours and you will make it though this last one. What's next for you? Will you have radiation? I was fortunate not to need it (negative nodes and I chose a mastectomy), but I have heard it's different for everyone though for most I've talked to it's less taxing than chemo. Thinking of you as you go through your last treatment. Please keep us posted!

     And thanks for the congrats on finishing the boobies. Well, it's just the one, but it's looking more like the "natural" one now! 

     I'm really just thankful to me alive and cancer free 1 year later. It's amazing how fast this year has flown. I was told this whole process would take a year, but I didn't believe it. I guess they were right. I feel in some way that a year has been taken from my life, and some ways, it feels like more because we should have been having children right now, and that is now on hold. Still, I can appreciate the things I never stopped to appreciate before, so some good has come of all of this as well. 

     To those of you still going through chemo, there is life beyond BC. It may not be as we picture it, but it's there. Hang in there. I feel so thankful to have had this group. 

  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited April 2012

    kk- I still have not started my period. It's been 11 months since my last chemo... Sometimes I feel as though I might though. And I'm pretty sure I ovulated this month. I got crampy on my right side, then had a couple days of discharge that looked like what I used to remember. So I'm hopeful it will be soon. My dr. is not worried at all about it coming back. He said with the type of chemo I had and the amount, that he would give it a year to 18 months. So we'll see... 

    Congrats on the tattoo!

    Rossaa- It's true that ultimately you have a choice on whether you have a mastectomy or not. If you're unsure, I'd say get a second opinion. I know everyone's experience is different. I had the choice of mastectomy or lumpectomy. I chose a lumpectomy and I am very comfortable with that decision. IT turned into a partial mastectomy but my boobs were so big that it wasn't that noticeable. Then, after radiation, my cancer side is now slightly bigger than the other. I can't really tell except for one nipple sits higher. Good luck with your decision. 

  • kk11
    kk11 Member Posts: 210
    edited April 2012

    Melanie_Ann - Your period may be just around the corner. I also felt it was coming back in the weeks before it actually did. I know others who experienced the same. Also, if you're on Tamoxifen, your cycles can be out of wack just from that, so I agree it's probably nothing to worry about. If you do want another opinion, I would go to a fertility specialist or an OBGYN since they are the experts in that. I found that oncologists have a general understanding, but fertility is not their focus, so seeing someone where it is their focus makes the most sense. And going to a fertility specialist doesn't have to mean that you are trying to get pregnant or anything. It's just that they know just want to look for. Best of luck. In the meantime, you can save on pads/tampons lol.

    So I'm just curious. How long is your hair now? Mine got just long enough in the back to require a mini-trim this past weekend. We left the top alone, but she trimmed the sides and the back. With proper gel/mousse, it looks like I chose this hairstyle. I'm looking forward to not needing any hair product, but I'm sure that'll take a while!

    Rosaa- How are you doing? Have you made any decisions? As Melanie_Ann said, it's a personal decision and getting a 2nd opinion if you're unsure would be helpful.

  • amandabiv
    amandabiv Member Posts: 67
    edited April 2012

    kk: Congrats on the tatt and your 1yr milestone I am so ready to be there and say Im done!! I have 2 more chemo treatments then 33days of rads and then the worst will be over!! I am doing good other wise and trying to keep my spirits up. I pray for you all daily and hope all of you are doing well!!

  • lynseydare
    lynseydare Member Posts: 1
    edited April 2012

    hi all..

    I'm in university studying dance. we have to do a project and i'm doing it on making girls more breast aware. I understand what your going through as i have seen it all before with family.

    As i need to make a scrapbook to show my process of the project, i was wondering if anyone could send me any quotes in how they feel? If you have any advice to young girls who are going through the experience? or any quote that you think that will help me in my quotes page. the more the better.

    This will be kept confidental and no-one will know who has written the quotes as names wont be attached to the quotes.

    Thanks for all your help, look forward to your replies lynsey xxxx

  • kisxxoo
    kisxxoo Member Posts: 21
    edited April 2012

    Rosaa - i am just 7 weeks out from my double mastectomy.  Its a very scary thing to go through but i am BRCA 1 positive and since i was lucky enough to catch my cancer earlier it was the obvious choice for me to make.  I had immediate reconstruction with tissue expanders and they look great!! i will have my implant swap June 11.  Everyone says how great they look.  Its very painful in the beginning but thats with any surgery.  I hope your Onc and Breast Surgeon can help you in making the right choice for you.  Remember you can always get another opinion from other Oncologists. 

     Also anyone else having their periods not return? My last chemo was January 19th and i started Tamoxifen in February.

  • kk11
    kk11 Member Posts: 210
    edited May 2012

    Amanda - It will feel really good when you have those last chemo cycles out of the way! I was fortunate enough not to need radiation, but have talked to many women who have and I've been told by most that chemo was the hardest for them. Hopefully it will be the same case for you and that radiation isn't too bad.

    Kisxxoo - How are you feeling with the expanders and post mastectomy? I remember that even little thing such as pulling up my underwear after going to the bathroom were bothersome. And sleeping at night was really difficult! As for your period, it can take a while to come back. Mine came back pretty quickly and even still it was nearly 4 months after my last chemo treatment (and I'm on Tamoxifen too). Give it time. My fertility specialist said upwards of a year, but a good number of people get it back within 6 months. Oh, and when your period comes back, beware, because it comes back with a vengeance!

  • birdgirl
    birdgirl Member Posts: 8
    edited May 2012

    Hi everybody,

    I am happy to find this thread. I am 29 and was diagnosed last December (the week I finished my Master's degree!). I am the mom of a 5 year old boy, a BRCA 1 mutation carrier. I am 4 months into chemo in a clinical trial (abraxane/avastin and A/C). I will have a BMX in July and also will have 6weeks of rads. 

    Look foraward to getting to know you all,

    Laura

  • Sarahmfallon
    Sarahmfallon Member Posts: 29
    edited May 2012

    Hi birdgirl (Laura).  Welcome to the forums.  I am 28 and was diagnosed last October and am a BRCA1 carrier as well.  How much chemo do you have left?  I had a BMX with DIEP just a couple months ago and am finishing up my chemo (have 5 more weeks!).  Hope you are doing well.

  • amandabiv
    amandabiv Member Posts: 67
    edited May 2012

    KK: I have heard the same thing about rads, and I am so ready to be done with chemo!! If I could get him to leave off the taxotere I would be happy, that 1 makes me feel really bad I hate it lol. I also had expanders and right after surgery every thing was a little difficult but now they really dont bother me, except how they look. Honestly mine look like a recatangle or something its sad I will not be able to wear a bathingsuit at all this year! Oh well, hope every one is doing good!!

  • NannaBaby
    NannaBaby Member Posts: 510
    edited May 2012

    Hi Ladies!

    I'm glad to hear that everyone is doing well.  And welcome to the new girls.  This group of ladies are here for you everystep of the way :) Don't be shy to ask questions. Even the embarassing ones! LOL

    I see a couple of you are starting Rads soon.  Rads are easy :) The hardest part is the last week.  When the skin starts to show redness and peeling like a bad sunburn.  The best you can do is keep your skin well hydrated.  I took baths to help keep the dry skin soft and help peel off and ease itching.  For the couple small sore spots, I used polysporin with pain relief.  After rads are all done, it takes only a couple weeks to go back to normal.

    Take Care!

  • birdgirl
    birdgirl Member Posts: 8
    edited May 2012

    Hey Sarahm, I finish chemo at the end of May. I am also looking at the DIEP procedure, but I will have to have delayed recon due to radiation. I won't get my foobs until this time next year.

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