supraclavicular node

I did not have a supraclavicular node but did have an infraclavicular node positive. The surgeon did try to find it when I had my mastectomy but couldn't get to it. After chemo, that node no longer lit up on the PET scan. 

 I think having a supraclav. means that you are Stage IIIC for determining your treatment plan.

 I wish you the best. Hang in there,

Annie 

They found it on a PET scan. It was not swollen.

As you can see from my signature line, I had many nodes postivie the first time around.

Welcome Kate, sorry you've had to join us here.  I didn't have supraclavicle node + but did have intermammary + nodes (between the breast), hopefully someone will chime in with more experience.  They didn't remove my nodes but zapped them with rads and chemo took care of them also.  I'll be thinking of you tomorrow and hope everything goes ok.  This site has saved me many, many days, I hope you come back often and find the support and info you need here.  It will get better, it's so hard and scary at the beginning.  We're here if you need us. 

A clarification on my post. I did not get rads on my infraclavicular node because that area had already been radiated in round 1.

 And the pos node was found on a Pet/CT. MRI did not pick it up (if I remember correctly).

 Annie

When I was originally diagnosed, I had an MRI before any surgeries.

Sherri - Yes, I have had two breast MRI's, a CT Scan, an NM bone scan and recently a PET Scan, as well as a MUGA heart scan.

But, I also have had a mammogram every year since 40 and as recently as six months before my diagnosis of ILC at nearly 5 cm.  Nobody could find it on any scan.  My husband found the lump.

Oh, and I also had 3 breast biopsies, 2 due to being on a clinical trial for six months to test the anastrozole's ability to shrink my tumor prior to surgery, which it did in half. 

Hi

I had a re-diagnoses in 2009 of infraclavicular nodes (2) four and a half years after original diagnoses, had six rounds of Taxotere and boost radiation to those two nodes.  But just this past December another node showed up on routine CT Scan.  Started Navelbine with Herceptin and just today at the half way mark of my chemo, found out that my repeat CT scan cannot detect any disease.  So something is definately finally working.  By the way, I was the one that found this new cancer because when I touched my chest below my collarbone it felt thicker and firmer than the other side, so I questioned the dr. about it.  The tumor is also pretty deep in the pectoral muscle which made is inoperable.  

Betsy