March 2012 chemo

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  • KCB
    KCB Member Posts: 365
    edited March 2012

    Westwoodmom: what a great message to be able

    to give your daughter, empowering! More

    Little girls should have a chance to learn this.

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  • KCB
    KCB Member Posts: 365
    edited March 2012

    Karri: I hope you have a great time for your daughter's birthday! Love and cake and presents. Perfect.

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  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    Catherine, I had one night when I felt kind of fluttery but it passed as far as the heart response.  But I have had palpitation issues in the past.  If it continues, it is worth a call to your MO (they will probably say like they tell me for everything, "oh that can happen" :)

    About day three or four, I just felt stupid, I couldn't think for the life of me.  And today just doing something like putting the hose in the vaccuum took me a minute because I was fumbling at it. So yes the brain fog is real - I have a SIL who is on an injectable chemo for her MS that had warned me about that, she has problems with names, remembering things, etc...

    I appear to be on the same schedule (mine is A/C every 3 wks)  My next one is April 9th. And I just got OFF antibiotics for a blood infection that happened between my SNB and port insertion.  I have to say I think the antibiotics made it worse as far as my nausea because I had to take them on an empty stomach - blech.

    Thanks Katy - about to make the frosting now - I typically burn the caramel at least once so I need to get started!!  We have her gifts from us and my parents and some flowers I had my mom pick up all set out as well as the cupcakes...a far cry from the balloons and streamers of birthdays past but I think the simplicity of it is nice as it is her 12th b/day...

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  • Catherine22
    Catherine22 Member Posts: 36
    edited March 2012

    I hadn't thought about the antibiotics being an accomplice to the brain fog. Makes sense now....I am new to the boards and would love an acronym guide (!), what is SNB and SIL? I know there are a few other ones I didn't know as well....I'd love an insiders guide to them.

    :)  

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  • Love74
    Love74 Member Posts: 175
    edited March 2012

    Hi Catherine and Welcome!  SNB is Sentinal Node Biopsy and SIL is Sister in Law.  It took me a while to figure them all out too!

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  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    LOL - actually there is a thread on here that has the acronyms all listed - it is under the New to Breast Cancer/New Here Forum....I had to get used to BS being breast surgeon and not bull...well, you know...

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  • tellie_savalis
    tellie_savalis Member Posts: 121
    edited March 2012

    Shaved my head last night. I kept shedding yesterday and didn't know what to do with the hair.  Eating was the worst, my hair kept falling in my food.  Also my hair hurt.  It felt like I had a sunburn on my head. 

    This morning I was brushing my teeth and looked in the mirror and scared myself.  I had forgotten I shaved my head!  Anyway just wanted to say for those of you getting ready to shed/shave my head is freezing!  I live in the PNW so I have a lot of fleece hats fortunately.  But if you don't have a warm hat or scarf around maybe get one. 

    Have a great day everyone! 

    Karri- My son's b-day is falling right in the chemo fugue for me. He is being super understanding though, it is amazing how  great they are.  It is great you are baking for your girl.

    Catherine and all new people, welcome.

    Lost- too funny.  I think I will start referring to myself as seven of nine.  But how cool they ask you that, wasn't she the super hot one?  I feel more like when Picard was being assimilated.  I even have the same hair Tongue out.

    Michelle- That is too cute! I am still smiling about it. Khemo-sabi!

    Sakura- thank you for inspiration and support.

    Okay, I feel like I am giving an award speach and they are playing the music. So I will just say best wishes to everyone and min SE's

    Corky 

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  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    Corky

    Isn't the cold head feeling weird?!  I slept in a toque the first night LOL!  I was frozen.  I have to say I love the way it feels in the shower, almost like a head massage.  Good for you for taking the reins.  It sucks but I think it beats having it in your food and everywhere else for that matter.

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  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited March 2012

    Lol karri! I had to get used to that one to! Enjoy the cupcakes they sound awesome. I had the fog this morning myself. I usually can take 10 minutes to make hubby's lunch and coffee. I stared at the inside of the fridge for 5 minutes.trying to figure out what to use to make a sandwich and never even started the coffee. Also just woke up from a 3 hour nap! Guess its going to be one of those days.

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  • kltb04
    kltb04 Member Posts: 1,051
    edited March 2012

    Corky, congrats for taking the big step.  LOL at the reaction in the mirror.  I am in the South so it's already hot as ... around here but in the house, I keep it cold so I have a few caps/bandanas...guess I should wash them in some tide free to get them softened up a bit.

    Ok, you can't post a picture unless you have an online link where a image is stored so I think I will just change my profile picture so y'all can see the fruits of my labor today.

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  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited March 2012

    Wow karri! Wish I had the energy to do that. I could probably find the energy to eat one though! :)

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  • Kymn
    Kymn Member Posts: 999
    edited March 2012

    Hello ladies, so sorry to see so many of you on this thread, I am from the 2011 March thread. Started March 17th (yep st.patties day) last year and finished June 30th. 6 rounds in total and then off for 33 rounds of radiation. Just want to encourage all of you that although it is all consuming right now, and scary, and emotional it truly does get better and life does go on, with a whole new outlook. I rarely talk or think about cancer anymore I cant beleive I am saying that but it is true. I managed to work through the chemo for the most part. The fatigue is probably what gets you the most as you go through each round. Good luck to you all and please feel free to PM me or any of the other girls I am sure if you have any questions or just want to vent.

    oh and this is me now I have hair again :) and its cute lol.

    Cover Photo

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  • Sissydi
    Sissydi Member Posts: 516
    edited March 2012

    Thanks Kym! Having a down day, and this really helps ;)

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  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited March 2012

    Just what I needed today. Been laying on the couch feeling like a slug. It's good to see the light at the end of the tunnel. Have a blessed day Kim!

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  • tc9876
    tc9876 Member Posts: 136
    edited March 2012

    Thank you for sharing Kymn. You look vry cute & healthy.  I can't wait to reach the other side.

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  • onvacation
    onvacation Member Posts: 1,344
    edited March 2012

    Thanks for stopping by Kymm!  Your hair looks adorable!  

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  • hopeful123
    hopeful123 Member Posts: 191
    edited March 2012

    Had my first Tx (AC) today just feeling light headed and tired.

    Kymm- Nice to see your update. Makes us feel that there us light at the end of the tunnel. You look awesome.

    Karri-cup cakes love the idea. My sons 10th birthday is May 1 so need to come up with ideas. Hoping it will be a good week as May 8 th is my third infusion if everything goes per schedule.

    Regarding hair would love some input- is it more painful to wait for it to fell off?? Does shaving it once you start seeing the falling help?? I am not emotional about it so would want to do whatever is easier for me. My hairdresser says she will come home and do it for me so that should help.

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  • onvacation
    onvacation Member Posts: 1,344
    edited March 2012

    hopeful123 - yea i want to do what is easier on the hair too, though I am sure it will be emotional!  I just don't want to start wearing my wig any sooner than i have to!  I know it is going to be HOT to wear since it is alreay 80's and it isn't even April yet!  I am guessing Easter weekend will be the time for me - that is 15-20 days so I hear that is when it starts!

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  • C-squared
    C-squared Member Posts: 514
    edited March 2012
    I had my girlfriend ( a hairdresser) come to my house.  I sat with my back to the mirror and she cleaned all of the hair off of the floor before I could see it. She did a buzz cut versus going completely bald. I truly think that these strategies helped allot! 
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  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    hopeful and onvacation

    I can only say what worked for me but 3 weeks after my 1st TX is when is really starting to thin badly and my scalp was sore.  I can only assume it was from the weight of my hair pull on it.  Day 23 I had it buzzed and while I hate being bald, it did feel alot better and my scalp didn't hurt anymore.  I would say wait until you can't take it and hang on to your hair as long as your comfortable.

    Kymn

    Thank you for posting, you look fantastic.  It makes my day when those of you are on the other side of treatment do this for those still in the middle of it all. Thanks!!

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  • CAYH
    CAYH Member Posts: 99
    edited March 2012

    Awww - you gals are all great!  Thanks for the chuckles & the cheerleading, too...

    Love to read everyone's input at the end of the day - it's so supportive here!

    Had my chemo class  today:  only one younger woman :-(  there with me & hubby.  Too bad we have different treatment days - it would have been nice to go along together.  My PICC line went in without a hitch & hardly felt a thing - the nurse was so kind & told me exactly what she was doing each step of the way as I watched my artery on the ultrasound screen - pretty cool, process!  

    I don't even feel anxious about my first tx tomorrow - had another tour through the chemo lounge today too & that put me right at ease.  Hang in there Marchers - we'll soon be old pros at this...

    & then it'll all be done & we'll look as good as Kymn - Wowie! Kiss

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  • CaitlinB
    CaitlinB Member Posts: 121
    edited March 2012

    Hi Ladies,

    Had my first dance with the (red) devil today.  So far, I have a headache.  

    The dispointing thing was that they think they may have found more cancer in my pectoral lymph node.  I am having a biopsy on Friday.  

    How is everyone else doing?

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  • Sissydi
    Sissydi Member Posts: 516
    edited March 2012

    Hi Caitlin! Sorry to here about the lymph node; seems right when we have a grasp on what's going on, things change! I just did my 2nd red devil treatment last Monday, and it was much harder for me the second time., but I have better drugs for s.e.s now. ...not looking forward to treatment 3!



    Feeling kind of down today; I feel like this rotten disease has already stolen so much from me! My husband travels a lot, so I'm home alone some. My kids are in college, and my family is on the west coast. My friends have stopped checking in so much; they were all about it at the beginning, during surgery, but now that it's stretching out so long, I think they are all moving on....I feel so left out, I have no one I know personally whose had breast cancer, so my friends can't relate. Thank god for these boards :(

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  • hopeful123
    hopeful123 Member Posts: 191
    edited March 2012

    Sissydi

    Sorry to hear your lonely. That must be hard. Write to us here we are all in this together to get through this. You are two down that's great. Half way with the AC which is the tough one.

    Take care

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  • Januaryice
    Januaryice Member Posts: 120
    edited March 2012

    Cayh- I have my first tx tomorrow also. I think the worst part is just not knowing how your own body is going to react. I want to thank all my fellow marchers for all the posts. It really does help!!! I have picked up so much info. that helped with some of my questions to ask my doctors. Thanks!! I'm just making this group by a couple of days but I can feel all of your support. A small note that I did get my hair cut real short on Monday and it feels great. I just might keep it this short after it starts to come back. Thanks again and please be thinking of me tomorrow morning.

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  • KCB
    KCB Member Posts: 365
    edited March 2012

    Thanks Kymn! It helps so much to see the other side. I'm doing FEC-D also... Are you Canadian by any chance?

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  • KCB
    KCB Member Posts: 365
    edited March 2012

    Sissydi: I'm so sorry to hear how sad you're feeling. I know this board has been a godsend for

    me too; to hear the voices of other women who I KNOW totally understand what I feel, and to share low times and good moments and ridiculous moments with people who understand. We're not going anywhere.

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  • Januaryice
    Januaryice Member Posts: 120
    edited March 2012

    Cayh- I have my first tx tomorrow also. I think the worst part is just not knowing how your own body is going to react. I want to thank all my fellow marchers for all the posts. It really does help!!! I have picked up so much info. that helped with some of my questions to ask my doctors. Thanks!! I'm just making this group by a couple of days but I can feel all of your support. A small note that I did get my hair cut real short on Monday and it feels great. I just might keep it this short after it starts to come back. Thanks again and please be thinking of me tomorrow morning.

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  • DianeC
    DianeC Member Posts: 38
    edited March 2012

    Well, I met with my MO and found out that I am Stage 2, ER+/PR+, HER2-, Grade 2.

    He said that I had choices and showed me my life expenctancy through a computer program. We talked about risk versus possible heart and organ damage and the percent that would be gained by going for the most agressive treatment.

    He also told us that if I had more node involvement he would recommend the more agressive treatment, but since I only had one node involved, and the cancer was so small, he is recommending the chemo withthe estrogen receptor blockers. He said I would lose my hair and probably feel awful, but the life expectancy is good. 

    I will be starting my chemo in April, so I think I need to move to the April 2012 chemo group. 

    Thank you to my March 2012 chemo sisters. May the Lord hold you in His hands and close to His heart.

     Diane C

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  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited March 2012

    Sissy sorry you're feeling so lonely and down. This disease is all consuming at times. This board is the perfect place to stay connected. It's hard when you're in seclusion due to.the chemo and all you can do is sit back and watch the rest of the world move on. We WILL get through this and be back out there. Stay strong and you can message me anytime.

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