Please Help, I'm Worried

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iamastar
iamastar Member Posts: 3
edited June 2014 in Radiation Therapy - Before, During, and After

Hi there I was giving my ct planning scan on 5th march and the radiographers did not mark me up with tattoos or ink. I then went back two weeks later and needed to get a simulator to plan my treatment.

I am half way through my 15 treatments and a letter came through the mail saying i need to get an upper abdominal ultrasound. I am so worried about this.

 Has anyone else had this ! has cancer been detected.

 Thank You  

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  • momof3boys
    momof3boys Member Posts: 896
    edited March 2012

    Bump

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  • kt57
    kt57 Member Posts: 425
    edited March 2012

    iamastar,

    Seems odd....like maybe it's a mistake.   Who is the letter from?  Is this coming from your radiation oncologist?  or your medical oncologist?    I suggest you get on the phone  to whomever issued the letter and ask who is suggesting this and why.  

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  • YramAL
    YramAL Member Posts: 1,651
    edited March 2012

    I had a similar experience, but after my presurgery MRI. My surgeon came in right before my surgery and sort of offhandedly remarked,"You have a mass on your left kidney, it could be a cyst or something you've had since birth. We'll check it out with ultrasound." Here I was, definitely with breast cancer, and now I had this to worry about!

    I had an upper abdominal ultrasound and it turns out I have what is called an "accesory spleen"-an extra spleen. Who knew? Nothing to worry about and not all that uncommon.

    I guess my point is, even if your letter isn't some sort of mistake, it could be other things besides cancer that they are looking for.

    Mary 

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  • iamastar
    iamastar Member Posts: 3
    edited March 2012

    In July 2011 when diagnosed I was given a CT scan of my abdomen and a bone scan along with a breast MRI scan. On the CT scan they saw 2 liver cysts and i was given an ultrasound just to be sure and they all came back clear. I am beginning to get scared as I have not heard anyone else getting an ultrasound during radiotherapy. 

    I am so scared of giving the doctor a call ( I know I shouldn't).  

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  • Megadotz
    Megadotz Member Posts: 302
    edited March 2012

    CHeck with you RO or the radiation nurse to see if there are issues with getting this study while havig radiation treatment.   The ultrasound  seems to be a follow up to the previous ultrasound for the cysts - a fairly standard thing to do.

    Take a deep breath and talk to your docs. 

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  • Racy
    Racy Member Posts: 2,651
    edited March 2012

    That is really poor practice to send a letter like that in the mail when you are half way through radiation. Who sent the letter? Was it from your RO?



    It is better that you call and ask for an explanation rather than find out when you go for the scan.



    I hope there is a benign explanation. From what I have seen here they don't normally use ultrasound to check for mets. They normally prescribe a PET if they need more information after the CT.

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  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited March 2012

    For some cancer centres, this is routine.  Before/during the start of both chemo/rad treatment, I had a complete bloodwork including CEA/CA125, a bone scan, an abdominal ultrasound, a chest xray, a Mugga scan, and a CT scan for the radiation simulation.  Many of these tests are simply protocol; they are a not expecting to see anything sinister, but are just making sure rather than assuming, especially if you already have a few liver cysts.  They, also, provide good "baseline" results for future scans, if needed.

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  • anonymice
    anonymice Member Posts: 532
    edited March 2012

    It could be any of the suggestions above!  Of course you're scared to death, anyone would be, but there could be many reasons for it.  It absolutely sucks that they gave you no explanation though, and you should tell them that!  And chances are it's nothing to worry about at all.

    You don't have problems with your gallbladder by any chance do you?  Have you had any stomach pain that you might have reported? 

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  • iamastar
    iamastar Member Posts: 3
    edited March 2012

    I suppose it could be I will need to phone my onc and have a word with him to see what is happening. 

    The thing that is worrying me is that no one else seems to have had this problem.

      

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