Too early for April 2012 mastectomy?

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  • kenyohunt1
    kenyohunt1 Member Posts: 53
    edited March 2012

    Hi all I am having surgery in April tentatively set for Apr 26th. I am having a mastectomy on the right side (preventative) and lymphnode disection on the left (Left Boob was already removed 3 yrs ago) this is the second go round for me.

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  • FLislander
    FLislander Member Posts: 243
    edited March 2012

    Ndroby

    I had pre chemo because of large tumor and my surgeon strongly convinced me only to do one side now and heal and get healthy before more surgeries. You do not have to do anything more than you want. Don't feel bad to say no if you want to heal between surgeries, I hate telling them when they have the experience but you do have the right to say no or yes.

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  • FLislander
    FLislander Member Posts: 243
    edited March 2012

    Just an add on I'm losing a lot of skin because it's attached so that's another reason I have to wait but everyone has a different plan and circumstances

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  • Zarasbaba
    Zarasbaba Member Posts: 103
    edited March 2012

    Good Morning everyone!!!



    Well my BS called me last night and that's why I stayed with her because she is a very caring and she knows her shit lol doctor,

    She told me she received more results on the breast tissue , and it seems I may need chemo ;(

    Lovely, after I just spent over $225 bucks to have my hair done two weeks ago, like I said before, I'm getting my old girls removed I'm 51, they like everyone else, they have been with me for a long time, my DH is taking the lost of " the girls" kinda hard lol,



    I have two small masses, plus a slow moving cancer, all though my right girl, so she's gotta go,

    If it were the two small masses I would just remove them and move on with my life,

    Now I feel I'm at a stand still, I'm being strong about this whole thing put in front of me,



    I have a household of males, who gets weak at the sight of blood,nor there own blood, I don't know whatim going to do know,because I'm having the DIEP Flap, my sister who lives in Jackson NJ is like two hours away and she has a full plate of her own, she is a single mother of two, and one is mentally ill sad to say and doesn't like taking him anywhere with her because he has melt downs all the time,

    But my sister is strong, and she is a Beliver and very strong Christian, and that is what getting her though everything,

    My point is how can I ask her to stay a week with me? This whole thing is a mess if you ask me....

    Just venting,

    In about 20 mins I have to go LAG airport to pick up my son.



    Has anyone though about a nurse coming to their home to help out?

    Do I really need a nurse ???

    Hugs to everyone!!!



    Tammy

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  • BelaT
    BelaT Member Posts: 217
    edited March 2012

    I will be scheduling mine soon it should be around 12th? Any advice will be appreciated. so nervous and scared.

    bela 

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  • Zarasbaba
    Zarasbaba Member Posts: 103
    edited March 2012

    Welcome Bella ...warm hugs... Just know we'll all in this together...

    I think we all feel th same ....no one wants to be here, but here you can get som tips and vent vent vent!!! There's a lot of sweet warm hearted women, here to give you surport as you walk down his path

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  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited March 2012

    Hi Tammy!  I read your earlier post and had to smile and shake my head, 'cause my household is all guys, too.  Actually, though, my sister has been staying here since last Thursday evening (she leaves today) and she's been taking care of routine household stuff.  My hubby has helped me shower and strip the drains and has done such a good job, so I'm lucky there.  Smile Check with your insurance about home health care though - mine asked me a couple of times if I needed it.  Hopefully they can fix you up.  I imagine there must be some plan for people that are on their own. In my case with the BMX, I've mostly felt pretty good - not been totally incapacitated, I mean.  I've just needed help with the drains and showering and a little bit with dressing, as far as personal care.  

    I know what you mean about the hair!  I was all set to try to save mine but when I read that you can't dye during chemo - well, forget that.  I'll just get a cute wig or two.  At least I think chemo is probably a couple of months off while I heal up.  I imagine it'll be similar for you.

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  • BelaT
    BelaT Member Posts: 217
    edited March 2012

    Thanks Tammy. I have appointment thursday with surgeon.I am so scared

    :(

    Thanks

    Bela 

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  • BeachComber2005
    BeachComber2005 Member Posts: 10
    edited March 2012

    Diagnosed on Feb 21st, mastectomy on April 6th.  Spoke to a 9 year survivor last night who called the pain horrendous......now I'm really concerned.  Hope I can get through this!!

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  • longislandmom
    longislandmom Member Posts: 248
    edited March 2012

    BeachComber --  i have spoken to many women who have been through BMX. at least 6 personally in the past two weeks since my diagnosis.  nobody called the pain horrendous.  It'll hurt to be sure..but that's why there are good drugs.  I have heard from everyone...the first week is pretty bad.  second week is better...and week three and four your are on your way back to yourself.  so really-- it seems like week one is the toughie...but we can take painkillers and sleep as much as possible.  the bottom line is that none of us chose this shit..but now we are facing it.  try to keep focused on coming out of the other side and feeling good.  the pain will hopefully be a very temporary piece of our journey towards health.  peace

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited March 2012

    I am scheduled for 4/11 and I am having TE's.

    Lisamarie- isn't this the 2nd time your surgery date has had to be changed along with your mothers plans? I think I am the oldest here. I am 51. This whole bc crap started when I was 43 though.

    I am sitting here drinking the crap they gave me to drink for my body scan tomorrow. I am having a hard time choking it down. They should make a rum flavor or margarita flavor or something. It's coffee flavored and I hate cold coffee, plus it is thick. I am nervous they will find something else wrong with me tomorrow. I like being in denial. The doc's tend to keep looking until they find something.

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  • Zarasbaba
    Zarasbaba Member Posts: 103
    edited March 2012

    Hey everyone!!!

    Indigo, the only thing I guess I'll be needing is help with the drains , and I'm going to look into a nurse or a nurses aid, to help me with the drains.......



    There must be something wrong with me? I'm havering no emotion about this? Im very calm, and it has to be the power of prayers my sister and my friends and family are praying for me, and I give God his Glorly for it!!!!



    Bella wrapping you up is a warm blanket and sending you warm hugs and positive thoughts your way!!







    beach... I haven't spoken in person to anyone who had these surgery, just a few very sweet woman on these boards and they haven't really said anything like the pains so bad,

    I think it depends on the person, now as myself Ilive in pain like all the time, do to a very bad back, as a matter of fact I was to have major surgery at the end of March, but the nasty got my butt....lol...

    Sending you warm hugs and prayers and positive thoughts your way!!

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  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited March 2012

    BeachComber2005 - another thing to keep in mind is that medicine really has changed in the past 9 years. What was true back then has totally changed by now probably. I had surgery more than 20 years ago and had a HORRIBLE reaction to coming out of general and so I was very fearful before my first surgery. It all went fine though and I did not have any of the troubles that I had the 1st time around. I know that 9 years is not 20 years, but I also know that researchers continue to make advances in medecine and patient treatments all the time.

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  • Zarasbaba
    Zarasbaba Member Posts: 103
    edited March 2012

    I wish they had a like button

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  • BeachComber2005
    BeachComber2005 Member Posts: 10
    edited March 2012
    Thanks for the encouraging words, Long Island Mom!  I'm 53 years old and have had perfect health my whole life, not on any medications, so all of this is so unsettling!  I'm sure I'm just being a baby....but it is scary!  I was hoping to be back at work, at least part-time, the following week.  But it sounds like that I better plan on a little longer.  Yell  But you are absolutely right, I need to focus on a few months down the road when this is all over.  It's a bump in the road!  Thanks, again!
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  • aussie12
    aussie12 Member Posts: 462
    edited March 2012

    Hi all

    I am having a mastecomy of left breast on April 16th, my plastic surgeon seems to think my lump (4.5 cms) might have invasive cancer in it so will wait and have reconstruction after. I was diagonized with DCIS but won't be sure until after op.Like a few others I have given up smoking as well, 4 weeks without a smoke!! I've suprised myself, didn't  think I would last this long. 

    It's strange reading posts from the other side of the world and knowing where all going through the same thing.

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  • BeachComber2005
    BeachComber2005 Member Posts: 10
    edited March 2012

    Thanks, Gabsbaba....I'm sorry you're in pain all the time.  I just can't imagine that.  I have been very blessed with good health, and been pain free my whole life.  This is a bump in the road, that will pass.  Hugs and prayers are coming back to you! 

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited March 2012

    DianaRose , my orig surgery date was April 10 .. now it is April 24 th due to the PS couldnt do the 10th ..My Mom only had to change one flight ..lol .. Glad she is coming cause I dont know If I could have done it alone .. although they did tell me that they can send nurse to help ...mine is so far away still that I am so full of anxiety and it gets worse every day ... 

    I hope all the best for u dianarose for the body scan . I pray that they find nothing !!!!

    Welcome to all the other April Girls .. sorry we gotta be here ... But we are all here to help each other :)

    {{{Hugs}}}  

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  • BeachComber2005
    BeachComber2005 Member Posts: 10
    edited March 2012

    I hope that is the case!  I have been strangely calm and unemotional since my diagnosis, but when she used the word "horrendous" I felt my nerves kick in!  But I have to stay focused on the outcome....not what I'm going through right now!!  Thanks for the encouraging words! 

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  • GmaNiki
    GmaNiki Member Posts: 42
    edited March 2012

    Tomorrow is my big day. Not sure how I am really feeling, didnt take my anxiety medicine yet today have been holding off as long as I can. I know it helps, but sometimes I am afraid I will miss something, want control till the last possible moment. Not worried too much about pain, I am confident that will be controlled by meds. Have to remember to tell them I get nauseous after generals so to be sure to get anti nausea meds too. Finished my last list this morning. have some bank accounts to deal with later today so everyone gets paid and my DH has access to cash. Normally he doesnt do anything with household funds, he has had several strokes and has some short term memory issues and stress makes it worse, so I have to try to get all this stuff worked out for him so it is easier on him. He is so supportive of me, but I know the anxiety can set off his emotional episodes so I worry more about him than myself. Today is the day when I amreally thinking about the changes to my body and worrying about what they will find in there. I know they said I shouldnt need any further treatment after surgery, but they also toldl me it was only a small area of DCIS, then two areas, now three areas, 2 different types, one very large and agressive. I really dont know if I could handle chemo and/or radiation. Anyway, ranting again, I appreaciate the prayers, and I will be watching as each of your dates comes up. Prayers and love to you all. Imagininary hugs only, as a real one might hurt.

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited March 2012

    Gamanikki, I am gonna be in your pocket during the surgery .. praying all is going to be okay {{Hugs}}

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  • longislandmom
    longislandmom Member Posts: 248
    edited March 2012

    gmaNiki -  good luck tonight and tomorrow.  we will all be thinking of you. prayers and peace coming your way. Beachcomber-  i am 47 and like, you, have always been in good health.  this came as a complete and utter shock.  i never even had calcifications or benign lumps/cysts in my breast.  perfectly normal mammograms since my first baseline at 35.  and then this.  WTF!!!  but it is what it is...i can't change it...just make the best decisions i can and try to trick my mind into fast forwarding to a healthy happy place in the future.   I am just shocked on a daily basis re: how many women are joining this list.   i can't believe that in the midst of such a worldwide epidemic they have not yet figured out how to stop this!

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  • Zarasbaba
    Zarasbaba Member Posts: 103
    edited March 2012

    beachComber....that's me strangely clam and unemotional , that's me,

    And when I had my vist to my PS, one of the PS patient coordinator she had said to me, you are very clam and about this aren't you?, I said yes I am, she said there's a lot of women, that's so scared and shaking....

    She went on to put me in touch with their, Patient Empowerment person, I did have a appointment but had to cancel it, due the a finding on the Pet scan, which turned out to be fibriode on my Uterus,

    I may make another appointment, but why should I ?

    Will she tear me apart emotional ? But she had told me when I met with her, there's beathing exercises, for before the surgery...... I have yet to call her back, perhaps I will call her.

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited March 2012

    Aussie must have missed ur post .. congrats on the Non Smoking , I am also 31 days no smokes and 12 days nicotine free .. its hard some days but gets easier ... sorry u have to be here as well.. yeah this a great place we can connect with each other from all over the world {{Hugs}}

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  • BeachComber2005
    BeachComber2005 Member Posts: 10
    edited March 2012

    Lots of positive thoughts, good wishes, and most importantly, prayers are coming your way today and tomorrow!! 

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  • BeachComber2005
    BeachComber2005 Member Posts: 10
    edited March 2012

    Hugs and prayers for all of you participating in this conversation!!

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  • BeachComber2005
    BeachComber2005 Member Posts: 10
    edited March 2012

    LongIsland - It truly is what it is....and there's absolutely nothing to do but accept it, and move forward positively!  My thoughts and prayers are with you, and the decisions to be made!

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  • annabelle64
    annabelle64 Member Posts: 18
    edited March 2012

    I haven't posted in a while - guess I'm sort of trying not to think about any of this...

    Does this bug anyone else? When sweet, well-meaning people tell you that you're looking really good? As though they expect you to look like you're going to die any second and are shocked that you don't?

     I'll be thinking about you tomorrow, GmaNiki...

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  • shabby6485
    shabby6485 Member Posts: 679
    edited March 2012

    hi to all

    i have lcis and have all my consults arranged for next week to pursue a pbmx. nipple sparing and hopefully direct to implant.

    two questions... how long did it take you to get your surgery date?  i am hoping to get this over with sometime in April.  is that pushing it?  

    now the other question... am i the only one not nervous?  maybe it will become real when i get the date?  i hope i am not in denial and every negative emotion will crash down right before surgery.  i am suprisingly at peace. perhaps due to having 11 biopsies in 4 years and not having (hopefully) to go thru this stress anymore. (?)  i want to get this surgery and  move on.  have had 2 excisionals in the past 4 years, so not particularly concerned about anesthesia.  some mild concern about pain after but not so much.  weird?

    Thanks and best of luck to all of you!!!!! 

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  • spicedlife
    spicedlife Member Posts: 182
    edited March 2012

    Hi ladies, it's Jenny from Texas and I have an update!  Surgery will not be until April 16th at Medical City in Dallas TX.  This is good and bad.  I have been off work since March 5th (1st surgery - lumpectomy)  hated the hospital and the whole experience and when I found out I had more cancer i fired my doctor and found a new one.  I thought surgery would be next week but when they called with the date they said it is a 10 hour surgery and unless I want another lumpectomy then I have to wait.  I want them both gone!!!I I cannot do this over and over. 

    Okay, please change my date to the 16th of April.  bmx w/ diep  

    .

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