Too early for April 2012 mastectomy?

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  • Mardibra
    Mardibra Member Posts: 1,111
    edited March 2012

    I'm also pretty calm about the whole thing. Want to just get it done and put this f'ing nightmare behind me. I had a lumpectomy back in October but they couldn't get clear margins. Docs felt it was better to have chemo first then UMX. So, my only low point was during the end of chemo when I didn't think I could do anymore. But here I am done with chemo. So for those of you facing it, try not to stress out. The anticipation was worse than the actual chemo. However, I am bald! Can't wait for my hair to start growing back! I have to have radiation after surgery so the PS won't do my DIEP until 6 months after radiationis completed. So I will be stuffing a fake silicone "foob" (fake boob) in my bra for a while. My dx was also out of the blue...never expected it. No family history. Nothing.



    I'm still stunned that there are so so many of us with BC! I find it amazing. Anyone else as shocked as I am?



    I'm anxious to get my life back. I'm 45 and have been to more doctor appointments in the last 6 months than I have in my entire life.



    As far as surgery recovery, they offered me a visiting nurse. Fine with me!



    Happy thoughts to all.

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  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    hi everyone old and new. I haven't been writing much but still reading the emails I get during the day. I've been staying very busy at work which is great so my mind does not wonder but the stress from work and the stress from this shit makes me feel like I'm having a heart attack which I'm not but wow it's crazy. I had to go the dentist today to finish up some dental work which was started right before all the biopsy's but have to get it done over the next few weeks before the 4/23 feel like I need a new body at this point..actually after dinner tonight I said to my daughter, 16, that I was in the mood for vanilla ice cream she said go for it you're getting a new body, I said no I'm not, she said yes you are you're so lucky.  Lucky, OMG I wish. Anyway, It think even calm filled with anxiety as I am sure everyone is. Good luck to all!!! 

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  • ndroby
    ndroby Member Posts: 104
    edited March 2012

    Hi Jenny,

    I live in the Dallas area as well and have PBMX with TEs scheduled for April 10th. I was being pushed into a preventative hysterectomy at the same time, but have decided to defer that surgery as it just seems like too much surgery.

    PM me and we can compare notes if you like.

    Nancy

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  • sony22
    sony22 Member Posts: 25
    edited March 2012
    1. Gamaniki-I will be praying for you tomorrow. God never gives us more than we can handle. Lisamarie Im still hanging in there. Oh I had my preop on Monday. I have all my info. All of you have given such great advice.  Reality is really setting in. To all my surgery sisters sleep with the Holy Angels...
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  • GmaNiki
    GmaNiki Member Posts: 42
    edited March 2012

    Thanks for the prayers and positive energy. It is 6 am and I have been up since 4, cant wait to get some meds to relax me. Turned the phone off at 9 last night hoping to sleep. Already had messages or talked to everyone that really counts. Guess I will go stand in the shower and see if that helps. Oh yeah, major heartburn.... Just want this all over! Thanks again everyone and I will update when I geyt back home.  

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited March 2012

    GmaNiki,

         Love you .. Hugs to u ... {{remember im with u }} Praying all day ... rest well my friend  

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  • BelaT
    BelaT Member Posts: 217
    edited March 2012

    so many of us here that I am overwhelmed. Hugs to all and I will be praying for each of us. I will take time to get to know each one by name soon. I am too much sad ATM

    Love Hugs

    Bela 

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited March 2012

    Gmaniki- thoughts and prayers are with you.

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  • Judy6
    Judy6 Member Posts: 54
    edited March 2012

    Gmaniki, love hugs and prayers!!!!

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  • aussie12
    aussie12 Member Posts: 462
    edited March 2012

    Hi all

    Just a question. Here in Australia on tv adds have just started about the effects of drinking. On these adds they say too much alchohol can contribute to breast cancer? I've never come across this before, has anyone else? It didn't cause mine as I haven't had a drink in years!!!

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  • markat
    markat Member Posts: 909
    edited March 2012

    Hi ladies I wanted to jump in and join the group. I don't have a date set yet but I am 1 week finished with my final chemo and meet with my onc today to discuss the next steps.



    I'm 30 years old and have two girls ages 8 and 7. I was diagnosed in Nov and have been through 6 TCH treatments. I will finish my herceptin treatments after surgery.



    I'm so confused about all the reconstruction options and really terrified by surgery. My port surgery was my very first surgery!



    Anyways just wanted to introduce myself. I'm sure next week will be crazy meeting with BS and PS and getting tests.

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  • keonghi
    keonghi Member Posts: 111
    edited March 2012

    Gmaniki all kinds of loving energy and prayers coming your way.  Look forward to hearing from you on "the other side" and following your healing.  (((Hugs))))

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  • Mardibra
    Mardibra Member Posts: 1,111
    edited March 2012

    Hey Markat - nice to see a familiar name!

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited March 2012

    Aussie, I have heard that about the alcohol . and I have read it as well in a book called Dr Susan Loves Breast book .. I bought it when I first became diagnosed some ladies suggested it .. then I drank a lot for many years and thought OMG i did this too myself .. ya know but one never knows what really brings this on .. just like any other cancer ... Frown

    Welcome to MarKat .. sorry u have to be here ...  

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  • jen70
    jen70 Member Posts: 25
    edited March 2012

    Well, my official date is April 12th.  I'm glad I don't have to wait too much longer.  I'm surprised by all of the pre-op appointments scheduled.  One at the hospital, and one with each surgeon.  I'll be doing a BMX with TE's.

    Good luck toorrow Niki!!  I'm with you, let's just get it over with!!

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  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    Thinking about you today GmaNiki.  Hope you are on the other side now and begining the recovery.

    Had my teeth cleaned today with a new hygenist.  Told her about the surgery, she said, "What stage are you"  if figure ok, rather direct, but ok.  So I told her, she replied, "Oh, I thought you were going to say stage IV or something."  WTF?

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited March 2012

    Wow Plymouth that was kinda rude huh ??? I also want to get my teeth cleaned due to quitting smoking , I think it may be a nice treat .. :) 

    GmaNiki ... also hope u are resting well at this point ... thinking of u ....

    Hugs to everyone :) 

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  • markat
    markat Member Posts: 909
    edited March 2012

    Hi Mardi!!!



    I have my surgery consult Monday with the BS so I should be getting a date soon.



    Hugs to those that are having their surgeries!

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  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    So whose not on our page 1 waiting list, I was trying to go back and forth but I got confused.  Post date if you want your name listed.

    Hope GmaNiki is pain free and sleeping.

    Yeh, Lisamarie, thought that comment was weird. (also, you are doing a great job smoke free,get those teeth cleaned!)

    I read a thread about things people say to us, I guess it is one more form of they just dont know what to say.

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  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    First full post op day for GmaNiki.  Maybe she went home today.

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  • rtnyc
    rtnyc Member Posts: 155
    edited March 2012

    hi there, hope everyone is well today and GmaNiki is on her way to feeling better.  So yesterday, I woke up with a bad cold and pain in my right boob. I turn over in the middle night and it's killing me. I hate this waiting because every pain I get its OMG it's spreading I need surgery NOW!!!!  So I called the BS office who is on vacation, becuase it's spring break here in NY, and the nurse tells me it's probably scar tissue healing from the biopsy, how can that be the last biopsey was Feb 14thish; no where near the scar but I guess could be where they took out the bad cells deep inside. This is going to be a long 24 days til surgery!!!! 

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  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    rtnyc, I have had pain, intermittent, on the excisional bx side,sometimes not near external scar, I think once nerves are cut they fire sporadically and cause pain.  One of my several 2011 miseries was a huge MRSA infection in my arm pit which needed an I and D, that too has pain sometimes.  It is almost April

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  • ndroby
    ndroby Member Posts: 104
    edited March 2012

    Hi All,

    Yes, it's almost April and I am starting to freak out. My surgery is April 10th, just 5 days after the 50th anniversary of my mother's death from breast cancer. She was only 33.

    I keep on having intermittent breast pain where the titanium markers were placed..don't know if this is psychosomatic or real. I refuse to call the BS as he is a real butt...love the PS though.

     I had ADH and ALH on the core BX and decided to do PBMX. I have had 14 biospies in my 52 years of life and I am so tired of this. I have a nasty feeling that this is a hidden cancer in very dense breasts, and I think it's real bad. I have agreed to get injected for SLN BX--ugh! Freaking out is no fun!

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  • keonghi
    keonghi Member Posts: 111
    edited March 2012

    The last weekend before the April MX's start!!  Good luck and positive outcomes to all you lovely ladies.  I don't know about you guys but I kinda got tired of telling family and friends "what was going on" over and over.  So, I saw this site on one of the threads here.  It's called caringbridge.com  It allows you to invite family and friends to follow your journey.  I keep a journal updating any trips to the docs and any other random thoughts I might have.  They can post loving thoughts in the guest book and it just makes me feel good to have them on the journey with me (and I don't have to keep repeating myself).  Just thought I'd share!

    Prayers and (((hugs))) to this weeks upcoming surgeries:

    4/2 Jennyrjd

    4/3 arenee

    4/4 Judy6, Elsbeth, FLIslander

    4/6 Anabelle

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited March 2012

    My surgery date is 4/11. How do I post it?

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  • aussie12
    aussie12 Member Posts: 462
    edited March 2012

    My surgery is 16/4. For everyone in the US this means 16th April, we do our dates different here in Australia!!!

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  • ppeople
    ppeople Member Posts: 207
    edited March 2012

    List on the first page has been updated with you gals.  Anyone else need to be added, sign up while the gettin' is good!

    Wow, keonghi, that's a big group for this week.  How are you ladies doing?

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited March 2012

    Can you please add mine. It's not up there yet. 4/11   I don't want to jinx myself. Thanks

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  • VeganGal
    VeganGal Member Posts: 154
    edited March 2012

    Hey Ladies . . . I haven't been on the board for about a week . . . don't really know why . . . I've been trying to have a "cancer-free" week . . . not there will ever be such a thing anymore . . . but I've been trying. Then, this morning, I finally sat down and read this whole thing I got sent by my PS about "post-surgical" stuff and felt a little sick . . . so, now, after a pretty decent week, I feel really sad again . . .

    I just can't seem to balance this idea of "being prepared/knowing everything" . . . and not letting myself get too upset by things that may not even happen to me . . .

    How are the rest of you preparing???? Do you want to know all the possible stuff about lymphdema etc. . . . or you gonna take it as it comes????

    Ug. Loosing balance . . . . . . . . . . .

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  • Raelan
    Raelan Member Posts: 200
    edited March 2012

    Hi Ladies - This is my first post. I've been lurking for awhile and can't begin to tell you how helpful it's been to learn from you all.  Was just diagnosed on 3/10/12 and am scheduled for a BMX on 4/4 with delayed reconstruction (implants).  Hoping the delay is short (i.e. 6 weeks), but in the event I need to do chemo, it may be longer.  Have been on a roller coaster ride the past few weeks meeting with specialists, etc, to try and figure out my overall treatment plan, but feel very good about where we ultimately landed.  

    Unfortunately, we have a strong history of breast cancer on my mom's side (she had it at age 52 and is still alive and kicking), along with my dense breast tissue so I've opted to be very aggressive with my treatment.  I did test negative for the BRCA gene, but still feel there must be something going on in my gene pool. 

    Am a little anxious about surgery next week, but have come to terms with my decision and am just ready to get these nasty cancer cells out of me.  Lymph status and/or the OncotypeDX will determine if chemo is required.  Crossing my fingers it's not, but am prepared if it is.

    Am using this weekend to get everything in order.....using my nervous energy to get the laundry all caught up, changing all the sheets on the bed, and stocking up on food. This is how I cope.....helps me feel like I have some sense of control over my life, as little as it is at the moment!

    Oh, just went out and bought some button up PJ's, a few lounging outfits, and some nice comfortable sweats.  Figure I'll be living in these for a couple of weeks!  At least my mom will be coming to help out....thank goodness.  She's had two masectomies....one when she was initially diagnosed, and a prophylatic on the second one about 5 years later because she got tired of the yearly "scare" everytime she went in for her exam.  She's never looked back.  She'll be great to have here since she's "been there, done that".       

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