need onc. willing to let me stay on AI's after 5 years!
Hi, I am 12 years out. I was stage 3, with 9/15 positive nodes. My tumor was almost 5 cm with skin invasion. I am ER positive. Her 2 neu neg. not sure about projesterone. I did 5 years of tamoxifan, then had complete hysterectomy removing both ovaries, then went on Femara. I have been on Femara now for prob 5-6 years. My oncologist said no more. But I really feel the suppressing of the estrogen is what has made me do so well. I am terrified to go off Femara. Can any one recommend an oncologist who will at least entertain the idea and let it be my choice? I am well aware of the side effects. Anyone in Ohio, Indiana, Michigan?
Comments
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hi kate
i live in california so can't help with an oncologist. i was on arimidex for 6 years. my oncologist didn't totally refuse keeping me on the drug; however; she said 5=6 years is pretty much the limit. the damage to your bones can be significant on the AI's. additionally, the side effects (joint and inflamation) can be rough. i know that everyone is different on how they feel about being on hormone treatment as time moves on and as you continue to be NED. i wish you the best; you are doing great....12 years is a long time to be NED.
best
diana
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Just saw my chemo Dr yesterday and again he said that current research says that I'll be on Femara forever. Been on it for a bit over 2 yrs.
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Did he say why? I would like to know why he says that, I need some amunition!
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Kate - Because being IBC (Inflammatory Breast Cancer) I am at high risk.
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